Sunday, October 5, 2025
spot_img
autism products
Html code here! Replace this with any non empty raw html code and that's it.
Home Blog Page 55

Singer Terri Gibbs Always Had a Clear Vision for Music Despite Blindness

Singer Terri Gibbs says she’s lived a real-life Cinderella story. “One year you’re on the couch [in a mobile home] watching the Country Music Awards and, the next year, you’re on the stage receiving an award,” Gibbs tells AmeriDisability.

Teresa (Terri) Fay Gibbs was born three months premature in 1954. “I was quite small (2 lbs., 11 ounces) and, so, they had to put me in an incubator. At that point in time, they did not know to cover the eyes and my retinas were damaged,” she explains. At six months of age, Gibbs was diagnosed with retrolental fibroplasia and declared blind. Her disability, however, did not hinder her aspirations. She says, “I came from a musical family– several generations – and I wanted to be a country music singer since I was a little girl.”

“My grandmother played piano and, one day at the age of three, my grandmother’s sister sat with me at the piano and played a short melody with my finger. After she walked away, I played it back again on my own,” Gibbs shares. She has what’s known as “perfect pitch,” a rare auditory ability to flawlessly identify and re-create a musical note. With this gift, Gibbs learned to play the piano by ear rather than taking lessons.

In her early twenties, Gibbs was earning a living by singing at local bars in her hometown of Augusta, Georgia. Then, after her demo tape was discovered by music executives, in 1980, she recorded and released “Somebody’s Knockin’.” The single rose on the record charts and earned her the 1981 Academy of Country Music Top Female Vocalist award, the Country Music Association Horizon (now New Artist) Award and a Grammy nomination for Best Country Song. She also toured with country superstars George Jones and Tammy Wynette, and appeared on shows such as Dick Clark’s American Bandstand.

A surprise to many, Gibbs made the decision to shift from country music to Christian contemporary. “The Lord has his own timing for things,” she explains. While she always went to church, Gibbs says she truly received Christ in 1980 after losing her grandmother sharing that, “I wanted to make sure that I was going to see her again.” “At my [country] concerts, I would sing “Amazing Grace” because it was one of my favorite hymns,” says Gibbs. She believes a series of events, including fans telling her that “God wants you to sing for him,” empowered her to switch genres. “I released my first Christian album in 1987 and have done six albums to date,” she says, one of which earned her second Grammy nomination. “I feel like I am doing what God desired me to do. He gave me the talent to sing. It’s very fulfilling,” she says.

Gibbs married city councilman David Daughtry in 1988 and the couple welcomed their son, David. Her family accompanied her on tours for a while until Gibbs decided to make motherhood her primary job. “David had just started kindergarten and was enjoying school. I asked him one day, ‘What is the favorite part of your day?’ I thought he would say recess or something like that but he said, ‘When I come home in the afternoon and you are there.’ I knew that was God’s way of telling me that’s where I was supposed to be [rather than on the road],” Gibbs recalls. Today, she’s overjoyed that David shares her love of music. “If someone would have told me when I was in my twenties that one day I would have a son who loves music as much as I do and be singing with me on stage, I would have never believed it,” she admits. Yet mother and son are now music collaborators!

Like many “seniors,” Gibbs once resisted technology but admits that opting for a smartphone a few years ago increased her access to music. Plus, fans who use social media can learn of upcoming appearances via her Facebook page. And, while she describes herself as an avid reader (since learning braille at age five), she’s also discovered a love for books on tape.

Gibbs famously proclaimed, “I’m not a blind singer. I’m a singer who happens to be blind.” That mentality ─ to not let her disability define her ─ has been key to her happiness and success. “It took me a long time to see that [the] disability is not who I am. God created me to be whole…I am whole and that’s how He sees me,” Gibbs says, and she hopes others with disabilities share this mindset.

In 2012, the Artists Music Guild honored Gibbs with a Lifetime Achievement Award. So, what’s next? Gibbs says, “I am just going to continue to sing as long as God allows me. It’s who I am and what I do!

How One Mom Rewrote the Movie-Going Experience with Sensory Friendly Films

0

In 2007, Marianne Martinson took her daughter Meaghan, who has autism spectrum disorder, to see Hairspray. As the matinee rolled, the then seven-year-old began to flap her hands, dance, twirl and jump. She was happy! But fellow movie-goers were not. Their mommy-daughter date came to an abrupt halt when the duo was asked to leave the theatre.

“I thought, ‘how unfair,’” Marianne said in an ABC News interview. “It just made me think, ‘There’s got to be some way she can go to a movie.’” The next day, Marianne reached out to another film establishment, AMC Theatre in Columbia, Maryland, and an innovative initiative arose. AMC and the Autism Society teamed up to launch “Sensory Friendly Films,” a monthly program for individuals on the autism spectrum and/or with other special needs. Auditorium adaptions were made to present a more comfortable atmosphere. “For these film screenings, we turn the lights up and turn the sound down. Guests can get up, dance, walk, shout or sing. Additionally, families are able to bring in their own gluten-free and/or casein-free snacks,” shared Rebekah Ellingson, Communications Manager for AMC.

Three hundred people showed up for the first Sensory Friendly Films event… a clear indication of the need! “That really was one of the first [sensory-friendly] programs,” says Rose Jochum, Director of Internal Initiatives for the Autism Society. “It got the ball started and led the way to many other autism-friendly programs, like shopping days at malls, restaurant experiences, Royal Caribbean cruises and even Broadway performances.”[Rose is referring to the Autism Theatre Initiative in which, in 2011, Disney’s musical The Lion King became the first-ever autism-friendly Broadway show. Others were later adapted, including Mary Poppins, Spider-Man, Wicked, Matilda, Phantom of the Opera and Aladdin.]

In evaluating modifications, Rose simply explains, “They look for places that might create a sensory overload and try to mitigate that.” And those simple adaptions are huge for many. “It’s a godsend for our families to be able to go and know they won’t be judged,” says Melissa Rosenberg, Executive Director for the Howard County Autism Society, the chapter that Marianne first aligned with. “Families are no longer limited to events hosted [solely] by our organization. They can enjoy sensory-friendly movies, concerts, galleries and more in the community.”

AMC’s “Silence is Golden” policy is not enforced during these screenings. “Being able to relax and enjoy quality family time without worrying if someone will complain or be disturbed by noise or movement is a wonderful experience,” Rebekah explained. And that’s the ultimate goal because, she says, “So often, we hear from families impacted by autism and other disabilities that they feel excluded from participating in ‘normal’ activities. Our Sensory Friendly Films allow these families to enjoy the movie-going experience in a safe and accepting environment.”

Orlando area mom Dawn Shadden, for example, loves taking her 5-year-old twins, who have autism, and their older brother to screenings at AMC Disney Springs. They have a family tradition of seeing every Disney film in the theatre together. “As with most children with autism, our boys are extremely picky eaters,” she explains. Being able to provide her children with their own (temperature-controlled) snacks in their preferred containers and cups is a win.

AMC shows Sensory Friendly Films nationwide (at about 180 theatres) on the second and fourth Saturday (family-friendly) and, as of October 2015, Tuesday evenings (mature audiences) of every month. AMC expanded its program with an adult-friendly counterpart for a broader range of content with no restriction on film rating. With the incredible success of AMC’s effort, other movie companies followed suit with similar efforts at Regal Cinemas, Cobb Theatres and select independent theatres nationwide.

Tim McGriff, Director of Marketing for Cobb Theatres, explains that sensory showings allow kids to be kids. “The audience is encouraged to be themselves and interact with the movie, while having fun without the worry of disturbing others,” he says.

When AmeriDisability reached out to Marianne for this article, she was incredibly humble regarding her trailblazing impact. “I still don’t really believe that it happened! It’s a wonderful feeling,” she said. And while Marianne’s efforts were inspired by her daughter, she says the screenings are intended for anyone who needs something tailored a little bit differently. “It’s very inclusive. I just want people to know that it’s friendly and a good place to be yourself.” The film industry may present recognition awards to Marianne and AMC, but we certainly offer a roaring standing ovation for their efforts. Bravo!

Article photo: Marianne Martinson and daughter, Meaghan

Jason DaSilva: A Filmmaker, App Creator and Loving Father

A person is not defined by what they look like or how they speak but by their unique thoughts, perspectives, and vision unseen by others. Jason DaSilva has used his imagination to create visually and emotionally appealing films that have won multiple awards. He has also used his experience to help others by creating an application used all over the world.

Documentary Filmmaker

Jason DaSilva is a filmmaker who studied at the Emily Carr University of Art and Design and graduated at 21 with a film, Olivia’s Puzzle, that was welcomed to the Sundance Festival in 2003. Being one of the youngest at the time who was accepted into Sundance, he recalls how surreal it was to be there and how it led him to work with major networks such as HBO and PBS. Between the ages of 21 and 25, he produced four films – an impressive number in the film industry.

At the age of 25, DaSilva began having difficulties with his vision and mobility. In 2005, he was diagnosed with primary progressive multiple sclerosis (PPMS). Clearly, this was a huge shock but rather than giving up his passion for filmmaking he decided to turn the camera around to share his own story through the transitions of having PPMS. In 2013, he released the Emmy Award-winning documentary When I Walk, http://wheniwalk.com/. This film recounts a seven-year journey from when his symptoms started setting in, learning to adapt, and trying to maintain his sense of self while relying on others for help. It is a film that delivers the authentic aspects of slowly losing one’s mobility while also providing those moments that everyone needs, disability or not, of being uplifted by loved ones and community members. When I Walk showcases a man, who experiences and shares his emotions while trying to continue with his life as a documentarian.

DaSilva didn’t stop creating films and has been working tirelessly on another documentary film, When We Walk, http://whenwewalk.com/. Much has happened in the years since 2013 for DaSilva, and once again he is documenting his life but now with a focus as a father who has a degenerative neurological disease. In the first film, we learn about his relationship with his wife and the happiness his son Jase brings to his life. In this film, he also shares the impact of family dynamics including divorce and the role that played in his adolescence as well as in his marital relationship. Most importantly, When We Walk spreads the message of an eternal love a father has for his son. DaSilva walks us through new barriers faced by a parent with a disability who just wants to be around his son. He highlights issues such as the presently controversial healthcare system and inadequate accessible transportation. Similarly to his first film, When We Walk will bring awareness to disability rights and the importance of inclusion in all aspects of society. Be on the lookout for the release of this film in September of 2018.

Not only has DaSilva been working on the When We Walk film, but is simultaneously creating and acting in a featured film called The Dismantled, http://thedismantled.com/. In this series, he portrays a person, named Billy, who is a quadriplegic as a result of having a degenerative disease. Billy is tired of having to rely on others for help and shares the reality of having multiple sclerosis in a “world that encourages [people with disabilities] to be complacent.”  With this, Billy decides to use his new identity to smuggle drugs across the border. DaSilva shares that this series is “Breaking Bad Meets Disability.” Watch the trailer and stay tuned for the release of this compelling film!

AXSMap

Throughout DaSilva’s journey of learning to live with PPMS, he has increasingly become aware of the limitations of transportation, particularly in major cities but also around the world. With emerging technology such as the iPhone 3G in 2009, he realized he could use his design skills to create a tool that would be a database of accessible places. DaSilva mentions that he failed a few times at first, but eventually he began working with a great team of developers and was allotted a grant from Canada to launch their website and application. AXS Map uses open-source data to provide users the ability to review public locations such as restaurants and stores for their accessibility. AXS Map is available online at https://www.axsmap.com/ and it is available as a free app for both IOS and Android users – AXS Map v2.

Users of all abilities are invited to review public places with regards to spaciousness, entrances, bathroom and other attributes such as guide dog-friendliness. Additionally, you can add comments and photos. To help spread the application and increase the number of reviews, people can host a Mapathon which leads to a fun and engaging way to give back. Reviews such as this are “the gamification of social good” as Dasilva states because it offers people with and without a disability to contribute to society by helping others learn about places that are accessible.

The application has over 160,000 reviews worldwide and continues to grow. Each year, Google employees participate in a Google Serve event which includes hosting a Mapathon and competing against each other to see who can review the most! DaSilva’s work has caught the attention of another major organization, the United Nations, and is currently preparing for a large Mapathon in Vienna, Austria and Indonesia to gather data for accessibility in those regions.

United Nations (UN) Committee Member

DaSilva is branching out to help people in other ways by promoting disability rights around the world through his work with the UN. DaSilva is an expert committee member of the UN Monitoring and Evaluation of Disability-Inclusive and Development. This committee tracks information about accessibility around the world among other topics. They have sustainable development goals, and DaSilva is assisting with an element within the fourth goal, which is ensuring that any and all children with a disability have access to an accessible school.

In February of 2018, the UN will be hosting the World Urban Forum in Malaysia, where discussions will take place regarding the acutest issues as a result of increased urbanization. During this time, DaSilva will be presenting AXS Map and will host a Mapathon. Jason DaSilva humbly shares that he is a bit shocked by how big AXS Map and his movies have gotten and at times it can be a bit intimidating. When asked about changing perspectives, he frankly mentions that the road to acceptance is hard, and even him, who continues to pursue his passions, struggles with sliding back into the “anger and depression stages” but “seeing the impact [his] films and AXS Map has had really helps.”

Stay up to date with the release of the When We Walk and The Dismantled as well as an updated version of AXS Map by following Jason DaSilva on social media – @jdasilvax.


Photo below: AXS Map founder Jason DaSilva

Accessible Accommodations are Just a Click Away

0

Traveling can enhance your life on many levels. You may see different things, meet interesting people and, perhaps, even shift your perspective by learning something new. Two lifelong friends from England experienced these wonderful benefits. However, because they each have spinal muscular atrophy, a genetic disorder that affects the control of muscle movement, they unfortunately also experienced frustrations pertaining to accessible accommodations.

Srin from Accomable exploring Singapore
Exploring Singapore

The Start-Up

In 2011, Srin Madipalli took a life-changing European road trip. “I was able to go adaptive scuba diving in Bali, wheelchair trekking in California and even on safari in South Africa,” he says. “While I knew I was incredibly lucky to have the opportunity to travel like this, I quickly discovered how difficult and time-consuming it could be to plan a trip with a wheelchair.” He relied on social media, personal recommendations and various accessible sources but found that securing distinctive accessible accommodations proved to be difficult throughout the world.

“The worst was arriving at an accommodation advertised as accessible, only to find steps up to the front door! I’d also have to research accessible tours and excursions at each new location,” he explains. Such hindrances began to impede his joy of traveling – a feeling he suspected was shared by others with disabilities. Madipalli decided to improve accessible travel. So, to fill the gap, the London-based lawyer boldly turned his passion into anew full-time profession.

“I quit my job and taught myself to code,” Madipalli explains of learning how to create a system of online commands and communication. In 2015, he and friend Martyn Sibley co-founded Accomable, an online booking platform that houses accessible accommodations worldwide including homes, apartments, swaps and other rentals. The mission: To make accessible travel as easy, simple and straightforward as possible.

Accomable produced 1,100 listings in over 60 countries, inclusive of high-quality photos and detailed information of accessibility features!

Srin from Accomable exploring Monserrat by finding accessible accomadations
Srin in Monserrat

How It Grew

In 2008, years before Accomable, three men in California established an innovative, first-of-its-kind start-up. Brian Chesky, Joe Gebbia and Nate Blecharczyk couldn’t afford their rent so they launched a modest website to lease their loft to travelers. The effort became Airbnb, now considered the go-to marketplace for various types of privately-owned rental homes. Airbnb now has 4 million listings worldwide throughout 65,000 cities.

Airbnb strives to “connect travelers seeking authentic experiences with hosts offering unique, inspiring spaces around the world.” Many travelers love the company; in fact, 260 million guests have used the service. Yet, a Rutgers study – which analyzed six months of data in 2016 – found that Airbnb “hosts were less likely to pre-approve, and more likely to reject outright, the requests from travelers with disabilities than requests from travelers without disabilities.” Surprising? Maybe not. Acceptable? Definitely not.

Airbnb is committedd to addressing these findings. A statement on the company’s website read, in part, “While we have rules that prohibit discrimination against people with disabilities and an Open Doors policy that helps ensure everyone can find a place to stay, its clear that we can do more to effectively serve people with disabilities.” They went straight to the expert source for help and, in November 2017, Airbnb acquired Accomable.

Madipalli recently transitioned to the role of Accessibility Product and Program Manager at Airbnb. He relocated to San Francisco, Airbnb’s headquarters, and continues to work with his London-based Accomable staff, which includes team members with disabilities. “I think this is very important to ensure we have the right expertise and understanding of accessible travel and the issues travelers with disabilities can face.”

Accomable accessible accommodations featuring diving in bali
Diving in Bali

What’s Next?

Listings on Accomable remain active but, eventually, the site will cease and redirect to Airbnb. “Our mission at Airbnb is to enable anyone to belong anywhere – something we will be relentlessly pursuing in the months and year ahead,” says Madipalli.

Prior to the acquisition, Airbnb only listed “wheelchair accessible” as an option for travelers with disabilities, whereas Accomable itemized more than a dozen different accessibility features. Recently, Airbnb announced plans to implement a fresh “accessibility needs” checklist for hosts to create more detailed listings, such as designating entryways as step-free, doors as wide enough to accommodate wheelchairs and more.

“I am leading our efforts to build upon and improve our accessibility features and filters at Airbnb. We will be working with the community to improve these continuously in the coming months to ensure guests with disabilities can quickly and easily identify accessible listings, which suit their needs, on the Airbnb platform,” Madipalli confirms. And he’s focused on developing new policies and features to ensure accessibility information is as accurate as possible. Feedback from both travelers and hosts (via email: accomable@airbnb.com) is welcomed and encouraged.

Airbnb is exploring other ways to make its platform more user-friendly for all. For example, it partnered with Lighthouse for the Blind and Visually Impaired to research website design and ease of use. And it is rumored that, in the future, Airbnb could expand to also encompass accessibility experiences which, as Madipalli shared, is a time-consuming element.

Madipalli is serving on Airbnb’s Diversity and Belonging team to ensure that the company’s environment remains positive for professionals with disabilities. “As part of this, I’ll be helping create new initiatives to increase the numbers of disabled applicants,” he says.

Happy traveling!

Photos– Thumbnail: Srin Bali Diving; Article Photos: Above – Srin in San Francisco, Below Left – Srin in Singapore, Below Right – Srin in Monserrat

Meet Shaquem Griffin: The UCF Knight’s One-Handed Superstar

0

The UCF football team recently wrapped up an undefeated 2017 regular season… Go Knights! For linebacker Shaquem Griffin, it was the perfect climax to his senior year. It’s not the first time, however, that the St. Petersburg native beat the odds to come out victorious. His skills – both on and off the field – are exceptionable but, because Shaquem has just one hand, he’s constantly worked to prove himself. And that he did… perfectly.

First Quarter

During pregnancy, parents-to-be Tangie and Terry Griffin learned that amniotic bands entangled Shaquem’s wrist. Born two minutes after his twin Shaquill, Shaquem was born with amniotic band syndrome with an underdeveloped hand. The condition was extremely painful. “Everything I touched burned,” he recalled in an interview with ESPN of his early years. Hoping to end his agony, then 4-year-old Shaquem attempted to self-amputate his hand using a kitchen knife but, luckily, Tangie intervened. She immediately scheduled his amputation surgery.

During recovery, Shaquem anxiously awaited getting back to football. And his father was eager to coach him. Terry admitted to being “hard” on the boys because of their potential and he never let Shaquem use his disability as an excuse. Terry was creative with his motivation; for example, he built an L-shaped brace so Shaquem could bench-press.

Aside from sports, Shaquem also appreciated the arts. He played the baritone and, with Shaquill, performed with a dance team. “After football practice, we used to practice choreography,” he recalls. Practice made perfect for most everything they did. The two were jointly named Tampa Bay Track and Field Athlete of the Year by the Tampa Bay Times. And football offers came surprisingly early. Shaquem expected resistance from scouts due to his disability but says, “I got my first offer in my sophomore year of high school and it kept coming from there.”

Second Quarter

Accustom to being a pair, Shaquill turned down offers from high-profile colleges that wouldn’t grant his brother a football scholarship too. Unfortunately, some scouts only saw Shaquem’s amputated hand… and not his whole being.

The duo enrolled at the University of Central Florida. Shaquill suited up for game days while Shaquem redshirted, meaning he attended classes and team practices but didn’t compete. When Scott Frost replaced long-time UCF head coach George O’Leary in December 2015, Shaquem got his chance. “I wondered how he could function with just one hand,” Frost admitted in a Yahoo! Sports interview. But, “After two practices, it wasn’t even an issue.” Wearing the #18 jersey, Shaquem was about to become a UCF legend.

“You can do anything you set your mind to and put the work into. There are no limitations to what you can do! The only thing that can stop you is yourself.” – Shaquem Griffin

Third Quarter

In 2016, the 6’1” 223-lb. junior started all 13 games as an outside linebacker and dominated. Shaquem’s season included a total of 92 tackles (and a team high of 57 unassisted tackles), 11.5 sacks (the sixth most in a season at UCF) and was ranked 12th in the nation in sacks and 13th in tackles. He was named American Athletic Conference Defensive Player of the Year and earned First Team All-Conference honors!

Then, his brother Shaquill was selected by the Seattle Seahawks in the third round of the NFL draft. Thus, Shaquem’s senior year would be his first without his twin by his side. He kicked off the season earning way onto four pre-season watch-lists for national awards: Butkus Award for best linebacker, Nagurski Trophy for Defensive Player of the Year, Bednarik Award for best defensive player and Wuerffel Trophy for achievements on and off the field. Additionally, thanks to his volunteerism with the Boys & Girls Clubs, AAU track club and motivational speaking at schools and hospitals, Shaquem earned a nomination for Allstate AFCA Good Works Team which honors student-athletes for outstanding community service.

The final big win? An undefeated senior season, of course! Regarding the unprecedented success, Shaquem shared, “It’s an amazing experience. Not just being on the field but off the field. You get love from the students and everyone that supports UCF.”

Shaquem Griffin running with the ball at a UCF game
Shaquem Griffin, Courtesy of UCF

Fourth Quarter

22-year-old Shaquem holds a degree in human communication and is working on second major in interdisciplinary studies with a minor in sociology. At press time for this issue of AmeriDisability Services, Shaquem was preparing to compete with UCF in the Peach Bowl against Auburn. Afterward, he’ll start “training again and getting ready for the next level.”

Does that mean the NFL? “I am blessed to play [now] and that [NFL] is not the main focus. My whole thing is just to give everything I got,” he says. “The people making the choices about me playing [in the NFL], well it’s up to them. At the end of the day, if they want me to play, they’ll choose me.”

While Shaquem is humble and downplays his future in football, we’d double down that this single-handed superstar gets drafted. And perhaps sibling rivalry will turn into genuine competition. Or, maybe the Griffin twins will suit up in Seahawks gear together. Regardless, Shaquem hopes he’s inspired others with impairments.“You can do anything you set your mind to and put the work into,” he says. “There are no limitations to what you can do! The only thing that can stop you is yourself.”

Shaquem Griffin jumping up after a victory at UCF
Shaquem Griffin, Courtesy of UCF

Home Designer Gives Green Light to Accessible Blueprints

0

Susan P. Berry is an architectural consultant offering frameworks for both residential and commercial construction with an emphasis on accessibility. Armed with over 30 years of experience and association with the American Society of Interior Designers and the American Institute of Building Designers, Susan developed two businesses: Disability Smart Solutions, which provides ADA guidance to companies, and Susan Berry Home Design, offering consultation to individual consumers seeking residential accessibility.

Stepping Stones

Susan’s passion for accessibility sparked during architectural school. But personal influences were really the building blocks to establishing her niche. She encountered mobility limitations following an injury, the parent of a child with special needs and caregiver to her wheelchair-bound mother.

“I broke my ankle and twisted the other and I had to [temporarily] use a wheelchair. And, so, I started realizing all of these things that just didn’t work [for people with disabilities] and get overlooked,” Susan recalls. Later, while caring for her mother, Susan was stunned that businesses – like hair or nail salons and even dental offices – refused to provide services to her mother if she couldn’t transfer herself from the wheelchair to the service chair. “I saw how spaces don’t work [for all] and I became passionate about both residential and commercial design.”

The Comforts of Home

Many builders now proclaim to offer “universal designed homes,” but Susan says that there is no one-size-fits-all solution, especially since “children grow and adults change.” So, how can Susan Berry Home Design help? “Let’s say you go to a large [new home] builder and you pick out one of their plans. We’ll review the design and talk to the person with the disability, the caregiver and maybe the physical or occupational therapist that might have additional input. We’ll take all of that and do some sketches, notes and suggested products to adjust the home to work accessibly,” Susan explains. Sometimes that includes widening hallways, changing bathroom layouts and recommendations for home security and color identification to “make spaces easier.”

Susan, who renovated her own 1950s home to aid her mother, often works with clients who are newly disabled and in need of home modifications. Clients often seek consultation for ramps, doors and turning bathrooms into complete wet rooms. “Each person with a disability is different. So we ask personal and detailed questions about how they do daily tasks to figure out what they need, what they can do without and what’s the budget to make it happen.” For example, she recently improved kitchen functionality for a 6’4” client with a spinal cord impairment who had pain when bending. She installed a heightened kitchen island and repositioned appliances so he could continue to cook without arching his back. For a different client facing mobility restrictions following a fractured hip, she assessed the ceiling tresses to determine if lift installations could work.

Spaces can be transformed, for example, by eliminating a spa tub to allow for a larger walk-in/roll-in shower with safety seating, removing toilet closet walls to create transfer space or lowering cabinets. “We want to design a beautiful room that is function without looking like a hospital bathroom, and retain resale value,” she says. “It’s looking at the individual’s abilities and figuring out what can be done within the budget to make the home work for that person and their caregivers.” Susan also encourages her clients to consider future needs that may arise, such as from degenerative diseases or disabilities (like multiple sclerosis), aging or a growing child.

“People are finally becoming aware that accessibility is important. Wheelchair users are only five percent of the disabled population. Twenty percent of Americans have some type of disability, and in Florida statistics are even higher as a ‘retirement state.’” – Susan Berry

Making Facilities Operational

Earlier in her career, Susan contributed to large-scale universal design projects at Walt Disney World Resort and corporations including Victoria’s Secret and Bath and Bodyworks. Through GiveKids the World Village, a nonprofit resort serving children with life-threatening illnesses and their families, Susan says: “I learned how to build rooms for individuals that perhaps were on a gurney versus a chair, or had other needs, so I gained a better understanding of how additional space is really needed and varies.” Over time, she’s noticed a positive shift within the corporate section to attempt to go beyond existing (and somewhat minimal) ADA standards.

“People are finally becoming aware that accessibility is important. Wheelchair users are only five percent of the disabled population. Twenty percent of Americans have some type of disability, and in Florida statistics are even higher as a ‘retirement state.’” But, of course, there is always room for improvement and she hopes to see advancements with architectural adaptions.

“Many architects were trained to think in terms of space; so they see [wheelchair] transfer space, but not how a person really functions within the whole room. Architects are watching [out] for the developers ’budget by not adding an [accessible] item; so thinking they’re saving the developer money, [but] really this could open you up to ADA litigation,” suggests Susan. For example, she recently reviewed the design of a bed and breakfast. Unfortunately, it was designed to meet standards applicable to apartment buildings rather than ADA codes for lodging facilities. “There is a lot of confusion when it comes to accessibility codes of different types of buildings, and there are also federal and state codes,” explains Susan, who hopes for better compliance.

Based in Central Florida, Susan says that, for the most part, Orlando-area hotels, conference centers and theme parks are conscious of accessible needs. However, aesthetic trends present complications. She says,“Everyone seems to want big, tall beds which are not at transfer height, so people with a disability need a lower bed and that has been a challenge with hotel owners.” Unfortunately, some public places and offices are less aware of accessibility requirements. For example, she says, “It’s common for restaurants to store extra chairs in hallways which makes it non-accessible as a 36-inch path.”

Through Disability Smart Solutions, Susan works with companies on accessibility such as with surveying and compliance. Plus, she facilitates training and workshops on an array of ADA topics like disability customer service, service dogs and various architectural barriers.

Universal Design for stylish and accessible bathrooms

Gold Standards for Golden Years

Seniors may develop newfound limitations, but Susan says good home design is limitless. She aims to improve functionality and safety. A senior client with arthritis, for instance, may need modifications because of narrowed hand mobility. “We can use levers versus handles on doors knobs and sink handles; also change out cabinetry handles and lower closet rods,” Susan says. Seniors can update handrails, peepholes, lighting (i.e. ceiling vs. lamps, enhanced brightness), flooring (i.e. slip-resistant, rug removal to prevent tripping, level walkways) and generally declutter. “For bathrooms, I like to use a standard showerhead as well as a handheld because it makes it so much easier to bathe and also clean the shower, and also use comfort-height toilets.” For those residing in a two-story home, relocating to a downstairs bedroom is ideal. However, some may opt for a stair-lift or personal elevator.

Through Disability Smart Solutions, Susan facilitates an ‘Undercover Senior Customer Experience,’ in addition to an ‘Undercover Disabled Customer Experience,’ to aid corporate teams with customer engagement and compliance because “great customer service is the easiest way to gain loyal customers and avoid disability discrimination lawsuits.”

For more information, visit DisabilitySmartSolutions.com (business) and SusanBerryHomeDesign.com (residential) or call (407) 331-4855.‍

Friends & Stars Nonprofit Shines within Disability Community

It’s been three years since Angella McTire was pleasantly surprised to discover that her 39-year-old son, Carlton Bailey, had artistic talents. Twice a week, Carlton, who has Down syndrome, creates paintings, pottery and more at Friends & Stars, Inc., a Lauderdale-based nonprofit providing high-quality, creative arts programming designed to be all inclusive of special needs populations.

The inspiration for the organization came from one art admirer. “My artwork – a series of Caribbean paintings – was on display at the Schacknow Museum of Fine Arts. There was a gentleman with Down syndrome that came to the museum every day. The museum director asked me what we could do to [further] engage people with disabilities [in the arts],” recalls Dixie Henderson. “So I replied, ‘start a program!’” In 2010, Dixie channeled her ability to turn a blank canvas into something beautiful and launched Friends and Stars. At the time, it was a weekly art program for persons with Down syndrome and held at the Schacknow Museum and, later, county libraries. Demand for expanded services rapidly grew and, in 2014, Friends and Stars opened a 1,900-square-foot facility operating creative studios and administrative offices five days a week with fully-inclusive, disability-centered programming.

“Most of my clients are non-verbal individuals, so when they begin to create and conceptualize something and then reduce it to the canvas… that is speech! Because when you look at the painting, it is clear what they are saying,” Dixie proclaims. Seeing Carlton’s work, which has been publically displayed, Angella agrees that he’s excelling both physically and emotionally through art, stating: “You can see the happiness on his face and he feels productive [with what he creates].”

Friends and Stars hosts about 500 people per month with classes facilitated through “a group of professional artists with a desire to give back to community,” including three instructors and about 15 volunteers. The Saturday Activity Club (for adults 18+) remains the flagship program. It involves drawing, painting, pastels, sculptures, abstract art with recycled materials, jewelry-making, glass-fusion and leather crafting. During the week, Friends and Stars conducts private sessions, group classes and youth programs for both homeschool students and children with disabilities (in partnership with Broward County Public School’s ESE program and VSA Florida, the state organization on arts and disability). “We also host classes for adult women that are especially enjoyed by our mothers who are caregivers” declares Dixie. She says she works harder now as a nonprofit leader during her “retirement years” than during her law career; in addition to facilitating art classes at area senior centers.

Friends and Stars is an affordable fee-for-service organization that off-sets client costs through grants (such as the autism license plate), fundraisers, private and corporate donations, and in-kind contributions. A two-hour professionally-led session averages $15 and includes all supplies. It’s a nominal fee for such a priceless engagement. “It’s really important for special needs people, in general, and their families to have an opportunity to get out of the house and escape the reminder of the disability or the financial impact of the disability. A family can relax, create and work together to make an entire project that they’ll have for years,” says Dixie. In January 2018, Friends and Stars will expand and open an innovative 7-acre campus in Thomasville, Georgia, to include a partnership with the Thomasville Center for the Arts. “We’re becoming a destination beyond the classroom with more activities,” explains Dixie. For more information on programming in Florida and Georgia, visit www.ArtsAndDisabilities.org.

I Am Sheriauna: A Beautifully Different Book about Disabilities

At the age of four, Sheriauna’s loving mother, Sherylee, began writing the story I Am Sheriauna. It is a tale of a vibrant young girl who just so happens to be beautifully different. The story was written with the hopes of breaking down the stigma associated with being “different” as well as empower individuals with and without a disability to promote inclusivity and acceptance.

The concept of acceptance and love for all is not new to Sherylee as she has been working in social services supporting people of all walks of life. Throughout her career she has helped people with varying disabilities, women in treatment centers, individuals with acquired brain injuries and is currently helping people find employment in the Toronto area. Sherylee’s experience with recognizing and appreciating differences started when she was just 13 years old. “I was at the mall walking around and saw someone in a wheelchair. I found myself staring because they didn’t look “normal” but thought, what is normal? We are all different, so there really isn’t a real normal.” Although just a young pre-teen girl, she quickly had the revelation “I’m not going to stare regardless of what they look like or are doing. They are just people.” Sherylee’s experience from that day and through her social work helped prepare her, whether she realized it or not, for the next chapter of her life.

At 20 weeks of pregnancy, Sherylee had an ultrasound and over the weekend had a thought, “what would happen if my child was born missing part of her left arm.” At the time, Sherylee waved it off and thought it was absurd to think such things, but looking back she believes that it was “God’s way of preparing me for the news that was to follow a day later.” Her doctor confirmed that Sherylee would indeed have a child born with a portion of her left arm missing. Sheriauna was born with Congenital Limb Reduction on October 1, 2006.

 A Turning Page for Inclusion

I Am Sheriauna is a book for children, parents, guardians, and educators alike to initiate constructive conversations regarding diversity, acceptance, communication, and inclusion. All topics that are essential for creating a loving and empathetic social environment. It is a wonderful story that shares the early life of Sheriauna, how she was born, how she learned to do things such as walk and crawl like most other toddlers, and even some of her favorite hobbies such as dancing! As we all know, knowledge is power and this book is not only spreading a positive message but also equips individuals of all ages with the foundation to start a positive and appropriate conversation. In particular, the highlighted keywords and the glossary which explains the meaning is an exceptional addition to this educational book!

The story stems from Sherylee’s journey of being a parent of a child with a physical “difference” and Sheriauna’s experience with others day to day. She recalls, “there were oftentimes when children would stare and even adults would stare. I wanted to equip Sheriauna with the words when people would ask, “What happened to your arm?” Since Sheriauna was only four and still lacked sufficient vocabulary, Sherylee placed herself in her daughter’s shoes and imagined how she could communicate with others. The outcome was creating the children’s short story in a way that was inviting yet informational while using Sheriauna’s voice as the narrator guiding readers through her journey in life thus far.

The writing process was easy because it came from real-life scenarios, but it took a few years for the book to come to fruition. The illustrations had to be just right. Not for others, but for Sheriauna. Being a mother of a daughter who is an amputee and also black, Sherylee made it her mission to find the right illustrator who would represent her daughter in the best way possible. The outcome is spectacular! Upon looking at the story, you can almost feel the energy bursting from page to page showcasing a bright and lively young girl who just wants to be seen for who she truly is.

In March 2017, Sherylee had her finished product and presented it to Sheriauna, who at first glance said, “Wow, she looks just like me!” This simple but powerful statement was the best compliment Sherylee could have received because that is exactly what she wanted to provide her sweet and beautiful daughter.

The Next Chapter of Celebrating Diversity

Since launching the book, the mom and daughter duo have been busy spreading the message about empowerment and inclusivity. They have worked closely with Holland Bloorview Kids Rehabilitation Hospital, where Sheriauna received her prosthesis and is also a spokesperson for the rehab center’s awareness initiative, Dear Everybody. The duo will be showcasing the incredible story at upcoming book signings. At their first book signing, they sold out in four hours!

Although they are in Toronto, this book is accessible anywhere and those interested can order from Amazon for under $12. Ten percent of the purchase price is donated to Holland Bloorview Kids Rehabilitation Hospital and The War Amps.

Sherylee and Sheriauna are always excited to connect with fellow families to build community regardless of distance. If you are interested in connecting you can contact them on their website IAmSheriauna.ca

Make sure to follow their incredible journey on social media and become an active participant in spreading the message that “we are all perfectly imperfect.”

Photo below left: Excerpt from book, I Am Sheriauna; Photo below right: Sheriauna and mom, Sherylee

Tech Opportunities for All – Learn the Skills Today and Reap the Benefits in a Matter of Months

0

In today’s day and age, technology is where you can learn skills in as little as three months and come out with a job that pays more than most professions that require a bachelor’s degree. As of today, there are approximately 500,000 job vacancies according to Code.Org, an online learning platform geared towards teaching coding to children. Did you notice that word, vacancy? Those are the leftovers, the ones that are not being filled due to a lack of workforce with the necessary skills to fill them.  More and more employers are announcing that most applicants do not have the technical skills needed to meet company goals and propel growth.  Perhaps you can be one of the people to meet that demand!

Unfortunately, our education system is lagging when it comes to teaching our students computer science which is hindering them from learning about the magnitude of opportunities in the tech industry.  According to Code.org, only 40% of schools are offering any type of computer science education.  Luckily, the White House passed a memorandum on September 25th, 2017 that promises to address the need by allocating $200 million to increase access to computer science education.  Two days following this, large tech firms, such as Google, Amazon and many others allocated a total of $300 million to increase computer science education.  That is how important tech is for the future of the economy and growth.  It is great news as the U.S. is far behind many other countries who teach their students computer science at a young age.  Virtually every company is turning into some form of a tech company whether they are using online platforms to automate processes and increase efficiency or they are going completely digital to lower overhead costs.  Regardless of the company or role, learning technical skills is valuable to any position and could help you earn higher wages and enjoy more job security.

So, let’s get into how you can start learning skills right away to make money remotely and even turn your skills into your very own business. Below is a just a small list, from Skillcrush.com, of jobs that are in high demand now:

Web Design – 61K +

Digital Marketing – 68K +

Web Developer – 76K +

Specialized Programming Language -100K +

Skillcrush – They have “blueprints” based on which type of job you are looking for. The platform is extremely user-friendly and the online support is phenomenal.   The price is relatively low compared to traditional coding “bootcamps.”   www.skillcrush.com

Udacity – This platform has free and paid courses that range from learning digital marketing to building self-driving cars and even virtual reality. The beauty of this platform is that you can learn skills in the free courses and then take the more challenging courses as you progress.  www.udacity.com

Solo Learn – This company offers multiple applications that allow you to learn anywhere, anytime and for free. There are numerous languages that you can learn through a step-by-step process that is similar to playing a game.  So for all those who like to play games on social media, you will love this.  www.sololearn.com

W3schools.com – Great site that does not have a traditional learning platform, but offers free tutorials in the most common programming languages with built-in editors that allow you to test out what you are learning! www.w3schools.com

The most common programs to start off with are typically HTML and CSS, which are your website building tools.  Then Javascript which makes the websites interactive. Check out the sites above or research the many others available and start learning today!

Remember, any investment in yourself is the ultimate investment you can make because you will not only better yourself but uplift those around you as well!

Island Dolphin Care Makes a Splash with Animal-Assisted Therapy

0

Many relocate to Florida for retirement; but for Deena and Peter Hoagland, the sunshine state offered a brighter future for work and wellness. Their son, Joe, was born with truncus arteriosus, a rare and often fatal congenital heart disease requiring multiple heart surgeries. “I moved my family to Key Largo in 1990 to take a job at a fish farm at the tip of the Everglades because we were desperate for a paycheck and insurance. Joe was born in Colorado, and after his open heart surgery we had to move to sea level [as high altitudes can strain the lungs and heart] and we choose Florida,” Peter explained.

During a surgery, Joe suffered a devastating stroke. The Hoagland’s were told that their 3-year-old son would never recuperate. However, Deena, a licensed clinical social worker, was determined to enhance Joe’s recovery and quality of life. Joe wasn’t responding to traditional therapies and so, because he loved the water, Deenatook him to Dolphins Plus, a recreational marine mammal encounter facility. “A dolphin named Fonzie popped up in front of Joe and he laughed for the first time since his stroke,” Peter recalls. Thanks to that miraculous moment, Dolphins Plus allowed Deena to use their facility for Joe’s aquatic and dolphin-assisted therapies which quickly proved to be effective. She expanded her effort to other children with special needs and eventually, in 1997, founded Island Dolphin Care. Deena serves as Executive Director and Peter as Program Manager, along with a team of zoological experts, veterinarians, therapists and educators.

Island Dolphin Care is a nonprofit providing uniquely motivational dolphin-assisted therapy programs for hundreds of children and adults with diverse special needs or illnesses and their families. “When you come close to these animals, you know you are close to something amazing and something extraordinary,” Deena said. The Autism Society says that animal therapy, including swimming with dolphins, can “provide soothing sensory stimulation, a point of focus and opportunities to learn about behavior and communication.” The Autism Society says dolphin therapy was first used in the 1970s by psychologist David Nathanson, who believed interactions with dolphins improved a child’s attention and cognition. Island Dolphin Care does not claim to have cure-all dolphins but rather trained therapists working with eight dolphins that enhance opportunities for positive communication and self-esteem through fun and motivating experiences.

“When you come close to these animals, you know you are close tosomething amazing and something extraordinary.” – Deena Hoagland

Island Dolphin Care offers individual/family programs and group programs in partnership with area hospitals. Customized sessions include a dedicated therapist for structured water play, classroom activities using adaptive tools and technologies, and other enjoyment (aquarium, picnic, etc.). “Our program is different than others because it includes the whole family in the process. That’s a large part of our success whereas most therapies ─ like speech, physical and occupational ─ have the child or veteran dropped off for [solo] services,” Peter said.

During an interview with the Today Show, Joe explained: “I know I can just jump in the water and they [the dolphins] will just accept me.” Realizing such a self-esteem boost could benefit many more individuals, Island Dolphin Care launched its Veteran’s Program in 2009 to present therapeutic experiences for wounded warriors and those with post-traumatic stress disorder (PTSD). “A veteran and his family may not recognize each other because they are changed people [following combat]. So, when you are in this environment, everything troubling you tends to go to the back of your brain if you will. You exist in the moment because you have a 500-lb. dolphin in your face! Often a family finally sees their veteran laughing for the first time in years,” Peter describes.“If you can control your perspective, you can make a choice to regulate terrible memories to live more in the moment. It’s the most remarkable outcome that I never predicted when we started this company [in honor of my son].”

Now 30 years old, Joe is a happy, independent adult who, for years, worked with Peter on facility operations and maintenance. Recently, Joe took a job alongside the Zoological Director. “He started as a dolphin training trainee. I think he’s found his niche with a new career track,” shared Peter, who claims his son is a walking medical miracle following five open heart surgeries and countless cardiac catheterizations. “He is a hero and inspiration to us and hundreds of kids and families around the world!”

Thanks to contributions, Island Dolphin Care offers financial assistance and discounts to participating families. In September, the facility was significantly damaged by Hurricane Irma and, now more than ever, needs support. To aid the mission of Island Dolphin Care, attend the “I Do Care” fundraising gala on November 18, 2017; or donate at IslandDolphinCare.org or (305) 451-5884.