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The Long & Short of Medically Related Hair Loss

Nancy DeVault
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The Long & Short of Medically Related Hair Loss

Most people lose some hair every day – roughly 50-100 strands; and an ample amount naturally grows back to maintain a full head of hair. But sometimes one’s hair growth cycle falls short. Aside from the aging process, a person may experience medically related hair loss because of genetic conditions, hormonal changes, illnesses, medications, stressors and an array of other reasons. And while some people confidently rock a bald or shaven head, others emotionally struggle when hair thins or falls out.

If you need another reason to cut your hair this summer, know that August is National Hair Loss Awareness Month. It’s a time to brush up on medically related hair loss and learn how your next haircut can make a difference.  

Male pattern baldness (MPB), or androgenetic alopecia, accounts for 95% of hair loss in men. But hair loss isn’t just a male issue. According to the American Hair Loss Association, women actually make up 40% of hair loss sufferers in the United States. Furthermore, children’s hair loss is responsible for about 3% of all pediatric office visits in this country. Yes, far beyond the typical bald baby stage, many children and adults go through medically related hair loss, which can be a devastating experience and negatively impact one’s mental health.

A children, who is experiencing medically related hair loss, hugs her mother
(Shutterstock)

Medically related hair loss may be caused by:

  • Alopecia areata: A common autoimmune condition affecting seven million Americans. Alopecia areata may cause either total or partial loss of scalp and body hair, says the National Alopecia Areata Foundation.
  • Cancer and cancer treatment: Affecting a whopping 1-in-3 people in America, cancerous (or abnormal) cells are often treated with chemotherapy, radiation and medications, which frequently causes hair loss.
  • Lupus: According to the Lupus Foundation of American, many people with lupus have skin issues, like rashes or sores on the scalp, that cause hair loss. Hair thinning or loss is also a side effect of certain medicines used to treat lupus, like steroids and immunosuppressives.
  • Physical trauma: Third- and fourth-degree burns can damage skin, hair follicles and cause scarring. Unlike alopecia areata which is not classified as a disability in legal terms, scarring alopecia can garner disability benefits for eligible veterans through the Department of Veterans Affairs (VA). This may be especially important to note for veterans experiencing PTSD and emotional turmoil.
  • Polycystic ovary syndrome (PCOS): An estimated 5-10% of U.S. women of childbearing age have PCOS, which causes elevated levels of testosterone and its metabolite dihydrotestosterone (DHT). That causes follicles to shrink and become thinner, leading to hair loss.
  • Psoriasis: This chronic condition causes itchy, scaly patches on the skin, which generally appear on the knees, elbows, trunk and scalp.
A young woman, with medically related hair loss, hugs a young girl
(Shutterstock)
  • Scalp infections: Scalp ringworm can cause patchy skin irritation, as well as hair loss. And staph A bacteria may cause folliculitis decalvans and, ultimately, baldness.
  • Sexually transmitted diseases (STD): Particularly if left untreated, some STDs, like syphilis, can cause hair loss. People living with HIV and AIDS occasionally experience hair loss due to infection, nutritional deficiencies or hormonal changes.
  • Telogen effluvium: Typically leading to temporary hair loss, telogen effluvium occurs following a stressor or change to the body, like childbirth or other hormonal changes/imbalances, psychological stress and infections (such as COVID-19), among other causes. Poisoning, such as thallium or arsenic poisoning, can also lead to a certain hair loss called anagen effluvium.
  • Thyroid disease: Hypothyroidism (underactive thyroid) and hyperthyroidism (overactive thyroid) may cause hair loss, plus additional symptoms.
  • Trichotillomania: Categorized as a mental disorder, those affected by ‘trich’ have an uncontrollable urge to pull hair from their scalp, eyebrows and other areas.
  • Vitamin deficiencies: A lack of dietary and supplemental nutrients, like iron, vitamins B & D and zinc, can impact the hair growth cycle.
  • Other auto-immune disorders & chronic conditions: Hair thinning and/or loss may also be a symptom of diabetes, fibromyalgia, Graves’ disease, Hashimoto’s thyroiditis, heart disease and Lyme disease.

While not medically related, per se, chemical burns or damage can occur from harsh haircare like perm and dye products. Additionally, excessive styling, like frequent ponytails, can impact hair.

(CDC)

Here’s Why You Should Cut Your Hair

Hair loss — whether temporary or permanent — can trigger anxiety, depression, embarrassment, frustration, jealousy and self-consciousness, as well lead to withdrawal or isolation. Women and children who experience medically related hair loss may be at greater risk of experiencing these troubling emotional side effects.

Some causes of hair loss are treatable. Medication, hair transplants and platelet-rich plasma (PRP), for instance, may be applicable; still, others prefer headscarves, hats and wigs. Many people don’t realize that they can help provide wigs to those in need just by getting a standard haircut!

That’s the very mission of Children With Hair Loss, a nonprofit that provides human hair wigs at no cost to children and young adults facing medically related hair loss. Regina Villemure, a former cosmetology instructor, hairstylist and hair replacement specialist, established the organization in 2000 in honor of her niece, Sarah. While visiting Sarah in the hospital during her ordeal with Acute Lymphoblastic Leukemia, Regina noticed that pediatric patients were outfitted in adult-sized synthetic wigs which weren’t ideal, flattening or mood boosting. Regina came up with a solution for the hairy situation and, now, Children With Hair Loss serves over 600 children per year.

Row of real hair wigs made by Children With Hair Loss, an organization combating medically related hair loss
(CWHL Facebook)

Main Benefits of Taming Your Mane

Those that chop and contribute their hair to charitable organizations may benefit too. A hair donation may:

  • Potentially be free of charge, as some partnering salons offer a donation cut on the house. Plus, with a shorter bob, one can scale back on the amount of styling products used and, thus, spend less on haircare.
  • Help maintain proper grooming habits, which is essential for mental wellbeing. A fresh haircut can boost self-confidence. Plus, a cut and wash can feel nice and relaxing, especially for sensory seekers.
  • Lead to healthier, shinier and fuller hair because, according to haircare experts like L’oreal Paris, locks should be trimmed about every three months to effectively part ways with damaged hair and split-ends.
  • Foster the “do good, feel good phenomenon!” Research suggests that when someone does something good, a happiness high ensues.

Normalizing Medically Related Hair Loss

Bald is beautiful, says Evsie, a clothing brand for young girls. The company recently welcomed a new brand ambassador, 8-year-old Hadley McNulty, who’ll appear in various marketing campaigns. The brand’s mission is centered on helping youth build confidence and self-expression through fashion, as does Hadley, a fashionista with alopecia who also advocates for Children With Hair Loss.

Many celebrities have brought hair loss into the spotlight. Actors Alyssa Milano, Jada Pinkett Smith, Matt Lucas, Neve Campbell, Rickie Lake, Tyra Banks and Viola Davis have all publicly shared their experiences with medically related hair loss. Comedian Kathy Griffin and singer Kellie Pickler each shaved their head in solidarity of a loved one undergoing cancer treatments. Additionally, other stars have donated their tresses, like actress Shailene Woodley and TV home designer Chip Gaines (both to Children With Hair Loss), singer Harry Styles (to Little Princess Trust), and actress Amanda Seyfried and snowboarder Shaun White (each to Locks of Love).

Hadley, evsie's first brand ambassador. She has medically related hair loss.
(Evsie)

Who Accepts Hair for Wigs

Several charitable groups accept donations, such as:

Editor’s Note: AmeriDisability’s own editor, Nancy DeVault, donated locks to Children With Hair Loss.

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Spanish-Speaking Caregivers Can Access New Training Tools

Staff Writer
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Spanish-Speaking Caregivers Can Access New Training Tools

Transitioning into the role of caregiver can be challenging. And it can be even more difficult for Spanish-speaking caregivers struggling to find training tools and support materials in their native language. That’s why Trualta, a leading online learning and support platform for family caregivers, will now offer its caregiver training in Spanish.

“We are thrilled to offer our family caregiver platform in Spanish,” said Jonathan Davis, Trualta CEO. “Our team is committed to helping as many caregivers as possible to better manage challenging care situations at home.”

Trualta’s innovative education platform offers short lessons on many caregiver skills, including fall prevention, medication management, toileting and bathing. It helps families caring for loved ones with conditions such as Alzheimer’s disease or dementia, an intellectual or developmental disability, heart disease, diabetes, COPD, stroke recovery and other debilitating conditions.

“We know that caregivers from linguistically diverse communities can be harder to reach for our social service, health plan and health system partners,” added Davis. “Our Spanish offering helps our partner organizations stay inclusive, accessible and available to those who need support.”

Hispanic family eating breakfast in bed, latinx disabilities
(Shutterstock)

Trualta developed its Spanish library in partnership with subject matter experts who not only translated existing content, but also updated content to ensure it was culturally relevant. Individuals in 32 states in America who provide unpaid care to family, friends or neighbors will have full access to Trualta’s Spanish content.

“We continue to be impressed with how Trualta helps family caregivers learn evidence-based skills, connect with one another, relieve stress and improve their quality of life,” said Greg Olsen, Director of the New York State Office for the Aging (NYSOFA), which partners with Trualta. “Trualta’s new Spanish content will be a game changer when it comes to addressing the needs of more family caregivers around the country.”

There are an estimated 53 million unpaid family caregivers in the U.S., and they are at risk for anxiety, depression and burnout. In the past year, Trualta has enabled more than 12,000 family caregivers to provide better care for their loved ones through its online courses, videos and modules.

Trualta says it has plans to release its content in other languages in the near future.

For more content like this, please read:

Stretch Therapy: Boost Wellness and Performance

Nancy DeVault
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Stretch Therapy: Boost Wellness and Performance

Year after year, fitness fads (i.e., Barre, CrossFit, Spin, Tae Bo, etc.) have inspired people of all ages and abilities to step up their wellness efforts. It seems that the latest craze, however, is a tried-and-true workout perceived to be somewhat basic. Stretching, and more specifically practitioner assisted stretching and/or stretch therapy, is flexing its muscle as the go-to fitness trend. Stretch therapy is actively engaging a wide range of people, spanning from professional athletes to ordinary individuals (with and without disabilities).

Take Stretch Zone, the first and largest franchisor in the stretching industry. The company launched in Miami back in 2004, a time period when exercise enthusiasts were more so drawn to Zumba and other dance workouts. But Founder & Chief Stretching Officer Jorden Gold says that, after witnessing the life-altering benefits of stretching, he was prepared to do the heavy-lifting of launching his wellness company.

“The whole reason that I started Stretch Zone was sparked from watching my grandfather becoming immobile because of his diabetes. It motivated me to develop a proprietary stretching method that I hoped would prevent others from having to see themselves and the people in their lives suffer in the same way,” Gold explains.

A stretch practitioner helps a client with stretch therapy.
(Trained practitioners at Stretch Zone help clients with stretch therapy.)

Initially, business didn’t exactly take off. Then, in 2020 when the Covid-19 pandemic inspired some people to better prioritize health, Stretch Zone really stretched its client base to new heights. With company kinks worked out, Stretch Zone operated 100 studios by the summer of 2020, then rapidly grew to 200 fine-tuned sites by the following year and, now by summer’s end 2023, expects to have 300 locations up and running (well, stretching) nationwide.

Benefits of Stretch Therapy

“Stretching the surrounding muscles of your joints is a great way to mitigate muscle tightness and keep your joints lubricated which, in turn, stops the pop,” Gold says.

Utilizing its patented strapping equipment to improve muscle function throughout the body, the Stretch Zone method, gradually guided by a stretch-trained practitioner, is designed to isolate and stabilize muscles, helping to adjust stretch reflexes and retrain one’s nervous system to achieve optimal results.

Athletes aren’t the only ones seeking (and receiving) results. In general, all types of people may decrease risk of injury, while increasing range of motion (ROM) and overall health. For people with certain disabilities, practitioners also claim that assisted stretching can help alleviate chronic pain, improve blood circulation and energy levels, and increase flexibility, mobility and strength. Stretch therapy sessions are customized to match the ability and goals of each client.

A female client tries stretch therapy.
Stretch therapy sessions are customized to benefit people of all abilities.

Stephanie Hall, a publicist representing Stretch Zone, tells AmeriDisability that the company works with individuals with a variety of debilitating conditions, such as cerebral palsy, multiple sclerosis and Parkinson’s disease, with beneficial outcomes. A person recovering from a stroke, for example, may find that stretch therapy boosts spatial awareness. Hall says that it’s important to note that Stretch Zone does not “treat or diagnose any conditions, and clients should always seek approval from their physician before beginning any new activity.”

Plus, results aren’t guaranteed and likely won’t happen overnight; and, soreness can occur.

“It is important to understand that you must adhere to a regimented stretching program to build your stretch tolerance to gain and maintain semi-permanent muscle extensibility,” Gold advises. “So, it is not how long you stretch in a day, but a matter of how many days per week you repeat the ‘moderate’ stretch and for longer than four months to achieve lasting muscle extensibility. It may sound like a lot of work; however, the good news is that the research also shows that stretching for just five minutes one or two days a week is sufficient to maintain any ROM gains.”  

Is Stretching Backed By Science?

University of Miami researchers studied the impact of an assisted stretching program offered to older persons living in a residential retirement community. Findings showed that the stretching method effectively improved ROM, mobility and even aided cardiovascular health. This study, among others, further demonstrates the benefits of stretching, which has been documented by countless authorities, such as Harvard Medical School and the Mayo Clinic.

Stretch therapy practitioner helps a client using stretch equipment.
Assisted stretching is administered manually by trained stretch practitioners and with patented stretch equipment.

As with any type of exercise regime, it can be difficult to maintain consistency with stretching. That’s why, just like having a gym membership or workout buddy, some people opt to hold themselves accountable by committing to practicing at an assisted stretching facility. Maintaining a wellness routine may be especially important for those within the disability community because statistics show that people with disabilities are less likely to be of healthy weight and more likely to be obese than people without disabilities.

Still, if you and/or a loved one aren’t ready to book an official stretch therapy session with a stretch practitioner just yet, stretching may be effective done in the comforts of one’s home. Things to consider when stretching at home: 

  • Experts suggest gently warming up muscles before stretching. This could be a brief  walk or simple, soft movements.
  • Strive for symmetry, if possible, to work both sides of the body.
  • Engage various muscle groups.
  • Avoid bouncing or harsh movements.
  • Don’t rush positions. Strive to maintain a stretch for 30- to 60-seconds, if possible.
  • Stop stretching if you feel pain.
  • Practice routinely, building on to the duration of sessions (from 5- to 8-minutes, for example).
  • Explore additional stretching activities, such as Tai Chi, Pilates and yoga.
  • Incorporate accessible gear, such as a foam roller or yoga strap.
  • Ask your medical provider for a print-out of stretches that may be safe and ideal for you.
  • Don’t give up! You can do it.

To explore more content like this, read:

New ReelAbilities Stream Platform Spotlights Disability

Nancy DeVault
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0
New ReelAbilities Stream Platform Spotlights Disability

The entertainment market is fairly saturated when it comes to viewing options. According to a Consumer Reports survey conducted in early 2023, more than half of American households subscribe to four or more streaming services, like AppleTV, Amazon Video, Disney+, Netflix and Max, among others; and almost 1-in-10 subscribe to nine or more. As it turns out, content consumers are willing to give yet another digital channel a chance. ReelAbilities Stream is the first-of-its-kind streaming platform dedicated to a collection of disability-themed films and presented with pioneering accessibility features.

What is ReelAbilities Stream?

In mid July 2023, in alignment with Disability Pride Month, ReelAbilities Film Festival announced and officially introduced ReelAbilities Stream (ReelAbilitiesStream.org). This groundbreaking, online hub aims to celebrate and explore the lives and experiences of people with disabilities.

The digital platform’s mission of inclusion is an extension of that of ReelAbilities Film Festival. This film showcase — dedicated to promoting awareness and appreciation of the lives, stories and artistic expressions of people with disabilities — was founded in 2007 in New York. Since then, the festival has engaged individuals of all abilities on an international scale.

Is There an Audience for ReelAbilities Stream?

In the U.S. alone, at least 61 million (or roughly 1-in-4) adults live with a disability, according to the Centers for Disease Control and Prevention (CDC). The disability community, of course, also includes caregivers, disability allies and so on – meaning, yes, there’s absolutely a significant audience available to engage with ReelAbilities Stream.

The company says that every film on the platform will be equipped with pioneering accessibility features, including full open captions and audio descriptions. Additionally, innovative accessibility features will be rolled out by the end of the year. A press release issued by ReelAbilities declared: “By ensuring that these films are accessible to all, ReelAbilitiesStream.org aims to amplify the voices of individuals with disabilities and drive attention to disability perspectives. This commitment to accessibility will revolutionize the streaming experience for audiences nationwide, fostering a more inclusive cinematic landscape.”

Isaac Zablocki, the Director and Co-Founder of ReelAbilities Film Festival, enthusiastically shared his hopes regarding the new platform. “Over the past fifteen years, our festival has amassed an incredible collection of films that deserve wider recognition. Unfortunately, many of these exceptional works have not been given the attention they deserve. With ReelAbilitiesStream.org, we are proud to establish the most comprehensive platform, amplifying these voices and providing a well-deserved spotlight for these highly demanded films.”

Initially, ReelAbilities Stream will feature more than 50 diverse films connected to the disability experience. Some of the highlighted films available, for example, include Tribeca Film Festival’s award-winning Keep the Change, a comedy featuring young adults on the autistic spectrum, and the Hungarian Academy Award nominated Kills on Wheels, which is about wheelchair users that team up with a hitman. Short films are also part of the catalog, such as 4 Quarters of Silence, centered on a deaf high school football team; and Jmaxx and the Universal Language, highlighting an autistic man who expresses himself through dance.

Presently, ReelAbilities Stream is available on a pay-per-view model, with prices ranging from $1.99 to $3.99 per film. The platform’s tagline is “Accessibility on Demand.” Because, let’s face it, the demand is there — and expanding.

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$7.5M Grant to Improve System for Children With Special Health Care Needs

Staff Writer
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$7.5M Grant to Improve System for Children With Special Health Care Needs

The Health Resources and Services Administration’s Maternal and Child Health Bureau has awarded the American Academy of Pediatrics (AAP) a $7.5 million cooperative agreement to form a new national center for a system of services for children and youth with special health care needs (CYSHCN). The project will start in July 2023 .

With the five-year cooperative agreement, the AAP will establish a National Center Consortium (NCC) with Boston University, Family Voices, and The National Alliance to Advance Adolescent Health. The goal of the collaboration is to provide better care for more children and youth with special health care needs by supporting the implementation of the MCHB Blueprint for Change: Guiding Principles for a System of Services for CYSHCN.

male physician using ASL with child with special health care needs
(Shutterstock)

According to the 2020-2021 National Survey of Children’s Health (NSCH), only 13.7% of children with special health care needs receive care in a well-functioning system. The Maternal and Child Health Bureau identified structural racism, ableism, complicated and siloed service systems, and weak links between clinical and non-clinical supports as some of the reasons. One of the goals of the NCC will be to assist state Title V Programs for Children with Special Needs and various stakeholders who serve children and youth with special needs and their families. Strategies will be implemented in four critical areas: health equity; financing of services; well-being and quality of life; and access to services to improve the cross-sector systems serving this population.

“The AAP is thrilled to receive this new award,” said AAP President Sandy Chung, MD, MPH, FAAP. “Through this new National Center, the AAP and its partners will work across the intersections of the four critical areas of the Blueprint for Change to drive innovation and change to advance and strengthen the system of services for children and youth with special health care needs and their families.”

To advance the system of services, the NCC will develop an implementation roadmap based on the MCHB Blueprint for Change: Guiding Principles for CYSHCN that identifies actionable steps at the research, practice, and policy levels for sectors serving CYSHCN and their families across their lifespan. The target audience includes state Title V programs, families, pediatricians, child health clinicians, education professionals, early childhood and adolescent experts, mental and behavioral health professionals, community-based organizations, payers, health systems, and policymakers.

The systemic barriers facing children and youth with special health care needs and their families are long-standing and underscore the need for new approaches to advance the system of services. The AAP and its partners are committed to transforming and improving the systems of services for CYSHCN and their families through the NCC and subsequent national center.

Kudos to all advocates dedicated to the disability community. 

Interested in more content like this? Read: 

How to Be a Disability Ally During Disability Pride Month

Nancy DeVault
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How to Be a Disability Ally During Disability Pride Month

If you’re not a member of the disability community, you may not realize that July is Disability Pride Month. Because of misinformation and misunderstanding, people with disabilities are often not thought of as equals or valued members of society. But all people – with or without disabilities – deserve to feel a sense of pride about themselves! Listen, people with disabilities constitute the nation’s largest minority group; so, if you’re not already connected to it… know that you could be at some point during your lifetime (whether you become disabled or a caregiver). But anyone can become a disability ally right now!

Being a disability ally doesn’t mean you have to be an expert on all things pertaining to the disability community. Rather, allyship, as defined by Dictionary.com is “the status or role of a person who advocates and actively works for the inclusion of a marginalized or politicized group in all areas of society, not as a member of that group but in solidarity with its struggle and point of view and under its leadership.”

Here are ways to be a disability ally during Disability Pride Month and beyond…

1. Combat ableism.

Ableism is defined as discrimination against disabled people; and/or the tendency to regard people with a disability as incomplete, diminished or damaged, and to measure the quality of life with a disability against a nondisabled standard. First, evaluate whether you may be consciously or subconsciously ablest. Then, mindfully combat ableism by educating yourself and others about disabilities. For example, encourage your company to embrace an inclusive workforce, introduce inclusive/diverse books and television programs to family members, encourage community sites (like your church or gym) to prioritize accessibility, advocate for equal access by communicating with elected officials, speak up when you hear others use discriminatory words and welcome people with disabilities into your life.

Smiling person placing supportive hand on another person's shoulder.
(Shutterstock)

2. Align with disability-serving charities.

You can help support the disability community by donating (time, funds, resources and more) to further the missions of disability-focused organizations. Advocacy, volunteerism and fundraising makes a difference!

3. Put people first.

The movement of disability pride is growing but, of course, disability is not the only identity a person has. It’s advised that the community-at-large practice “person-first language,” meaning a “person with a disability” versus a “disabled person.” Note that the person, not the disability, comes first. However, language within different sectors of the disability community isn’t always consistent. Sometimes disability “identity first language” is acceptable. For example, a recent survey polled more than 11,000 people with or connected to autism spectrum disorder (ASD); and, over 76% of respondents favored “identity first language” — meaning personal preferences to be referred to as an “autistic person.” Confused? That’s OK! People with disabilities usually don’t mind being asked about preferences. Overall, be cautious of using outdated, offensive terms.

4. Scrap labels.

The use of either extreme praise or negative labels inevitably over-emphasizes one aspect of a person’s life; thus, making a disability the primary factor. Many don’t like to feel pitied for or victimized by their disability (i.e., “It must be hard being a stroke victim”). On the flip side, people shouldn’t continually be put on a pedestal for living their typical life (i.e., “You’re so brave for trying that despite your disability. You’re my hero”). Just like typical people, those with disabilities are equal members of society with individual strengthens and weaknesses.

5. Don’t make assumptions.

There’s no shortage of misconceptions when it comes to disability. For example, the connection between wheelchair use and illness may stem from healthcare facilities customarily using wheelchairs to transport patients. But, in any setting, a person may use a wheelchair for a variety of reasons, none of which are connected to being sick. Perhaps the old saying, “You can’t judge a book by its cover” is spot on when it comes to members of the disability community… well, all humans for that matter. Not to mention that some disabilities are invisible. This quote comes to mind: Be kind always, for everyone you meet is fighting a battle you know nothing about.

Women communicating with ASL helps sort donated items
(Shutterstock)

6. Be conscious with communication.

Respectfully communicate with people with disabilities in the same manner as you would anyone else. When possible, make eye contact and speak in your normal tone of voice (not shouting). Regardless of ability level, no one wants to be treated like a child or patronized. Do speak directly to the person, rather than to an aide, caregiver or translator. And while their service animal may be adorable, it’s best not to engage with service animals unless permission is granted.

7. Grant personal space.

Consider disability equipment to be extensions of a person’s body. You wouldn’t push someone’s body that didn’t have a disability, and the same applies to disability devices; meaning don’t push someone’s wheelchair without asking first. Refrain from touching a cane, crutches, hand-held translator, oxygen tank, scooter, walker or other aid/tool.

8. Ask before attending.

Have you ever heard, “Here, let me help you!” Assertive helpers who frantically rush to assist without asking are likely just trying to be kind. But, sometimes, that potential helper doesn’t realize that the gesture is presumptuous. People with disabilities are extremely independent; others may be adapting to a newfound disability and find it beneficial to do things for themselves. If you’d like to offer a helping hand, simply ask first, such as “May I help you with that?” And don’t take offense if the answer is “no, thank you.”

9. Embrace teachable moments.

Children, especially those not accustomed to inclusion or diversity, have a natural, uninhibited curiosity. For example, little ones may ask a parent, “Why is that person in a wheelchair?” Some parents may uncomfortably react by shushing the child. This silencing makes disability feel taboo, rather than normalizing unique differences. Try to embrace teachable moments with simple, age-appropriate explanations, such as “Everyone is different. This person uses a wheelchair rather than legs to move around.”

A man reads disability books to his two kids, one of which has Down syndrome.
(Shutterstock)

10. Understand commonalities outweigh differences.

All humans can get hung up on differences. But people have so much more in common than they realize, regardless of ability. Just like people without disabilities, members of the disability community have families, jobs, hobbies, favorite foods, preferred pastimes and so on. Each one of us has varied likes, dislikes, personalities, backgrounds, etc. Most people, with and without disabilities, can make connections and identify similarities, regardless of physical, emotional or spiritual differences.

11. Listen with compassion, not judgement.

Sometimes friends vent to each other. That doesn’t mean that people with disabilities are necessarily looking to have every barrier solved for them. Listen, hear, validate. Avoid unnecessary and inapplicable comparisons. For example, maybe you temporarily used a wheelchair when you broke a limb, but that doesn’t mean you understand what a friend adapting to amputation is experiencing. A supportive ear is kind.

More Tips to Be a Disability Ally

  • Follow and interact with disability activists on social media.
  • Attend Disability Pride Month events – in person or virtually.
  • If and when possible, support special education teachers and other disability allies.
  • Read content by disability-focused news outlets to stay connected to happenings within the disability community.
  • Use your purchasing power to support inclusively minded brands.
  • Participate in observance holidays. For example, wear mismatched socks on World Down Syndrome Day, wear red on Wear Red Day, etc.

Thanks, in advance, for choosing to be a disability ally!

For more content like this, read:

Here’s What the Disability Pride Flag Represents

Nancy DeVault
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0
Here’s What the Disability Pride Flag Represents

July is recognized as Disability Pride Month. This annual celebration of differing abilities connects back to the passing of the Americans with Disabilities Act (ADA), the landmark ruling that prohibits discrimination against people with disabilities. Many years passed before a much-needed disability pride flag was created. Need help decoding the inclusive design? Here’s what the disability pride flag represents…

History of the Disability Pride Flag

Ann Magill, a writer who has cerebral palsy, was in grad school when ADA became law in July 1990. Often penning work on disability and social equality, she had a knack for flagging injustices. In 2010, she attended an underwhelming event for the 20th anniversary of the ADA. The lackluster celebration, in her opinion, did not garner the attention needed to strengthen awareness and acceptance of people with disabilities. She visualized making a disability pride flag and, finally, was fiercely motivated to do so following a horrific attack on a disabled-serving facility in Japan in 2016.

“My first design idea was to make the stripes zigzag… to represent how disabled people have to maneuver around all the barriers we face. We have to go this way, and then we have to go that way, and then we have to go this way and then we have to go that way. And that’s how we move through the world,” Magill described on The Accessible Stall podcast. The disability pride flag started to go viral in 2019.

Thanks to input from the disability community, the original design of the disability pride flag (left) was updated in 2021 (right) to be more accessible.
Thanks to input from the disability community, the original design of the disability pride flag (left) was updated in 2021 (right) to be more accessible. | (Wikipedia)

Members and allies of the disability community praised the flag’s concept yet offered constructive feedback. While well-intentioned, the bold colors and zigzag construction of the initial design caused a strobe-like effect on computer and phones screens which was off-putting for those with migraines, seizures, sensory sensitivities and other conditions. Thus, in 2021, Magill unveiled an updated and more accessible design of the disability pride flag featuring muted hues and softer angles.

“I think it’s even better this way because it truly represents the community because the community came together to solve a problem,” Magill explained on the podcast.

Understanding the Disability Pride Flag

Flags are traditionally flown to proudly signify nations and/or cultures. Flags also symbolize other types of identities, beliefs and, yes, pride. A couple of commonly recognized flags, for example, are the pride flag (rainbow banner honoring the LGBTQ+ community) and the Juneteenth flag (red and blue banner with bursting white star representing the end of slavery in the United States).

Here’s what the disability pride flag represents:

  • Black: The black background, which is more so like a faded charcoal base, ignites the mourning of disabled persons victimized by ableism or lost to disability-fueled violence, abuse/negligence and death. The dark shade also illuminates the rage and protest against the mistreatment of people with disabilities.
  • Diagonal band: The light, connected band of stripes cut straight through the darkness (i.e., barriers). The slanted formation is a symbolic contrast to the vertical walls and horizontal ceilings that resonate with feelings of isolation among some members of the disability community.heart with disability pride brand
  • Multi-colored: The disability pride flag includes all six standard international flag colors to denote that the disability community is wide-reaching and on a global scale. Regarding the flag’s redesign, Magill explained in a Reddit post that the warm and cool colors were grouped separately on either side of a white stripe to “lessen the chance of a flicker effect when scrolling online, lessen a nausea trigger for those who suffer from migraines and separate the red and green stripes for those with color blindness.”
  • Green: This stripe signifies sensory disabilities, including blindness, deafness, lack of smell, lack of taste and other sensory conditions.
  • Blue: This stripe represents those with psychiatric disabilities, such as anxiety, depression and other mental disorders.
  • White: This central stripe connects to persons with invisible disabilities and/or undiagnosed conditions.
  • Gold: This stripe signifies those with cognitive and intellectual disabilities and other neurodivergence.
  • Red: This final line denotes persons with physical disabilities.

Magill waived copyright and entered this disability pride flag into the public domain in an effort to encourage everyone – with and without disabilities — to promote and use the symbolic design. So, are you using the disability pride flag this month (and beyond)? Disability pride, of course, is a year-round movement! And your participation is needed.

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What is Disability Pride?

Nancy DeVault
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What is Disability Pride?

People with disabilities are the largest and most diverse minority group within the population, representing all abilities, ages, races, ethnicities, religions and socio-economic backgrounds. Because at least 1-in-4 adults in the United States has some type of disability, it’s no surprise that a movement of “disability pride” is emerging and rapidly expanding. So, what is disability pride? AmeriDisability has the breakdown of what you need to know…

Disability pride is defined as accepting and honoring each person’s uniqueness, and seeing it as a natural and beautiful part of human diversity. Disability pride is an integral part of an inclusive crusade and, furthermore, a direct challenge to systemic ableism and stigmatizing definitions of disability.

Defining Disability Pride

Since disability pride is a fairly new concept, it is important for people with disabilities to be proudly visible in the community, according to the Disability Community Resource Center.

Oftentimes, people solely think about disability as a medical diagnosis. For example: “My disability is a spinal cord injury,” “my disability is depression” or “my disability is a brain injury.” But disability is far more than just the physical and/or mental effects on the body. Disability is much more than the pills that you take or the specialized physicians that you see to manage a condition. It’s a part of who you are. However, disability is not the only identity you have; of course, you may also identify by gender, race, height and many other attributes. All of your unique individuality is important and has value.

watercolor graphic of wheelchair user ADA symbol. July is disability pride month
(Shutterstock)

Disability Pride Month

In alignment with the July 1990 passing of the landmark Americans with Disabilities Act (ADA), disability month is celebrated every year in July. This observance aims to promote visibility and mainstream awareness of the positive pride felt by those within the disability community. Using bold images and powerful words, disability pride awareness events and parades strive to educate and empower people with and without disabilities. You see, pride comes from celebrating the unique experiences that we have as people with differing abilities and the contributions that we offer society.

The first ‘Disability Pride Day’ was held in Boston in 1990, and the first U.S.-based Disability Pride Parade was held in Chicago in 2004. Today, disability pride parades are held nationwide, such as in Los Angeles, New York City, San Antonio and Madison, among other locations. These events celebrate disability culture with the intention to progressively influence the way civilization thinks about and/or perceives disabilities – with the ultimate goal to put an end to stigmas surrounding disability.

Ancillary movements have also developed. For example, in 2005, Autistic Pride Day was established to heighten acceptance and understanding of people with autism spectrum disorder (ASD). This disability observance is now held annually on June 18.

“There is a tremendous need to create a counter-culture that teaches new values and beliefs, and acknowledges the dignity and worth of all human beings. Disability pride is a direct response to this need.” – Sarah Triano, National Disabled Students Union.

graphic of diverse group of people, including an amputee, wheelchair user and blond person with a service dog
(Shutterstock)

Disability Pride Matters 

Sadly, because of misinformation and misunderstanding, people with disabilities are often not thought of as equals or valued members of society. Dr. Martin Luther King, Jr., the prominent civil rights leader who helped champion disability rights, said, “As long as the mind is enslaved, the body can never be free.” So, as long as people feel ashamed of who they are, they will never realize the true equality and freedom they desire and can achieve. That’s why disability pride matters. YOU matter.

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Autistic Entrepreneur is Diversifying the Beauty Industry

Nancy DeVault
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Autistic Entrepreneur is Diversifying the Beauty Industry

Autism spectrum disorder (ASD) is a neurodivergent condition that can make aspects of daily life more challenging — when compared to those without ASD or other disabilities. Because ASD typically causes social, behavioral and communication differences, many autistics may feel limited when it comes to securing gainful, fulfilling employment, and especially so if and when hiring managers appear to be put off by autistic mannerisms or the concept of accessible accommodations. That’s why when Aaliyah Alicia Thompson, a 21-year-old autistic woman with a passion for beauty, wanted to let her talents shine, she opened her own salon in Stockbridge, Georgia with the intention of diversifying the beauty industry.

Thanks to the support of her family, Thompson established Aaliyah’s Beauty Bar in the fall of 2022. As a young, black female with a disability, Thompson acknowledges the great need for operating an inclusive salon that provides hair, make-up and nail services to all women. Diagnosed at the age of five, she’s always strived to break down barriers surrounding autism and, now, will also enhance diversity within the beauty industry.

Aaliyah Thompson (seated) with her team from Aaliyah's Beauty Bar, an inclusive salon offering hair, nail and make-up services for all women.
Aaliyah Thompson (seated) with her team from Aaliyah’s Beauty Bar, an inclusive salon offering hair, nail and make-up services for all women.

Further Diversifying the Beauty Industry

The unemployment rate of individuals with a disability is nearly 60 percent higher than the rate of individuals without a disability. That alarming statistic helped to motivate Thompson to boldly create Aaliyah School Of Nails, which is set to open in less than a year’s time from the creation of Aaliyah’s Beauty Bar! The school will be a first-of-its-kind training center empowering and educating beauty enthusiasts of all abilities.

“As someone with autism, I know firsthand the challenges of finding opportunities in the workforce. But I also know that individuals with autism have unique talents and abilities that can be harnessed to achieve great things,” Thompson shares. “I hope that my nail school will serve as a model for inclusive entrepreneurship and inspire others to pursue their dreams, no matter their background or challenges.”

Prepared to welcome its first round of students at the end of the summer 2023, Aaliyah School Of Nails plans to offer a comprehensive curriculum focused on all aspects of nail design and care, in addition to basic business management skills. Thompson says the inclusively-minded institution aims to provide personalized devotion to every student to, ultimately, help each achieve careers in the beauty industry, whether that be working as a nail technician at an established salon or by pursuing entrepreneurship.

A student practices applying nail polish.
Students, with and without disabilities, who attend Aaliyah School Of Nails will learn nail design and care techniques.

Hiring people with autism or other disabilities is, quite simply, smart business. Approximately 1-in-4 people in the U.S. have at least one debilitating condition and, as it turns out, members of the disability community have valuable attributes. Just like other potential employees (with and without disabilities), workers with differing abilities such as ASD are extremely driven to do a good job and, in some circumstances, can even present superior work. For example, people with ADHD can become hyper-focused on a task; and, thus, may produce high-quality nail designs repeatedly during an uninterrupted work session. Similarly, employees with ASD are usually detail-oriented, a trait that would benefit the meticulous duties of a nail technician or beauty stylist. Plus, an inclusive work environment is a positive one for all.

Tips Diversify the Beauty Industry

Grooming can be difficult for people with ASD, sensory processing disorder and other conditions. One can become overstimulated or destressed by the noise of hair scissors or razors, the sensation of clipping nails, the scent of beauty products and even the change in routine of just getting to the appointment site.

Here are a few tips for stylists and beauty professionals to bolster inclusion:

  • Be patient and kind with all customers and perhaps especially so with those who have differing abilities and may experience added anxiety during services.

    Aaliyah Thompson, an autistic entrepreneur is diversifying the beauty industry by advocating for inclusion and diversity.
    Aaliyah Thompson, an autistic entrepreneur is diversifying the beauty industry by advocating for inclusion and diversity.
  • Skip the salon gown/robe to omit tag or fabric irritation.
  • Strive to accommodate neurodiverse patrons during quieter time slots to limit overstimulation.
  • Dim lighting and lower music volume, if possible.
  • Show the client the tools that’ll be used and, if applicable, demonstrate first (i.e., comb your hair).
  • Allow sensory-sensitive customers to bring in their own product if requested to curb triggering scents.
  • Suggest a dry cut to lessen duration of the appointment and/or forgo rough pressure from the waterspout.
  • Be vocal with what is happening and what will happen. [For example: First, we will comb your hair with this round brush, then we will trim the ends with this scissor.]

Aaliyah School Of Nails will offer full-time, part-time and night classes for those interested in pursuing a certification. For questions pertaining to this program, contact their glamorous team. For those interested in exploring entrepreneurship in other business sections, check out AmeriDisability’s article: “A ‘How To Start a Business Guide’ for Entrepreneurs with Disabilities.”

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Inclusive Product Offers Stress Reduction in a Pinch

Nancy DeVault
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Inclusive Product Offers Stress Reduction in a Pinch

Nancy Rothner has dedicated more than two decades to the field of stress reduction; first as a clinical hypnotherapist and then as a product entrepreneur. You see, when she couldn’t find an affordable, holistic stress reliever ideal for her clients and anyone experiencing stress, she invented one. Rothner developed Pinch Me Therapy Dough, a non-prescription, scented putty-like tool that’s at the ready to reduce one’s stress ‘in a pinch’ – or any time for that matter.

Stress is a normal reaction to everyday pressures, per the American Psychological Association. But it can worsen to impact one’s day-to-day functioning, which can greatly affect a person’s mental and physical well-being. Examples of specific diagnoses include acute stress disorder, post traumatic stress disorder (PTSD) and social anxiety, to name a few.

Stress Reduction Through Inclusive Product Design

According to the Centers for Disease Control (CDC), a study found that adults with disabilities reported mental distress nearly five times as often as those without disabilities. In 2018, an estimated 17.4 million (32.9%) adults with disabilities said they experienced frequent mental distress, defined as 14 or more mentally unhealthy days within the past 30 days.

Perhaps consequently, fidget toys have gained popularity as a fairly simple, yet effective stress-reliever within the disability community and beyond. People with ADHD, autism spectrum disorder (ASD) and generalized anxiety disorder, for example, have turned to these handy devices at record numbers as of late. Fidget toys come in a variety of different forms, such as cubes, putty, spinners, stress balls and chewable pendants.

The inclusively designed, stress reduction tool called Pinch Me comes in many colors and scents.
(Available in varying colors and scents, Pinch Me helps one relax in a pinch — literally and figuratively.)

Pinch Me is best categorized as a putty. Uniquely engaging one’s senses, it’s comprehensive design taps into aromatherapy, chromotherapy and tactile stimulation.

“When someone is around a scent they like, the first thing their body does (as a reflex) is a shift that opens the breath… which starts the opportunity to reduce one’s stress,” Rothner tells AmeriDisability. “The design of Pinch Me also pulls one’s attention to their hands since the brain has so much of its sensitivity wired to the agility in the fingertips. This acts as a quick catalyst to become centered; followed by the kneading action that allows tension to seep out of the fingers without even thinking about it.”

The soft, brightly hued putty is available in about 20 different scents, which can also be paired with a matching mist spray. Some of the fragrances are self-explanatory, like Citrus and Spice, while other namesakes are more so aligned with a desired mood. For example: Bliss is a delicate fusion of lemon and lavender, and Refresh is a soothing cucumber mint blend.

The Pinch Me label isn’t just a descriptive connection to the physical action of manually pinching the putty. Rothner explains that “Pinch Me is probably the most feel-good, happy expression on the planet… those moments that are just too good to be true — the ‘pinch me’ moments.” And since Pinch Me is affordable, convenient and effective… yes, consumers are saying “Pinch Me!”

Because of the clientele she was accustomed to through her clinical practice, Rothner initially assumed that Pinch Me’s primary consumer base would mostly consist of college-aged students and adults. But thanks, in part, to an appearance on the Shark Tank television show, demand for Pinch Me substantially grew, including high numbers of people with disabilities and even people who work within the disability community (such as physical therapists).

Nancy Rothner appeared on Shark Tank. The sharks agreed to back Pinch Me.
(During an appearance on Shark Tank, Rothner landed a deal with ‘shark’ Robert Herjavec.)

In no way does Rothner proclaim that her inclusively designed product guarantees mental or physical healing. It’s intended to be (and is marketed as) a basic stress reduction tool. Still, countless satisfied customers have offered more specific praise about the benefits gained by using Pinch Me. This includes many with specific conditions, like ADHD, ASD, chronic pain, weakened muscles or limited mobility (of hands), spasticity muscles and, of course, stress.

Headquartered in Lewes, Delaware, Pinch Me supports the Wounded Warrior Project, a nonprofit offering mental health support, career counseling and long-term rehabilitative care to veterans and service members and their families. A portion of proceeds financially support the organization, plus Pinch Me product is also provided to military personnel in an affect to combat stress.

In addition to utilizing stress reduction fidget tools, other ways to manage stress include:

  • Exercising
  • Eating a balanced, nutrient-dense diet
  • Getting ample rest/sleep
  • Participating in mindfulness practices, like meditation, yoga and journaling
  • Spending time in nature
  • Speaking with a professional counselor
  • Exploring holistic approaches, such as laughter therapy, music therapy, etc.

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