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Game On! Endless Possibilities Champions Adaptive Sports in South Florida

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Denise De Mello spends much of her time on the boccia court at the Club Managers Association of America Therapeutic Recreation Complex, a Paralympic sports facility equipped with a swimming pool, athletic center and adaptive equipment rentals in Lake Worth, Florida. Not familiar with boccia? “It’s similar to the Italian game of bocce. It’s an interesting game with hand-eye coordination,” says Denise. Played indoors, boccia athletes throw, kick or use an assistive device to propel leather balls as close as possible to a white target ball (the jack). “I hadn’t played wheelchair sports before, so I thought this sport was a good introduction,” she explains. Denise was initially misdiagnosed with cerebral palsy before doctors discovered that her disability actually stemmed from a benign tumor on her spinal cord; but the now 57-year-old hasn’t let her disability slow her down.

Denise learned about adaptive recreation about seven years ago at a gathering of people with physical disabilities. “I got involved [in the group] because I wanted to be more active,” she explains. That objective was shared and, so, the informal assembly formerly obtained 501(c)(3) nonprofit status as Endless Possibilities, an organization that provides adaptive sports and recreation.

Endless Possibilities started with wheelchair rugby play. “The game was first developed in Canada as a team sport for quadriplegic athletes, and was originally known as ‘murderball.’ It was a very intense game of players in metal wheelchairs going full speed on a court crashing into each other,” Denise describes. While a level of competitive enthusiasm remains, though with a new focus on positive teamwork, the sport ─ known in the U.S. as quad rugby or wheelchair rugby ─ challenges players to bounce or pass a ball every 10 seconds to, ultimately, carry it across the opponent’s goal line to score.

Endless possibilities wheelchair basketball team playing

Endless Possibilities now offers eight programs: boccia, as described above; goalball, a court game played by visually impaired athletes using an audible ball; handcycling, using an upper-body powered bicycle; power soccer, an indoor version for power wheelchair users; sitting volleyball, adaptive with a lower net and players seated on the court floor; sled hockey, a sit-down version of the sport with two sticks dually used for mobility and play; wheelchair basketball, similar to traditional play for wheelchair users; and wheelchair (or quad) rugby, as previously defined. “Our vision is to expand to include more Paralympicsports,” Denise declares. Endless Possibilities’ programs are offered year-round typically with one to two opportunities per week and are co-ed. Currently, about 100 members ─ ranging from teenagers to seniors ─ participate in both recreational and competitive play depending on the sport.

Endless Possibilities welcomes all individuals with physical disabilities regardless of sport skill level. “We encourage you to come out and at least try something. Every time a new person comes out, they get a big happy smile and say ‘I never thought I could do that!’ We want people to try as many sports as they want to experience that sense of enjoyment,” Denise says. Additionally, members gather socially. “Our monthly meetings are more of a peer support to talk about what’s been going on with one another. We talk about new technology and what is available in [adaptive] sports. But’s it’s a social gathering with people who face similar things so we talk about much more than sports.”

Thanks to support from the Christopher and Dana Reeve Foundation, monetary grants and private donations, membership is free! “Endless Possibilities is run completely by volunteers who want to help out, make sure our chairs are working fine for members and are focused on helping to put 100% of donations back into the programs so everyone can participate at no cost,” Denise proclaims. To learn more or to contribute, visit EndlessPossibilitiesForDisabled.org

Surfers For Autism Ride Impactful Waves

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In 2008, not long after Damian Richter’s autism diagnosis, his mother Tracy Bastante heard about an inaugural surf event hosted by Surfers For Autism, a nonprofit organization pairing volunteer surfers with children with autism spectrum disorder (ASD), a group of developmental disabilities that can cause significant social, communication and behavioral challenges. According to the Centers for Disease Control (CDC), about1-in-68 children have ASD.

“We strive to open up a world for children and their families that they never thought would be possible,” explains Dave Rossman, Communications Director for Surfers For Autism. And Tracy, a single mom in Deerfield Beach, attests to that! Just 5 years old at the time of the launch event, Tracy was cautious to let her autistic son take on an extreme sport in the choppy ocean alongside “strangers” but, after catching a wave, Damian’s face lit up like never before with an accomplished grin. “All you ever want is to see your kid smile,” Tracy emotionally proclaims of Damian finding happiness in surfing.  “Surfing has given him an identity as a surfer and self-confidence. I love seeing where he came from and where he is now with the ability do tricks and handle his board without fear.” Now 15, Damian plans to participate in every Surfers For Autism event this year while also surfing with Special Olympics and other groups.

Surfers For Autism supports research, awareness and advocacy while also creating safe, fun and judgment-free social environments. “Surfers For Autism is a cult but in the best connotation of the word, with bonding of people with a like mission to get these kids surfing and give these families a day that they never thought they would have in their lifetime,” Dave says. “Parents spend the day with families that are facing the same issues so there is a lot of connecting and strength building from that. They talk about struggles and offer each other advice and encouragement. Many of our families become friends and spend time together throughout the year.”

Girl on a paddleboard with surfers for autism

Three volunteer surfers support each rider during a 25-minute session – one to choose waves, another to steer the surfboard and a third at the shoreline to help the rider back into the ocean for another exhilarating ride. The volunteer-run organization hosts 10 annual events which welcome 200 registered surf participants, 350 volunteers and, depending on the market, anywhere from 2,500-12,000 supportive beachgoers. Though not traditional fundraisers, events generate about $10,000 in donations to further the cause. The minimum age for participants is 4 years old, but ranges up to the mid-20s.

Surfers are known to have mellow attitudes and perhaps Surfers For Autism is channeling that mood.  “While Surfers For Autism is just one therapy component for our families, we often hear of the calming effects lasting for days or even weeks after events and behavior improvements in school, plus the building of friendships which may otherwise be a struggle,” Dave shares. Studies have found that surfing decreases negative feelings and increases positive feelings. Parents have noted subsequent progress with communication, body awareness and other improvements. Surfers For Autism engages the whole family unit, so even siblings love these ultimate beach parties filled with entertainment, painting, gaming tents and more. For information, visit SurfersForAutism.org or Facebook.com/SurfersForAutism. And shop at SurfersForAutism.storenvy.com to benefit the organization.

Wheelchair Athletes Have a Ball

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Since 1992, the Orlando Magic Wheels have encouraged people with disabilities to bring their A-game to team sports. “We are a sanctioned team with the National Wheelchair Basketball Association,” says coach Joyce Prakke. The Orlando Magic Wheels currently compete in Division 3 games throughout Florida.

“A lot of us [players] were in competitive sports before we became disabled. When you have that competitive attitude, you can become frustrated if you don’t have that outlet,” explains Prakke. Once the starting center on her high school basketball team, her sports career was sideline when, at 17, osteogenic sarcoma in her pelvis bone led to a pelvectomy. The following year, the same type of cancer claimed three-fourths of her right shoulder. “I did not find out about disabled sports until I was 37 years old and I have not left yet,” says Prakke.“It allows you to enjoy cardio despite a lower limb disability, and offers a culture of people who are not judging you for doing something in a different way.” In fact, the mission of the Orlando Magic Wheels is to educate others about disabilities while helping to sustain and promote physical and emotional health in disabled people.

Orlando Magic Wheels team members

“We are a division that welcomes and trains novice basketball players. If you’ve never played, we can teach you how,” Prakke affirms. Anyone with a lower limb disability who is coordinated enough to push a wheelchair and hold a basketball is a candidate.The current roster ranges from 18 to 60 years old, with an array of disabilities stemming from, for example, amputation, polio, spinal cord injury and traumatic brain injury. “I had to have a brain operation to correct the av malformations [of blood vessels in the brain],” says Connie Sloat, who joined the team after meeting NWBA Hall of Famer and then Orlando Magic Wheels coach Roger Davis at a disability conference 20 years ago. “This is my other family and we all work together to help each other. I see a person’s heart… not their disability.” Like Sloat, many players are long-standing team members. Prakke wore a player jersey for 17 years before assuming coaching duties this year.“It’s been educational because I am learning more of the intricacies of the game from watching and coaching rather than playing. I am going to take a referee course to further understand all of the fouls and game play,” she declares.

 “We are a division that welcomes and trains novice basketball players. If you’ve never played, we can teach you how.” -Joyce Prakke

“The wheelchair is an extension of your own body so, at some point, you should get your own wheelchair made if feasible,” advises Prakke, though she reassures that expensive equipment shouldn’t be a game deterrent. Players can use loaners (thanks to donated chairs from former players), secure wheelchair funding through Challenged Athlete Foundation grants and even find used equipment online at discounted rates.

The Orlando Magic Wheels offers a platform for athletes with disabilities to exercise and practice sportsmanship but also, specifically for newly disabled, presents therapeutic opportunities. “We just signed a memorandum of understanding with the Orlando VA to be a continuous part of their rehab in partnership with the Wounded Warriors,” Prakke shares.

Aside from likeness in name, the Orlando Magic Wheels have no formal affiliation with the NBA’s Orlando Magic team. The organization is funded, in part, by the Harper Family Charitable Foundation but mostly from supportive individual donors. Want to give it a shot? Come out to a practice, held every Tuesday (6-8 pm) at the Silver Star Rec Center in Orlando. The Orlando Magic Wheels averages about 15 games during the regular season (September to April). The top 16 teams in each division qualify for nationals. For more information, visit OrlandoMagicWheels.org; or, for those outside of the Orlando area, visit nwba.org.

Granny Nannies Help with House Calls

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The older population—persons 65 years or older—numbered 46.2 million in 2014, according to the Administration on Aging (AoA), representing 14.5% of the U.S. population. That equates to about one in every seven Americans; however, the AoA estimates this population percentage will surge to 21.7% by 2040. As aging occurs – and, in some cases, disabilities increase – many more Americans will find themselves in need of support services. For nearly three decades, families have put their trust in Granny NANNIES, a professional caregiver organization (certified by the Agency for Health Care Administration) to aid such needs. And the company is on track to meet the growing demand for home healthcare.

Rob and Kirsten Hodgson relocated from New Hampshire to Florida to care for Esther, Rob’s aging grandmother, after struggling to find her quality home-based senior services. Realizing that many other families faced the same need, the Hodgson’s established GrannyNANNIES of North America in 1990. Today, it caters to diverse client needs and operates over 35 franchise locations in Arizona, Florida, Georgia, Indiana, Pennsylvania, Michigan, Kentucky, Ohio, South Carolina and Texas. “Each person’s circumstances and needs are different,” says Diane Sanders, Operations Manager for Central Florida and Franchise Director. “Our online self-assessment helps us target what would be beneficial for the client. It’s a starting point as needs may evolve as a result of aging, disease progression, the level of family involvement or other circumstances.”

Eighty percent of elderly people have one or more chronic health conditions or illnesses that requires long-term care, proclaims Granny NANNIES, and the company’s certified nursing assistants and home health aides allow for both short-term and long-term assistance to be offered in the comfort of one’s own home. GrannyNANNIES specializes in the following client services:  Alzheimer’s disease, fall prevention, heart disease, hospice care, hospital sitter care, new parent assistance, Parkinson’sdisease, respite care relief, senior home care, social isolation attention, surgery/accident support, special needs care and stroke recovery.

GrannyNannies helping with a house call for an elderly woman

In the aftermath of two severely debilitating strokes, Valerie Greene’s life was turned upside down at the young age of 31 with significant impact to her hearing, speech and mobility. “I needed help with essential tasks like meal preparation and bathing, and Granny NANNIES was there for me. In fact, their organization was really the only group that reached out to young people.” For seven months following her brain attacks, Greene relied on Granny NANNIES to execute an array of household and personal care tasks, but says she also benefited from the social engagement during a depression period. “At the time, I was emotional and hated being by myself. I would cry when they left and feel happy when they returned,” she adds. Now the founder and CEO of Bcenter, a stroke nonprofit serving survivors and caregivers, Greene acknowledges that Granny NANNIES offers a crucial service during acute stroke recovery for survivors of all ages and, of course, other health conditions.

Sanders joined the Granny NANNIES team twenty years ago, and while senior care remains a main service line, she has witnessed a shift in clientele ─ from age to care specifics. For example, quality support is crucial in the lives of any family tending to a child or loved one with special needs. And even new parents are turning to Granny NANNIES for support. “We realized that a lot of younger women who had just given birth, especially those recovering from a C-section, could use a hand too,” Sanders explains. “Sometimes our New Parent Care if gifted by another for a day to a week to aid with incidental things – like family meals, transportation for other kids, laundry or any household errands so mom and baby can have that special bonding time without distractions.”

An inspiration for the company and beyond, Esther lived to the age of 104 and credited her well-being, in part, to Granny NANNIES. The company is committed to making care accessible and, so, in addition to private pay, clients may use the Medicaid waiver program, long-term care insurance, and the valid and Attendance Pension (A&A), a tax-free cash benefit available from the U.S. Department of Veterans Affairs to help veterans and their spouses pay for home healthcare and medical expenses. For additional information, visit GrannyNannies.com.

SilverSneakers Offers Free Fitness Programs for Seniors

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Physical activity is essential to healthy living and, perhaps, especially so for mature adults. It can prevent and/or help control many health problems (including those associated with aging), and also build and maintain strength, endurance, balance, flexibility and mental well-being. According to the Centers for Disease Control and Prevention (CDC), persons who are 65 years of age or older and who are generally fit without limiting conditions should achieve 150 minutes of moderate-intensity aerobic activity (i.e. brisk walking) or 75 minutes of vigorous-intensity aerobic activity (i.e. running) every week, plus muscle-strengthening activities that work all major muscle groups on 2+ days per week. Starting or even sustaining a fitness regime can be intimidating, but a program called SilverSneakers is making exercise more inviting and accessible for seniors.

“SilverSneakers has been the best thing that’s happened to me. Exercise just makes you feel good mentally and physically,” proclaims Leonard O., an 89-year-old who says he has a goal to bench-press 100 pounds when he’s 90! Empowering aging adults to meet their wellness objectives has been the mission of the company since its inception. SilverSneakers was established in 1992 by Mary Swanson and her company, HealthCare Dimensions. She was inspired by her father who survived a heart attack at age 51 and pledged to improve his health through regular physical activity. Mary’s commitment to support his effort expanded into a nationwide endeavor to formalize exercise programs for older adults.

Now operated by the parent company Tivity Health, more than 15.6 million people are eligible for SilverSneakers at no cost through more than 60 health plans, including the nation’s leading Medicare Advantage health plans, Medicare Supplement carriers and group retiree plans. While one’s health is priceless, SilverSneakers prides itself on eliminating gym fees, especially since typical fitness memberships average $30-75 per month. Aside from this out-of-pocket savings, a new study published in Health Behavior and Policy Review “found SilverSneakers group exercise participants saved $2,144 in healthcare costs over a one-year period compared to nonparticipants.”

“You don’t start running a marathon tomorrow. You have to take that first step. And it’s the same thing with SilverSneakers. You need to join and find out what is being offered and take advantage of it,” explains 79-year-old Mark B., who said, “I quit smoking in 1989 at the age of 50, started walking, built up to two miles and then kept going and made a marathon an ultimate goal. And, after the first one, I just kept running more.” He’s since completed 296 marathons and, of course, participates in SilverSneakers sessions!

Group of people enjoying a free Silversneakers fitness class for seniors

Despite his age, some would classify Mark as an elite athlete. However, SilverSneakers caters to all fitness levels by offering three categories:

·       SilverSneakers Classic: Classes such as CardioFit, Circuit, Stability, Splash, Yoga, etc.

·       SilverSneakers BOOM: Fast-paced, higher-intensity group exercise series intended for BabyBoomers and active older adults.

·       SilverSneakers FLEX: More than 50 types of unique classes taught at community-based locations, like churches, recreation centers and adult living communities.

According to SilverSneakers, “people who get fit with their buddies are more likely to stick with their exercise routine than those who go it alone,” and the company found that “49% of active members said they were motivated to continue exercising because they had a friend in the program.” For some members, the intention to improve heart-health also gets the heart pumping in unexpected ways thanks to socialization. As reported in a 2016 DatingAdvice.com article, then 87-year-old Nelson Walter met Mary Swenk in a SilverSneakers class and, just two months later, the pair announced their engagement! Donato Tramuto, CEO of Tivity Health, attests that relationships are among the many benefits, telling AmeriDisability Services, “From physical transformations and overcoming health challenges, to reaching new fitness goals and meeting friends, SilverSneakers helps members improve their health and well-being to live life well.”

SilverSneakers is available at more than 14,000 participating gyms and fitness centers, including 975 in Florida alone. That means that members can access weights, treadmills, pools and other amenities most anywhere, even when traveling. Plus, members can access additional health resources through the SilverSneakers website (silversneakers.com), blog and newsletter.

Planning Ahead for Lifelong Care

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Navigating support systems for individuals with disabilities can be overwhelming, especially since programs vary per state. A recent PBS article titled “What Happens to the developmentally disabled as parents age, die?” asked a tough question. The answer: Aging or ill parents and/or caregivers should plan ahead for the needs of adult children with disabilities, says Deborah Linton, Chief Executive Officer for the The Arc of Florida, a nonprofit that promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. “The time to make a transition in life is not during a crisis,” she explains, “so I encourage individuals to start planning sooner as opposed to later.”

An individual born with a developmental disability has the right to institutional care if they want it. “Most people in Florida (and around the nation) today choose not to accept institutional care to stay in the community,” says Melanie Mowry Etters, Communications Director at the Agency for Persons with Disabilities (APD), of the common decision to opt for a Medicaid waiver. To be eligible for APD services, one must be a Florida resident and have one of the following seven developmental disabilities: autism, cerebral palsy, intellectual disabilities, Down syndrome, Prader-Willi syndrome, Phelan-McDermid syndrome or spina bifida, or children age 3-5 who are at a high risk of a developmental disability. “In Florida, we have a very expansion waiver. We offer 27 different types of services. Not all states have such a rich waiver; others are limited to 8 or 10 services,” proclaims Mowry Etters, who says that 33,000 people currently have waivers, which is typically a lifelong commitment on behalf of the state. An individual assessment, determined by a questionnaire for situational information (QSI) score, determines one’s allotment through iBudget Florida, a new and improved funding system that gives APD customers more control and flexibility to choose services that are important to them.

Adult male with down syndrome smiling outdoors

“It’s been wonderful for families because, many years ago, the only choice you had for care was to be placed away from home in an institution. And the waiving of those standards allowed Medicaid dollars to flow into the community for services in their own homes,” says Linton; however, she acknowledges that Medicaid remains bias toward institutional care, citing: “because the payment for institutional care is so much higher than what it is in the community.”

Demand for services in Florida has increased, in part because the state’s population continues to rise, including retired and/or aging residents who have adult children with disabilities. As a result, unfortunately, Florida has a lengthy list of 20,000 people waiting for services. “Florida puts up 40% towards every Medicaid dollar so it’s a 40% to 60% match from the Federal government. That 40% is state general revenue dollars and, so, that’s the fight usually downtown in the legislature for more money to go into the budget. There is obviously lots of conflicting interests’ downtown because Florida has to put up your taxpayer money,” Linton explains. Mowry Etters declares that about half of the people on the waiting list receive services elsewhere, such as youth under the age of 21 who qualify for services under the Medicaid State Plan and are waiting for future services; but a gap does remain. APD also offers a waiver option for those in a crisis situation (homeless, danger to self or others or caregiver unable to give care), which has helped about 6,000 people with “one-time” services.

The waiver is designed to serve the individual with the disability such as with transportation, job coaching, adult day programs and more, but may naturally help families. “The waiver could fund a respite caregiver should the primary caregiver take a vacation, ”suggests Mowry Etters. Additional services may be available through the Agency for Healthcare Administration, Department for Elderly Affairs, Department of Children and Families, Department of Health, and Department of Education. Linton also suggests that families on the waiting list utilize Florida Vocational Rehabilitation (VR), a federal-state program that helps people who have physical or mental disabilities get or keep a job; Center for Autism and Related Disorders (CARD), a program using applied behavior analysis (ABA) in the treatment of autism; and community-based adult programs facilitated by local school boards, universities or organizations. Among those in Central Florida, Linton favors Morgan’s Place, a “multi-sensory wonderful” for children (Melbourne); Camp Boggy Creek, a medically-sound recreational environment for children with illnesses (Eustis); and the Florida Center for Students with Unique Abilities, an effort providing financial support (and more) so students with intellectual disabilities have opportunities for on-campus college experiences and employment opportunities through degree, certificate or non-degree programs.

The Stand Up and Play Foundation is Above Par for Adaptive Sports

Following injuries stemming from military combat and a car accident caused by a drunk driver, Anthony Netto found himself wheelchair-bound. Once an avid golfer, his friends urged him to get back into the game with adaptive gear. “Many golf courses think SoloRiders are [enough to be] ADA compliant but they are not truly adaptive for all. In fact, they are completely inadequate for a paraplegic like me because there is not proper belting,” Netto states. “We need to stand up to play and there was nothing on the market to do that that was suitable.” So, the self-proclaimed “stand-up guy” ─ pun intended! ─ developed a solution: the paramobile (also known as the paragolfer), a robust three-wheeled chair designed to tackle rugged terrains and allow individuals with mobility disabilities to safely achieve standing positions. He discovered that the innovative equipment lead to a higher level of independence and self-esteem.

Upping the Adaptive Golf Game

The revolution inspired Netto to launch the Stand Up and Play Foundation, aimed to help wheelchair users stand up to participate in sporting, artistic and other activities, or even just experience the empowerment of looking at one eye to eye. The volunteer-run endeavor presents paramobile recreation events ─ such as golf tournaments ─ to let all stand up and to raise funds to donate chairs to individuals, golf courses fitness centers and hospitals and/or rehabilitation facilities. In 2016 alone, the Stand Up and Play Foundation raised over $1 million. “We’re very proud to say that, last year, the foundation gave 53 chairs and that was through the help of various sponsors [including Carl’s Jr. and Hardees with Stars for Heroes], foundation activities and partnering foundations [like The Independence Fund].”

“The paramobile allows me to enjoy so many of the outdoor activities that I lost. I can play golf again, go to the beach with my grandchildren and use it in many places where I cannot walk. In a sense, it has given me back my legs.”  -Anthony Netto

Fairways for warriors golf team member using adaptive golfing chair and equipment
Courtesy of Fairways for Warriors

Supporting Veterans with Disabilities

The organization is driven to support veterans. Tom Underground, founder of Fairways for Warriors, a Kissimmee-based nonprofit dedicated to providing a better quality of life to wounded service personnel through golf, says his partnership with the Stand Up and Play Foundation has taken hope, healing and camaraderie among wounded veterans to a whole new level ─ literally! Netto believes that outfitting veterans with paramobiles can, ultimately, fight the alarming rate of suicide among combat warriors. The first Floridian to have a paramobile, Thomas Michaud, a retired police chief who became disabled with multiple sclerosis, is also working to aid veterans. Michaud spearheads an annual Veteran’s Day fundraiser at his local course, Legends Golf & Country Club in Fort Myers, which has generated funds to donate a paramobile to a veteran for the past five years. He simply wanted others to experience the life-changing benefits of the paramobile as he did. “The paramobile allows me to enjoy so many of the outdoor activities that I lost. I can play golf again, go to the beach with my grandchildren and use it in many places where I cannot walk. In a sense, it has given me back my legs,” he says, of the device that’s granted him access to adventure, like on the Appalachian Trail, and everyday living, such as landscaping.

How to Score the Paramobile

Want to try a paramobile? Visit standupandplayfoundation.org to search the online database of paramobile-equipped sites, including 16 in Florida and 120 worldwide. The Stand Up and Play Foundation also coordinates paramobiles for loan for traveling individuals to, for example, play golf on vacation! “We should have 100 chairs in Florida, but we don’t yet,” says Netto, which is why he hopes people will become advocates for the paramobile simply by encouraging local sites to obtain one and/or host fundraisers (with donations to be matched by the foundation). Aside from golf, the Stand Up and Play Foundation has helped people enjoy skeet and trap shooting, fly fishing, trail walks and much more. Some users also rely on the paramobile to maintain careers, such as “farmers, horse breeders and people who work outdoors.” As is often the case with disability-related tools, the paramobile comes with a lofty price tag ($22,500 and up), but the benefits are priceless.

The paramobile promotes circulation and digestion, stretches tendons and ligaments, reduces spasticity and prevents bone density problems and other secondary complications, according to Netto. “Bedsores can cause infections and even death,” he says, but the paramobile offers an “active standing therapy.” And, of course, the priceless satisfaction of restored self-esteem. “I feel like I am able to live again [with the paramobile] and be a father to my children. My son and I can play a round of golf together and there is no disability because of the paramobile,” proclaims Netto, who believes the mission of the Stand Up and Play Foundation and its goal to motivate advocates and users is why he survived his traumatic injuries.

Best Florida Destinations for Travelers with Disabilities

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Beach Bound…

Key Largo, the northernmost island of the Florida Keys, is committed to making ‘island time’ tick for all individuals with mobility, vision, hearing and other disabilities. Start planning with the Florida Keys tourism website (fla-keys.com/accessibility) for information on resorts, eateries and attractions.

Motivated by his own mobility challenges, Captain Mick Nealey operates Tranquil Adventures, a Key Largo-based eco-sightseeing operation specializing in trips for the disabled. “I had polio when I was two [years old] so I’ve used crutches most of my life and expect to eventually be in a wheelchair,” Nealey says. “I don’t want to get stuck at the dock… or leave anyone else there!” His water vessels are equipped with coast guard approved safety equipment, wheelchair ramps and accommodations for 6 people (2 in wheelchairs). Customize full-day or half-day tours of boating, fishing, snorkeling, kayaking, tiki bar relaxation and water access thanks to a modified captain’s chair lift. With support of sponsors, Nealey can offer free trips to individuals in wheelchairs who need financial assistance thanks to Vets on the Water, The Christopher & Dana Reeve Foundation, The Woody Foundation and Home Depot.

Also make a splash in Key Largo by swimming with dolphins at the fully-accessible Island Dolphin Care Center; or with an aqua aerobics class at the Jacobs Aquatic Center, a pool complex equipped with ramps and lifts.

Worried about beach accessibility? “Beach wheels” have special tires that don’t get stuck in sand! According to a recent USA Today report, 35 of Florida’s state parks offer free beach wheelchairs, as do several beaches, including the Gulf Islands National Seashore Beach, Briggs Nature Center Beach, Honeymoon Island Beach, Sunny Isle Beach, Sandy Key ParkBeach, Oxbow Eco Center Beach, Jetty Park Beach and beaches managed by the Osceola Ranger District, Hernando County Government Center, Okaloosa County, BrowardCounty, Charlotte County, City of Miami, the Conservancy of Naples and the Naples Parks and Recreation Department. To find beach wheels at your destination, contact the city tourism/recreation department.

Blooming Adventures…

Marie Selby Botanical Gardens in Sarasota is a peaceful oasis of greenery blooming with over 20,000 colorful plants throughout a 15-acre ADA-compliant site. “The elevator lift is in the Ann Goldstein Children’s Rainforest Garden, leading to the treetops of the banyan trees which overlook a waterfall area,” says Mischa Kirby, Director of Marketing & Communications of the Gardens. “We also offer a phone tour, which has about 10 stops for guests to call in at their leisure to learn more about the plants and history of the property. This is offered in Spanish and English. The entry/exit to the Conservatory ─ our tropical display glass house that features a rotating exhibition of plants ─ is accessed through automated doors,” she says, noting that wheelchairs are available at no charge on a first-come, first-serve basis.

Further south on the west coast of Naples, take the Nature’s Peace Guided Tour, a free narrated program hosted by the Alzheimer’s Support Network and sponsored by CREW Land and Water Trust. Offered monthly, persons with Alzheimer’s and their caregivers can explore the Bird Rookery Swamp on a short stroll on a hard-crushed shell trail and boardwalk to see flora and fauna.

According to Florida Hikes, there are endless opportunities – listed at floridahikes.com/accessible-trails – to explore wildlife on wheelchair-ready trails, like boardwalks, paved surfaces or firm natural paths. Go wild!  

Family kayaking in Florida Swamplands for an accessible outdoor adventure

Educational Excursions…

For an out-of-this-world experience, head to the Kennedy Space Center Visitor Complex in Titusville. Take flight with simulators, astronaut encounters, views of Space Shuttle Atlantis and exhibits highlighting space history and technology. Time your voyage to coincide with the rumble of a rocket launch! Tour buses, the IMAX Theatre and other attractions are wheelchair accessible (wheelchair and scooter rentals available). Plus, for hearing and vision aids, KSC offers closed captioning, audio devices, American Sign Language interpreters and more.

Need a day trip destination? Several museums in Central Florida and nearby Tampa are autism-friendly. Some options include The Florida Aquarium (which offers break areas and earplugs to help with noise management), Dinosaur World (offering an online guide for parents of autistic children) and the Glazers Children’s Museum (hosting Sunshine Sundays with lights and sounds turned down and sensory-adapted tools/programs).

For more ideas, please visit the Florida Disabled Outdoors Association (fdoa.org) for a searchable portal of other hands-on recreation venues. And share your favorite Florida destinations with us on Facebook!

Ease Travel Planning

Simplify logistics with the help of these accessible travel experts:

– Accessible Journeys has created wheelchair accessible vacations, tours and cruises since 1985 for slow walkers, wheelchair travelers and their families in an effort of “making the world more accessible.” (800) 846-4537 | accessiblejourneys.com

– Adaptive Adventures provides progressive outdoor sports opportunities to improve the quality of life for individuals with physical disabilities and their families, with skiing, snowboarding, climbing, cycling, dragon boat racing, kayaking, paddle boarding, rafting, sailing, water skiing and wakeboarding. Events are held nationally, with a focus in Colorado and the Greater Chicago / Milwaukee area. (877) 679-2770 | adaptiveadventures.org

– Barcelona Zero Limits is a travel agency specializing in inclusive tourism to make Barcelona, Spain accessible for all by offering accessible hotels, activities and adapted transportation. (+34) 938 640 275 | barcelonazerolimits.com

Flying Companions is a worldwide travel assistance company accompanying senior travelers, persons with disabilities, people with travel anxiety and children who benefit from companion and/or chaperone services to simply airport logistics and beyond. (888) 350-8886 | flyingcompanions.com

– FlyingWheels Travel defines itself as the first (established in 1970) and most experienced travel agency for people with physical disabilities, chronic illness or difficulty walking, presenting accessible tours, cruises and companions. (877) 451-5006 | flyingwheelstravel.com

– Hand in Hand Outdoors, based in Utah, serves veterans as well as underprivileged and disabled persons with outdoor activities to enhance lives through education, experience and participation in fishing, boating, shooting and camping. (801) 592-7809 | handinhandoutdoors.com

The Guided Tour provides professionally supervised vacations for adults with developmental challenges with a goal to provide a growth-producing experience for special needs travelers, in which they are able to travel and socialize independently of their families. (215) 782-1370 | guidedtour.com

– Wheelchairtraveling.com is an online community sharing resources, reviews, guides and tips about accessible travel with a goal to empower people with limited mobility and their loved ones to access and experience the world of adventure and leisure travel. wheelchairtraveling.com

Yoga Therapy is Flexible to Fit Everyone with Adaptability

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Michelle Brusseau was only 16 years old when a blood vessel tore in her brain, causing the stroke that impaired her speech and ability to walk. Among other therapies, four years ago, Brusseau, now 30, began yoga therapy at Elevate Yoga Center in Orlando with Ella Duke, a yoga therapist who specializes in instructing individuals with ADHD, autism, cerebral palsy, Down syndrome, muscular dystrophy, stroke and other disabilities.

“I needed a form of exercise that revolved around stretching,” Brusseau explains. “Yoga was made for stroke survivors! I find myself to be a lot more limber, [plus] it helps with my mental well being and it increases my stamina.” Brusseau is not alone; many individuals with disabilities are significantly benefiting from yoga therapy.

Thanks to personal encounters with a diverse yoga student population, including individuals with chronic conditions, Dr. Amanda McCune, a yoga instructor and physical therapist, proclaims: “I became an advocate for adaptive fitness and recreation, which led me to explore yoga-related [medical] research.” She discovered that science supports yoga therapy. “I found studies suggesting that yoga and mindfulness practices — i.e. guided relaxation, breathing activities, etc. — are effective in improving balance, range of motion and strength, while also reducing anxiety, depression and stress and/or stress-related conditions like blood pressure.” Yoga therapy, as defined by the International Association of Yoga Therapy, is the process of empowering individuals to progress toward improved health and well-being through the application of the teachings and practices of yoga.

People in a seated yoga position during a class. Yoga is good for ADHD, autism, and many other disorders.

Brusseau is a member of the Bcenter, a nonprofit organization for stroke survivors and their families. During a recent Bcenter support group meeting, she empowered fellow survivors with a yoga demonstration and informative chat alongside Duke.

“Yoga helps stroke survivors, among many benefits, with (1) balance and (2) weak or tense muscles. We can work on balance postures and on releasing muscles with a goal, for example, to build back confidence if a fear of failing is there [because of weakened muscles],” states Duke, noting that goals are always personalized. “Warrior 2 is my favorite because it stretches me and it’s the most advanced pose I can do,” Brusseau says, though she modifies many stances to match her body’s needs.

Yoga props ─ such as a block, bolster, blanket, chair (especially for wheelchair users) or aerial hammock ─ offer added support to safely achieve poses while maintaining healthy alignment. “Props can help people relax and feel more confident to explore yoga,” says Dr. McCune; Duke agrees: “When we come into a resting posture using a prop, we are not only working on flexibility – for example, butterfly pose with your feet together and knees separated to release the hips– but these restorative postures kick in a relaxation response to balance the nervous system, lift the immune system, enhance digestion and set the body up for deep healing.” Healing that, according to Duke, impacts the mind, body and soul. “Yoga provides physical benefits with movement; social aspect through the community of a group class or one-on-one with a yoga therapist; and, in some cases if the student wants to take it there, a spiritual aspect to find inner strength and inner peace. That can be very powerful and grounding.”

Yoga therapy is flexible – pun intended – to match individual needs and goals! “Yoga doesn’t see your disability as an obstacle but rather an opportunity. Yoga is not [solely] for the strong or flexible; it is for the willing. So, as long as you are willing, there is a teacher willing to help you find your own practice.”

Note: Before beginning any exercise, including adaptive fitness, talk to your healthcare provider.

Wired to Activate for a Cure for Multiple Sclerosis (MS)

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“I must have pinched a nerve,” thought then 24-year-old Jeffrey Hamilton, now 55, of immense tingling following a basketball game. Six months later neurologists gave Jeffrey a diagnosis: multiple sclerosis (MS), a degenerative “immune-mediated” disease of the central nervous system (which is made up of the brain, spinal cord and optic nerves) with onset typically in adults between ages 20 to 50, although individuals as young as 2 and as old as 75 have developed it.

To help others understand how MS interrupts the flow of information from the brain to the body, Hamilton comparative explains a compromised fuse box and its impacted output. “The fuse box is my brain full of billions of nerves and the conduit is my spinal cord full of nerves. The [connected] toaster [for example] is my foot, the lights are my legs and so on. The corruption in my brain is the immune system,” he describes the affects MS has on the brain and its functionality. For decades, Hamilton has worked toward three goals: “(1) I want to help people living with MS. I facilitate three positive support groups: the Osceola, Orange and downtown A.N.T.S. This acronym stands for ‘A Natural Tough Self-Starter.’ If you have MS, you have to be tough and self-start every day.  (2) I want to help find a cure. (3) I want to walk my daughters down the aisle without assistance,” he declares. To achieve these, Hamilton supports the National Multiple Sclerosis Society by funding research through Walk MS, coordinating logistics for Bike MS, serving as an activist and more.

Jeffrey Hamilton puts Congresswoman Kathy Castor through 'the MS Experience' to demonstrate challenges
Jeffrey Hamilton puts Congresswoman Kathy Castor through ‘the MS Experience’ to demonstrate challenges.

The progression, severity and specific symptoms (ranging from numbness to blindness and paralysis) of MS in any one person cannot yet be predicted, but the National Multiple Sclerosis Society is working to find answers to ‘end MS forever.’ “The MS Society offers a ton of resources and programs ─ whether it’s the group, community or individual setting ─ to serve people living with MS, but we have a lot of efforts that impact greater good. That’s where our advocacy efforts overflow to impact individuals of all disabilities and not just those living with MS,” said Kinsey Stewart, Program Manager for the organization’s North Florida chapter.

Photo: Jeffrey Hamilton puts Congresswoman Kathy Castor through ‘the MS Experience’ to demonstrate challenges.

Stewart says the organization’s activists, who are primarily volunteers living with MS including Hamilton, meet with legislators to address different aspects of the disease and build awareness about what life with any disability can be like. “We shine light on challenges that elected officials sometimes don’t know that their constituents are facing,” she says. Aside from physical and mental challenges, people encounter ‘access to medication barriers.’ “Some insurance companies have required patients to fail a cheaper drug first before approving a more costly than more appropriate medication,” says Stewart on why the organization has lobbied for the Right Medicine, Right Time Act. “We want medical decisions, including which medication is appropriate, to be decided by patients and providers and not insurance companies,” she adds. MS activists are also advancing home modification tax credit legislation to provide financial assistance. Stewart said such credits would ease prohibitive expenses but also help prevent injuries and falls.

The cause of MS is still unknown – scientists believe the disease is triggered by an as-yet-unidentified environmental factor in a person who is genetically predisposed to respond. To learn more about MS or to join the fight, visit NationalMSSociety.org.

MS FACTS

·      MS affects more than 2.3 million worldwide.

·      More than twice as many women than men have MS.

·      MS occurs in most ethnic groups, but is most common in Caucasians.

·      The average annual cost of living with MS exceeds $57,000 per person with lifetime costs of more than $3.7 million.

Volunteers participate in the MS Walk.