Thursday, March 28, 2024
spot_img
Html code here! Replace this with any non empty raw html code and that's it.
Home Blog Page 38

Soccer Superstar Carson Pickett Scores by Promoting Inclusion

0

Wearing the #16 jersey, Carson Pickett pulls on her purple knee high socks and laces up her soccer cleats just like the rest of her Orlando Pride teammates. It’s a simple pre-game necessity, of course, and yet she often feels the stares of onlookers. Pickett was born without a left forearm and hand but that hasn’t stopped her from dominating on and off the field.

About 2,250 babies are born with limb defects in the United States each year, according to the Centers for Disease Control and Prevention. “Limb reduction,” as it is known, occurs when part of or the entire arm (upper limb) or leg (lower limb) of a baby fails to development in-utero.

Pickett grew up just outside of Jacksonville, Florida. Thanks to the influence of her athletic mother and father, Treasure and Mike, she started playing soccer at age five. “I was raised by two amazing parents who always told me that I could do anything that I dreamed of,” Pickett tells AmeriDisability. Now 25 years old, many of those aspirations have already come true. And her limb impairment never swayed her determination. However, because people often have misconceptions about physical disabilities, Pickett’s not a fan of the term ‘disability.’ She explains, “I prefer using the word ‘unique.’ Everyone is unique in their own way. Just because someone is missing an arm doesn’t mean she can’t do something that someone with two arms can do.”

Carson Pickett is a defender for Orlando Pride.
credit: Orlando Pride

Pickett proved that playing four years at Florida State University. Then, in 2016, she was drafted into the National Women’s Soccer League (NWSL) by Seattle Reign, where she performed for two years alongside league icons, including Megan Rapinoe. In 2018, she returned home to the Sunshine State on a trade to the Orlando Pride. She quickly found her footing as a defender and has played in every game thus far in the current 2019 season.

Humor, especially surrounding her “uniqueness,” is a powerful asset that Pickett uses to connect with teammates, coaches and fans. There are lighthearted jokes about handballs and throw-ins, along with serious accolades about her superior skills. She’s been described as one of the smartest left-backs in the league because she has the ability to read the game differently and anticipate how to effectively “body up” to competitors.

Pickett believes participation in a collaborative environment has helped build her confidence. “If I was playing tennis or golf or another individualized sport, it would be harder [to combat diversity] because I’d be out there on my own. Being part of a team sport has allowed me to be with people who always had my back,” she says. “My teammates and coaches believe that I can be better and better each year and they push me to be that way… in all aspects of my life.”

The Power of Star Power

Fresh off the U.S.’s win of 2019 FIFA Women’s World Cup, NSWL players have become household names, including Pickett’s Orlando Pride teammates ─ Alex Morgan, Ali Krieger and Ashlyn Harris ─ who helped the U.S. break its own record for the most wins of any country with four. “It is unreal seeing them succeed and it just shows how amazing they are and how hard they’ve worked,” Pickett says, of her famed teammates she describes as persistent and level-headed.

Amidst the World Cup media frenzy, Pickett also found herself in the throes of the spotlight after a post-game photo went viral. Following the Pride’s win over Sky Blue FC in June, Pickett ran over to the stands to greet her number one fan, 2-year-old Joseph, who also was born without his left forearm and hand. Joseph’s mom, Colleen Tidd, snapped a photo of the two “fist bumping.” She shared the touching image on Instagram and it quickly garnered more than 10K likes.

Carson Pickett and Joseph Tidd have similar limb impairments.
credit: @tiddibt_outta_hand (Joseph Tidd)

“The picture is authentic. It wasn’t a set-up photo opp. It was a moment when we saw each other and we had true emotions,” Pickett attests. “A lot of people do things for the attention and that is not who I am. The moment was pure joy between a 25- and 2-year-old. And despite our age difference, we have a connection and understanding that we’re so similar. It’s special!”

The pair first meet a few months prior and have built a sweet friendship. Both Pickett and her parents have offered the Tidd family guidance on how to support a child with a limb impairment. Tidd says the connection is truly empowering. “From the moment I found out Joseph was going to be my right-hand-man, I wanted the world to know he would be okay. I wanted my friends, family and even Joseph to understand that he will be able to accomplish anything he puts his mind to,” she tells AmeriDisability, adding, “Having Carson in our lives has helped prove that anything is possible. Joseph has never limited himself, and he never will, thanks to Carson. Since day one, she has demonstrated what an athlete and friend is all about: being supportive, encouraging all of us and inspiring thousands around the world… just by being her sweet self!”

Since the photo went viral, tons of other families have also solicited Pickett’s encouragement. “Parents have reached out to me for advice. They may ask me how I did something when I was younger,” she says. “I think it’s really cool that I can advise their child on how to succeed because, sometimes, parents with two hands can’t relate in the same way that I can with one arm. It’s been nice to help.”

While the public platform of inclusion came as a surprise, Pickett has fully embraced her newfound position as an inclusive role model and advocate. “I am here for a reason and it takes hard work. It’s tough to get stared at [at times] but I am lucky, and all the hard work is paying off,” she says. Pickett finds herself repeating her father’s favorite quote—one she lives by—to others: “Don’t let anyone turn your sky into a ceiling.” Bottom-line, she says, “Don’t let anyone tell you that you are not good enough, because you are able no matter what. I am good enough!”

Carson Pickett is an inclusive role model.
Carson Pickett with teammates Dani Weatherholt and Kristen Edmonds; credit: prosoccerusa.com

Her Next Impressive Move

Pickett says she enjoys playing defense but she’s open to trying new positions on the soccer field. In the U.S. off-season, she’ll voyage down under to play in Australia’s W-League, something she loves as an avid traveler. Off the field, Pickett says she spends most of her spare time with family, visiting the beach and snacking on donuts (as chronicled on her social media feeds).

Pickett admits that she longs to represent the USA at the sport’s highest level. “The dream of every soccer player is to play on the national team,” she says. But she has other ambitions too, like being a sports reporter and launching a foundation that would “spread joy and love” hosting soccer camps in third-world countries.

Well, apparently, you only need one arm to steal the hearts of many! Keep it up Carson Pickett. You’re our MVP!

Nancy DeVault is an award-winning writer/editor contributing to local and national publications. Her storytelling spans a wide range of topics, including charity, disability, food, health, lifestyle, parenting, relationships and travel. Married with two kiddos, Nancy describes herself as a lover of the outdoors, fitness, news, traveling and binge reading magazines while sipping coffee.

5 Disability Focused Podcasts Amping Up Inclusive Chatter

0

If you’re a podcast junkie like me, you probably spend time searching out programs that entertain, inform and inspire. Whether you’re in the car running errands or curled up on the couch with a cup of tea, these five disability-focused podcasts are worth a listen.

1. AccessPoint with Lis Malone

With a tagline of “where the dialogue between the mainstream and the disabled communities meet,” AccessPoint hopes to foster real conversations and bridge the gap between the two. Launched in 2015, AccessPoint aims to empower listeners to discover, learn and share opinions and ideas on accessibility, inclusion, acceptance and understanding.

At the microphone is Lis Malone, who lives with a degenerative retinal disease called retinitis pigmentosa. Diagnosed at age 20 and declared legally blind by 30, Malone proudly serves as an advocate for the blind and visually impaired.

“When I started podcasting, I went into it without thinking about who I was trying to target, but rather what message I wanted to send,” explains Malone. I wanted to be able to discuss topics focusing on disability in a very open, honest way, which could appeal to just about anyone. In doing so, I’ve had listeners from around the world and of various demographics, which I found to be both surprising and promising.”

This eight-episode, interview-driven podcast showcases various representatives of the disabled community and discusses a range of topics. Past episodes include talking with kids about disability, inclusive product design, and tech and web accessibility.

“I often hear that my listeners are moved by the fact that my guests and I speak from the heart,” notes Malone. “Some podcasts provide entertainment while others provide education. My podcasts tend to leave the listener with a feeling.”

Lis Malone hosts a disability focused podcast.
Lis Malone (photo by Keenon Perry)

2. Breaking Dishes with Lis Malone

Although AccessPoint was a limited-run podcast, Malone launched a second podcast in May 2019 called Breaking Dishes with longer-term aspirations. (You can find Breaking Dishes on iTunes, Spotify, Google Podcasts, Stitcher and other podcast platforms.) Less interview-driven and more discussion-based, Breaking Dishes continues forward and covers a broader spectrum of topics where Malone not only includes disability themes, but also more diversity themes, as she’s a woman living with a disability, she’s a racial minority and she’s an interracial adoptee.

Showing both vulnerability and kick-ass attitude, Malone gets real in Breaking Dishes (Episode 1: New Beginnings), as she discusses dealing with vision loss. “It was definitely the most challenging experience of my life. There were times when I did not handle the vision loss very gracefully. It was a process. There was a mourning period. I had to let go of the woman that I used to be. I had to say goodbye to being a sighted person. But over time, with rehabilitation, counseling and mentorship, I had to accept my new identity and learn to thrive as a blind person. And that meant reinventing myself, tapping into talents and re-purposing them, reminding myself that I have worth, surrounding myself with people who were good for me and that I was good for them. It truly was the ultimate new beginning for me personally.”

Noting how podcasting has created a fantastic platform for all voices, Malone says she feels humbled to be in the company of other content creators with the goal of diversifying the landscape. “I wish creating a great podcast was enough,” she adds. “But we also need to build awareness within our communities that these topics are important, and we need to support one another’s work.”

3. Disability Matters with Joyce Bender

Every Tuesday from 2:00 pm – 3:00 pm Eastern Time, you can listen to Joyce Bender and her expert guests talk about competitive employment and empowerment of people with disabilities. Technically a talk radio show (on VoiceAmerica.com) and not a podcast, it’s still worth tuning into every week. True to its mission and audience, Disability Matters is open-captioned for the deaf community.

Launched in 2004, Disability Matters has logged an amazing 700 episodes so far, featuring prominent disability leaders such as Congressman Tony Coelho (primary sponsor of the Americans with Disabilities Act), Governor Dick Thornburgh, and Andy Imparato (executive director of the Association of University Centers on Disabilities). Experts discuss how people with disabilities can secure meaningful employment, sustain a long-term career and make a positive impact. On the flipside, they also address how others (including employers) can benefit from hiring people with disabilities.

Bender herself is an expert, with 20 years of experience providing disability employment expertise as a consultant. She focuses on recruitment, workplace mentoring, strategic planning, training and digital accessibility, tapping into a network of thousands of disability and academic institution partners as well as a database of 27,000 qualified candidates with disabilities.

Although the show targets people with disabilities, businesses and Federal agencies, it also appeals to anyone interested in learning more about the disability rights community. Bender explains, “The goal of the show is to see an increase in the abysmal employment of people with disabilities, break down stigma and educate our communities.”

With hundreds of episodes, which ones rank high with listeners? “We have the top 10 shows data for every week and number one is Tony Coelho,” cites Bender. Other fan favorites include shows with CEOs, senators and celebrities, such as Jenny-Lay Flurrie from Microsoft.

While Disability Matters shares perspectives from business leaders, government officials and disability advocates on “how to move the needle on disability employment,” there’s still more work to be done. “I’m only surprised that after 15 years, the unemployment rate is still double that of people without disabilities—and next year is the 30th anniversary of the signing of the ADA,” Bender points out. As a long-time, on-air influencer, Bender understands how she’s helping to drive a movement of inclusive media and says she feels honored to host this show. “To have the opportunity to change lives and educate everyone about the disability community–I live with epilepsy–is so important,” she says.

Bender tips the hat to Highmark, the show’s lead sponsor for three years. “I think when a corporation sponsors the show for one year, it speaks volumes about the credibility.”

Joyce Bender discusses inclusive employment topics
Joyce Bender

4. Special Parents Confidential with John Pellegrini

Dubbed “the resource podcast for parents of special needs children,” Special Parents Confidential launched in 2013, on a part-time basis, with John Pellegrini as the show host. The show targets parents of special needs kids—any special needs, as Pellegrini doesn’t focus on just one particular issue. Adopting a “we’re-all-in-this-together” approach, the show also appeals to family members, relatives, caregivers and anyone with any kind of connection to a person with special needs.

“I came about this because of our son, who has some special needs,” explains Pellegrini. “We couldn’t get a diagnosis that explained all his issues for the first few years, so we attended a number of different support group meetings in an effort to learn more. I realized that, for many parents, attending a support group meeting is nearly impossible.” With his 30-year background in radio and audio production, Pellegrini decided to do a podcast that would serve as a virtual support group meeting that parents could access any time they want. “My role is to be the support group’s facilitator,” he says. “I get in touch with experts on different subjects and ask the kinds of questions that I, as a parent, would want to know.”

With 70 episodes recorded already, the podcast aims to fill the airwaves with expert advice on a variety of issues that parents of kids with special needs face. The show covers common parenting concerns such as getting and coping with a diagnosis, assistive technology, medical issues, insurance, education and more. (He cites Episode 15: Applied Behavior Analysis (ABA) as the single most downloaded episode so far.) In particular, Pellegrini enjoys interviewing adults who have special needs and hearing them tell stories of what their lives were like growing up with their challenges. “The contrast of how we used to deal with special needs and special education in the past compared and how things are done today shows great improvements, but sometimes we’ve also taken some ridiculous steps backward,” he points out.

With the backdrop of his career in the mainstream media, Pellegrini says, “I think podcasting is a major shot of life and inspiration. The ‘mainstream media’ has become too corporatized and homogenized to the point where you hear nothing but the same thing over and over. Podcasting—when done well (and unfortunately some of it isn’t)—offers a greater variety of subjects that people should know about.”

One overarching theme that others should know about lies in the power of kids with special needs. “What I hear more often in different ways from everyone I’ve talked to is, ‘Never underestimate a child with a special need,’” Pellegrini points out. “Always assume competency, because, when given the right kinds of assistance, they are far more capable than you could imagine.”

5. Disarming Disability with Nicole Kelly and Sarah Tuberty

In 2014, Nicole and Sarah met at a camp for limb-different children called Camp Winning Hands in California and they’ve been friends ever since. They joined forces to create Disarming Disability.

Fairly new on the podcast scene, the show launched weekly on February  27, 2019. The hosts just completed their first season comprised of 13 episodes in three distinct chapters: Disability History, Disability in the Media and How to Be an Ally. They hope to attract listeners who want to learn more about disability and learn how to make a more inclusive society. “We do want emphasis on those living with a disability, that they are connected to their history, and feel empowered in their experience,” explains Kelly.

The show’s goal? To deconstruct the disability social construct by connecting with experts in the disability field. To accomplish that, they’ve covered a lot of ground in their first season. Early fan favorites include learning about the hosts’ history as well as the media chapters that have empowered listeners to tackle projects that increase the visibility of disability. The hosts were even a bit surprised by a few of topics that ranked high in popularity.

“I felt really struck by our media episode with Lawrence Carter-Long, who spoke of his ‘light bulb moment’ when he realized that the larger society did not think of him and his experience as an equal. That those with different bodies, those like us, were better off dead,” recalls Tuberty, noting how it stirred her anger. “Feeling that anger made me realize that we have to do something. We can do something. Disability is a social construct; it’s based on rules we as a society made up. This means we have the power to make new rules. I am using my heated energy in ways to build beauty in the world.”

Meanwhile, Kelly was really struck by their “How to be an Advocate: Mental Illness” episode with Patrick Corrigan, a professor who loves data and numbers. “He brought to the forefront that when connecting with people to change the conversation about stigma, it’s important we share our stories,” notes Kelly. “Data and numbers will never ‘change anyone’s mind’ about a topic, but the power of a personal story goes very far!”

Stressing the importance of inclusivity in media, Disarming Disability models how to do it right. The podcast team, nine-members strong, strives to make all content accessible. Besides giving a voice to the disability community through the show, their photos on social media include alt text options. Plus, they post transcriptions of every episode on their website. “We engage with the community and integrate feedback to make our podcast more accessible,” notes Kelly. “We believe we have the responsibility to show other media HOW to be inclusive and we take this job very seriously.”

Kelly shared one of her favorite quotes from the first season, which pretty much sum sup the show’s mission: “We need to create the space, look around and see who is at the table and who is not. Why are they not there and what do we need to do to get them there?”

Disarming Disability is a new disability-focused podcast.
Nicole Kelly and Sarah Tuberty

Author’s Bio: Lisa Beach is a freelance journalist and copywriter. Her work has been published in The New York Times, Good Housekeeping, Eating Well, USA Today Go Escape Florida & Caribbean, Parents and dozens more. Check out her work at www.LisaBeachWrites.com.

Record Low Unemployment Creates Opportunities for Americans with Disabilities

0

With unemployment rates at a nearly 50-year low, many businesses are struggling to find workers. This tight job market is opening doors for people with disabilities, as many companies are turning their attention to diversity and inclusion in the workplace.

Though more Americans with disabilities are working, their unemployment rate is still more than twice that of the overall workforce. An estimated 81% of adults (18+) with developmental disabilities do not have a paid job in the community.

Some companies view hiring people with disabilities as “the right thing to do,” but not as a strategy that will benefit business. A recent study by the National Organization on Disability found that only 13% of U.S. companies have reached the Department of Labor target of a 7% disability representation among their staff. Often companies don’t know where to find this untapped resource of talent.

Programs like Best Buddies Jobs can help. They match skilled and qualified individuals with intellectual and developmental disabilities (IDD) with businesses seeking enthusiastic and dedicated employees. Job coaches look beyond the typical positions that individuals with IDD might hold, to match job seekers based on their individual talents and interests. The program develops partnerships with employers, assists with the hiring process and provides ongoing support to the employee and employer.

Inclusive workplaces benefit all.

“We started the program to help improve the quality of life for individuals with IDD, and what we found is that the employers also benefit by getting an extremely dedicated, well-prepared staff member, improved company morale, and a better bottom line,” explains Anthony Kennedy Shriver, Founder, Chairman & CEO of Best Buddies International. “The Jobs program is really a win for all of society since we end up creating employees who can support themselves and contribute to the economy, removing the need for government assistance or parental support.”

Dudley Williams III personifies the highly successful program participant. After graduating from Threshold, a Lesley University post-secondary program that prepares young adults who have diverse learning challenges for the world of work and independent living, Williams joined Best Buddies Jobs to work toward his professional goals. “I worked part-time jobs at first ranging from a hotel, to schools, and the Boston Minority Business Development Agency Center as an office assistant,” said Williams. “My ultimate goal was to find a full-time job.”

And he did. Williams is currently employed full-time as a marketing coordinator at John Hancock in Boston and has become a tireless advocate for employment for people with IDD. “My life has changed dramatically. I’m more confident in myself as a person and more independent at work. I’ve made new friendships as well.”

Rob Friedman, former assistant vice president of sponsorship and event marketing at John Hancock, says, “I think a program like Best Buddies Jobs is a terrific asset to John Hancock. It teaches our employees about diversity and working with different populations and certainly having someone like Dudley on staff has taught so many employees here so many great things.”

Dudley Williams III is successful in an inclusive workplace.
Dudley Williams III found employment thanks to Best Buddies Jobs.

As companies increase diversity and inclusion, they are discovering employee morale and fiscal performance improve. Harvard Business Review reports that diverse companies are 70% more likely to capture a new market. Research from renowned global human resources analyst Josh Bersin shows that more inclusive companies have a 2.3 times higher cash flow per employee over a three-year period and are 1.7 times more likely to be innovative leaders in their market.

Jobs programs for people with disabilities can provide a cost-effective solution to address the tight job market brought on by low unemployment rates and reduce recruitment and training costs associated with repeatedly filling high turnover positions. Hiring people with disabilities is a win for both employees and employers.

Other resources:

[BPD]

Food Allergy Related Insurance Claims Up in Almost Every State in the Country

0

Food Allergy Research & Education (FARE), the largest private funder of food allergy research in the world, released the results (in early 2019) of a study on private insurance claim lines and food allergies. The study showed that claim lines with diagnoses of anaphylactic food reactions rose 377 percent from 2007 to 2016 and in every state, except Massachusetts, claim lines with anaphylactic food reactions and history of food allergy diagnoses represented an increasing share of all medical claim lines from 2009 to 2016. Anaphylaxis is a serious allergic reaction that can occur quickly and is potentially life-threatening.

The 10 states with the biggest increases are: Maine (391 percent), North Carolina (332 percent), California (316 percent), Delaware (314 percent), New Hampshire (282 percent), Kentucky (280 percent), Texas (259 percent), Oklahoma (215 percent), Pennsylvania (213 percent), and Connecticut (210 percent).

“A 377 percent increase is a staggering number, and the percentages are up in nearly every state across the country,” said Lisa Gable, CEO of FARE. “The data shows food allergies are having real consequences for families and individuals as they seek medical care for their disease, including management and emergency treatment. From Maine to California, the massive increase in food allergy medical claims reinforces the need for advances in treatments and diagnostic tools to save lives and improve the quality of life for the millions of people living with food allergies.

Peanuts are a common food allergen.
credit: American Peanut Council

“Despite this ever-growing public health concern, many Americans are not aware of the complexity of the disease, or that there is no cure. That’s why FARE recently launched the Contains: Courage™campaign, a five-year effort to drive awareness and raise a historic amount of funding for research, therapies and diagnostics to improve the quality of life of children and adults who are affected,” continued Gable.

Conducted by FAIR Health, a national, independent, nonprofit organization that collects and analyzes data on healthcare costs, the study found that peanuts were the most common specifically identified food causing anaphylaxis, accounting for 26 percent of claim lines with anaphylactic food reaction. Tree nuts and seeds followed at 18 percent. Also common were egg allergies, crustacean allergies (e.g., allergies to shrimp or lobster) and milk allergy, making up, respectively, seven percent, six percent and five percent of claim lines. The most common category, however, was “other specific foods” (33 percent), which includes foods that less commonly cause allergies and cases in which the actual food allergen is not known.

“Our data from the FAIR Health repository of billions of private healthcare claims contribute to understanding the state-by-state impact of food allergies. Though the specifics of food allergy diagnoses vary from state to state, it is clear that food allergies remain an important public health concern across the nation,” said FAIR Health President Robin Gelburd.

Additional details from the study, including geographic, age and gender patterns, as well as study methodology, can be found below.

Changing Geographics

In 2009, the states with the most food allergy claim lines as a percentage of medical claim lines were New York, Georgia, Colorado, North Dakota, and Ohio. The top five states in 2016 were North Carolina, North Dakota, New Jersey, Washington, DC, and Connecticut. Only North Dakota remained in the top five in both years. The increase in claim lines from 2007 to 2016 was greater in rural (110 percent) than urban (70 percent) areas, demonstrating the reach of this disease and showing that food allergy is not just an urban problem.

Age and Gender

Food allergies are commonly thought of as a childhood condition, but FAIR Health data show they are a broader issue impacting Americans of all ages. Two-thirds (66 percent) of all claim lines with diagnoses of history of food allergy from 2007 to 2016 were attributable to patients 18 years old and younger, but about a third (34 percent) were attributable to those over 18 years old. The finding is also supported by a recent study by Ruchi Gupta, MD, MPH, from Ann & Robert H. Lurie Children’s Hospital of Chicago and Northwestern University, and published in JAMA Network Open, that found that over 10 percent of adults in the U.S. – over 26 million – are estimated to have food allergy.

Different allergies were associated with different age groups. Children 6-10 years old made up 28 percent of all claim lines with peanut allergy diagnoses, but only nine percent of those with food additive allergy diagnoses. Conversely, adults 51-60 years old accounted for only one percent of claim lines with peanut allergy diagnoses, but 17 percent of those with food additive allergy diagnoses.

Prior to age 18, claim lines with food allergy diagnoses were associated with boys more than girls. However, for individuals older than 18 years, the reverse was true: food allergy claim lines were associated with women more than men.

Data Sources & Methodology

The study relied on an analysis of FAIR Health’s proprietary in-house FAIR Health National Private Insurance Claims (FH NPIC®) database. As the nation’s largest collection of private healthcare claims data, FH NPIC® contains over 27 billion billed medical and dental procedures in claim records contributed by payors and administrators who insure or process claims for private insurance plans covering more than 150 million individuals.

Each of the individual “claim lines” — corresponding to a single medical service billed to an insurer — was reviewed to determine whether it included a diagnosis of food allergy or anaphylaxis due to an adverse reaction to food. Trends in diagnoses over the 2009 to 2016 period were analyzed, both at the national level and for each US state.

You may also be interested in the following articles:

5 Tips for Attending School with Your Service Dog

0

by Devon MacPherson

It’s that time of year again… the school year has begun. As a student or teacher, you’re prepared to do well in school, right? Also take some time to make sure your service dog is ready too.

Here are 5 tips for attending school with your service dog:

1. Be considerate of those you sit beside.

Before you sit down beside anyone in class, it’s considerate to ask the person beside you if it is OK. Of course it should be okay, but the reason to ask is simply out of consideration for those that might be scared or timid of dogs or who might have severe dog allergies. Although you are welcome in the class no matter what, showing people you are respectful of their needs too will, in most cases, garner you and your service dog respect in return.

2. Get in touch with your school’s disability services office.

Most schools, no matter what level, have a disability services office or a person dedicated to ensuring the needs of students with disabilities are met. Make an appointment with them as they will assist you in helping to navigate the school environment and can provide you with resources to make your school year as smooth as possible. In my personal experience, every year I am given letters of accommodation from my schools disability services office which I provide to my teachers on the first day of class. These letters basically state that I will have a service dog accompanying me and also make the teacher aware of the other supports I will need to assist me with my disabilities. This is a tip I feel to be essential, as making the disability services office aware of the fact that you have a service dog will provide you with allies should any problems arise.

Help your therapy dog succeed in the classroom.
credit: Anything Pawsable

3. Show up early on the first day of class.

Try to show up early to the first day of class. This will allow you time to give your teacher your letter of accommodation and will also give you free-range in terms of places to sit. In my experience, where you sit on the first day of class is where you will be sitting for the remainder of the course, so showing up early will allow you to pick a seat that you and your service dog are comfortable with. I personally like to sit at the end of the row as it gives Barkley more space to lie down and also makes it easier for me to leave should I need to take Barkley outside or if I need to take a break.

4. Be well-equipped.

Just like a long day at school can be taxing on you, it can also be demanding for your service dog. Make sure that you are well prepared for the day ahead by having a bowl of water, some treats and poo-bags with you. And make sure that you double-check everyday before you leave for school that you have your service dog vest and a leash.

5. Make sure you take breaks.

To ensure the well-being of your service dog, it is essential that you take breaks. Often, the best time to do this is in between class or when there is a gap in the action. Use this time to give your dog some fresh air and to stretch his or her legs. A good rule of thumb is to take breaks every 2-3 hours. You may also find this beneficial for yourself as it allows you to clear your mind before you get back to work.

Here’s to the best for the year ahead!

Originally published by Anything Pawsable; reprinted with permission.

What Is Behavioral Therapy and How Can It Help?

0

By Jesse Radloff, LMHC, Licensed Mental Health Counselor

If you have a mental health issue or unhealthy behavior you want to address, your doctor may recommend therapy. One of the most frequently used therapies is behavioral therapy.

Types of Behavioral Therapy

At their core, behavioral therapies are action-oriented interventions that help you change an unhelpful behavior and increase a helpful one. This happens through repetition and activities that replace the old learning of unhelpful behaviors with new learning.

Classical conditioning pairs something neutral with something that provokes a response. An example of this is with the famous research of Pavlov’s dogs, where dogs began associating a bell (something neutral) with food (something that provoked a response).

Classical conditioning can help treat phobias and anxiety through techniques such as flooding and systematic desensitization. By slowly exposing someone to something they fear, over and over and in a safe environment, the fear or anxiety is reduced as you “unlearn” the fear response. Classical conditioning can be used to treat substance abuse by prescribing medications that make you ill when you use an abused substance (usually Antabuse treatment for alcoholism), so you associate not feeling well with alcohol.

Operant conditioning uses a system of rewards and punishments to increase or decrease behaviors to teach what the desired behavior is. Operant conditioning is frequently used to treat behavioral problems in classrooms or homes. An example is when a child earns tokens to get rewards for good behaviors or loses tokens for bad behavior. Additional types of operant conditioning include behavior contracts, time-outs and learning desired behaviors by observing others demonstrating them and having positive outcomes.

There are several types of behavioral therapy.

Cognitive behavioral therapy (CBT) is the most common type of behavioral therapy, with many subtypes. In essence, with CBT, the idea is that if you have unhelpful automatic thoughts, these can negatively influence your emotions. Your emotions then drive behavior. Often those negative or automatic thoughts do not accurately present reality, so CBT interventions help you recognize or change those automatic thoughts and manage how you perceive, interpret and react to the world. CTB therapies are used widely, particularly for anxiety, depression, anger, trauma, substance abuse, phobias, panic disorders and eating disorders. CBT also may be used with varying success for ADHD and bipolar disorders.

Dialectical behavioral therapy (DBT) is a spinoff of CBT and used primarily to treat borderline personality disorder. It also has been used to treat substance abuse, eating disorders and self-harming behaviors. DBT is highly structured, with the majority of therapy taking place in the office. DBT therapy assumes that there is an inherent tension between opposites (i.e. self-acceptance versus recognizing the need to change), but that these opposites can be harmoniously integrated for a positive change.

DBT focuses on helping people develop four skills:

  • Mindfulness (being in the moment)
  • Distress tolerance (handling frustrating situations and uncomfortable emotions effectively)
  • Interpersonal effectiveness (social skills)
  • Emotional regulation (learning to cope with negative emotions and increase positive emotions by improving your relationship skills and self-management abilities)

Applied behavioral analysis (ABA) uses intensive and comprehensive observation of your behavior to determine specific interventions to help with behavior change. This extremely detailed observation helps the therapist clearly understand what conditions elicit or reinforce a negative behavior. Then, reward or punishment techniques can be systematically applied to move the behavior in the desired direction. The results of those interventions are then closely analyzed and adjusted to optimize the results. Ideally, ABA therapy is highly individualized. Although ABA is most commonly associated with autism spectrum disorders, it also has applications for adults and children with behavioral problems. ABA can even be used on a systems level to improve workplace efficiency.

Broad Applications of Behavioral Therapy

Behavioral therapy encompasses a much broader spectrum of therapies than most people realize. The underlying principles of behaviorism (which forms the foundation of behavioral therapy) inform many aspects of people’s lives, including organization workflows, classroom management and even architecture.

Who Needs Behavioral Therapy?

How do you know if you need behavioral therapy? When a behavior — such as acting out or rule-breaking — begins impairing your function in school, work or social areas, or you are having inappropriate behavior in social situations, behavioral therapy may help.

People with non-psychotic issues respond better to behavioral therapies. As with any therapeutic endeavor, being motivated greatly improves the likelihood of a positive outcome.

Even if behavioral therapy is not the best treatment for you, many other types of therapies exist that can help. Please seek help when you need it.

As increased awareness develops about the importance of mental health, the old stigma attached to obtaining care is changing. Talk with your doctor, counselor or advisor to find out the resources available to you.

Originally published by Orlando Health; reprinted with permission.

Young Entrepreneur Invents New Brace to Improve Limb Mobility and Comfort

Most college students earn their degrees and hope all their hard academic work pays off after graduation. Perhaps Spencer Janning is an overachiever. He’s making a life-changing impact while in college as an entrepreneur. With a child’s mobility needs in mind, Spencer created a new support brace in his mechanical engineering class at the University of Dayton (UD).

It all started in 2016 when Utawna Leap walked in to Janning’s classroom with her daughter, Lianna Bryant, whose cerebral palsy impacted her sleep. The spastic movements of her legs made her limbs jump and cross over each other throughout the night, movement that could cause hip problems in the future. The brace she used at the time kept her legs apart, but proved to be too restrictive for rest. She desperately needed a more versatile option that granted safe, comfortable movement for her legs while apart. The UD teaching staff challenged the mechanical engineering students to develop product ideas with better functionality.

Janning’s concept came together within a week and Lianna declared to like his plan the most of all. From there, additional designs became a collaborative effort between him, Lianna, her mother and her physical therapist. The final product was named the Freedom Brace, a plastic hip abductor that lets a child’s legs move horizontally and vertically while the limbs stay apart on a bed. When Lianna tried the first prototype, she loved it so much that she’s refused to wear her old brace ever since! Check out this video to see Lianna in action:

Lianna’s new brace was made through 3D printing with the help of UD’s School of Engineering. Janning has continued development using printers from his own company, Freedom Brace LLC. He’s also worked to obtain a patent for the brace, register it with the FDA and use skills from business mentors through Leonardo Enterprises, a business incubator of the School of Engineering. When the brace succeeds on a larger scale, Janning plans to speed up production using injection molding, a process where a machine shoots liquid plastic into a metal mold of the device. Approximately 19 million people across the globe could benefit from this design.

The experience of directly changing someone’s life has helped Janning appreciate his education in a new way. “Before this class, I never knew that this was a problem people faced. Seeing how something I can create can benefit the lives of other people… it’s really made a difference. I never would have learned that in school if it weren’t for Lianna and her mother coming in and showing the problems they faced. I’m really glad I was able to help them,” he said.

Janning hasn’t decided what he’ll do after graduation, but he’s considering the medical and aerospace fields since his educational concentration is in aerospace engineering. Either way, he hopes to inspire others with the mindset his parents instilled in him: “Anyone can do this kind of thing—make something to help other people—you just have to keep working on it and not be afraid to make a mistake.”

The Freedom Brace is currently for sale on Amazon and freedombrace.com, where customers can customize the color and provide measurements for their brace.

Stomp Out Bullying – Signs to Watch for and How Stop It Dead in Its Tracks

0

Twelve-year-old Mallory Grossman of Rockaway Township, New Jersey, was a quiet girl, but popular among her close circle of friends. She was a good student and an athlete. She was also the victim of malicious bullying by a group of girls who tormented her at school and via texting and social media. Sadly, the bully girls even chided in a text, “Why don’t you kill yourself?” Tragically, on June 14, 2017, that’s exactly what happened. Mallory ended her torment by taking her own life.

According to the National Center for Education Statistics, approximately one in five kids ages 12 to 18 has experienced being bullied in a given year. And according to the National Bullying Prevention Center, the incidents are even greater among children with disabilities. One study shows that 60 percent of students with disabilities report being bullied regularly. Such bullying ranges from name calling and spreading rumors to destruction of property, threats, and violence.

Studies have found bullying has health and psychological repercussions – and the effects can last into adulthood. The victims of childhood bullying, as well as bully-victims (those who are both bullied and bully others), according to a 2013 report in Psychological Science journal, are “at increased risk of poor health, wealth, and social-relationship outcomes in adulthood.” Pure bullies (those who bully but are not victims), weren’t found to be at increased risk.

Bullying versus conflict

For parents and educators to effectively address bullying, we must first understand what constitutes bullying. When we see it, we often don’t recognize it because from the outside it looks like conflict. In fact, it often is nothing more than conflict. In the heat of the moment; kids, like adults, can say and do mean things to each other. That in and of itself doesn’t constitute bullying. Because parents and teachers are aware of this, it’s sometimes easy to dismiss a child’s complaints about being harassed as nothing more than a spat. So here are some questions to help determine which it is.

Do both children have equal power? If so, it’s conflict. In bullying, the bully has more power, or more perceived power.

Are both children able to express their concerns or views? Or is one child passive or unable to express her side for some reason?

Does the behavior stop when the antagonizing child recognizes he’s hurting another? Or does the aggressor continue while being fully aware of the effects of his behavior?

Cyber bullying is, unfortunately, common.
credit: education news

What is bullying?

Bullying is repeated acts by an individual or a group with the intent to scare, distress, or cause harm to another. It differs from simply disliking or rejecting another, experiencing mutual conflict, or a single-episode mean-spirited act.

Bullying behaviors include any of the following:

·     Hostile or discriminatory behavior based on race, religion, gender, disability or sexual orientation

·     Cyber bullying, which is the use of social media, websites, instant messaging, or texting via smartphones or computers to harass or harm another

·     Causing physical harm by hitting, kicking, shoving or destroying property

·     Social bullying such as spreading malicious rumors, damaging someone’s reputation, encouraging others to gang up on someone, or playing mean or embarrassing jokes

·     Verbal bullying, which includes name calling, intimidating, or insulting another

Kids keep it a secret

Often, children don’t tell when they’re being bullied. As a result, the bullying persists for months or longer and becomes increasingly more damaging. There are multiple reasons kids might not tell an adult.

·     Perhaps a child has been threatened with repercussions if they tell, or the child fears the threat will become greater if they tell.

·     They don’t want to be a tattle tale, something kids have been taught not to do and don’t always understand the difference in tattling for unimportant matters versus more serious issues.

·     Children often feel ashamed or embarrassed either about being a victim of bullying or about the reason they’re being bullied. This is often the case when the bully has used name-calling or character attacks.

·     They feel they either won’t be believed or that adults won’t do anything about it.

Children can keep bullying a secret.
credit: CDC

Signs of bullying

There are several signs to be aware of that might indicate your child is being bullied.

·     Frequently tries to get out of going to school or declining grades

·     Complaints of stomachaches and headaches

·     Feeling sad or upset

·     Social withdrawal

·     Difficulty sleeping

·     Asking whether something derogatory someone said about your child is true or other signs of decreased self-esteem

·     Unexplained bruises or abrasions

·     Clothing, electronics or other belongings missing or damaged

·     Seeming anxious or sad after being on social media

·     Changes in eating habits whether lack of appetite, binge eating, or not eating lunch at school

·     Self-harming or talk of suicide

Signs that might indicate your child is a bully include:

·     Hanging out with other kids who are aggressive or bully others

·     Not taking responsibility for their own actions

·     Excludes certain kids from activities

·     Frequently getting into trouble at school

·     Expresses intolerance toward kids who are different

·     Makes fun of other kids

·     Brings home items such as electronics, clothes, or money

·     Hurts animals

·     Has experienced or witnessed domestic violence

·     Is overly concerned about being popular

How to prevent or put a stop to bullying

First and foremost, talk to your kids about bullying so they understand what it is and that it’s unacceptable. Make sure your kids understand it’s imperative they tell an adult if they or someone they know is being bullied. Rather than waiting for it to occur multiple times, your child should tell a teacher or parent immediately so the bully doesn’t have the opportunity to gain power.

Also look into your child’s school policies on bullying, and find out what kind of preventive measures the school takes and how it handles bullying when it occurs. If the school doesn’t have a bullying prevention program, ask it to develop and implement one.

Monitor your kids activity online including their social media. There are many reasons to do this for your child’s safety. To ensure your child is neither being bullied or acting as a bully is one more big reason.

Children with disabilities are more likely to be victims of bullying.

Model the kind of behavior you expect from your kids. When kids overhear their parents talking negatively about people because of their weight or joking about someone who’s different or has a disability, kids tend to model this behavior and are more likely to take it to an extreme.

Take time every day to talk with your child and ask how their day was. Kids who bully are often not getting the attention they need at home. Children who are being bullied may feel they deserve the treatment or that their parents wouldn’t care or wouldn’t act on it.

Teach your kids to stand up for themselves. If your child remains passive, a bully will up the ante and gradually become more abusive. But if your child assertively and unemotionally stands up to the bully, the bully will realize he won’t get away with the behavior. On the other hand, if a bully knows he’s getting under your child’s skin, the bully will persist. Your child should maintain eye contact, stay calm, maintain appropriate distance, and use the bully’s name while addressing the bully.

Here are some examples of what your child can say:

·     You’re being a bully, Kyle. Knock it off.

·     Okay. Whatever, Sara.

·     I’m sure you think you’re really funny, Joey, but really, you’re not.

·     Amanda, do you really think I care?

·     Nice try, Christa.

Notice all of these are simple, direct unemotional responses that let the bully know he isn’t getting under your child’s skin. Your child should practice one or two of these or come up with his or her own ideas that feel comfortable. The idea is to not say anything that gives the bully power such as a compliment or that indicates it bothers your child.

If your child is being bullied, also talk to your child’s teachers, school administrators, bus driver, and others who can help put a stop to the abusive behavior. Make certain your school has a plan in place to protect your child, and if it isn’t doing enough, contact the district superintendent. If your child has been threatened, contact the police immediately. Finally, if the bullying doesn’t cease, proceed by filing charges through your school board and local police department.

Resources for Bullying Impacting Youth with Disabilities

According to StopBullying.gov, children with disabilities—such as physical, developmental, intellectual, emotional, and sensory disabilities—are at an increased risk of being bullied. Read their article “Bullying and Youth with Disabilities and Special Health Needs” for detailed information.

Also check out #CutTheBull, a campaign founded by actor RJ Mitte, who has cerebral palsy. Read the interview he gave to AmeriDisability, “‘Breaking Bad’ Star, RJ Mitte, is Breaking Disability Barriers.”

Information can also be found on the National Bullying Prevention Center website.

Feature photo credit: Education International

Here’s Why Exercise is Important for People with Disabilities

0

Exercise is important for all. No matter how old or out of shape you think you are, it is never too late to add more physical activity to your life. Regular and consistent exercise can:

  • Help control your weight. Along with healthy diet, exercise plays an important role in preventing obesity.
  • Reduce risk of heart disease. Exercise strengthens the heart, improves circulation and can lower blood pressure.
  • Improve mental health and mood. During exercise, the body releases chemicals that can help you handle stress and reduce the risk of depression.
  • Strengthen bones and muscles. Weight-bearing activities can help increase and maintain muscle mass while slowing the loss of bone density that naturally comes with age.
  • Reduce risk of some cancers, including colon, breast, uterine and lung cancer.

Experts say these benefits apply regardless of ability or skill level and staying active can be even more critical for people with disabilities. Adaptive sports – activities modified for people with disabilities – provide improved physical and mental well-being, as well as increased independence, purpose and social interaction.

According to the Department of Veterans Affairs, “Recent studies indicate that disabled veterans who participate in adaptive sports report benefits such as: Less stress, reduced dependency on pain and depression medication, fewer secondary medical conditions, higher achievement in education and employment, and more independence.”

Paralyzed Veterans of America, a service organization that advocates for veterans who have experienced a spinal cord injury or disease such as MS or ALS, says adaptive sports are often game changers for their members, helping them through rehabilitation and improving their quality of life.

PVA and the Department of Veterans Affairs co-present the largest annual multi-sport wheelchair event in the world, the National Veterans Wheelchair Games. Held annually for four decades, the Wheelchair Games bring together hundreds of athletes to compete in 19 sporting events.

Adaptive sports are beneficial for physical and mental well-being.

All participating athletes are U.S. military veterans who use wheelchairs due to spinal cord injuries, MS, ALS, certain neurological conditions, amputations or other mobility impairments. Kenneth Lee, M.D., director of the Milwaukee VA Spinal Cord Injury Center and a combat-injured Army veteran, is the medical director of the Wheelchair Games. Lee says adaptive bike riding was key to his own difficult recovery after being injured in Iraq in 2004. It took him years to overcome the effects of an open head wound and shrapnel injuries to his legs.

Lee explains that sports tap into the natural competitive spirit and speed healing, physically and mentally. “Participating in adaptive sports gives patients a feeling of inclusion. They compete in new ways and you can see their confidence come to life,” he says. “When athletes go to the Wheelchair Games, they go home different, feeling like they can work through other barriers in their everyday lives,” he adds.

Adaptive sports do not alter the sports that able-bodied athletes play but simply allow modifications to fit the needs of the athletes with disabilities. This ensures adapted athletes are playing and competing on par with able-bodied athletes.

Army veteran Jennifer Steele says, “Sports really made me feel alive again!” Steele, 38, served as a sergeant on a patriot missile crew for five months at the beginning of the Iraq War. During her service, she started having difficulty running and was eventually diagnosed with multiple sclerosis and given a medical discharge. It took years for her to work through the anger and depression that followed.

She still chokes up when she recalls the first time she played wheelchair softball. “It was like getting a part of myself back that I thought I had lost forever,” Steele says. This year, Steele competed in the National Veterans Wheelchair Games for the third time.

Paralyzed Veterans of America has year-round adaptive sporting events across the country for individuals with disabilities, including people with amputation, traumatic brain injury, post-traumatic stress disorder, and neurological disorders such as MS or ALS. Learn more at pva.org/sports.

The power of physical exercise can help us all overcome hardships and challenges to improve our lives. A few small changes to your daily habits to make exercise a part of your regular routine can bring all of these benefits into your life as well.

You may also enjoy reading “Exercise and Disability: Resources for Accessible Gym Equipment” and “SilverSneakers Offers Free Fitness Programs for Seniors.”

[BPT]

How to Pay for Senior Living

0

Shopping. Cooking. Cleaning. The burdens of living alone were taking a toll on Joyce who, at 89, was the oldest resident in her apartment building. Though she’d spent a lifetime saving money, Joyce wasn’t sure what she could afford. Her daughter Sandy knew it was time to talk about senior living.

“It took some convincing to help her understand this was what she had saved for,” said Sandy. “With the sale of her house and retirement savings, she could live comfortably in independent senior living. Plus, she would be around people her age, have plenty of activities and three nice meals a day.”

Joyce’s senior living journey isn’t unique. Most people are either not prepared for the potential costs of senior living, or think they’re not prepared. A survey of 2,000 Americans 18 to over 51 for Brookdale Senior Living revealed 65% aren’t saving money to pay for senior living, and 21% said they won’t be able to pay for it or don’t know how they’ll pay for it. Only half said they have a plan in place.

Mary Sue Patchett, Brookdale’s executive vice president of community and field operations, recommends avoiding sticker shock by assessing current expenses. You may find that freeing yourself of expenses tied to living in a house – mortgage, food, transportation, utilities, home maintenance and more – and incorporating these into one payment for a senior living community is more cost-effective than expected.

Patchett recommends seeking a flexible pricing structure at a senior living community, as one size does not fit all. Making a choice that fits your situation means you won’t be paying for unnecessary services. Sandy found two locations that fit her mom’s needs and compared costs of living alone to the cost of senior living. They landed on a Brookdale community near Sandy’s home.

“Adult children must understand their parent’s misgivings and help them decide what’s best,” said Sandy. “Considering my mom’s age, senior living was a smart move. The cost is comparable to living alone and provides peace of mind for everyone. We know she is eating, socializing and safe.”

Senior living can be more affordable than you think.

How do people pay for senior living, and how can you keep costs affordable?

Current assets and income are what most people use to pay for senior living, just as they would pay for expenses staying in their current home: savings, pension or retirement plan funds, social security and annuities. Like Joyce, one big source of funds comes from the sale of their current home.

Long-term care insurance is a possible source for those with chronic disability or illness, if they have a policy. Rules regarding benefits and eligibility vary per state and policy. Veterans’ benefits, through the Veterans Aid and Attendance Pension, can help veterans and spouses offset costs of long-term care and/or assisted living at some communities.

Selling or cashing out a life insurance policy may be one route for those who no longer need life insurance. There are many options, so you should shop around. Consult your tax, financial and legal advisers to determine the implications of this option.

Medicaid options may provide some assistance for assisted living, depending on where you live and if you qualify. Do not confuse Medicaid with Medicare, which does not cover assisted living costs.

Family support is another source to consider for help with the cost of assisted living. In many families, children or other family members contribute to the cost of senior living. It’s best to discuss possible support with family before the need arises.

By selecting a senior living community that provides just the amount of care you need, you can keep costs low. Many communities offer options from apartments with kitchens and guest rooms to just a bedroom and bath. Opting for a roommate can save a lot. Senior living communities offering independent and assisted living or other care services on one campus helps couples stay together, even when they need different levels of care, and make it easier to move from one area to another if needs change.

Now is a good time to assess your situation and talk with your spouse or family about your needs and desires down the road. Planning ahead lets you tour communities and decide what services and amenities you want and need.

Within forty-eight hours of Joyce moving into her new senior living home, she was thrilled with her decision. And Sandy immediately noticed a change in her mom. She met a group of ladies she refers to as “the girls” and quickly found her purpose as the community librarian. She’s happier than she was in her apartment, and according to Sandy, and that’s priceless.

You may also be interested in reading “Senior Living: The Difference Between Nursing Homes and Assisted Living Facilities.”

[BPT]