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Popular Gym Chain Announces Focus on Accessible Exercise Equipment

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Planet Fitness along with the Paralyzed Veterans of America, National Council on Independent Living, and American Council of the Blind (collectively “Coalition for Inclusive Fitness” or the “Coalition”) announced a commitment to expand access to accessible exercise equipment. Planet Fitness is one of the largest and fastest-growing global franchisors and operators of fitness centers with more members than any other fitness brand,

“As a leader in the industry and home of the Judgement Free Zone, it is our mission to provide an inclusive and welcoming environment to anyone who comes through our doors,” said Chris Rondeau, Planet Fitness’ Chief Executive Officer. “People with disabilities face significant barriers when attempting to access health and wellness activities, and it’s clear that health inequity is often due to a lack of access and opportunity. Today’s commitment is another way we are working to eliminate barriers and enhance people’s lives by providing a high-quality fitness experience for everyone.”

Strengthening Steps Ahead

The Coalition is focused on working with global organizations to build inclusive health communities that provide people with disabilities equal access to, and opportunities for, healthy living.  Planet Fitness is committed to providing inclusive equipment in all new clubs and adding it to existing clubs across the country as franchise owners replace current offerings, as inclusive commercial-grade equipment becomes available for purchase and is approved by Planet Fitness for inclusion in its clubs.

accessible exercise equipment

Planet Fitness will enhance the amount and variety of accessible equipment provided at its clubs by adding new inclusive equipment that conforms with ASTM standards as it becomes commercially available for purchase after clearing through a due diligence process, in accordance with set phased-in time parameters.

This equipment will include:

  • An inclusive dual cable strength machine that allows a person to perform multiple exercises from a seated position, including from a wheelchair.
  • A recumbent cardio machine where movement of the arms can move the legs, and vice-versa, and, in addition, the seat can be removed so it can be operated from a wheelchair.
  • Multiple cardio machines, which, depending upon availability, can include: treadmills, elliptical devices, upright bikes and/or recumbent bikes.
  • All new cardio machines will have inclusive features including raised tactile buttons and the ability to receive audible instructions and performance feedback through headphones. This will enable blind users to operate cardio machines independently.

Planet Fitness will also include the inclusive fitness symbol on all accessible equipment, share information about the roll-out of accessible equipment on its website (as it becomes available in its clubs), and continue its practice of providing customer service regarding the use of accessible equipment.

senior exercise

A Team Approach 

“We applaud Planet Fitness for this historic commitment to the disability community,” said Richard Thesing, Coalition for Inclusive Fitness’ Chief Executive Officer.  “At the present time, there are no cardio machines that can be used by blind people and very few fitness centers have cardio or strength machines that can be used by people with mobility disabilities. This marks a huge step forward towards providing individuals with disabilities with a truly inclusive fitness experience. We hope this will be the start of an industry-wide effort to provide individuals with disabilities the opportunity to enjoy an accessible fitness experience and take similar steps to making that a reality.”

“People who are blind face a myriad of chronic health conditions due in no small part to the lack of accessible exercise and fitness equipment available in the market today,” said Eric Bridges, Executive Director, American Council of the Blind. “The lack of accessible user interfaces and audible output for nearly all types of exercise and fitness equipment prevents people who are blind and experiencing vision loss from independently operating, purchasing and enjoying the use of fitness and exercise equipment, and thereby taking control of their own health and wellbeing.  ACB applauds Planet Fitness for their collaboration with the disability community, and we encourage other fitness and exercise providers to follow their leadership to enable people with disabilities the freedom to take control of their health.”

planet fitness slogan

“Exercise is for everyone,” said Emily Seelenfreund, Staff Attorney at Disability Rights Advocates – one of the organizations representing the Coalition.  “Planet Fitness’ pioneering commitment to increasing accessibility should serve as a model for fitness facilities across the country.”

“For people with spinal cord injuries and disorders, being able to access exercise equipment that meets their needs can be essential to maintaining an exercise program that increases their strength and endurance for rehabilitation, health, and overall sense of well-being,” said Heather Ansley, Associate Executive Director of Government Relations, Paralyzed Veterans of America.  “We believe that this commitment will help make accessible equipment more available in people’s communities and we are pleased that Planet Fitness has stepped forward to help meet this critical need.”

For more content like this from AmeriDisability, read: 

Sweet, Simple and Nutritious Back-to-School Breakfasts

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With back-to-school schedules in full swing, mornings are pretty hectic for families. For parents of children with ADHD (like mine), the struggle seems especially tough attempting to navigate getting out of bed, serving a picky-eater-approved breakfast, tackling morning hygiene, dressing efficiently, monitoring medications, and packing all of the day’s necessities.

As a mother of a child with ADHD, mealtime is NOT my favorite time of day. Yes, it’s common for little ones to be picky eaters. But then layer on a suppressed appetite, sensory issues, and so on. Still, I know that packing my babe with nutrition is important on many levels. And that, of course, holds true for all parents, whether your child has ADHD, other special needs, or is considered typical. A healthy breakfast can give your student a brain and body boost that’ll last all day long.

child slicing banana

It’s possible to prepare easy breakfasts that’ll power little learners, in spite of the morning rush. Fresh fruit is a breakfast staple, and a nutritious option like watermelon is a sweet way to satisfy hunger (and thirst). As a refreshing ingredient or standalone treat, watermelon includes just 80 calories and no fat. It’s an excellent source of vitamin C (25%) and because it’s made of 92% water, it’s a flavorful way to encourage kids to start a busy day well hydrated.

A bowl of watermelon cut into cubes, balls, or fun shapes is a winning idea, but you can also think outside the rind. Here are ways to give watermelon a place at your breakfast table:

  • Top a grain-based cereal like corn flakes or oatmeal with bite-size bits.
  • Make watermelon donuts for a grab-and-go delight.
  • Freeze cubes overnight and use them in place of ice in smoothies.
  • Put a twist on a breakfast favorite with watermelon oat flour waffles.
  • Add a layer of oat crumble to a bowl of watermelon balls for a savory, satisfying treat.
Frozen watermelon balls

It’s All in the Preparation

Kid-Friendly Cuts
It’s no secret that kids gravitate toward fun foods. Watermelon is a versatile fruit that offers plenty of serving options that let kids get hands-on and creative.

Slices
A classic watermelon slice may be basic, but it does have a few tricks up its sleeve. With the rind on, it’s an instant finger food with a built-in “handle.” Add a wooden stick for watermelon you can eat like a sucker, or pop it in the freezer for a cool way to start the day.

Cubes
Simple and versatile cubes are a solution for banishing breakfast boredom. You can cube a melon and use them differently every day of the week by eating them on their own, mixing in a fruit salad, layering with other ingredients, blending in a smoothie and more.

Sticks
There’s nothing like a dipper to get kids’ attention. A watermelon stick offers a bit of rind to hold onto and a juicy strip of sweet melon that’s perfect for dunking in a cup of yogurt or fruit dip.

Cutouts
Cut watermelon into thin slices and use cookie cutters to create a treat that shows off creativity.

watermelon dippers
Watermelon dippers

Recipes for Success

Try these yummy recipes…

Watermelon Oat Flour Waffles
Yield: 8 waffles

Ingredients

Waffles:

  • 1 cup old-fashioned or regular oats
  • 3/4 cup all-purpose flour
  • 1 tablespoon baking powder
  • 1/2 teaspoon salt
  • 1 cup watermelon juice
  • 1/2 cup vegetable oil
  • 4 egg whites
  • nonstick cooking spray

Garnish:

  • 2 cups plain Greek yogurt
  • 3 cups watermelon, diced 1/2 inch
  • fresh mint leaves
  • powdered sugar (optional)
  • honey (optional)

Directions

  • Preheat Belgian or regular waffle iron.
  • In a blender, process oat flakes into flour.
  • In a bowl, mix oat flour, all-purpose flour, baking powder, and salt. Mix in watermelon juice and oil.
  • Whip egg whites into stiff peaks and fold into batter.
  • Spray hot waffle iron with nonstick cooking spray. Pour batter into waffle iron and bake 3-4 minutes, or according to waffle iron instructions. Repeat with the remaining batter.
  • Garnish waffles with yogurt, watermelon cubes, mint sprigs, powdered sugar, and honey, if desired.
watermelon breakfast dish
Watermelon Oat Flour Waffles

Watermelon Donuts
Servings: 1

Ingredients

  • 2 slices seedless watermelon, 1 1/2 inches thick
  • 2 tablespoons nonfat plain Greek yogurt
  • 1 pinch sugar
  • vanilla, to taste
  • 9 slivered almonds

Directions

  • Cut out donut shapes from watermelon slices.
  • Sweeten Greek yogurt with sugar and vanilla, to taste, to create the frosting.
  • Frost half of watermelon donuts with half of the frosting. Add a layer of remaining watermelon donuts and top with remaining frosting.
  • Sprinkle toasted almonds over top and serve.

For more watermelon recipes, visit watermelon.org.

Nancy DeVault is an award-winning writer/editor contributing to local and national publications. Her storytelling spans a wide range of topics, including charity, disability, food, health, lifestyle, parenting, relationships, and travel. She is married with two kiddos and describes herself as a lover of the outdoors, fitness, news, traveling and binge reading magazines while sipping coffee.

Seven Years Later, Here’s Why the Ice Bucket Challenge Remains Cool

Can you believe it’s been seven years since social media newsfeeds were dominated by the Ice Bucket Challenge? In case your brain is frozen in time from all that ice, let me refresh your memory. In 2014, the Ice Bucket Challenge was the hottest (well, coolest) viral sensation intended to generate awareness for ALS (amyotrophic lateral sclerosis), and specifically for The ALS Association. This nonprofit is dedicated to finding a cure for ALS, also known as Lou Gehrig’s disease, and supporting those afflicted with the progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord.

How It Worked

The challenge was this: Either pour a bucket of ice water over your head or make a meaningful donation to an ALS charity to advance research ─ preferably both. Participants were then asked to share video proof on social media and tag (to nominate) others to partake in the icy dare too. Maybe the shock of the ice was intended as punishment for those that chose to just do the social bucket dump rather than donate to the cause. I’m not sure. But millions bravely poured buckets and, thankfully, donations poured in as well.

The Ice Bucket Challenge became a viral sensation.
The Ice Bucket Challenge became a viral sensation. Photo courtesy of Team FrateTrain via Facebook

Did It Work?

The Ice Bucket Challenge was perhaps the coolest dare of its kind to date. But, as awareness campaigns tend to do overtime, the online push naturally burnt out. According to The ALS Association, however, the Ice Bucket Challenge has a lasting impact. Here are some things we learned: 

  • The Power of One (to Millions): Pete Frates and his family helped start this groundbreaking effort. The former Boston College baseball captain was diagnosed in 2012 at the age of 27. Then, in 2014 as an active volunteer for The ALS Association (Massachusetts Chapter), this one warm-hearted person started the coolest challenge with simple, good intentions that impacted the cause (and your own social media page) beyond expectations.
  • Social Media Driven: Seven years ago, I was thrilled and impressed that The ALSThe Ice Bucket Challenge Association achieved monumental attention with this viral dare. Seriously, think about how big the Ice Bucket Challenge became. Professional athletes, politicians (including Presidents), celebrities and, of course, tons of your Facebook friends all participated. It was incredible to watch social media influence millions of people and, as a result, drive philanthropy.
  • Money Talks: An estimated 17 million people raised more than $200 million worldwide for the fight against ALS. According to The ALS Association website, the Ice Bucket Challenge generated $115 million for their national office in 2014 alone. This spurred a massive increase in the Association’s capacity to invest in promising research, the development of assistive technologies and increased access to care and services for people living with ALS. An independent research organization reported that donations from the 2014 Ice Bucket Challenge enabled The ALS Association to increase its annual funding for research around the world by 187 percent!

Let’s Keep Awareness Cool

Presently, as stated by The ALS Association, people with ALS are at risk of even greater life-threatening complications if they contract the coronavirus. For the ALS community, that means extreme isolation to ensure that persons with ALS, and their family members, are not exposed to COVID-19. To keep ALS awareness and fundraising going during these uncertain times of the pandemic, the Association recently produced a PSA that illustrates when the pandemic weans, people living with ALS will still struggle to do the things most take for granted every day if we don’t come together around the cause. Check out the “When This is Over” PSA here.

Sadly, Pete Frates died in December 2019 at the age of 34. He left behind a loving and supportive family, including his wife Julie, daughter Lucy, parents John and Nancy, and siblings Andrew and Jennifer. Pete also left behind a lasting legacy that we can all learn from.

His selfless leadership helped The ALS Association become a top funder of ALS-related research and advances. Most recently, in September 2021, the Association announced it had created a new diagnostic guide, called thinkALS. This will help neurologists more quickly diagnose ALS. Earlier diagnoses allow patients to participate in clinical trials and access treatments and benefits sooner, as well as receive care services support.

Pete Frates and his family
The Frates family started an ALS awareness effort like never before.

I tip my bucket — oh, I mean my hat– to the Frates family, The ALS Association and, of course, the many participates who took the challenge and, more importantly, now keep the conversation surrounding ALS advancement going. Look, the Ice Bucket Challenge significantly broadened the audience to hear The ALS Association’s important call to action. Until there’s a cure, there has to be care. Seven years later, I still care. Do you? I hope so. Check out ways to get involved at als.org/get-involved.

Nancy DeVault is an award-winning writer/editor contributing to local and national publications. Her storytelling spans a wide range of topics, including charity, disability, food, health, lifestyle, parenting, relationships and travel. Married with two kiddos, Nancy describes herself as a lover of the outdoors, fitness, news, traveling and binge reading magazines while sipping coffee.

Strength and Beauty While Living with Alopecia Areata

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Alopecia areata is a common autoimmune condition that causes hair loss on the scalp, face and other areas of the body. Nearly 7 million people in the United States are affected by the condition that has no cure, effective treatments or standard of care. Alopecia areata can affect anyone at any age and may be temporary or a life-long condition.

Thirty-year-old Ebony Jean was diagnosed with alopecia areata at age four when she started losing clumps of hair, which left patches on her scalp. By the fifth grade, she was living with total permanent hair loss, or alopecia universalis.

Living with alopecia areata is not easy for many – and especially those who are diagnosed at a young age. The condition is plagued with stigma, which can wreak havoc on mental health and well-being. In Jean’s case, not only did she have to deal with the uncertainty and unpredictability of the condition, but she also dealt with traumatizing mistreatment and bullying by her peers and, in some cases, teachers.

“Kids used to ask me questions like, ‘What did you do to your hair?’ and ‘Why is it like that?’” in reference to her wigs, she recalls. “There were rumors that I was a cancer patient. I experienced a lot of rejection despite trying really hard to fit in.”

The mental health toll she experienced was real and still stings her today. However, she never gave up – she focused on herself, her studies and did what she could to stay social.

Enter fashion. Jean always had a passion for fashion and felt its head-to-toe magic for as long as she can remember. It’s a personal way to express herself.

In college, she began dabbling in photography and was able to bring her love for fashion and beauty to life. For many years, she tried altering her appearance to look like others, but something shifted when she turned 25. Jean embraced her inner and outer beauty and started a pageant career. In fact, she was the first African American living with alopecia areata to take the stage in Miss Michigan USA.

In 2016, Jean attended the National Alopecia Areata Foundation’s (NAAF) annual conference – which was a life-changing event for her. She was able to connect with people like herself living with alopecia areata who had embraced their condition. It was the first time Jean publicly shared her story – and struggles – with 500 people in attendance, which she described as “the most freeing and beautiful moment.”

Jean continues to be actively involved in NAAF and uses her voice to advocate for change. Through social media, she helps others who may be going through the same struggle to help educate, empower and motivate – while embracing fashion and beauty.

To learn more about alopecia areata, visit NAAF.org.

Courtesy of Family Features.

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Facts & Stats: The Skinny on Disability and Obesity

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September is National Childhood Obesity Month; and some people with disabilities, including children, are at a greater risk of obesity.

Facts and statistics can sometimes seem alarming. The following information is presented with the intention to educate and empower.

Overweight and obesity are both labels for ranges of weight that are greater than what is generally considered healthy for a given height. The terms also identify ranges of weight that have been shown to increase the likelihood of certain diseases and other health problems. Behavior, environment, and genetic factors can affect whether a person is overweight or obese.

Adults

For adults, overweight and obesity ranges are determined by using weight and height to calculate a number called the “body mass index” (BMI). BMI is used because, for most people, it correlates with their amount of body fat.

  • An adult who has a BMI between 25 and 29.9 is considered overweight.
  • An adult who has a BMI of 30 or higher is considered obese.
Children

Among children of the same age and sex, overweight is defined on CDC growth charts as a BMI at or above the 85th percentile and lower than the 95th percentile. Obesity is defined as having a BMI at or above the 95th percentile.

Is BMI the Best Assessment for All

Researchers have shown that BMI may not be the best measurement for some people with disabilities.

For example, BMI can underestimate the amount of fat in people with spinal cord injuries who have less lean muscle mass.

Some researchers prefer measuring a person’s waist or neck where extra fat might be on the body, and using other methods to determine if a person is overweight or obese.

The Obesity Epidemic

Obesity affects different people in different ways and may increase the risk for other health conditions among people with and without disabilities.

People with Disabilities
  • Children and adults with mobility limitations and intellectual or learning disabilities are at greatest risk for obesity.
  • 20% of children 10 through 17 years of age who have special health care needs are obese compared with 15% of children of the same ages without special health care needs.
  • Annual health care costs of obesity that are related to disability are estimated at approximately $44 billion.

In the United States
  • More than one-third of adults – more than 72 million people – are obese.
  • Obesity rates are significantly higher among some racial and ethnic groups. Non-Hispanic Blacks or African Americans have a 51% higher obesity prevalence and Hispanics have a 21% higher obesity prevalence than Non-Hispanic Whites.
  • CDC Vital Signs report, titled State-Specific Obesity Prevalence Among Adults – United States, 2009,” points out that people who are obese incurred $1,429 per person extra in medical costs compared to people of normal weight.
  • Annual health care costs of obesity for all adults in the United States were estimated to be as high as $147 billion dollars for 2008.

Challenges Facing People with Disabilities

People with disabilities can find it more difficult to eat healthy, control their weight, and be physically active. This might be due to:

  • A lack of healthy food choices.
  • Difficulty with chewing or swallowing food, or its taste or texture.
  • Medications that can contribute to weight gain, weight loss, and changes in appetite.
  • Physical limitations that can reduce a person’s ability to exercise.
  • Pain.
  • A lack of energy.
  • A lack of accessible environments (for example, sidewalks, parks, and exercise equipment) that can enable exercise.
  • A lack of resources (for example, money, transportation, and social support from family, friends, neighbors, and community members).

Step It Up!

Step It Up! aims to increase walking across the U.S. by calling for access to safe and convenient places to walk and wheelchair roll for people of all ages and abilities.

What can be done?

Obesity is a complex problem that requires a strong call for action, at many levels, for both adults as well as children. More efforts are needed, and new federal initiatives are helping to change our communities into places that strongly support healthy eating and active living.

All people can:
  • Eat more fruits and vegetables and fewer foods high in fat and sugar.
  • Drink more water instead of sugary drinks.
  • Watch less television.
  • Support breastfeeding.
  • Promote policies and programs at school, at work, and in the community that make the healthy choice the easy choice.
  • Be more physically active.

Physical Activity for People with Disabilities

Evidence shows that regular physical activity provides important health benefits for people with disabilities. Benefits include improved cardiovascular and muscle fitness, mental health, balance, and a better ability to do tasks of daily life.

Health Consequences of Overweight and Obesity

Overweight and obesity increases the risk of a number of other conditions, including:

  • Coronary heart disease
  • Type 2 diabetes
  • Cancers (endometrial, breast, and colon)
  • High blood pressure
  • Lipid disorders (for example, high total cholesterol or high levels of triglycerides)
  • Stroke
  • Liver and Gallbladder disease
  • Sleep apnea and respiratory problems
  • Osteoarthritis (a degeneration of cartilage and its underlying bone within a joint)
  • Gynecological problems (abnormal periods, infertility)

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Source: CDC

These Rainbow-Colored Foods Help Fight Off Memory Loss

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A diet rich in colorful fruits and vegetables may help to ward off memory loss, according to a new analysis that looked at the foods eaten by tens of thousands of men and women over many years. Strawberries, orange juice, apples, grapefruits, pears, peppers, celery, blueberries, and many more — a rainbow colored cornucopia of fruits and vegetables — were shown to boost brain health. And it didn’t take much. As little as a half a serving a day of such foods may lower the risk of cognitive decline by up to 20 percent.

These colorful foods are all high in naturally occurring compounds called flavonoids found in plant-based foods. Flavonoids are powerful antioxidants, which help to neutralize highly reactive oxygen compounds that can damage cells throughout the body, including in the brain. Flavonoids also have inflammation-fighting effects, and increasingly doctors recognize that inflammation plays a critical role in many chronic conditions of age, including Alzheimer’s disease. The findings were published in Neurology, the medical journal of the American Academy of Neurology.

“The people in our study who did the best over time ate an average of at least half a serving per day of foods like orange juice, oranges, peppers, celery, grapefruits, grapefruit juice, apples and pears,” said that study’s lead author, Dr. Walter Willett, of Harvard University. “While it is possible other phytochemicals are at work here, a colorful diet rich in flavonoids — and specifically flavones and anthocyanins — seems to be a good bet for promoting long-term brain health.”

“And it’s never too late to start,” Dr. Willett added. “We saw those protective relationships whether people were consuming the flavonoids in their diet 20 years ago, or if they started incorporating them more recently,” in the last five to 10 years. “There is mounting evidence suggesting flavonoids are powerhouses when it comes to preventing your thinking skills from declining as you get older, and that making simple changes to your diet could help prevent cognitive decline.”

The study showed only an association between foods consumed and cannot prove cause and effect. Dietary studies are hard to control, and people who eat a “healthy” diet also tend to engage in healthful activities like regular exercise. But the findings add to a growing body of evidence that what we eat, such as fresh fruits and veggies full of antioxidants, can affect our brain health. Other studies have shown that such foods may also help to combat heart disease, cancer and other diseases of aging.

Photo credit: Orlando Health

For the current study, researchers looked at 27,842 men and 49,493 women who were enrolled in two longstanding health surveys. On average, they were in their early 50s at the study’s start.

Over the next 20 years, participants filled out detailed questionnaires about the specific foods they ate and how often they ate them. The researchers assessed how many flavonoids they ate in a typical week and grouped them from high to low.

Those in the highest 20 percent of flavonoid intake ate, on average, about 600 milligrams a day. A serving of strawberries, for example, contain about 180 milligrams of flavonoids, while an apple has about 113 milligrams. Those in the lowest flavonoid group ate 150 milligrams or less a day.

During the study period, participants also rated their own cognitive health by answering a series of questions that included:

  • Do you have more trouble than usual remembering recent events?
  • Do you have more trouble than usual remembering a short list of items, such as a shopping list?
  • Do you have trouble remembering things from one second to the next?
  • Do you have any difficulty in understanding things or following spoken instructions?
  • Do you have more trouble than usual following a group conversation or a plot in a TV program due to your memory?
  • Do you have trouble finding your way around familiar streets?
  • Do you have more trouble than usual remembering recent events?

The questions are designed to assess early memory problems that people may notice and feel that something is “off,” but that aren’t so serious that they would be detected on a formal Alzheimer’s screening exam.

The researchers found that people who ate a diet rich in flavonoids were 20 percent less likely to report that they were having memory problems.

Certain types of flavonoids were particularly protective. Flavones, found in some spices and yellow and orange fruits and vegetables like peppers, had the strongest protective qualities, and were associated with a 38 percent reduction in risk of cognitive decline, equivalent to being about three to four years younger in “brain age,” the researchers estimate. Anthocyanins, found in blueberries, blackberries and cherries, were associated with a 24 percent reduced risk of cognitive decline.

Other good sources of flavonoids include onions, wine and dark chocolate. As always, it is highly preferable to rely on non-processed natural food sources, which contain an abundance of different health-promoting compounds, rather than less natural sources such as supplements, which may come with pernicious side effects or contain super high doses of specific wanted or unwanted compounds.

Whatever your age, and especially for those over 50 who are at higher risk of Alzheimer’s disease, including a colorful array of fruits and vegetables in your diet may be a wise investment in brain health. And it may not take much: a few servings of berries a week, a glass of orange juice, maybe an apple or two.

Photo credit: AARP

This information is by ALZinfo.org, The Alzheimer’s Information Site. This article was originally published by The Fisher Center for Alzheimer’s Research Foundation.

Facts & Stats You Should Know about Sickle Cell Disease (Plus Awareness Events)

September is National Sickle Cell Awareness Month, designated by Congress to help focus attention on the need for research and treatment of sickle cell disease. Here’s information you should know; plus upcoming events to support sickle cell awareness.

The Sickle Cell Disease Association of America’s (SCDAA) theme for this year’s awareness month is Sickle Cell Matters 2021.

FACTS AND STATS TO KNOW
What is Sickle Cell Disease?

Sickle cell disease (SCD) is an inherited blood disorder in which red blood cells may become sickle-shaped and harden. For a baby to be born with sickle cell disease, both parents must carry a sickle cell trait. Sickle cell disease is not contagious, and there is no universal cure.

The Facts

  • About 1 in 13 African Americans carry the sickle cell trait and many do not know they have it.
  • An estimated 100,000 people in U.S. have SCD.
  • Approximately 2,000 babies are born with SCD annually in the U.S.
  • On average, diagnosis is made at birth.
  • 8% of African Americans are carriers of SCD.
  • Latinos have the second most common incidence of SCD in the U.S.

The blockage of blood flow caused by sickled cells leads to complications including:

  • Chronic severe and unpredictable pain
  • Anemia
  • Approximately 2,000 babies are born with SCD annually in the U.S.
  • Frequent infections.
  • Swelling in extremities.
  • Fatigue.
  • Delayed growth.
  • Vision problems/blindness.
  • Lung tissue damage.
  • Kidney disease.
  • Stroke.
  • Shortened life expectancy.

Photo credit: Sickle Cell Disease Association of America, Inc

Where?

  • Sickle cell disease is a global health problem.

Staying healthy with sickle cell disease involves:

  • Pain management
  • Blood transfusions
  • Self-care including eating well, exercising and drinking water.

The search for a cure…

Bone marrow (stem cell) transplants can, in some cases, cure sickle cell disease, but not all individuals are eligible for this procedure and there are associated risks. Read more about this NIH initiative: www.curesickle.org.

How Can You Support Sickle Cell Matters 2021? 

You can share this article, or download a PDF flyer. Also, use hashtags on social media: #SickleCellMatters2021, #SickleCellAwarenessMonth, #SCDAA2021AwarenessMonth and #SCDSCTmatters.

SCDAA encourages everyone to be a part of this national effort to increase awareness about sickle cell disease and sickle cell trait during the month of September. Individuals and organizations can join their efforts to bring attention to sickle cell disease by engaging elected officials for proclamations, hosting awareness events, distributing educational information to dispel the myths about sickle cell disease, and lighting public spaces, buildings and landmarks red.

Photo credit: CDC

SCDAA Events

Unless otherwise noted, all SCDAA’s events will be held virtually.

Community and Member Events

Learn more: www.sicklecelldisease.org

Courtesy of Sickle Cell Disease Association of America.

National Disability Voter Registration Week Starts September 13

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National Disability Voter Registration Week aims to increase the political power of people with disabilities by sharing resources and getting folks registered to vote. In the last election, an estimated 38 million people with disabilities were eligible to vote, and NDVRW organizers want to continue to raise the disability voice and civic participation across the country in 2021 and beyond.

Mark Your Calendars: National Disability Voter Registration Week (NDVRW) will be held September 13-20, 2021. NDVRW is a national, nonpartisan campaign to register, educate, and prepare voters with disabilities for the 2021 elections and beyond. NDVRW is coordinated by the American Association of People with Disabilities’ (AAPD) REV UP Voting Campaign. REV UP stands for Register! Educate! Vote! Use your Power!

The disability vote has never been more powerful, declaims AAPD. Despite being twice as likely to face voting barriers as people without disabilities, AAPD says disabled voters have continued to demonstrate their political power each election. Last election, in the midst of a pandemic, over 17 million people with disabilities cast their ballots. As the REV UP network, Crip the Vote, and other movements build the power of the disability vote, AAPD believes it can close the 6% turnout gap between voters with and without disabilities.

Following an election with record turnout, 48 states legislatures across the country introduced, and some passed, anti-voting legislation that limits access to the ballot for disabled voters, voters of color, and disabled voters of color. Even before this wave of anti-voting bills, people with disabilities faced barriers, discrimination, and isolation that kept many from participating in democracy. This NDVRW, AAPD and its partners are focusing on the message that the vote of the disability community is powerful. 1-in-4 adults in America lives with a disability, and AAPD believes more of them need to participate in elections. Together, AAPD and the disability community can hold leaders accountable to make decisions that ensure people with disabilities have equal access to employment, community living, education, transportation, healthcare, and more.

Justin Dart, father of the Americans with Disabilities Act (ADA), said it best: “Vote as if your life depended on it, because it does.”

There are many ways to participate in NDVRW. To get involved and access resources, visit this voting page of the AAPD website.

Employers and the ADA: Myths & Facts

The Americans with Disabilities Act (ADA) is a landmark federal law that protects the rights of people with disabilities by eliminating barriers to their participation in many aspects of living and working in America. In particular, the ADA prohibits covered employers from discriminating against people with disabilities in the full range of employment-related activities, from recruitment to advancement, to pay and benefits.

The foundation for the ADA is America’s promise of equal access to opportunity for all citizens. Being inclusive of people with disabilities — in recruitment, retention, promotion, and in providing an accessible environment — gives businesses a competitive edge.

Here are some of the common myths about how the ADA affects employers and research and facts that negate them.

Myth: The ADA forces employers to hire unqualified individuals with disabilities.

Fact: Applicants who are unqualified for a job cannot claim discrimination under the ADA. Under the ADA, to be protected from discrimination in hiring, an individual with a disability must be qualified, which means he or she must meet all requirements for a job and be able to perform its essential functions with or without reasonable accommodations.

The foundation for the ADA is America's promise of equal access to opportunity for all citizens.

Myth: When there are several qualified applicants for a job and one has a disability, the ADA requires the employer to hire that person.

Fact: An employer is always free to hire the applicant of its choosing as long as the decision is not based on disability. If two people apply for a data entry position for which both speed and accuracy are required, the employer may hire the person with the higher speed and level of accuracy, because he or she is the most qualified.

Myth: The ADA gives job applicants with disabilities advantages over job applicants without disabilities.

Fact: The ADA does not give hiring preference to persons with disabilities.

Myth: Under the ADA, employers must give people with disabilities special privileges, known as accommodations.

Fact: Reasonable accommodations are intended to ensure that qualified individuals with disabilities have rights in employment equal — not superior — to those of individuals without disabilities. A reasonable accommodation is a modification to a job, work environment or the way work is performed that allows an individual with a disability to apply for a job, perform the essential functions of the job, and enjoy equal access to benefits available to other individuals in the workplace.

Myth: Providing accommodations for people with disabilities is expensive.

Fact: The majority of workers with disabilities do not need accommodations to perform their jobs, and for those who do, the cost is usually minimal. According to the Job Accommodation Network (JAN), a service from the U.S. Department of Labor’s Office of Disability Employment Policy, 58% of accommodations cost absolutely nothing to make, while the rest typically cost only $500. Moreover, tax incentives are available to help employers cover the costs of accommodations, as well as modifications required to make their businesses accessible to persons with disabilities.

Work place accommodations for employees with disabilities aren't necessarily costly.

Myth: The ADA places a financial burden on small businesses that cannot afford to make accommodations for individuals with disabilities.

Fact: Businesses with fewer than 15 employees are not covered by the employment provisions of the ADA. Moreover, a covered employer does not have to provide a reasonable accommodation that would cause an “undue hardship.” Undue hardship is defined as an action requiring significant difficulty or expense when considered in light of factors such as an organization’s size, financial resources and the nature and structure of its operation.

Myth: ADA lawsuits are flooding the courts.

Fact: The majority of ADA employment-related disputes are resolved through informal negotiation or mediation. The Equal Employment Opportunity Commission (EEOC), which enforces the ADA’s employment provisions, carefully investigates the merits of each case and offers many alternatives to litigation as a way to resolve any potential problem. The number of ADA employment-related cases, whether filed privately or by the EEOC, represents a tiny percentage of the millions of employers in the U.S.

Myth: The ADA is frequently misused by people with vague complaints or diagnoses.

Fact: If an individual files a complaint of discriminatory treatment, denial of accommodation or harassment under the ADA and does not have a condition that meets its definition of disability, the complaint is dismissed. While claims by people with false or minor conditions may get considerable media attention, the reality is that these complaints are usually dismissed.

Myth: The ADA protects employees who have difficult or rude personalities or are troublemakers.

Fact: Improper behavior in and of itself does not constitute a disability, and having a disability does not excuse employees from performing essential job tasks and following the same conduct standards required of all employees. The courts have consistently ruled that “common sense” conduct standards, such as getting along with co-workers and listening to supervisors, are legitimate job requirements that employers can enforce equally among all employees.

Myth: Under the ADA, an employer cannot fire an employee who has a disability.

Fact: Employers can fire workers with disabilities under three conditions:

  • The termination is unrelated to the disability or
  • The employee does not meet legitimate requirements for the job, such as performance or production standards, with or without a reasonable accommodation or
  • Because of the employee’s disability, he or she poses a direct threat to health or safety in the workplace.
Debunking disability myths in the workplace.

Resources to Assist Employers

A number of resources are available to assist employers in understanding their responsibilities under the ADA:

Job Accommodation Network (JAN)

www.AskJAN.org
1-800-526-7234 (voice); 1-877-781-9403 (TTY)
JAN is a free, confidential service from the U.S. Department of Labor’s Office of Disability Employment Policy that provides individualized accommodation solutions and technical assistance on the ADA. Among the areas that JAN can address are:

  • Accommodation options and low-cost solutions
  • Hiring, retaining and promoting qualified employees with disabilities
  • Employer responsibilities under the ADA
  • Addressing accessibility issues, including accessible technology

Equal Employment Opportunity Commission (EEOC)

www.eeoc.gov
1-800-669-4000 (voice); 1-800-669-6820 (TTY)
The EEOC enforces the ADA’s employment provisions. The section of its website titled “Disability Discrimination” provides access to numerous publications, including several specifically designed to answer employer questions and concerns.

U.S. Department of Justice (DOJ) ADA Homepage

www.ada.gov
1-800-514-0301 (voice); 1-800-514-0383 (TTY)
The ADA Home Page includes many excellent resources for employers. The “ADA Business Connection” section of the site includes business briefs and tax incentive information.

Americans with Disabilities Act National Network

www.adata.org
1-800-949-4232 (voice/TTY)
The Americans with Disabilities Act National Network, sponsored by the U.S. Department of Education’s National Institute on Disability, Independent Living, and Rehabilitation Research, consists of 10 regional centers and an ADA Knowledge Translation Center which provide ADA information, training and technical assistance across the nation.

Source: Office of Disability Employment Policy | An agency within the U.S. Department of Labor

Looking for similar content? Check out “Etiquette Basics for Interacting with People with Disabilities in the Workplace (or Anywhere)” and “13 Myths & Facts Pertaining to People with Disabilities.”

Paws-itively Awesome Canine Companies Run By People with Disabilities

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Dog lovers around the world are ready to fill your social media feeds with the cutest puppy pictures. That’s because National Dog Day is celebrated each year on August 26th. This happy hound holiday honors all dogs (mixed breed and pure), promotes the importance of animal rescues and the many important roles that dogs have to impact the human race – i.e. personal protection, law enforcement assistance, disability service and health companions, to name a few.

AmeriDisability is pleased to spotlight the following five dog-centric businesses that happen to be owned and/or operated by persons with varying disabilities.

1. Doggy Delights by Allison

The kitchen wasn’t always Allison Fogerty’s favorite place to be; nor was food consumption an enjoyable pastime. Allison was born with Down syndrome and Tracheoesophogeal Fistula, a rare condition resulting in an abnormal connection between the esophagus and trachea (windpipe), which required her to have a trach tube to breathe. As a tween, Allison was also diagnosed with a laryngeal cleft, an abnormal opening between the larynx and the esophagus through which food and liquid can pass through the larynx into the lungs; thus Allison relied on a gastrostomy tube (G-tube), a surgically placed device that grants direct access to one’s stomach for feeding. Several surgeries later, Allison’s health has improved; and the health of animals has become her top priority.

Allison bakes dog treats using all natural ingredients.

 

Image credit: Doggie Delights by Allison
 

Inspired by her complicated food journey, Allison uniquely understands the importance of healthy nutrition for both people and their pets. Now her kitchen, aka the home-base of Doggie Delights by Allison, is her happy place where she whips up treats using all-natural ingredients. And the company motto says it all: “Your Best Friend Deserves the Best Treats!” Doggie Delights’ products are sold frozen or freeze dried to eliminate the need for preservatives. Allison sells these homemade bites at farmers markets in her hometown of Clermont (just west of Orlando, Florida), and also ships to any location via website orders.

Plus, this young female entrepreneur isn’t shy about making connections with fellow Fido owners in high places. Just recently, Allison received a letter from President Joe Biden thanking her for sending treats to his dogs, Major and Champ!

2. Waggies by Maggie & Friends

In 2007, Leigh Corrigan and Mary Ann Nolan of Wilmington, Delaware recognized that employment opportunities for young adults with intellectual disabilities, including their daughters Elizabeth and Maggie, weren’t plentiful in their area. So they cooked up a doggone solution by launching Waggies by Maggie & Friends, a nonprofit dog treat company with a mission to employ persons with disabilities. With direction of an advisory board, Waggies operates with about a dozen bakers who tackle equipment prep, ingredient measuring, additional baking steps, product labeling, kitchen restocking and miscellaneous business-oriented tasks.

Two moms launch dog treat business in honor of daughters with disabilities.

 

Image credit: Waggies by Maggie & Friends
 

The result: Waggies produces vet-approved treats without preservatives. Flavor varieties like peanut butter, chicken and sweet potato are available in both bone-shaped biscuits and “WaggieBits” kibble. These pup-approved goodies are available for purchase at about 45 retail locations throughout Connecticut, Delaware, New Jersey, North Carolina and Pennsylvania; plus treats, clothing and gift items are sold through Waggies online shop.

3. Gracie’s Doggie Delights

Gracie Jagler of Watertown, Wisconsin launched her company, Gracie’s Doggie Delights, in 2016. Gracie, who has Down syndrome, was just 19 years old when her career took off. The key to her almost immediate success was tapping into her passion: her love of dogs. Serving as treat testers, Gracie’s three rescue schnauzers playfully participate in operations at Gracie’s Doggie Delights, which has become a collaborative business venture for the whole family — with Gracie at the helm, of course.

Because Gracie’s Doggie Delights are simply made – using just one ingredient (freeze dried USDA inspected meat) – the company’s products have been praised by veterinarians. For example, Dr. Amy Hudson of Johnson Creek Veterinary Care proclaims, “I choose Gracie’s treats because of the natural, limited and high-quality ingredients. I particularly love the benefits of organ meat, such as liver and hearts, for the health of my patients. Gracie’s Doggie Delights makes it fun and easy to give your pet a power-packed, high nutrition treat that your dog will thank you for.” Similarly, Dr. Debbie Reynolds of Veterinary Home Health Care shares, “Our patients love Gracie’s treats and we love providing them with a high-quality product with no fillers or artificial ingredients. With so many pets suffering from food allergies and sensitivities, knowing there is only one ingredient in each treat reassures our clients that their pet can enjoy Gracie’s treats with no ill-effects.”

Gracie's is a female owned business that celebrates disabilities.

 

Image credit: Gracie’s Doggie Delights
 

Mutt owners on the hunt for healthy treats can explore Gracie’s diverse online selection of pet snacks, such as Beef Liver Delights, Chicken Heart Delight, Turkey Gizzard Delights, Cheese Curd Delights and many others. And Gracie’s offers pet shampoo, collapsible water bowls, paw balm and more.

4. arcBARKS Dog Treat Company

The Arc of Greensboro is a nonprofit committed to identifying and securing life-long opportunities for children and adults with intellectual and developmental disabilities. One of Arc’s most successful endeavors launched in 2011, when parent Pat Clapp, whose son David has Down syndrome, established arcBARKS Dog Treat Company with the help of Ruth Edwards, who then served as Executive Director of The Arc of Greensboro. arcBARKS specifically aims to provide vocational training for individuals with disabilities.

arcBARKS claims their treats are infused with an extra “special” ingredient that really makes a dog’s tail wag: love! Peanut butter and pumpkin are the stand-out ingredients in arcBARKS’ products, which are sold via an online store, in addition to tons of retail locations nationwide. For hefty, hungry hounds, opt for the Big Bone, a large 8×3.5 treat handmade with flour, oats, freshly ground peanut butter, oil and water (oh, and a heaping of that love we noted). Also, arcBARKS now offers convenient monthly subscription boxes, which includes two to four packages of treats, a dog bandana and early access to new products. If you’re not a pet owner but still want to support the work of arcBARKS, monetary donations are accepted.

arcBARKS Dog Treat Company is run by individuals with intellectual and developmental disabilities.

 

Image credit: arcBARKS
 

5. Purely Patrick

Born prematurely, Patrick Lewis has cerebral palsy and is blind. Yet, he has a clear vision for his company, Purely Patrick. Patrick specializes in homemade gourmet goods, which he prepares using assistive technology. “I use a pouring device that is activated by a switch that I control,” he says; adding, “I have the help of my mother and two job coaches to ensure the measurements of my products are correct.”

Purely Patrick sells at craft fairs and farmers markets in Vermont, in addition to online. His dog treat creation lets home bakers sink their paws (whoops, we mean hands) into the baking process. The dry dog treat ingredients (either wheat or rice-based) come stacked in a bottle, along with a cookie cutter. Purely Patrick also prepares specialty bird seed, as well as people food including an array of soups, cookies and breads.

Kudos to these pooch-perfect businesses! AmeriDisability wishes all dog lovers a special tail-wagging National Dog Day.  

Several dog treat companies are owned and operated by persons with disabilities.

 

Image credit: Waggies by Maggie & Friends

 

Enjoyed this content? You may also like reading:

How to Become a Service Dog Trainer

How to Make Budget-Friendly Frozen Dog Treats for Your Service Animal

How to Exercise Your Service Dog Indoors During Inclement Weather

 

Feature image credit: arcBARKS

 

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