People With Disabilities Are Entitled to a Free Access Pass to National Parks

Travel

Staff Writer

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May 13, 2019

The National Parks Service (NPS) has several pass programs that grant access to more than 2,000 federal recreation sites across the nation, including National Parks, National Wildlife Refuges and many National Forest and other federal recreation lands. A pass may cover entrance, standard amenity fees and day use fees for a driver and all passengers in a personal vehicle and may also offer other discounts.

Access Pass

The Access Pass is a FREE, lifetime pass available to United States citizens or permanent residents, regardless of age, that have a permanent disability. The pass may be obtained two ways: (1) at a federal recreation site where entrance or standard amenity fees are charged; or (2) through the mail.

To obtain a pass, you must have photo identification to verify that you are a U.S. citizen or permanent resident, which could include:

1. A U.S. state or territory issued driver’s license, identification, or birth certificate

2. A U.S. passport or passport card

3. A permanent resident card (green card)

You must also provide documentation that you have a permanent disability, which could include:

1. A statement signed by a licensed physician attesting that you have a permanent physical, mental, or sensory impairment that substantially limits one or more major life activities, and stating the nature of the impairment; or

2. A document issued by a federal agency, such as the U.S. Department of Veterans Administration, which attests that you have been medically determined to be eligible to receive federal benefits as a result of blindness or permanent disability. Other acceptable federal agency documents include proof of receipt of Social Security Disability Income (SSDI) or Supplemental Security Income (SSI); or

3. A document issued by a state agency, such as a vocational rehabilitation agency, which attests that you have been medically determined to be eligible to receive vocational rehabilitation agency benefits or services as a result of medically determined blindness or permanent disability. Showing a state motor vehicle department disability sticker, license plate or hang tag is not acceptable documentation.

For complete information, including the access pass application, click here.

Other Passes

NPS offers a standard annual pass for $80 per year. Annual passes are FREE for active military. There are two senior pass options: $80 Lifetime Senior Pass or $20 Annual Senior Pass.

FYI

Service dogs are legally permitted anywhere that visitors can go. However, NPS notes that only dogs are classified as service animals, and that emotional support or comfort animals are not considered service animals by NPS. For more information about service dogs in parks, click here.

For more information about accessibility at national parks, click here.

7 Health & Wellness Self Management Programs for People with Disabilities

Education

Staff Writer

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May 13, 2019

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7 Health & Wellness Self Management Programs for People with Disabilities

Are you are one of the millions of adults in the United States who lives with a disability?

The Americans with Disabilities Act defines a person with a disability as a person who has a physical or mental impairment that substantially limits one or more major life activities. If you have a disability, you can learn how to maintain a healthy lifestyle. Through a self-management education (SME) program you can do the things you want to do and live a healthier life.

Here are SME programs for people with disabilities:

14 Weeks to a Healthier You

Cost: Free. | Format: Online.

14 Weeks to a Healthier You is a free, online wellness program for anyone with a chronic health condition, physical disability, or mobility limitations. It can help you eat healthier and maintain a more active lifestyle. All goals, warm-up activities, exercises, and motivational resources are used at your own pace.

The program includes:

Personalized exercises and physical activity tips.
Healthy eating.
Tracking physical activity and diet.
Opportunities to connect with other participants.
Access to 14-week coaches.

Visit the National Center on Health, Physical Activity and Disability website to learn more about 14 Weeks to a Healthier You.

Promoting Amputee Life Skills (PALS)

Cost: Free. | Format: Online.

Promoting Amputee Life Skills (PALS) is a 6-week interactive online program that helps amputees improve the quality of their lives. The PALS program helps you learn ways to manage pain, emotions, relationships, and overall health. It provides an opportunity to build these skills in a group setting to help you discover individual strengths.

Subjects include:

Learning self-management skills.
Managing your health and physical activity.
Managing emotions.
Communicating effectively with family and friends and maintaining relationships in difficult situations.
Identifying the warning signs of setbacks and learning skills to help you to overcome some of these barriers.

Visit the PALS website to learn more about Promoting Amputee Life Skills (PALS).

Living Well with A Disability

Cost: Varies by organization. | Format: In person, in the community.

Living Well with a Disability is a 10-week interactive program for people with physical disabilities. The program is based on the best available scientific information and is designed to help participants learn the life skills necessary to set and achieve quality-of-life goals. Programs consist of peer-led health promotion workshops provided by organizations that serve people with disabilities. The Rural Institute at the University of Montana provides training and certification for Centers for Independent Living (CILs) and other organizations to conduct the workshops.

Subjects include:

Goal setting.
Problem-solving.
Maintaining a positive outlook.
Managing depression.
Physical activity.
Eating well to live well.
Healthy communication.
Information seeking and advocacy.
Maintaining positive changes.

Visit the Living Well website to learn more about Living Well with a Disability.

Healthy Lifestyles

Cost: Varies by organization. | Format: In person, in the community.

Healthy Lifestyles is a 15-hour course that can be delivered over three days, or integrated into other programming and activities over the course of several weeks or months. The program is evidenced-based, designed by and for people with intellectual disabilities. The workshop embodies the self-determination model and provides participants with the opportunity to achieve social, physical, emotional, and spiritual health and wellness.

Subjects include:

Defining a healthy lifestyle
Evaluating current life situations
Identifying core values for health and wellness
Selecting life areas for change
Gaining the tools to set goals and achieve them

Visit the Healthy Lifestyle website to learn more about the Healthy Lifestyles program.

General Chronic Disease SME Programs

In addition to the disability-related programs above, the SME programs below are for people with any chronic health condition, including people with disabilities. Programs should be offered in spaces that allow for physical accessibility and make accommodations for communication needs. For more information about disability inclusion visit CDC’s Disability and Health Program.

Chronic Disease Self-Management Program

Cost: The cost varies by organization, but rarely is more than $50. | Format: This course is offered as an in-person workshop.

The Chronic Disease Self-Management Program is an interactive workshop for people with all types of chronic conditions. Stanford University developed this course to help people with one or more chronic conditions learn the strategies to manage their condition and have the confidence to carry them out.

This interactive workshop meets for 2.5 hours per week for 6 weeks in convenient community locations. The instructors are trained leaders, at least one of whom has a chronic condition. This workshop is known by a variety of different names, including Living Well.

The program is also available in Spanish.

Subjects covered include:

Techniques to deal with problems such as frustration, fatigue, pain, and isolation.
Appropriate exercise for maintaining and improving strength, flexibility, and endurance.
Appropriate use of medications.
Communicating effectively with family, friends, and health professionals.
Managing depression.
Better breathing techniques.
Relaxation techniques.
Healthy eating habits.
Making good decisions about your health.
How to evaluate new treatments.

Visit the Self-Management Resource Center website to learn more about the Chronic Disease Self-Management Program.

Locate organizations licensed to offer the program in your area on the Evidence-Based Leadership Council website.

Chronic Disease Self-Management Program: Tool Kit for Active Living

Cost: $43.96. | Format: Self-study toolkit.

The Chronic Disease Self-Management Program Tool Kit for Active Living provides much of the same information as the Chronic Disease Self-Management Program (CDSMP) in a self-study format that you can receive by mail.

The tool kit helps you construct your own self-management plan to deal with your chronic condition(s) through exercise, and strategies to reduce stress, fatigue, pain and other symptoms. It encourages goal setting, action planning, and thinking and acting proactively. You can work through the toolkit at your own pace, focusing on areas most important to you.

The program is also available in Spanish.

The self-study kit includes:

The workbook Living a Healthy Life with Chronic Conditions.
Information Sheets briefly describing common problems and helpful solutions.
A self-test that helps you identify elements and set priorities for a personal self-management plan.
Action Plan description with instruction and examples for developing unique plan.
Exercise Action Plan with hints and instruction on use of the other exercise and activity materials, Relaxation CD and Exercise CD.

Visit the Self-Management Resource Center website to learn more about the Chronic Disease Self-Management Program: Tool Kit for Active Living.

Tomando Control de su Salud

Cost: The cost varies by organization, but rarely is more than $50. | Format: This course is offered as an in-person workshop.

This course, developed by Stanford University, is an interactive workshop for Spanish speaking adults with all types of chronic conditions. If you have one or more chronic condition, this program can help you learn the strategies and skills to manage your health and your condition(s) more effectively and live your everyday life.

All the workshop sessions are held in Spanish. It is very similar to the Chronic Disease Self-Management Program (CDSMP), but was developed to be culturally appropriate for Spanish speaking adults. Workshop sessions last for 2.5 hours per week for 6 weeks at convenient community locations.

Topics include:

Techniques to deal with problems such as frustration, fatigue, pain, and isolation.
Appropriate exercise for maintaining and improving strength, flexibility, and endurance.
Managing depression.
Appropriate use of medications.
Communicating effectively with family, friends, and health professionals.
Healthy eating habits.
Better breathing techniques.
Relaxation techniques.
Appropriate use of the health care system.
Making good decisions about your health.
How to evaluate new treatments.

Visit the Self-Management Resource Center website to learn more about Tomando Control de su Salud.

Locate organizations licensed to offer the program in your area on the Evidence-Based Leadership Council website.

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This content is provided courtesy of the Centers for Disease Control (CDC).

7 Lifesaving Tips to Prevent Stroke and Stroke-Related Disability

Health

Staff Writer

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May 7, 2019

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7 Lifesaving Tips to Prevent Stroke and Stroke-Related Disability

According to the American Stroke Association, stroke is an interruption of blood flow to the brain causing paralysis, slurred speech and/or altered brain function. About nine of every 10 strokes are caused by a blockage in a blood vessel that carries blood to the brain; this is known as an ischemic stroke. The other type of stroke is known as hemorrhagic, caused by a blood vessel bursting.

Someone in the United States has a stroke every 40 seconds on average. When considered separately from other cardiovascular diseases, stroke ranks No. 5 among all causes of death in the nation, killing approximately 142,000 people a year. Stroke is a leading cause of serious long-term disability; and stroke reduces mobility in more than half of stroke survivors age 65 and over.

Not all strokes can be prevented, but making healthy lifestyle choices — like exercising, eating right, maintaining a healthy weight and treating conditions such as high blood sugar, cholesterol and blood pressure — can help reduce your risk of having another stroke. While there are about 7.2 million stroke survivors in the U.S., people who have had a stroke are at high risk of having another one. In fact, about one in every four stroke survivors will have a second one.

Efforts like Together to End Stroke, an American Stroke Association initiative nationally sponsored by Bayer Aspirin, work to educate stroke survivors and caregivers about how they can avoid a second occurrence. Because the consequences of a second stroke can be more detrimental than the first, it’s important to recognize the signs, which come on suddenly, and act quickly. An easy way to remember the most common stroke warning signs is the acronym F.A.S.T.: F– face drooping, A – arm weakness, S – speech difficulty, T – time to call 911.

Talk to your doctor about medications that may help you with your stroke prevention efforts. For example, taking aspirin regularly or other blood clot prevention medications can help reduce the risk of another ischemic stroke.‍

20 Exceptional Mother’s Day Gifts for Moms with and without Disabilities

Lifestyle

Nancy DeVault

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May 3, 2019

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20 Exceptional Mother’s Day Gifts for Moms with and without Disabilities

Motherhood is hard, right? And the parental journey can be even more challenging for mothers with disabilities and mothers who have children with special needs. Author Jill Churchill said, “There’s no way to be a perfect mother and a million ways to be a good one.”

In 1908, Anna Jarvis lobbied to establish Mother’s Day in honor of her mother, Ann, who had worked to improve sanitation and health conditions during the Civil War era. In 1914,Mother’s Day officially became a recognized holiday in the United States; yet, by 1920, Anna was frustrated that the true purpose of Mother’s Day had been severely muddled by commercialization. Today, Mother’s Day is a $15 billion industry engaging 96 percent of consumers with greeting cards, flowers, jewelry and other themed gifts. Anna never became a mother; still, over a century later and thanks to her influence, millions of mothers in the United States receive a little extra (and much deserved) love and pampering from their children and/or partners on this annual observance day.

While mothers deserve to be praised every day, Mother’s Day, of course, lends itself to the occasion.

‍Here are Mother’s Day gift ideas for exceptional mothers:

1. Walker Tote Bag

Available in three colors (black, wine and butterfly patterned), this water resistant tote bag is a useful accessory. Plus, the cute butterfly pattern will make mom’s heart flutter. It fits most walkers, rollators, wheelchairs and power scooters with adjustable straps. It has tons of storage pockets, including a zippered compartment for items that need safe-keeping. $12.99 | Amazon

2. Folding Garden Kneeler

The love of gardening can bloom for gardeners of all abilities thanks to accessible tools, like this folding kneeler designed for comfortable kneeling and/or sitting with support rails. Research suggests that gardening reduces stress and depression symptoms, while boosting muscle strength, mental clarity and a sense of accomplishment. Plus, food gardeners who increase consumption of fresh fruits and vegetables can reap the added benefits of a decreased waistline and lowered risk of cardiovascular disease and cancer. $27.90 | ManageAtHome.co.uk

3. Acupressure Mat & Pillow

Help mom combat back and neck pain with the Nayoya Acupressure Mat and Pillow which offers targeted relief through thousands of acupressure points. It also improves circulation, digestion and sleep quality. $40 | Amazon

4. Zinc Winged Corkscrew

From the crisp taste of a white wine to the robust flavors of a bold red, many moms love sipping vino. But, first, she has to get passed that stubborn cork! This opener by OXO Good Grips is designed for wine lovers who have a weakened hand grip. It has a longer body and non-slip bottom collar. And we’ll drink to that! Bonus: According to Medical News Today, mild consumption of wine (especially red) may help people live longer, protect against certain cancers, improve mental health and enhance heart health. Tip: Pair with mom’s favorite bottle of wine. $13.99 | ArthritisSupplies.com

5. Beauty Steep Tea Bag Eye Masks

Everyone loves a 2-4-1 gift, right? This present hits the mark by allowing mom to drink well and rest well. Tea contains flavonoids, naturally occurring compounds that are believed to have antioxidant properties, says the Tea Association of the U.S.A, Inc.They boast that tea consumption is good for overall health, and specifically beneficial for reduced risk of heart disease, cancer, osteoporosis and age-related neurological declines and diseases. The Beauty Steep Tea Bag Eye Masks comes with three blends — black tea and rose, green tea and jasmine and white tea and fennel (two of each for a set of six). The product provides “all the soothing tea benefits for tired,puffy peepers, in one stay-put eye mask.” Just have mom steep, cool and relax! FYI:The National Sleep Foundation recommends 7-9 hours of sleep per night for adults. $30 | UncommonGoods.com

6. Zappos Adaptive Shoes

I’m a sucker the Mary Jane style of footwear, both for easier functionality (no laces) and the adorable fashion look. I love the sweet strap in every style – formal and casual alike. And the Drew Delite sneaker by Zappos doesn’t disappoint. Available in black, bone and sky blue, this shoe has removable insoles to extend the shoe life and allow for custom orthotics. Medicare reimbursements are available for these shoes (HCPCSCoded A5500). $139.95 | Zappos.com

7. Rolling Wicker Laundry Basket

Sure, most mothers loathe doing laundry. However, this wicker laundry basket is so beautiful that we’re willing to add it to our gift list. After admiring the hamper’s exterior, roll it to the laundry machine to empty its interior – it has a removable cotton liner – without bending over. $135 | Amazon

8. Eufy Robotic Vacuum

Again, some frown upon gifting cleaning and/or household items. But I view this robotic vacuum as much more than a vacuum… it really gifts valuable time back to mom. Since this circular gadget sweeps floors on its own, I don’t have to do it and save myself tons of time. Priceless! I opted for the Eufy because it’s a smidge cheaper than the Roomba. Shop various brands to land a deal. $200 and up | EufyLife.com

9. Wheelchair / Scooter Umbrella

The outdoor umbrella by Wanrane is ideal for rain or shine. You can help mom stay dry during an afternoon drizzle, or shielded from the sun on a bright day. It has an adjustable stem to custom height and positioning. $25 | Amazon

10. BearHugs Gift Box

These adorable “hug-in-a-box” packages are made by an accessibility-focused company that thrives on inclusive employment and supporting individuals with disabilities and illnesses. The founder, Faye, has Lyme disease. For every fifty BearHugs sold, one personalized ‘hug in a box’ is donated to someone affected by serious illness. There are tons of box themes to choose from but, as per the occasion, try the Mama Bear. It includes a pretty enamel pin featuring nurturing arms and a chocolate bear. $16 | BearHugsGifts.com

11. Salt Room Spa

Spa service gifts are somewhat synonymous with Mother’s Day, right? However, you can shake things up by peppering in a salty treatment! Salt therapy centers are popping up nationwide boasting that salt therapy is a scientifically-proven treatment for respiratory and skin conditions. At the Salt Room in Orlando, for example, patrons can opt for just a salt session or a massage service within a salt space. In each salt room, the walls, floor and ceiling are lined with natural rock salt which is stimulated by halogenerators for inhalation. $45-200 | SaltRoomOrlando.com (Google for similar centers in your area).

Aside from salt-specific centers, traditional spas are spicing things up with Himalayan salt stone massages. According to Hand and Stone, Himalayan salt stones provide 84 essential minerals including iron, magnesium, calcium, potassium and more. The stones have been known to detoxify, help reduce insomnia, improve blood pressure and relieve stress.$130/hour | HandAndStone.com

12. Shipt Membership

This has been a game changer for this mama! I do not miss navigating crowd grocery aisles with two kiddos. Shipt is a grocery service offering same-day delivery thanks to a fleet of personal shoppers.It’s easy to use: just place an order and schedule a delivery time through the Shipt mobile app. Annual memberships grant customers unlimited deliveries from Target, Publix, Kroger, ABC Fine Wine & Spirits and other retailers with free delivery on orders over $35. $99/year | Shipt.com [Note: Shipt is offering $50 off annual gift memberships through 5/12/19.]

13. Custom-Made Chopsticks

Sushi is an artful dining experience that also boasts nutritional benefits. High-quality fish provides protein and omega-3 fatty acids to aid cardiovascular health and brain function. Traditionally, chopsticks are used to eat sushi; however, these utensils can be especially tricky for people with impaired mobility. Katsuyuki Miyabo crafts adaptive wooden chopsticks that are custom-made and spring-operated. Tip: Treat mom to a sushi dinner too! Prices vary | Facebook / miyabow.com

14. Gratitude Journal

The practice of releasing and recording feelings, memories and thoughts can be fulfilling and useful. For example, the trend of gratitude journaling helps users realize and appreciate life’s gifts that might otherwise be taken for granted. In the hustle and bustle of mom life, I know I often forget to slowdown and offer gratitude for the gifts in my life, including my children. The Gratitude Journal: A Mother’s Day Gift by Brenda Nathan is an affordable option that includes inspirational quotes. This special occasion edition has space to write down three to five things that you’re grateful for every day. $6.99 | Amazon

15. Adult Coloring Book

Color therapy (also referred to chromotherapy) is a unique application that uses color and light to treat physical and mental health by balancing the body’s energy centers, also known chakras. The body has seven chakras that connect with colors: root (red), sacral (orange), solar plexus (yellow), heart (green), throat (blue), third eye (indigo) and crown(violet). Adult coloring books can let mom artistically express herself and engage in a therapeutic pastime. $3.50 and up | Joann

16. Flavor Infuser Water Bottle

Our bodies depend on hydration. To help mom achieve the consumption goal of six to eight 8-ounce glasses of water each day, add a burst of flavor with this water bottle infuser. Opt for seasonally-fresh fruits and veggies for maximum deliciousness. $15 | Uncommongoods.com

17. Audible Membership

Audible claims to be the “world’s largest seller and producer of audiobooks and other spoken-word entertainment,enriching the lives of our millions of listeners every day.” A book on tape has never been easier! Audible offers gift subscriptions for 1, 3, 6 or 12 months. $15/month | Audible.com

18. Essential Oil Defuser

Inhaling soothing scents can impact one’s mental health and more. For me, peppermint helps to calm my mood when I am in a migraine, and lavender helps with restorative sleep. Defusers now come in fun forms to double as decor, such as the handmade ceramic pineapple by Coosa. $29.99 | Amazon

19. Color Street Nail Art

Color Street describes itself as “a creative beauty brand with limitless possibilities.” This line is great for those who cringe at the thought of applying traditional nail polish.No need to maintain a steady hand because Color Street has tons of beautiful designs that basically have a stick-on application. The spring line includes ‘Listen and Love,’ a shimmery design that supports mental health awareness. $2 from the purchase of each set sold in May 2019 will benefit the JED Foundation and Active Minds. $13 | ColorStreet.com

20. Heartfelt Note

Tangible gifts are wonderful but, especially for a mother, loving words from a child and partner mean everything the most! I know the phrase “Motherhood is a thankless job” all too well – as do most mamas. The little humans we create simply are not capable of understanding everything we as mothers do to ensure their well-being. A heartfelt message expressing love and appreciation is the ultimate gift. FREE (but priceless)

Happy Mother’s Day! What’s the best Mother’s Day gift you’ve received? Share with us on Facebook, Twitter and Instagram.

Editors note: AmeriDisability does not guarantee the prices listed in this article; check retailers.

Feature photo image credit: AARP

Savor Every Gluten-Free Bite at these Celiac-Friendly Restaurants

Health

Nancy DeVault

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May 1, 2019

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Savor Every Gluten-Free Bite at these Celiac-Friendly Restaurants

Sometimes it can be hard for any of us to decide on a restaurant. It’s even more challenging if one or more people in the party have a wheat allergy, gluten sensitivity or celiac disease, an autoimmune disorder that requires a gluten-free diet. According to the Celiac Foundation, an estimated 1-in-100 people worldwide are affected. Additionally, two and one-half million Americans are undiagnosed and are at risk for long-term health complications.

Gluten is a protein found in wheat, rye and barley. For those who can safely consume it, you can thank gluten for the glorious elasticity and chew found in yummy products like bread and pizza dough. But, for those who can’t tolerate it, gluten can cause bloating, fatigue, damage to intestines and other unpleasant symptoms that one certainly does not want to experience, especially while socially dining out. And, many foodies without a celiac diagnosis are adopting a gluten-free lifestyle too.

We’re spotlighting restaurants and resources with gluten-free menus so you can enjoy every bite of your next restaurant meal. Remember, always inform the wait staff of your dietary needs and ask that the chef be informed.

GLUTEN-FREE DINING CHOICES

Gluten-Free Living recently published findings by TravelSupermarket.com on the cities with the most gluten-free options. The cream of the crop: Chicago (240 establishments), Portland (181), Denver (150), Maui (132) and San Francisco (138). Here are some of our picks:

Photo credit: Wyder’s Pear Cider

Cooper’s Hawk Winery & Restaurant

nationwide locations

This modern casual dining chain claims that each dish is created with handcrafted wine in mind. And it also has an impressive gluten-free menu. We’re talking eight full pages of cocktails, apps, entrees and desserts. Dig into luscious pasta dishes featuring Barilla gluten-free penne, Parmesan-crusted chicken and a flourless chocolate torte topped with vanilla whipped cream and fresh berries.

BJ’s Restaurant & Brewhouse

nationwide locations

Cheers ─ with BJ’s Berry Burst Cider, Wyder’s Pear Cider or gluten-free beers ─ to a delish selection of classic American cuisine. Savor the barbecue chicken chopped salad, house top sirloin and the gluten-free Ghirardelli double chocolate chip ice cream.

Mitchell’s Fish Market

nationwide locations

Head to this stylish establishment to feast on seafood, a raw bar and happy hour martinis with a gluten-free menu packed with dish alternatives. For example, enjoy the Shang Hai Shrimp, Salmon and Scallops with fresh ginger and scallions, sticky rice and spinach with tamari instead of soy sauce.

Bonefish Grill

nationwide locations

This seafood chain is a solid link for gluten-free diners. Enjoy a selection of alcoholic beverages (gluten-free beer and cocktails), appetizers, entrees and brunch options. Save room for a flourless brownie topped with raspberry sauce, vanilla ice cream and macadamia nuts.

Photo credit: Bonefish

Ceviché Tapas Bar & Restaurant

3 Florida locations

Olé! Head to this gorgeous Spanish outpost offering small plates and flamenco shows. Relish a wide array of traditional gluten-free tapas, such as ceviche (duh!), paella, chorizo and manchego, sizzling gambas (shrimp) and flan.

Margaritaville

nationwide locations

If you have a designated driver, double down with booze two ways: in your glass and in your appetizer with the Drunken Shrimp Skillet, sautéed shrimp with tequila key lime butter, roasted garlic, onions and peppers and gluten-free bread. And, of course, don’t miss out on the iconic Cheeseburger in Paradise, the signature burger topped with American cheese, lettuce, tomato, pickles and paradise island sauce on a gluten-free bun.

Mellow Mushroom

nationwide locations

As this funky pizza chain says… mellow is a state of mind, a culture, a way of being. Sounds good, right? You can stay mellow, sans food allergen concerns, when ordering a gluten-free vegan crust made from ancient grains. Munch on the Kosmic Karma, a 12-inch pie topped with red sauce, mozzarella, sun-dried tomatoes, spinach, feta, sliced tomatoes and pesto.

P.F. Changs China Bistro

nationwide locations

Request a gluten-free menu to enjoy your favorite Asian dishes, such as Singapore Street Noodles made with Vermicelli rice noodles, Mongolian Beef made with wheat-free soy-glazed flank steak and Changs Chicken Lettuce Wraps made with crispy rice sticks and iceberg. Nosh similar fare at Pei Wei Asian Diner, the fast-casual chain owned by P.F. Chang’s.

Seasons 52

nationwide locations

Seasonally-inspired menus include options to satisfy gluten-sensitive, lactose/dairy intolerant and vegetarian palates. Flatbreads can be prepared with a replacement crust and other entrees can be altered too. For example, order the Mahi-Mahi tacos with lettuce cup shells and without mole sauce.

Photo credit: Mellow Mushroom
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APPETIZING GLUTEN-FREE APPS

‍Dine Gluten-Free

This app has reviews of gluten-free-friendly places, including restaurants, hotels, cruises and more. Free; glutenfreetravelsite.com

iCanEat Fast Food Gluten-Free & Allergen-Free by AllergyFree Passport

This app allows users to personalize fast food menus based dietary concerns. Select allergens to discover which food items safely match. $4.99; iTunes

Find Me Gluten-Free

Just enter your zip code to find nearby gluten-free dining for date night. Free; findmeglutenfree.com

Allergy & Gluten-Free Diet Tracker by Fooducate

If you’re shopping for an at-home date night dinner, use your smartphone to scan product barcodes to see if it contains your (or your date’s) allergens. $4.99; fooducate.com | For other shopping apps, try The Gluten-Free Scanner and ShopWell.

AT-HOME DINNERS

If you or a loved one has celiac disease, read the dining out tips from the Celiac Disease Foundation. But don’t shy away from cooking up an impressive at-home meal too. Try delicious recipes by both the Celiac Disease Foundation and Beyond Celiac.

(Below image) Photo credit: glutenfreetravelsite.com

Feature image credit: Cooper’s Hawk

This article was originally published by Date Night Guide and is republished by AmeriDisability with permission.

American Legion Auxiliary Addresses the Needs of Caregivers Supporting Military & Veterans

Lifestyle

Staff Writer

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May 1, 2019

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American Legion Auxiliary Addresses the Needs of Caregivers Supporting Military & Veterans

“You’re sitting at home one night and get a phone call that your husband is being medevaced and he’s coming home. They said it was for spinal injuries,” recalled Mandy Spooneybarger, 36, caregiver to her husband, Charles, an Army veteran. “You have to live in your new normal.It’s stressful. It’s isolating. You have to let go of what you had. That is the hardest part. Sometimes it takes years. You can find strength from the person you are caring for. If you can, find other support.”

One place to find that support has been the American Legion Auxiliary (ALA), the world’s largest women’s patriotic service organization. The organization recently received a grant from the Elizabeth Dole Foundation’s Hidden Heroes Campaign for innovative and evidence-based programs that address the long-term needs of military caregivers, spouses, parents and loved ones caring for service members and veterans at home.

Veterans Depend on Caregivers

“The ALA recognizes that many veterans depend daily on their dedicated caregivers,” said Kathy Dungan, national president of the organization. “We recognize how important it is to support caregivers and address the unique stresses they face to help ensure our nation’s heroes are supported for years to come.”

At the National Veterans Creative Arts Festival (NVCAF) last fall, the grant helped the Auxiliary provide several opportunities to empower caregivers and provide social support. Respite bags were handed out to each caregiver at registration.Although the event is centered around veterans, the bags and warm welcomes from Auxiliary volunteers and staff made the caregivers feel special. Programs relevant to the needs of military caregivers are typically focused on the service member or veteran, and only incidentally related to the caregiver’s role. There are gaps in needed programs, which the grant helped to address. In addition, the funding provided the opportunity to build skills and confidence as caregivers.

Caregivers Need Support Too

Dolores Kostiw, 71, caregiver to her husband, Steve, an Air Force veteran, said, “I retired two years ago. I’m around to help do what he needs to do, make sure he gets in and out of the shower OK. If he needs help with his shoes or dressing of any sort, I can try and help him with that. It’s very hard because he’s first – I have to make sure he’s OK and everything before I can take care of myself.”

According to a Rand Corp. study, there are more than 5.5 million military and veteran caregivers in the U.S. They spend many hours tending to the visible and invisible injuries or illnesses of their loved ones.In the study, 17 percent of civilian caregivers reported spending more than 40 hours per week providing care; 12 percent of post-9/11 military caregivers and 10 percent of pre-9/11 military caregivers spent more than 40 hours per week.

It’s OK not to be OK and ask for help. “Anger is a big thing. Address that as soon as you can,” said Spooneybarger. “Because that’s the biggest reason I see why people leave their spouses – unresolved anger. They take it out on the only safe place they know – the person holding their hand through the whole process.” For Kostiw, it’s about finding time for herself. “More than once, you think, I can’t do this anymore, I want to get out of it, but then he needs something, and I have to be there for him to give it to him,” she said. “Do what you can and if you can’t do it, ask for help.”

Through the educational program and social support opportunities that were offered at the NVCAF, Kostiw and others learned it was OK – and perhaps beneficial for all – to need and ask for help as a caregiver. They had the opportunity to show their emotions in a welcoming environment with others in similar situations. Some also offered suggestions on how to cope, based on their own experiences.

To learn more about how to get involved in the ongoing work of supporting caregivers and to give back to veterans, the military and their families, visit ALAforVeterans.org.

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Feature image credit: American Legion Auxiliary National Headquarters (via Facebook)

(BPT)

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The Blunt Lowdown on Medical Marijuana for the Disabled and Seniors

Health

Nancy DeVault

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April 17, 2019

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The Blunt Lowdown on Medical Marijuana for the Disabled and Seniors

Marijuana is no longer just a street drug. In fact, medical marijuana (also known as medicinal cannabis) is a heavily regulated treatment option that nearly 8-in-10 doctors approve of, according to a 2013 survey published by the New England Journal of Medicine. And it seems that patients are willing to give it a chance too as more and more benefits are reported. For example, the majority of respondents in a California-based survey said that medical marijuana alleviated symptoms of serious medical conditions, like chronic pain, arthritis, migraines and cancer.

Cannabis culture has grown significantly overall, and sparked much debate. While laws vary, a total of 34 states, District of Columbia, Guam, Puerto Rico and the U.S. Virgin Islands have approved medical marijuana programs; plus, ten states also allow recreational (non-medical) use. Still, at the federal level, marijuana remains illegal. Confused? Here’s the lowdown on medical marijuana ─ with specific information pertaining to Florida (the home state of AmeriDisability’s national publication).

What is Medical Marijuana?

There are different components to the cannabis plant. “Cannabidiol (CBD) and Tetrahydrocannabinol (THC) are two of the primary chemicals in the cannabis plant that cause a medical effect. CBD is also derived from hemp. Both of these substances have unique medical benefits,” Turner Davis, RPh told AmeriDisability. “CBD is helpful with anxiety, inflammation, muscle spasms and many other symptoms. THC can help with sleep, neuropathic and other types of pain, elevating mood and appetite stimulation,” says Davis, who serves as COO of Medical Marijuana Treatment Clinics of Florida.

Davis says that the biggest difference between the two is that CBD does not cause the “high effect” related to recreational cannabis use. Still, many studies show inclusion of both CBD and THC is best for most medical purposes. He explains, “It all comes down to working with your doctor to find the correct dosage that relieves symptoms while avoiding the high, which is essentially a side effect that must be managed.”

Is Medical Marijuana a Natural Option for You?

Davis describes medicinal cannabis as a holistic, whole-body approach that can improve overall quality of life. “People assume that everyone who uses medical marijuana is looking to get high… but I just don’t want to be dizzy anymore,” asserts 34-year-old Megan D. of Winter Garden. She suffers from vestibular neuritis and vestibular migraines ─ conditions that causes extreme dizziness, confusion, nausea and balance issues. Diagnosed five years ago, Megan says traditional pharmaceuticals didn’t alleviate her symptoms and even added side effects. About a year and a half ago, Megan opted for medical marijuana as a “more natural” alternative. She inhales her prescribed dosage through a vape pen. “I’ve found that it’s the only thing that stops or slows the dizziness down,” she says of the 1-2 hour relief window from vaping.

Founder of We Are R.A.R.E., a brain disease nonprofit, Tricia Dennis says cannabis oil works best for her 18-year-old son, Noah. “It lasts 4-6 hours for him,” she says. Noah suffered a stroke in-utero and was born with schizencephaly, a severe brain malformation.

“We were treating him for end-stages of life,” Tricia emotionally recalls of the impossible scenario she faced several years back after Noah failed to thrive following the unsuccessful attempts of 13 medications. Looking for anything that could help her child, Tricia explored then-illegal medical marijuana. She may have broken the law but she saved his life. Soon after beginning a medical marijuana regimen, Noah achieved a healthy weight and his seizures lessened. “It’s like he woke up. It gave us so much… health, communication and he is still alive today! We will always be [medical marijuana] patients because of the tremendous outcomes we’ve had,” Tricia attests.

Medical Marijuana for Seniors

A New York based medical marijuana study of more than 200 elderly (75+) patients who had chronic pain (and/or a range of chronic diseases like cancer, epilepsy and Parkinson’s disease), reported favorable results. Mild to moderate improvements included better sleep, diminished pain and reduced anxiety. Additionally, a third of the study’s participants were able to decrease use of prescription opioids with the replacement of medical marijuana. Quoted in High Times, the study’s senior researcher Dr. Laszlo Mechtler, medical director of the Dent Neurological Institute and Chief of Neuro-Oncology at Roswell Park Cancer Institute, said, “In the midst of an opioid epidemic in this country with 115 people dying every day, anything that can decrease the potential for opiate use is a win-win situation,” Mechtler said, adding, “Nobody overdoses on medical marijuana.”

Davis agrees, “One of the biggest goals of many patients is to work towards reducing or stopping their opiate use. Cannabis has actually been shown in high quality studies to enhance the pain-killing effects of opiates, which allows a patient to reduce their dosage and still have effective pain relief.” Medical cannabis has very few significant drug interactions, according to Davis, and can be used safely with the vast majority of medications. “Working in conjunction with their pain physicians, we have had a significant number of patients reduce their medication loads,” Davis says. In Noah’s case, Tricia says, “He is off six medications because of cannabis.” It is important to note, however, you should always inform your doctor about the vitamins, supplements, herbs and over-the counter medicines you use, including medical marijuana, to evaluate risk and potential side effects.

Davis says he wants to inform seniors that medical marijuana isn’t just an option for those with severe conditions. “While it certainly can benefit those with ALS, Parkinson’s and other degenerative conditions, many of our senior patients find that medical marijuana provides a dramatic improvement in quality of life, as it allows for more activity with less pain and inflammation,” he says. “Whether an individual is looking to play 18 holes of golf as opposed to 9, or just looking to be able to enjoy a walk without pain, medical cannabis really can make a difference,” he says.

Some studies, like data published by the Society for the Study of Addiction, noted that even recreational use has increased among the senior demographic. From 2006 to 2013, cannabis usage increased by 57.8% among adults aged 50–64 and 250% among aged 65+.

[Pictured: Noah (courtesy of Tricia Dennis)]

‍Types of Medical Marijuana

Medical marijuana comes in many different forms, such as: capsules, creams for topical use, dried leaves/buds for smoking,edibles (i.e. cookies, candy, brownies), oils and sprays (i.e. nasal, oral). Most people assume that medical marijuana is smoked, because that’s the most common recreational use, but the Florida Department of Health only recently authorized smoking in March 2019 when Gov. Ron DeSantis signed bill SB 182. The new Florida governor directed lawmakers to repeal the state’s ban on smokable medical marijuana and adhere to a 2016 ballot measure where more than 70 percent of voters approved the legalization of marijuana for medical use.

Where to Get Medical Marijuana

The pharmaceutical industry is, of course, big time business. And it seems that the business of medical marijuana is growing too, impacting plant growers, processors, physicians and dispensaries. But the process of getting medical marijuana isn’t as easy as visiting the drive-through window of your insurance-accepting neighborhood pharmacy. In Florida, there are essentially four steps to obtain medical marijuana (in addition to ongoing renewal procedures):

1. Patients must receive a diagnosis and get a prescription from a specialty-licensed physician who has completed a 2-hour course and examination (through the Florida Medical Association and the Florida Osteopathic Medical Association). According to the Florida Department of Health, a physician may only order medical marijuana for a patient with a qualifying condition. Currently the list of approved ailments includes: cancer, epilepsy, glaucoma, HIV, AIDS, post-traumatic stress disorder (PTSD), amyotrophic lateral sclerosis (ALS), crohn’s disease, Parkinson’s disease, multiple sclerosis (MS), a terminal condition, chronic nonmalignant pain and medical conditions comparable to those.

2. Patients (and when applicable, caregivers) must be added to the Medical Marijuana Use Registry.

3. Patients (and when applicable, caregivers) must obtain a Registry Identification Card.

4. Patients can fill prescriptions at licensed Medical Marijuana Treatment Centers, also known as dispensaries.

Even though the steps are outlined, Megan and Tricia each felt that the initial assessment didn’t quite feel like a typical medical sequence. Because Noah’s neurologist didn’t have a license to prescribe cannabis, Tricia had to hunt for another provider. “Finding someone to prescribe was like going into the black market, even once medical marijuana was legalized,” she explains. Likewise, Megan would have preferred a referral from her established physician but went through DocMJ to secure her prescription. Now, on a monthly basis, Megan visits Trulieve, a dispensary that she describes as “professional, discrete and pharmacy-like.”

Drawbacks to Medical Marijuana

Imagine not being able to take your medication with you when traveling for business or pleasure. Since laws vary, Megan doesn’t feel comfortable flying or traveling with her prescription. Regardless, she often finds herself home-bound anyway – sometimes because of her condition itself and sometimes because of the treatment. “I can’t drive under the influence,” she says. Under Florida Statutes Section 316.193, a person is guilty of DUI if driving a vehicle while under the influence of alcohol or a controlled substance.

Unlike other medications, medical marijuana is not covered by insurance, Medicare or Medicaid. Megan struggles to afford her monthly prescription and, instead, fills it partially ($74/month) and hopes her symptoms remain at bay. Tricia agrees, “There is a financial strain.” Aside from the cost of cannabis product, she must plan ahead to cover annual renewal fees for both herself (caregiver ID card/registry) and her son (patient ID card/registry). However, in some cases, costs may be somewhat offset if other medications are weaned off because of the use of medical marijuana.

The stigma of being a “drug user” or “drugging your child” remains a true taboo, to say the least. As a result, Tricia fears that patients often seek advice via social media forums rather than from trained medical professionals. And while all forms of use are still debated, smoking is the most under fire. “Any time one inhales burnt material of any type into the lungs, it is cause for concern. Burnt particles can cause irritation of the lung tissue and possible exacerbation of pre-existing breathing issues,” says Davis. But he adds, “There is little research to support any fear of cancer from cannabis smoke, but there is also little to show smoking is a superior form of delivery. This is the reason most physicians prefer their patients use other dosage forms.”

How to Inhale Medical Marijuana Info

There are many misconceptions surrounding the use of medical marijuana and, perhaps, there is a lack of access to information overall. Many eligible patients – with a wide range of medical conditions – do not even realize they can qualify for and benefit from medical marijuana.

A collaboration of Medical Marijuana Treatment Clinics of Florida and Marijuana Med Today, a cannabis education website, Medical Marijuana Awareness Seminars (MMAS) are being held throughout Florida to educate the public. MMAS speakers included physicians, pharmacists, psychologists, dispensary representatives, patients or patient advocate groups and medical marijuana activists. “Our average audience is looking for a way to learn more about medical marijuana from a firsthand source,” Davis explains, adding, “We hear a lot of questions about whether medical marijuana can help someone wean off their use of opioids, if it can help with daily pain and ease of movement and how the Florida program works in general.”

To help breakdown the stigma, seminars are typically held in community-centric setting such as the public library. Find details on upcoming events at MarijuanaAware.com.

Editor’s Note: This article is not intended as medical advice. Consult a medical professional before treatment of any kind.

Photo credits:

Header image credit: Leafly
Cannabis plant credit: Trulieve
Noah (courtesy of Tricia Dennis)
Marijuana leaf credit: CannaMD
Vape pen (courtesy of Megan D.)

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How to Have an Inclusive, Allergy-Friendly Easter Celebration

Lifestyle

Nancy DeVault

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April 10, 2019

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How to Have an Inclusive, Allergy-Friendly Easter Celebration

In addition to religious celebrations, Easter is a time to enjoy cherished traditions… the iconic bunny, candy-filled baskets, decorating eggs and the thrill of Easter egg hunts. With some tweet-tastic tweaks, Easter can be inclusive for all, including those with allergies to eggs or dyes. So hop to it and try the following Easter alternatives.

Egg-cellent Allergy-Friendly Easter Alternatives

“My niece was diagnosed with food allergies, with eggs among the list of items she is highly allergic to. Her parents quickly learned how to read ingredients on food labels to identify foods safe for her to eat or even touch. This education is an ongoing process for our entire family,” Cheryl Spielman shared with AmeriDisability. “I’ve always enjoyed gathering with my seven nieces and nephews for seasonal activities and holiday celebrations. For years, one thing we could never do was dye Easter eggs. My heart broke to hear that while her classmates in school, church and scouts were coloring eggs, my niece was separated from the other children and the activity,” she explained.

Cheryl learned that egg allergies — one of the top eight most common food allergens — affect approximately 2% of children and 1% of adults (statistics that do not include sensitivities). So, in 2012, she created eggnots, a dyeable ceramic replacement for Easter eggs. Aside from allergy suffers, eggnots offer a holiday solution for vegans and those that simply prefer to bypass the hassle of boiling, refrigerating and peeling real eggs.

The eggnots testimonial page is full of praise. One comment reads: “My three-year-old has a rare, life-threatening autoimmune disease: eosinophilic esophagitis. He is allergic to all food, both to ingest and some airborne. He is fed 100% through a special tube as he also suffers with gastric paralysis. When we received your eggs last year, it allowed us to participate in a typical Easter tradition. It was so wonderful to share this tradition with him and our older son. Your product is life changing,” ─ K.M.

Other egg alternatives exist too, like plastic eggs and wooden eggs.

Food Dye Alternatives for Easter

The Food and Drug Administration (FDA) affirms to be “responsible for regulating all color additives to ensure that foods containing color additives are safe to eat, contain only approved ingredients and are accurately labeled.” Nine certified color additives are approved for use in the United States. Color additives seem to be in just about everything – from cereal to canned veggies. [Allergy-Symptoms.org compiled a list of foods containing yellow dye, red dye and blue dye.]

The Center for Science in the Public Interest, however, has a firm warning about the negative effects of food dyes. The organization affirms “commonly used food dyes, such as Yellow 5 and Yellow 6 and Red 40, pose risks including hyperactivity in children. Some also pose a risk of cancer (like Red 3) and allergic reactions.” CSPI even petitioned the FDA to eliminate food dyes altogether, similar to actions taken in Europe where foods containing such additives have warning labels.

If you need or want to forgo the use of traditional Easter egg dyes, try making your own natural colorant using vegetables, fruits and spices!

Here’s how to make natural Easter egg dye:

Color chart

· Orange = paprika

· Yellow = turmeric, cumin or orange peels

· Green = spinach or kale

· Blue = Purple cabbage or mashed blueberries

· Pink = cranberry juice or beets

· Purple = red onion skins

· Brown = dark coffee or steeped tea bags

‍Materials

· Desired natural ingredients (above)

· White vinegar

· Eggs

· Water

Directions

1. Wash and dry eggs.

2. Hard-boil eggs.

3. Combine 2-3 tablespoons of white vinegar, a quart of water and natural ingredients (a few cups for solid foods, like spinach, and a few tablespoons for spices).

4. Boil and simmer for up to 30 minutes. Then, cool and, if needed, strain.

5. Dip (and, if needed, rotate) eggs in dye; soak for several minutes (the longer you dye, the more vibrant the color).

6. Remove from dye; set aside to dry. Refrigerate if you intend to eat the eggs.

Or, try premade plant-based food colorants by Natural Earth Paints and Chefmaster. And, check out this HGTV how-to recipe to achieve a leaf design.

More No-Dye Easter Decorating

That flimsy metal egg dip stick is challenging to use and, perhaps, more so if you have fine motor limitations. For alternative decorating methods, try sponge-painting,stickers and/or decorative tape, foam cut-outs, the marker-led Eggmazing kit, chalkboard eggs, melted crayons and paper decoupage.

Candy/Chocolate-Free Easter Basket Ideas

Other food allergies, including dairy, may influence what the Easter bunny brings. Here are some candy/chocolate-free basket filler ideas:

· Bunny books, such as Guess How Much I Love You: One More Tickle by Sam McBratney [Editor’s note: my son loves this book because the bunny puppet pops through the pages.]

· Bunny-themed movies, such as Hop

· Egg-shaped sidewalk chalk

· Plastic eggs filled with anything your kiddo likes (money, stickers, figurines, figure puppets, erasers, lip gloss, decorative shoe laces, etc.)

· Easter themed playdoh

· Easter themed bubbles

· Bunny slippers

· Anything dinosaur egg-themed

Have an egg-cellent Easter!

Photo credits:

eggnots
wikimedia
HGTV

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8 Ways to Host an Accessible Easter Egg Hunt

Lifestyle

Nancy DeVault

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April 10, 2019

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8 Ways to Host an Accessible Easter Egg Hunt

An Easter egg hunt is a treasure hunt like none other! There are ways to encourage people of all abilities to partake in this holiday tradition. Here are some adaptive Easter hunt ideas to achieve an inclusion celebration:

1. Embrace Color Cues: Designate a unique Easter egg color for each child to ensure that everyone finds their fair share, especially if hunt participants include children with and without disabilities. To color-code, for example, have Johnny only hunt for the blue eggs and Jane only hunts for the pink eggs.

2. Encourage Sticky Fingers: Easter eggs don’t have to be hidden on the ground. Use tape to stick eggs to walls to keep them accessible for wheelchair users.

3. Do the Bunny Hop Balloon Pop: Tie spring colored balloons and string to eggs. Hunters can grab the string at any level instead of bending down to reach eggs.

Photo of girl, in a wheelchair, participating in an adaptive Easter egg hunt (on wall); courtesy of https://havewheelchairwilltravel.net/ — Photo courtesy of https://havewheelchairwilltravel.net/

4. Beeps For Peeps: Beeping eggs by Maxi Aids are helpful for hunters who are blind or visually impaired.

5. Have Flashy Festivities: Easter eggs by Blinkeez flash and change neon colors which may be optimal for those with vision impairments.

6. Make Baskets Handy-Dandy: Attach/tie Easter baskets directly onto walkers and/or wheelchairs.

7. Be Sensible: Try a DIY upgrade to transform plain plastic Easter eggs into sensory textured eggs. [Note: There are tons of sensory Easter-themed crafts online too!]

8. Use Egg-cellent Alternatives: People who suffer from egg allergies can use wooden, plastic or ceramic eggs, such as eggnots. And for those sensitive to food dyes, try using natural colorants made from produce and spices.

‍Know of other ways to make Easter hunts more accessible? Share with us on Facebook, Instagram and Twitter!

Celebrities Pave the Way for Disability Conversations: Selma Blair is Talking About Multiple Sclerosis

Entertainment

Lisa Beach

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April 8, 2019

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Celebrities Pave the Way for Disability Conversations: Selma Blair is Talking About Multiple Sclerosis

Before I saw actress Selma Blair interviewed on ABC’s Good Morning America, I honestly had just a cursory knowledge of multiple sclerosis. No friends or relatives I knew were living with this specific condition, and so I didn’t have an intimate understanding of the disease, its prognosis, or how it affects one’s daily life. I knew nothing about spasmodic dysphonia (a neurological disorder affecting the larynx voice muscles) or MS exacerbation (occurrence of new symptoms or worsening of old ones). But, as I watched the informative interview, I was amazed at Blair’s courage for sharing her personal story, especially in light of her struggle to speak (in the way we’re used to seeing her on the big screen) during the interview.

And I wanted to know more… and, apparently many others want to know more too. That’s the power of celebrities who talk about their disability. It paves the way to much needed conversation and understanding!

After the GMA interview, I jumped on the National Multiple Sclerosis Society website to learn more about MS. I discovered that, as an incurable disease, MS is a central nervous system disease, meaning it affects the brain, spinal cord, and optic nerves. It can cause chronic problems with muscle control, balance, and vision, with symptoms ranging from mild to severe. Common symptoms can include fatigue, numbness, weakness, spasticity, and vertigo, while less common symptoms can mean seizures, tremors, and problems speaking, swallowing, breathing, and hearing. These varying degrees of symptoms can make it extremely difficult to do everyday tasks, from buttoning a shirt and walking upstairs to driving a car and cooking dinner. My self-education was an eye-opening journey into MS. And I thank Blair for that.

Diagnosed in 2018, Blair has been speaking out about her health struggles after making an emotional return to the red carpet (with a diamond-bedazzled cane) at the Vanity Fair Oscar after-party. She had been unknowingly dealing with MS flare-ups since giving birth to her son, Arthur, in 2011. For years, she suffered from debilitating symptoms and sought medical help, but doctors couldn’t seem to pinpoint a cause. Part of the problem, she says, was they didn’t take her or her symptoms seriously. Finally, her MS diagnosis came in August 2018.

In her GMA interview, Blair told Robin Roberts, “I had tears. They weren’t tears of panic. They were tears of knowing I now had to give in to a body that had loss of control, and there was some relief in that.” She was also happy to let others see “what being in the middle of an aggressive form of multiple sclerosis is like.” Blair not only put a face to the disease, she put her whole MS life up for public scrutiny.

In recent months, the 46-year-old actress has given a series of media interviews to discuss what it’s like living with this disability. She admitted to being so tired that she had to pull over on the side of the road to take a nap after dropping off her son at school just a mile from her house.

She told how, prior to her diagnosis, she reached out to fellow actor Michael J.Fox to discuss her symptoms. [Fox revealed back in 1998 that he had Parkinson’s Disease.] And she talked about the immense gratitude she felt for her family, friends, and co-workers for “keeping her secret” until she was ready to publicly share her private battle with MS.

Initially, the Legally Blonde and Cruel Intentions star revealed her diagnosis with her 1.3 million Instagram followers. She wrote how her costumer not only designs her TV show character’s wardrobe, but “she carefully gets my legs in my pants, pulls my tops over my head, buttons my coats and offers her shoulder to steady myself. I have #multiplesclerosis. I am in an exacerbation.” And with that social media post, she put MS in the spotlight.

In her post, Blair pointed to the challenges of living with MS, noting, “I am disabled. I fall sometimes. I drop things. My memory is foggy. And my left side is asking for directions from a broken gps.” And she wrote about her desire to be able to, once again, do the simple things in life, like play with her son, walk down the street, and ride her horse. But Blair also put hope into the picture. “I am in the thick of it but I hope to give some hope to others. And even to myself,” she wrote. “I have MS and I am ok.”

By being so honest, open and vulnerable with her disability, Blair has helped thrust MS into the spotlight, sparking conversations and increasing awareness along the way. Her courageous act of sharing may help others seek diagnosis for their similar-but-unexplained symptoms. She might inspire others to donate to charities such as National Multiple Sclerosis Society to help fund cutting-edge research. And she may have helped eliminate the stigma associated with having MS—or any disability for that matter. Her public fight with MS is already triumphant. Boom. (mic drop)