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Women and ADD: The Hidden Disability–What You Need to Know About Attention Deficit Disorder

According to Sari Solden, in her book Women with Attention Deficit Disorder, “Almost all women find that life today is complex, upsetting or frustrating, but they are still able to meet most of [life’s] demands reasonably well… For women with untreated Attention Deficit Disorder (ADD), however, the demands of daily life can be crippling. It cripples their self-esteem, their families, their lives, their work and their relationships.”

ADD, also known as Attention-Deficit Hyperactivity Disorder (ADHD), affects between three and five percent of the population. However, adult ADD, especially as it appears in women, often goes unrecognized. [Symptoms outlined below.]

CHARACTERISTICS OF ADD IN WOMEN

The symptoms of ADD are many. Some are more commonly seen in women and opposite the more recognized symptoms seen in men. This makes detection unlikely and diagnosis difficult. Each person’s experience with ADD is unique. While there are a multitude of characteristics, most women with the disorder don’t have every symptom. Instead, each woman has a mixture severe enough to impair some areas of life.

Mental vs. physical disorganization

Disorganization is common and often a serious problem for women struggling with ADD. They may be unable to organize their homes, offices or lives. To outsiders, the disorganization isn’t always visible. That’s because women who lead professional lives may have assistants, secretaries and cleaning services to assist them. Some women with ADD have a partner who compensates for their organizational dysfunction as well.

Other women with ADD find clutter and disorganization an incredible distraction. These distractions, coupled with the responsibilities of everyday life, lead to mental disorganization. The disorganized brain struggles to store, weed out and organize in a logical fashion. For these women, being tidy and organized equals survival.

ADD can impact women in the workplace.

Hyperactivity vs. hypoactivity

Women with ADD can be at either end of the spectrum, either hyperactive or hypoactive (underactive). Hyperactive women may go at full speed until they crash from the overload.

Family life can also suffer with a hyperactive mother. She may be unable to sit and play games or read to her children unless she finds the activities stimulating.

Many women with ADD are at the other extreme. They’re hypoactive, unable to muster the energy to do much of anything. These women are often unable to keep up with life’s many demands. Maintaining a home, participating in family activities, staying in touch with friends, even holding down a job can be a major challenge.

Inattention vs. hyperfocusing

The problem is women with ADD struggle with the inability to regulate attention. So it doesn’t mean they can never maintain attention. Rather, the ability to focus for most women with ADD is based on interest and whether the activity is stimulating. Many women daydreamed through school when they were younger. Yet the subjects or activities they found fun, interesting or exciting didn’t pose such a problem. Adult life for these women is often the same.

Hyperfocusing, the opposite of inattention, also poses problems and can coexist with symptoms of inattention. While it may be difficult to focus on some things, a woman may hyperfocus on that which interests her and be unable to shift her attention. Hyperfocusing can last for hours, days and longer and makes it difficult to break for important matters. Meals are forgotten. Family members may carry on conversations and not be heard. Hyperfocusing puts a strain on the family. If a hyperfocused woman does manage to break away from what she’s engrossed in, she may wander aimlessly and forget what she’s doing.

Impatience and impulsivity

Standing in lines, sitting in waiting rooms and being placed on hold for lengthy waits drives some women with ADD to the brink. So they may avoid these situations altogether. These women may be impatient either visibly or internally or act impulsively. Minor nuisances can cause major agitation. Other women with this disorder are able to maintain their composure yet still feel anxious and annoyed.

Women with ADD may also be impatient about life and events. A woman may plan her whole education or life in one day and need for it to happen immediately. She goes into things full swing rather than step-by-step. This can result in a change of heart after much investment of time or money or feeling spread too thin with too many goals to achieve.

Impulsiveness is seen when women with the disorder act or speak without thinking. This often leads to trouble by spending impulsively or jumping into relationships and even marriage. Some struggle socially and interrupt conversations or blurt things out they later regret.

ADD is often misdiagnosed.
photo credit: CDC

Mood

Mood swings, being overemotional or easily frustrated is another problem. For some women, having ADD is like being on an emotional roller coaster. Extreme shifts in mood sometimes lead to a misdiagnosis of bipolar disorder, though the two can coexist.

Women with ADD are frustrated by the slightest aggravations. A simple mistake seems a major ordeal and may result in anger, storming off and dropping a task altogether. If interrupted in the midst of something, a woman may become irritable and annoyed.

Depression, although not a symptom of ADD, often coexists or is a result of the debilitating disorder. Depression in the ADD woman may stem from lack of self worth because she’s unable to hold down a job or adequately care for her family. It may also result from not achieving up to her potential because of attention problems in school or an inability to stick with anything. It also sometimes comes from feeling overwhelmed. This feeling can dominate the life of a woman with this disorder.

THE CAUSE OF ADD

Research indicates ADD is a neurobiological disorder with a strong genetic link. According to the nonprofit organization Children and Adults with Attention Deficit-Hyperactivity Disorder (CHADD), complications during pregnancy, labor and delivery, exposure to nicotine or alcohol during fetal development, or a number of other environmental factors may also play a role in the development of ADD.

MISDIAGNOSIS

Studies show the incidence of ADD in men and women is nearly identical, says Kathleen Nadeau, Ph.D., co-author of Understanding Women with AD/HD. There are several common reasons women with ADD often don’t receive the diagnosis.

Doctors often diagnose the depression that accompanies ADD, but miss the ADD itself. Women, more often than men, have coexisting anxiety and depression which must be treated as well.

Also, women who are more hyperactive, hypertalkative and impulsive are sometimes misdiagnosed with bipolar disorder.

Many doctors still look for signs of ADD more typical of boys. Many doctors fail to understand that ADD symptoms in females often don’t appear until puberty or later because of hormonal fluctuations. When girls enter puberty, during PMS and as estrogen levels drop in perimenopause and menopause, the symptoms of ADD often worsen.

In addition, girls tend to try harder in school, so their ADD patterns are often masked or overlooked by teachers.

TREATMENT OPTIONS

Several treatments are available for ADD. The most effective is prescription medication. There’s a multitude of stimulant and nonstimulant medications available for treatment.

Behavioral therapy is also beneficial both for coming to terms with the lifelong disorder and to relieve negative coping behaviors. Coaching is also useful for learning new skills and strategies for structuring life. Because ADD is neurobiological, therapy and coaching work best in conjunction with medication.

Several ineffective treatments are being marketed as well. Treatments that are suspect, according to CHADD, include dietary plans such as the Feingold Diet, vitamin and mineral supplements, antimotion-sickness medication, Candida yeast, EEG Biofeedback, Applied Kinesiology also known as Neural Organization Technique, and Optometric Vision Training, to name a few. Often, excessive claims are made about these treatments, citing a few favorable responses or studies that don’t hold up to scrutiny.

ADD can be treated.
photo credit: CDC

WHERE TO FIND HELP

An accurate diagnosis and appropriate treatment is essential. Finding a qualified provider isn’t always easy because adult ADD, especially as it affects women, isn’t always recognized. Before seeking a diagnosis, read some recommended books (see below) for a better understanding of the disorder and the diagnosis and treatment process. Also, compile a list of questions to ask your provider to ensure he/she has a clear understanding of the disorder and appropriate treatments. If you don’t feel comfortable with a physician’s responses, seek help elsewhere.

Symptoms of ADD

Some of the symptoms commonly seen in women, partially taken from Attention Deficit Disorder in Adults by Dr. Lynn Weiss, are as follows:

●      Difficulty completing tasks or following through on plans

●      Difficulty shifting attention

●      Excessively shifting from one activity to another

●      Difficulty concentrating on reading

●      Impatience

●      Frequent preoccupation in thoughts and not hearing when spoken to

●      Difficulty sitting still or excessive fidgeting

●      Sudden and unexpected mood swings

●      Interrupting in conversations, speaking without considering consequences

●      Hot tempered

●      Need for high stimulus

●      Forgetfulness

●      Low tolerance for frustration

●      Tendency toward substance abuse

RESOURCES ON ADD Books

  • Women with Attention Deficit Disorder: Embrace Your Differences and Transform Your Life (2012) by Sari Solden, MS, MFCC
  • Help for Women with ADHD: My Simple Strategies for Conquering Chaos (2017) by Joan Wilder
  • Journeys Through ADDulthood: Discover a New Sense of Identity and Meaning While Living with Attention Deficit Disorder (2004) by Sari Solden, MS, MFCC
  • Driven to Distraction: Recognizing and Coping with Attention Deficit Disorder (2011) by Edward M. Hallowell, M.D. and John J. Ratey, M.D.
  • Delivered from Distraction : Getting the Most out of Life with Attention Deficit Disorder (2009) by Edward M. Hallowell, M.D. and John J. Ratey, M.D.
  • Attention Deficit Disorder in Adults 4th edition: A Different Way of Thinking (2005) by Lynn Weiss, Ph.D.
  • The New Attention Deficit Disorder in Adults Workbook (2012) by Lynn Weiss, Ph. D.
  • You Mean I’m Not Lazy, Stupid or Crazy?! The Classic Self-Help Book for Adults with Attention Deficit Disorder (2009) by Kate Kelly and Peggy Ramundo
  • The Queen of Distraction: How Women with ADHD Can Conquer Chaos, Find Focus, and Get More Done (2014) by Terry Matlen M.S.W.

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