The following is written by Elluz Peraza, the community specialist and radio show host and producer for CV Global. She provides care for her 100-year-old mother, who lives with her. Peraza is a former actress and was Miss Venezuela1976.
According to AARP, more than 40 million people in the United States are providing care for an older or aging loved one – and 7 million of us are Latinos. That doesn’t come as any surprise to members of our community. It’s simply what we do for family. For many, caregiving starts with simple errands and to-do items, like scheduling a doctor’s appointment or helping out with grocery shopping and, then, expands to more responsibilities over time.
It’s a beautiful thing to do what we can for the people we love, but there are also moments when we can feel worn out or stretched too thin.
When you look at the numbers, it’s clear how hard we’re working. Nearly 7-in-10 Latino caregivers work outside the home. 1-in-3 provide more than 40 hours of care to loved ones each week. You do the math. It doesn’t add up to much time for the “life” side of a caregiver’s work-life balance.
That’s why AARP and the Ad Council started a Caregiver Assistance campaign to offer information and free online resources for caregivers. On AARP’s Family Caregiving site, there are wellness tips, planning resources, financial guidance and Care Guides tailored to specific topics and challenges, such as caring for a loved one with dementia. It also includes self-care tips and advice for caregivers.
Throughout my own caregiving experience, here are some helpful tips I’ve learned along the way:
1. Care for yourself.
You cannot care for your loved ones unless you care for yourself. It’s important, not only to your mental well-being, but your physical well-being, too. Caregivers have a higher-than-normal rate of getting sick, and are oftentimes so depleted that they can’t care for either their loved one or themselves. Look after your own health by eating well-balanced meals, exercising, getting enough sleep and taking time off.
2. Stay organized with handy tools.
You’re probably already an expert at organizing documents and medical cards, insurance papers and everything else. Make your life a little easier by leaning on free resources that can help you keep everything together! There are a ton available for your needs on AARP’s Family Caregiving site.
3. Remember to laugh.
Caring for someone with significant impairments or illness can be difficult emotionally, but laughter and lightness can exist there, too. Joke with your loved one – he/she is still the same person inside – and try to be amused by the little things.
4. Make future plans.
When a loved one you’ve been caring for passes away, it can come as a shock. You might feel like your purpose is gone and this can exacerbate the grieving process. Planning for the future will help relieve that shock for you, even if the plans aren’t concrete. Dream about the exciting roads ahead, and keep in mind all the incredible ways you’ve learned and grown through caregiving.
5. Accept help.
Whether it’s from other family members or outside sources, help is critical to caregivers. Start with the free resources that AARP can offer you at aarp.org/cuidar (Spanish) and aarp.org/caregiving (English) or feel free to call the hotline: 1-888-971-2013 (Spanish) or 1-877-333-5885 (English).
I was about 31 when I was first diagnosed with major depression. I was married, had two beautiful kids ages 7 and 3, and owned a thriving business. Despite having plenty to live for, my usual happy mood had plummeted into despair. I’d lie awake at night ruminating about every minor thing I had ever said or done wrong – or imperfectly. During the day, I had no motivation to do anything. The most simple everyday tasks suddenly required extraordinary effort. My life felt utterly worthless, despite all evidence to the contrary, and I was engulfed in sorrow and hopelessness.
As days turned into weeks, I continued to spiral on a downward path. I became increasingly focused on death. I wasn’t suicidal, per se – though thoughts of the least painful methods of ending my suffering certainly swirled around in my mind. But I wanted nothing more than to fall asleep and never wake again.
Finally, unable to endure the emptiness any longer and terrified by my thoughts, I sought help. I was immediately started on an antidepressant and, within a few short weeks, the darkness lifted. I was my usual happy, energetic self once again.
But this was only the beginning of what would become a lifelong battle with depression. Over the past couple of decades, I’ve gone through far too many bouts of depression to count. Some have been mild and short-lived having little impact on my functioning despite the bleak and gloomy outlook looming over me. Other episodes have been major and affected all aspects of my life.
Most recently, I experienced my first dysthymic episode – a depression that lasted two years, cycling between mild and severe. I had become resistant to my long-trusted friend, Wellbutrin, and none of the many other medications I tried gave me any relief. It was when I finally found apsychopharmacologist who knew just the right cocktail (combination of medications) for me that my depression finally went back into remission.
People with depression often suffer from various forms. In addition to being diagnosed with major depressive disorder and dysthymia, I’ve also been diagnosed with seasonal affective disorder (SAD) and bipolar II (hypomania, rather than mania) with the depression component being the more severe problem for me.
photo credit: CDC
Women are particularly at risk for depression
Depression does affect both women and men. But, women are twice as likely to experience major depression according to Harvard Medical School. Women also experience higher rates of dysthymia, seasonal affective disorder (SAD), and the depressive side of bipolar disorder.
Depression, unlike the normal sadness everyone experiences from time to time, is a soul-sucking darkness that for many is debilitating. It causes feelings of hopelessness, helplessness, and worthlessness, and can affect every aspect of life from work and school to parenting, friendships, and the very basics of living.
For most women who’ve been diagnosed with depression in the past, when it begins to set in, the feeling is unmistakable. But for those who suffer from milder forms of depression and sometimes even those suffering from a first major depressive episode, they don’t immediately connect all the dots. So, some people can experience depression not realizing they’re suffering from a treatable illness.
Signs of depression
The symptoms of depression can range from mild to severe. Not everyone experiences every symptom. But several symptoms must be present for at least two weeks to receive a diagnosis of depression. The exact criteria for specific types of depression vary slightly. But the following are all indicators.
· Feeling depressed (sad, empty, or hopeless) nearly every day for at least a couple weeks
· Unusual irritability or difficulty controlling anger
· Ongoing trouble sleeping or sleeping more than usual
· An increase or decrease in appetite or significant unexplained weight loss or gain
· Loss of interest or pleasure in all or most activities
· Difficulty concentrating or making decisions
· Feelings of fatigue or loss of energy
· Excessive or inappropriate feelings of guilt or worthlessness
· Visible psychomotor slowing down or agitation
· Recurrent thoughts of death or suicide, with or without a plan, or attempted suicide
photo credit: CDC
Types of depression
There are quite a few classifications, or types, of depression. The following are a few of the more common.
In a given year, major depressive disorder affects nearly 7% of U.S. population, according to the National Institutes of Mental Health (NIMH). During a major depression, almost all aspects of a person’s life are affected. It can be difficult for someone with major depression to find the motivation to do anything including such necessities as taking a shower. As a result of the impairment, both work and personal life suffer. In addition to the symptoms in the section above, 20% of people with major depression will also experience psychosis. This means they’ll experience hallucinations and delusions.
Dysthymia is diagnosed when a person has experienced depression for most of each day and on most days for at least two years. For many, it’s a lower level but enduring depression. But people with major depression who are treatment resistant can meet the diagnosis of dysthymia as well. So those with dysthymia can range from mild to severe impairment. Women, according to HealthFundingResearch.org, are three times more likely than men to suffer from dysthymia.
Those with seasonal affective disorder (SAD) become depressed only or primarily during a particular season. For most with SAD, it’s the fall and winter months with their shorter days and reduced sunshine. But some people experience SAD during the summer months instead. The onset of SAD is typically around the age of 20 and affects 10 million Americans each year.
Bipolar disorder affects 2.6% of American adults according to the NIMH. This treatable, but lifelong disease typically develops in women in their mid to upper 20s. For men, onset is usually in the teens to the early 20s. Bipolar is signified by its bouts of both mania (or hypomania) and its opposite extreme, depression. Though an individual with bipolar will experience both sides of the spectrum, in women, depression is often the most problematic while for men it’s the mania. Those with bipolar often experience psychosis during bouts of mania and sometimes with depression.
Postpartum depression is one of the forms of depression exclusive to women. According to the NIMH, 10-15% of women will develop it. Postpartum depression shouldn’t be confused with the “baby blues,” which is milder, short-lived, and related to the worry and fatigue of parenting a new baby. Instead, postpartum depression results from hormonal changes. During pregnancy, a woman’s hormone levels increase. But then immediately following childbirth, the hormone levels rapidly drop to normal levels. This ultimately results in depression in some women. Like other forms of depression, it can be mildly to severely debilitating.
photo credit: CDC
Causes
The exact cause of depression is unknown. But several factors likely contribute to the condition. According to the Mayo Clinic, those with depression have physical changes in their brains. These changes in the brain may eventually help researchers determine the exact cause of depression.
Depression is also known to be genetic because of the higher incidence of depression in those with blood relatives who suffer from the condition.
Brain chemicals called neurotransmitters play a role in depression. The Mayo Clinic explains that the way the neurotransmitters function and how they affect the neurocircuits involved in mood stability plays a significant role both in depression and its treatment.
Hormonal changes can also play a role in depression, particularly for women. During pregnancy and for several months following pregnancy women are especially vulnerable. Menstruation cycles and menopause can also trigger depression.
Treatment
In some cases, depression results from an underlying medical condition such as thyroid problems or low vitamin B levels. For this reason, it’s essential to visit your primary care physician for blood work to rule out other causes. If the cause of depression is the result of an underlying medical condition, treatment for that condition is likely all that’s needed to cure the depression.
If medical causes have been ruled out, then it’s best to consult with a psychiatrist. Although primary care physicians can treat depression, psychiatrists have specialized training in diagnosing the various forms of depression and experience in treating them. Psychiatrists often know which medications will work best for a particular patient based on a variety of factors. In fact, depending on the type of depression and the specific set of symptoms, some people with depression require a combination of anti-depressants, anti-anxiety medications, and mood stabilizers. Psychiatrists know how to tailor treatment to each individual for best results.
For those who are treatment resistant, look for a psychiatrist with the special ‘psychopharmacologist’ designation. Psychopharmacologists have gone through additional specialized training in how drugs affect the mind and behavior.
In addition to medication, many psychiatrists recommend cognitive therapy with a psychologist or behavioral therapist in conjunction.This can be helpful both in coping with the effects of depression as well as dealing with any underlying trauma or events fueling the depression.
Finally, for those with SAD, sitting under a light therapy box is often recommended and has been found to be helpful. You can order one online and, depending on your doctor’s recommendations, you can sit under it for 20-40 minutes each day.
It’s common knowledge that therapies such as chemotherapy and radiation have saved the lives of millions over the years. In fact, it’s likely you even know someone who’s benefited from these treatments. If you’ve supported a friend or loved one through a cancer journey, you know the side effects most often associated with cancer. These are the side effects you see during treatment, read about, and hear about — things like burns, hair loss, nausea, and weight loss.
But what you may not know — and what isn’t talked about much — are the residual side effects a cancer survivor may face after treatment. Unfortunately, the same therapies that can save your life may also put you at risk for other serious health problems, like heart disease. It’s important to know these risks so you can help protect yourself or a loved one.
Minimizing Treatment Effects
Since your care team will be at your side for every step of your cancer journey — from diagnosis through treatment and beyond — make them your most trusted resource. With their help, there are many steps you can take to help minimize the effects of your chemotherapy and radiation treatments. This may include things like delivering chemotherapy slowly instead of in one dose or using beta-blockers (a type of blood pressure medication) to reduce the toxic effects.
What You Can Do to Protect Your Heart
To minimize the effects of chemo and radiation on your heart during and after breast cancer treatment, maintain a heart-healthy lifestyle as much as possible. This includes:
Eating a healthy diet with plenty of fruits and vegetables
Managing your blood pressure and cholesterol levels
Because women have some different symptoms of heart attack than men, it’s important to know them. Symptoms can include chest pain, shortness of breath or tightness in the chest, and also:
Cold sweat
Nausea or indigestion
Pressure between the shoulder blades
Rapid heartbeat
Weakness or extreme fatigue
Ask if your care team has a doctor who specializes in early detection and management of heart disease in cancer patients throughout all stages of cancer therapy and survivorship. And consider scheduling an appointment with a cardio-oncologist.
If you’re facing a breast cancer diagnosis, it’s likely your treatment will include chemotherapy, radiation therapy, or both. Cardio-oncologists are ready to provide specialized evaluation and treatment throughout your breast cancer diagnosis and treatment to help protect your whole health.
Originally published by AdventHealth; reprinted with permission.
Many people expect their eyesight to decline with age — perhaps requiring a stronger eyeglass prescription or “readers.” Some vision changes are linked to age, but there are steps to consider to help our eyes stay as healthy as possible.
Dr. Linda Chous, OD, chief eye care officer, UnitedHealthcare, answered the following questions:
1. Are my eyes going to keep getting worse as I age?
While your eyesight is not guaranteed to deteriorate with age, it is normal to notice changes to your vision as the years pass, including:
Minor adjustments to your eyeglasses prescription or needing to use “readers” for the first time;
Although these changes are often normal, they can also be signs of conditions like cataracts or even diabetes. It is important to maintain regular appointments with your eye doctor to help identify pressing concerns. If you experience sudden vision loss or any rapid change to your eyesight, contact your eye care provider immediately.
2. What are the tiny spots or specks that float across my vision?
These tiny threads of protein float across the gel-like substance between your eye’s lens and retina.
Usually there is no need to worry if you notice these spots occasionally and they disappear after a few minutes, but only a dilated eye examination can determine the cause of the “floaters.”
If your vision is overcome by these specks or you notice vision loss, contact your eye doctor, as it could be a symptom of a sight-threatening condition.
photo credit: American Optometric Association
3. What are some common vision-related diseases that come with age?
Age-related macular degeneration (AMD)
AMD is the leading cause of vision loss in people over 65. AMD causes damage to the macula, the small spot on the retina that enables people to see clearly and view things straight ahead of them.
Common symptoms are distortion and blurring of the center of your field of vision. If caught early, there are potential benefits from certain prescription medications and nutritional supplements. Late-stage AMD is much more difficult to treat.
Certain factors like heredity, ultraviolet light exposure and smoking may increase the risk of AMD. Consult with your eye doctor to determine if a preventive treatment plan is right for you.
Cataracts
A cataract is the clouding of the lens in your eye, blocking the flow of light to the back of your eye (retina), which ultimately causes loss of sight. Most form slowly and do not cause pain. Significant clouding can form in some people and, ultimately, negatively impact vision.
Cataracts are treatable via surgery that replaces the clouded lens with a clear plastic lens. Cataract surgery is generally safe and one of the most common surgeries in the U.S. Once a cataract is removed, it cannot grow back.
Glaucoma
Glaucoma is caused by increased pressure inside the eye, which can cause permanent vision loss and blindness if untreated. The most common form usually has no noticeable symptoms in the early stages — the only way to detect it is routine testing.
Treatment may include prescription eye drops, oral medications, laser treatment surgery or a combination of any of these. It is important to find glaucoma early because once vision is lost, it cannot be regained.
photo credit: CDC
4. What are the best ways to keep my eyes healthy as I age?
Some of the best ways to protect your eyes include:
Stop smoking. Smokers are up to four times more likely to develop AMD and may contribute to development of cataracts.
Maintain a healthy weight. Conditions associated with being overweight, like diabetes and heart disease, increase your risk of vision loss from cataracts, glaucoma and retinopathy.
Wear sunglasses. Help protect your eyes from harmful ultraviolet rays.
Be physically active. People who are physically active experienced less vision loss over 20 years compared to those who are less active.
Eat a healthy diet. Colorful fruits and vegetables contain nutrients that can keep your eyes healthy and reduce AMD risk.
5. Do sunglasses really protect my eyes?
Sunglasses act as a buffer between your eyes and the sun’s ultraviolet (UV) rays. Exposure to these rays can put you at greater risk of cataracts and AMD. Look for a pair that blocks 99% to 100% of UV rays.
Note that polarization is different from UV protection; however, most polarized sunglasses also provide UV protection. Check the product tag or ask for assistance in choosing the right pair.
6. How often should I see my eye care doctor?
Eye exams are crucial to maintaining eye health as you age. Many eye diseases, like glaucoma, have no symptoms in early stages. And many systemic conditions, such as diabetes and high blood pressure, can be first found during a routine eye exam. Aim to see your eye doctor annually even if your vision hasn’t changed, so your doctor has a record of your eye health. See your doctor immediately for sudden changes.
[BPT]
Feature image credit: American Optometric Association
With ooey-gooey candy and awesome costumes, it’s no wonder Halloween is among the most beloved holidays, especially among little ones. Treats aside though, All Hallow’s Eve can be trickier for children with special needs. Here are ways to celebrate an inclusive Halloween inclusive:
Inclusive Halloween… Food for Thought
Food allergies can be seriously frightening and potentially life-threatening, especially on Halloween because of an increased risk of allergen exposures and reactions. 1-in-13 children in the U.S. – that’s roughly two kiddos in every classroom – has a food allergy (including my son). According to Food Allergy Research and Education (FARE), many popular Halloween candies contain nuts, milk, egg, soy or wheat, which are some of the most common allergens in both children and adults. Additionally, some miniature or fun-size versions of candy contain different ingredients than their full-size counterparts. Furthermore, some miniature candies may not have ingredient labels, so it is hard to determine whether these goodies are, well, good or bad for allergy sufferers.
To ensure that trick-or-treaters with food allergies can fully participate in an inclusive Halloween experience, join in the Teal Pumpkin Project. This food allergy awareness campaign, led by FARE and partnering organizations, promotes safety and inclusion for kids with food allergies, as well as others for whom candy is not an option. This may include those with food intolerances, eosinophilic esophagitis (EoE), celiac disease, food protein-induced enterocolitis syndrome (FPIES), feeding tubes, diabetes, anyone with a special diet or even trick-or-treaters just too young to consume hard-to-chew snacks.
(Teal Pumpkin Project / FARE)
[FYI, the Epilepsy Foundation also promotes the Purple Pumpkin Project. To learn about this awareness and fundraising effort, visit the organization’s website.]
How to participate in the Teal Pumpkin Project for an inclusive Halloween:
Purchase non-food treats (in addition to or instead of candy).
Paint or buy a teal pumpkin at a craft store or pharmacy; and/or simply print a free sign (in English, Spanish or French). Place your teal pumpkin and/or sign in front of your home.
Then, offer trick-or-treaters a choice of non-food items!
“This campaign provides a great opportunity for communities to show their support of kids with food allergies who typically cannot enjoy trick-or-treating in the same way that their friends do,” said Lois A. Witkop, Chief Advancement Officer at FARE. “As a result of the Teal Pumpkin Project, more Americans are recognizing that food allergies are very serious and have a major impact on a child’s quality of life.”
Non-food treats can be just as affordable and enjoyable as candy. Available at dollar stores, party supply retailers and online suppliers (like Amazon and Oriental Trading), some options include:
To help your child with food allergies have an inclusive Halloween night, consider dropping off safe treats to your neighbors before the holiday, if feasible. That way they are ready to outfit your child with non-allergen treats! FARE cautions that some non-food items can still contain food allergens, such as some brands of moldable clay which contain wheat. Additionally, try to choose latex-free items, as there are children who have latex allergies.
To find help families locate non-food options, add your home to the Teal Pumpkin Project participation map. You can also help spread the word on social media using the hashtag #TealPumpkinProject (and tag AmeriDisability too).
Switch Witch Helps Create an Inclusive Halloween
Krista Edgren, a Florida mom, said she learned of a Halloween hack through an allergy support group on Facebook. Her son, Jase, is allergic to eggs and peanuts. “Last year we implemented the Switch Witch,” she told AmeriDisability, adding, “Basically a witch comes to take the majority of the candy and switches it out with a toy.”
The concept of a whimsical character is already embraced for other holidays — like Elf on The Shelf for Christmas and Peep on the Perch for Easter — so the Switch Witch could be a fun and purposeful concept too!
Claiming to be the original, The Switch Witch book and doll was created by a mom who wanted a solution for her diabetic daughter. It centers on a Halloween tradition of children getting rid of sugary treats in exchange for something healthier. This approach could be a parenting hack to address many concerns — food allergies, limiting junk food, promotion of sharing/exchanging, etc. Other storybooks with similar storylines are also available on Amazon.
Inclusive Halloween Language?
“Trick-or-Treat!” Everyone knows that’s what costumed children are supposed to say at each doorstep. Some people may assume that children who don’t shout the famed phrase are simply rude… when, in fact, they are nonverbal or have a disability. Several online shops sell personalized bags (and t-shirts) etched with communication such as, “Hello. I have special needs. I cannot say trick-or-treat but I am trying!” Find options on Amazon and Etsy. Of course, you can always make your own too.
Also, check out this informative video from ‘ASL Meredith’ featuring common Halloween words translated into American Sign Language.
(Etsy)
Not So Sensational for the Senses
An overload of sugar is understood but, for some families, a sensory overload is top of mind. In the weeks before Halloween, you can help your child prepare for the scare with Halloween-themed books and movies. Talk to your child about what may occur at Halloween happenings and while trick-or-treating.
If your child has autism spectrum disorder or a sensory condition, you can write your own social story with directives or download a free trick-or-treat sequence card from TeachersPayTeachers.com. You can even give specific instructions to help curb meltdowns, such as “We’re going to trick-or-treat at ten houses and return home before dark” or “You can eat four pieces of candy once I check the wrappers.” Consider doing a practice run by visiting supportive neighbors.
Halloween festivities and decorations often include various sounds and noises which can be tricky for children who are sensory-sensitive. Some parents have opted to use earplugs and, to lessen fear of the dark, carry a flashlight. Try to schedule breaks, especially after a block of stimulating houses. Take a few minutes to settle down and hydrate.
A bit tamer than rowdy house-to-house tactics, trunk-or-treat events have become a popular alternative in recent years. Often held at churches, community sites and schools, trunk-or-treats showcase Halloween-decorated cars within a parking lot. Think of it as an inclusive Halloween tailgate! Just like going door-to-door, children can go trunk-to-trunk to play games and gather goodies. The paved ground also sets the stage for improved accessibility for wheelchair users and others.
(Target)
Inclusive Halloween Includes Wicked Wardrobe
Costumes can be itchy and bothersome. Perhaps let your kiddo wear his/her costume around the house for several hours as a test run to ensure that tags are removed, fabrics sit comfortably and nothing is too sensitive.
Also, ensure that masks/hats do not impede sight, pant lengths don’t cause tripping, make-up is allergen-free if needed as color additives are permitted in cosmetics (find more info on FDA.gov), and be cautious of decorative contact lens.
If you are distributing candy, consider setting up your treat bowl closer to the sidewalk for better accessibility, especially for wheelchair users and children with limited mobility.
Be cautious of masks that are too scary. And be sure masks don’t block your eyes and mouth so you can properly communicate with children who have speech and hearing disabilities.
Be patient and understanding if a child with gross motor skills needs help grabbing treats out of the bowl.
Some disabilities are ‘invisible’ so refrain from comments like “Aren’t you too old to be trick-or-treating?” or “Why aren’t you wearing a costume?”
Don’t forget to have fun beyond the one night of trick-or-treating. Check out these sensory-friendly activities from WonderBaby.org.
Use extreme caution when carving pumpkins. Sadly, finger/hand injuries are far too common during the Halloween season. As an alternative, use paint, stickers or other non-carving crafting supplies. And, to omit fire hazards, use a non-flammable light source rather than candles to illuminate jack-o-lanterns.
Ask your little monsters not to snack on candy while trick-or-treating, so you can inspect goodies for safety at home. It’s typically best to stick with commercial-wrapped goodies to ensure that items haven’t been tampered with.
Consider carrying glow sticks or reflective bracelets, especially if trick-or-treating in a high-traffic neighborhood.
More than 40 U.S. female veterans with a range of disabilities gathered last week for Paralyzed Veterans of America’s WE Served Retreat in Crested Butte, Colorado. The all-expenses-paid retreat featured workshops focused on holistic well-being and community-building in an inclusive, supportive environment. More than half of the attendees were Paralyzed Veterans of America members.
One of the female veterans in attendance was Tammy Jones, national vice president of Paralyzed Veterans of America. Jones was one year into her service with the U.S. Air Force when a car accident left her with a broken neck. At only 19 years old, she was faced with the knowledge that she would never walk again.
Thirty-three years later, Jones has a unique perspective on what it’s like to navigate the world as a disabled female veteran — and how Paralyzed Veterans of America has supported her along the way. This weekend, she helped lead WE Served, Paralyzed Veterans of America’s first-ever event solely for women veterans with disabilities.
“We want to be a voice for America’s women veterans, who deserve the very best in health care, benefits, employment, accessibility and more,” said Jones. “When disabled women veterans don’t feel comfortable or welcomed within the VA — for example, because the women’s health clinics aren’t wheelchair-accessible or because they have experienced sexual trauma there — that poses a serious barrier to their well-being.”
Paralyzed Veterans of America National Vice President Tammy Jones advocates on Capitol Hill to highlight the unique health care needs of women veterans with spinal cord injuries and diseases.
WE Served is part of Paralyzed Veterans of America’s wider initiative to address the specific needs of women veterans with disabilities. Jones serves on its Anita Bloom Women Veterans Health Committee, named for a paralyzed woman veteran, and has been advocating on Capitol Hill to highlight the unique health care needs of women veterans with spinal cord injuries and diseases. Paralyzed Veterans of America’s employment program, PAVE, also specializes in helping minority female veterans and other constituencies who have historically faced higher rates of unemployment and underemployment.
“Women tend to fight their personal battles alone. When we take care of ourselves, we’re better able to speak up and give back,” Jones added. “WE Served is a step toward empowering women veterans to ask for the benefits and care we deserve.”
Currently, there are 2 million women veterans living in the U.S., and women are the fastest growing demographic in both the military and veteran population. Female veterans using the VA often have complex health care needs such as post-traumatic stress disorder due to war-related trauma and sexual trauma, mental health care and substance use disorders — services that, on average, they use at higher rates and more often than male veterans.
WE Served is funded in part by the Craig H. Neilsen Foundation and sponsored by First Nation Group and the Adaptive Sports Center of Crested Butte. Learn more about WE Served at pva.org/weserved
George Bush Intercontinental Airport (IAH) and William P. Hobby Airport (HOU) — both Skytrax rated 4-star airports and leaders in accessibility — have just rolled out free technology aimed at enhancing the airport experience for children with developmental disabilities and their caregivers. The airports partnered with Infiniteach to introduce the Access Houston Airports mobile app to help families prepare for their trip.
With the app, families will find an array of tools to transition through all phases of the airport experience. From arriving to the airport, to departing the airport and everything in between, the app’s comprehensive approach aids in improving passenger comfort. “Houston Airports continues to embrace technology to go the extra mile to assist passengers of all abilities on their journey through our airports,” said Jesus Saenz, Houston Airports Chief Operating Officer.
According to the Centers for Disease Control and Prevention (CDC), 13% of the U.S. population has a purported “invisible” developmental disability, such as Autism Spectrum Disorder. “This percentage is significant, and equates to 20,000 daily Houston Airport users,” said Tim Joniec, Houston Airports Managing Director of Americans with Disability Act (ADA) Coordination. Many families raising a child with developmental disabilities report struggling to engage in society and feel socially isolated. “Houston Airports is introducing this app to ease anxiety for these families and provide information and resources that will make their visit to the airport an engaging and meaningful experience,” Joniec said.
The app is embedded with research-based strategies proven to help individuals with autism and other developmental disabilities. Specific app features include:
explorer guides, short picture stories that describe each space in the airport;
schedule function, a visual checklist that can be customized;
communication icons, to assist those who are less verbal in talking or asking for help; and
caregiver supports, including terminal maps, tips and more to help in planning a visit to the airport.
The Access Houston Airports app is free to download, and available through the App Store and Google Play.
The initiative is a part of a goal to make Houston Airports more accessible for all. Other recent enhancements include:
providing Aira technology free of charge at the airports for people who are blind/low vision;
providing service dog familiarization training to puppy raisers of prospective service dogs; and
continuing partnerships with Southwest and United Airlines on the annual Wings for All event, a program to familiarize individuals and their caregivers with the airport experience.
Governor Greg Abbott recently recognized the Houston Airport System for its work to ensure Texans and travelers with disabilities have the support they need.
Wouldn’t it be wonderful if all airports adopted this app? Express your interest to your state’s agencies, such as your Governor’s office and the State Aviation office.
The leaves are starting to change, there’s bit of a chill in the air and many people are pulling out their trusty hoodies and apple cider recipes. Fall is a beautiful time of year, but it can take a little prep work to enjoy.
Here are 10 autumn safety tips to keep in mind for your service dog as you both begin to enjoy this wonderful time of year.
1. Intriguing autumn scents.
Ahhh, the scents of autumn – cinnamon, spices, apples, candy corn, smoky fires, pumpkins and earthy leaves. For many people, the scents of fall are their favorite part, but don’t forget that not everything is safe for your canine partner. Always supervise your service dog around candles, bonfires, sweets, hot drinks or anything else that may not be safe.
2. It’s not cool to dress inappropriately.
Like you might tell a middle-schooler who refuses to wear a jacket, it’s not cool to dress inappropriately for the weather. There’s a chill in the air! If it’s too cold for you to be outside without a jacket, it may be too chilly for your canine partner, particularly if he has a thin coat or very short hair. Always dress the both of you for the weather.
3. There could be dangers lurking under the leaves.
The leaves are changing… and with the gorgeous autumn color changes come falling leaves. Leave-strewn lawns, parks and pathways can mask potential dangers, like sharp rocks or broken glass. Always be aware of where your service dog is walking.
4. Light up the night.
Days are shorter. With dark falling at a far earlier hour, it may be prudent to get your partner a light to attach to his collar or reflective gear for safety, especially if your daily routine means you must walk or exercise your canine partner after the sun goes down.
5. Make sure your dog’s tags are up to date.
Double check your service dog’s identification and tag information. With holidays right around the corner, many people’s social schedules pick up, and there’s a lot of coming and going. If your partner gets out or gets lost, his tag is his ticket home.
6. Socialize but don’t overload.
Be selective about attending holiday or autumn functions with your service dog, particularly Halloween events. Events can be highly stressful for you and your service dog; be careful not to overload him.
7. Seasonal Affective Disorder (SAD) is real.
Busy schedules combined with early sunset can lead to mood changes during the fall months. Make sure you continue to give your canine partner physical and mental exercise – it’s good for both of you. Statistics vary on Seasonal Affective Disorder because most people don’t see their physician about it. About 10 million Americans are estimated to have some form of SAD and it is four times more common in women than in men.
8. Just because it’s cold doesn’t mean heartworm isn’t a concern.
Keep up with your service dog’s monthly heartworm treatment. Just because it’s colder outside doesn’t mean your partner isn’t at risk.
9. Boots for working dogs aren’t cute accessories.
Consider boots for your canine partner, especially if you do a lot of walking outdoors and/or if it snows in your area. Not only is snow and ice hard on your service dog’s feet, but the salt cities use to control it is especially brutal.
10. Don’t overdo treats.
Keep an eye on your service dog’s weight and snacking, especially if he is a brace/mobility dog. It’s easy for weight to creep upwards during the fall and winter season.
Receiving a shocking breast cancer diagnosis disrupts a woman’s life in countless ways, but it shouldn’t change her friendships. If anything, going through this life-changing journey should make the bonds between friends even stronger.
Once the diagnosis sinks in, knowing what to do and say can help you relax back into your friendship and feel confident in the support you already provide in countless ways. It can also help your loved one through her diagnosis, treatment, and recovery. If she knows she’s got a loyal corps of friends to rely on, she can let her guard down to rest, heal and reflect.
Here are five ways practical ways you can help:
Listen
While your friend is reeling from her news, her mind will be torn in dozens of directions, figuring out how to tackle her new diagnosis while also managing things at home, with her family, and possibly even work.
Let her freely express her fears and concerns — and simply listen. Resist the urge to fill the silences and to offer unsolicited advice. Your friend needs a shoulder to lean on, which isn’t the same as wanting you to solve her problems.
It’s also best not to share stories about other people’s negative experiences or to tell your friend how she should feel. Saying things like, “It could be worse” minimizes the gravity of what she’s going through. Instead, acknowledge how unnerving and complicated the situation must feel.
Above all, let your friend know you’ll be by her side for the long haul, not just in the early stages and that she can trust you when she’d like to keep information and her thoughts and feelings private.
Offer Specific Help
The classic response to people in a crisis is, “Let me know if you need anything.” But the truth is, in most cases, that open-ended statement isn’t helpful at all since it’s likely your friend will feel awkward calling you out of the blue for a favor. Instead, try offering to help with specific tasks, such as:
Managing a CaringBridge or similar page to share updates
You can also talk to her caregiver for input on more ways to help. Since they often feel like they need to be strong for their loved one and able to handle things all on their own, caregivers are reluctant to ask for support, even when they need it. Don’t forget that cancer treatment is a journey for the whole family.
photo credit: National Breast Cancer Foundaion
Give Her Thoughtful Gifts, Cards
Little gifts or notes go a long way toward brightening someone’s day and are a way for not just local, but out-of-town friends to offer support. You can even reach out to family and friends to mail you a note and present them all at once in a special box, perhaps on a significant day or milestone in her treatment. Gift ideas might include:
Amazon gift cards so she can shop from home
Care packages with lip balm, tissues, lotion, and hard candy for a dry mouth or metallic taste from medication
Gift cards for electronic reading devices (Kindle, Nooks, iPad)
Journal
Magazines, books
Notebook with pockets to keep track of information
Pajamas, robe, silky pillowcase
Pictures of friends
Scarves, hat
Gifts for her caregiver are also a kind gesture. You may also consider insisting you don’t want a thank you note in return for any gifts.
Offer to Go to Appointments
If your friend feels overwhelmed, offer to go to doctor appointments to take notes and ask questions she might not think to ask. You can also be a “chemo” buddy. Driving her to and from as well as sitting with her during chemotherapy or radiation therapy treatments is a bigger help than you may ever realize. Not only will your friend appreciate the company and encouragement, but it can also give her caregiver a break.
Visit and Include Her in Activities
Make plans to visit to cheer your friend up at home to give her something to look forward to. Make sure to check with her first, though. You may also want to coordinate your visit with her caregiver so he or she can take a break or run errands while you’re there.
When you’re with your loved one, don’t focus the conversations only on cancer. Treat your friend like you did before. Ask for their advice and input. Share news about school, church, work, or the neighborhood. Ask about her family, job, and what she’s been doing outside of breast cancer.
If your friend seems tired, graciously end the visit and let her know you’ll be back in touch to set up another visit. On the other hand, if your friend feels up to it, offer to take her for a drive, to a movie, the mall, a restaurant, on an errand, or anything else she may be up to doing with you or with your usual group of friends.
She’ll want to have a “normal” life as much as possible, so keep inviting her to any events or activities you ordinarily go to together.
Your Friendship is Enough
You may begin to discount your ideas on how to help or feel like simply being present isn’t enough. But more than any task you could carry out on your loved one’s behalf, it’s your love they need the most. Helping your loved one feel supported and strong through her breast cancer journey is everything she needs to succeed.
[Originally published by AdventHealth; reprinted with permission.]
Are you a caregiver for someone with Alzheimer’s disease, dementia, or another chronic health condition? Caregivers are often family members or friends of a person who is in need of care. Caregivers may manage everything from medications and getting dressed in the morning to doctor appointments, social events, and meals.
What is a care plan?
A care plan is a form that summarizes a person’s health conditions and current treatments for their care. The plan should include information about:
Health conditions
Medications
Healthcare providers
Emergency contacts
Caregiver resources
You can ask the doctor of the person you care for to help you complete the care plan. At that time, you can also discuss advanced care plan options such as what follow-up care is necessary, end of life care options, and resources that are available to help make things easier for you as a caregiver. Try to update the care plan every year or if the one you care for has a change in health or medications to keep the care plan current, and remember to respect the care recipient’s privacy after reviewing their personal information.
How do you develop a care plan?
Start a conversation about care planning with the person you take care of. You can use the “My Care Plan” form to help start the conversation. If your care recipient isn’t able to provide input, anyone who has significant interaction with the care recipient (a family member or home nurse aide) can help complete the form.
Talk to the doctor of the person you care for or another health care provider. Use the “My Care Plan” form as a starting point for your discussion. A physician can review the form you started and help to complete it, especially if there is a conversation about advanced care planning.
Ask about what care options are relevant to the person you care for. Medicare covers appointments that are scheduled to manage chronic conditions and for discussing advanced care plans. Medicare covers care planning appointments specifically for people with Alzheimer’s, other dementias, memory problems, or suspected cognitive impairment.
Discuss any needs you have as a caregiver. 84% of caregivers report they could use more information and help on caregiving topics especially related to safety at home, dealing with stress, and managing their care recipient’s challenging behaviors. Caregivers of people with dementia or Alzheimer’s are particularly at greater risk for anxiety, depression, and lower quality of life compared to caregivers of people with other chronic conditions.
What are the benefits of a care plan?
Care plans can reduce emergency room visits, hospitalizations, and improve overall medical management for people with a chronic health condition, like Alzheimer’s disease resulting in better quality of life for all care recipients.
Care plans can provide supportive resources for you, the caregiver, to continue leading a healthy life of your own.
