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First-Ever Sensory Inclusive Marathon Scheduled to Take Place This Month

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Runners of the Akron Children’s Hospital Akron Marathon Race Series Marathon, Half Marathon and Team Relay, presented by FirstEnergy, are set to participate in the first-ever sensory inclusive marathon on Saturday, September 28, 2019, thanks to a partnership with KultureCity.

KultureCity, a leading non-profit with a mission to revolutionize and effect change in the sensory-needs community, will be onsite with their sensory activation vehicle, along with available sensory inclusive toolkits — equipped with noise-canceling headphones, fidget tools, verbal cue cards and weighted lap pads — that will also be available to all guests at the Akron Marathon who may need additional support in the race environment.

To prepare for the partnership, Akron Marathon staff and volunteers will be participating in a certification process to help them support guests and fans with sensory needs and to give them tips on how to handle a sensory overload situation.

Sensory inclusion allows the marathon and its staff to provide a safe space for individuals with autism, PTSD, Parkinson’s disease and early-onset dementia. In the event that a scene becomes too overwhelming, guests can enjoy the morning in a dedicated space designed to ease the mind and calm the senses.

MaryBeth Emerich, a FirstEnergy employee, Akron Marathon volunteer and mom of three sons with autism spectrum disorder (ASD), is thrilled knowing a safe space exists for her children at the marathon she adores.

“I know my sons can now attend this event, thanks to KultureCity’s sensory inclusive help, and I’m aware that this is one more step to raising awareness and full inclusivity in the community,” states MaryBeth Emerich. “This is an amazing event that benefits Akron Children’s Hospital, and with the partnership of KultureCity, we can bring awareness and help include a community that otherwise may not feel comfortable participating or attending. I am so proud to volunteer with FirstEnergy and to represent THRIVE.”

THRIVE is one of the nine FirstEnergy Employee Business Resource Groups (EBRGs). THRIVE’s mission “is to foster an inclusive work environment where employees with physical and mental disabilities and conditions are empowered to be authentic, valued, and respected.” THRIVE also provides support and encouragement for employees who have family members and friends with physical and mental disabilities and conditions.

Prior to attending an event, families can download the free KultureCity App where one can view what sensory features are available and where they can be accessed.

Sensory-friendly race.
Amy Belles with her family.

“I believe if you truly want to see change, it starts with you,” states Amy Belles, KultureCity Ohio’s Co-Founder.

In 2016, Amy began running after her nonverbal son was diagnosed with autism. Amy wanted to see change, not only for her son, Carson — but for other children and became a vital part of KultureCity with her husband, Jeff. Since 2016, KultureCity has gone from seven sensory inclusive ventures to more than 400 in four different countries.

“Knowing that all of your loved ones can now be included, feel safe and welcomed motivates my every step,” states Amy. “And having the first marathon be in my hometown of Akron, Ohio makes it that much more special.”

“In the Northeast Ohio running community, inclusion and support are pillars of our foundation,” states Anne Bitong, Executive Director, of the Akron Marathon Charitable Corporation. “Runners cheer for each other, run back to ensure a stranger can cross a finish line—and now for the first time in the county—runners and spectators of all abilities are not only encouraged to attend but will feel intentionally welcomed.”

This year, the Akron Marathon team will host more than 15,000 runners across its 2019 events all supporting Akron Children’s Hospital. Runners looking for a deeper level of engagement with the hospital can join the race as a Children’s Champion, a race participant committed to raising $250 to $1,000 for Akron Children’s Hospital. For more information, race registration and volunteer opportunities for the final race series event, please visit at AkronMarathon.org.

Source: Akron Marathon Charitable Corporation (via PRnewswire)

How People with Chronic Disease Can Tackle Disaster Planning

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Natural disasters, such as hurricanes, floods, tornados and wildfires can be stressful and devastating for persons living with a chronic disease. Here are tips to help reduce the risk of illness or serious health complications if a disaster strikes.

General Planning

  • Make an emergency plan and a supply kit. Maintain at least a three-day supply of water, food, and medicine. Consider signing up for SMART911, Code Red, or your local county registry. These services help first responders identify people who may need assistance in a disaster.
  • If you need to leave your home, know where to go (e.g., family members house, shelter) and be prepared to leave quickly. Have medicines, medical records, insurance information, and healthcare provider’s information with you.
  • Ask your doctor for an extra supply of prescribed medicines, and have a list of all prescription medicines (including name, dose, and pharmacy information). If staying in a shelter or temporary housing, tell the staff about your health issues, special needs and any medicines you are taking.
  • Keep medicines, supplies, and equipment out of the heat and in a safe and waterproof location. If you use medical equipment that works with electricity, learn How to Prepare and Handle Power Outages.
  • Check if the Emergency Prescription Assistance Program (EPAP) is activated after a disaster. This free service helps residents get medicine, medical supplies, medical equipment and vaccines that were lost, stolen, or damaged due to the disaster. Call 855-793-7470 to enroll or visit the EPAP website. Check RX Open to find open pharmacies.
  • Take steps to avoid getting an infection or illness. Clean up, disinfect, and wash your hands often, and stay away from moldy or dirty places. If you do not have soap and clean water, use an alcohol-based hand sanitizer. Seek immediate medical care if a wound develops redness or swelling, or if you have other signs of infection, such as fever, increasing pain, shortness of breath, confusion, disorientation, or high heart rate.
  • During or after a natural disaster, it may be hard to find the food that you usually eat, particularly if you are on a special diet. Try to eat as healthy as possible by choosing foods that are lower in added sugars and salt.
  • If you feel overwhelmed, reach out to family, friends, support groups, or a healthcare professional for support. Engaging in physical activity can help you to reduce stress, manage your condition and cope with a natural disaster.

Chronic Disease Specifics

Here are examples of common chronic conditions and things you can do to keep you and/or a loved one safe during a disaster.

Heart Disease and Stroke

  • Stress from a disaster can lead to heart disease symptoms. Know the signs and symptoms of heart attacks and stroke.
  • Disasters may cause increases in blood pressure. Monitor your blood pressure regularly, particularly if you have high blood pressure.
  • Wildfire smoke and disaster-related air pollution can cause an increase in heart disease symptoms, such as chest pain, heart attacks, difficulty breathing, abnormal heart beating, or worsening symptoms of heart failure and stroke. Seek medical attention if you or someone you know is experiencing these symptoms.
  • Get enough sleep to protect your heart health.

Diabetes

  • Follow the Diabetes Preparedness Plan. Store three days of diabetes supplies and consider having an extra glucagon emergency kit.
  • Keep your insulin, supplies, and equipment in a safe location. Insulin remains usable for 28 days at room temperature up to 86°F. Learn how to store insulin.
  • Check your feet every day for cuts, redness, swelling, sores, blisters, corns, calluses, or any other change to the skin or nails. Call a healthcare provider as soon as possible if you see an injury or wound.
  • For more information visit the Diabetes Disaster Response website or call 1-800-342-2383.

Kidney Disease: Dialysis Care

  • Call your dialysis center to see if they are open or your local health department. They may be able to assist with transportation to the dialysis center or recommend another location if yours is closed. If you need assistance or are having difficulty contacting your dialysis clinic, call the Kidney Community Emergency Response (KCER) Hotline at 1-866-901-3773.
  • If you are unable to get your treatments, follow the 3-Day Emergency Diet. If you are pregnant or have an infant or child who is on dialysis, talk to your doctor or dietician about modifications to this diet. This plan could save your life or the life of your child.
  • If you have a home dialysis machine, you may be able to do manual exchanges until the power comes back on. Consider buying a small backup generator so you have continuous power.

Cancer

  • Have a summary of your cancer treatment plan including the type of cancer you have, treatment received, physician contact information, and a list of your medicines and doses.
  • If you have a Cancer Survivorship Care Plan, bring it with you if you need to leave your home.
  • If you are being treated with chemotherapy, watch for signs of an infection, such as chills and sweats, a sore throat or other pain, nasal congestion, or vomiting. Call a doctor right away, if you get a fever.
  • Learn more about How to Get Ready for a Natural Disaster When You Have Cancer and Coping With Cancer After a Natural Disaster. For more information, call the National Cancer Information Center at 800-227-2345

Alzheimer’s Disease and other Dementias

  • Disasters can be especially upsetting and confusing for individuals with Alzheimer’s or related dementia. Be aware of signs of anxiety or agitation in persons with dementia and be prepared with strategies to calm them during times of stress.
  • If you have a family member in a residential facility, find out about its disaster plans.
  • When appropriate, share the diagnosis with others, such as hotel or shelter staff, family members and airline attendants, so they can better assist.
  • Caregivers should be aware of the potential for individuals with dementia to wander. Try to stay together or with a group if evacuated. Do not leave the person with dementia alone.

Additional Preparedness and Disaster Resources

Source: CDC

Common Questions About How Acupuncture Works

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By Kimberly Morrison, ARNP

Did you know that 14 million Americans have tried acupuncture as a treatment technique?

Acupuncture traces its roots back more than 2,000 years ago to China but, in the last 40 years, it has found increased popularity in the United States to treat a variety of ailments. Although you may be familiar with the term ‘acupuncture,’ you may still have questions about what it is, and if it is an option for your health needs.

What Is Acupuncture?

Acupuncture involves stimulating points on the body by inserting thin needles that are manipulated by hand or sometimes by electrical stimulation. By stimulating specific anatomic sites, also called acupuncture points, acupuncture can promote self-healing.

In traditional Chinese medicine, diseases are caused by the disruption of energy in the body, and acupuncture is meant to help release that flow. Western medicine offers another explanation: the needles stimulate the nerves, which sends signals to the brain to release hormones to minimize pain.

Initially, acupuncture was incorporated into Western medicine as a way to reduce pain, such as back and knee pain or headaches. But recent studies suggest that acupuncture can be used to treat a variety of disorders, including stroke, multiple sclerosis, post-traumatic stress disorder and nausea.

Does Acupuncture Hurt?

The idea of needles being stuck into the skin is daunting, but acupuncture needles aren’t anything like needles that are used for immunizations or for drawing blood. Acupuncturists describe the needles as hair-thin, stainless steel and disposable. While you may feel some sensation as the needles are inserted, it’s not described as painful. Some sensations you may feel have been described as:

  • Heavy—as if a weight is being placed on the area, but is perceived as calming, not oppressive.
  • Achy—an initial achiness at the site of the needle, which typically dissipates in seconds.
  • Electric—a quickly disappearing jolt related to the location of an acupuncture pressure point and the nerve that lies underneath it.
  • Tingly—acupuncture points can cause tingling at the site and through the body.
  • Warm—a pleasant feeling that spreads around the acupuncture point.

The bottom line is that while acupuncture can cause some unusual sensations, it shouldn’t hurt. If it does, let your acupuncturist know right away so the needles can be adjusted.

Does Acupuncture Work?

Is it worth getting stuck with needles to feel better? According to the National Institutes of Health (NIH), numerous studies suggest acupuncture can help manage pain. While much research is being done on the effects of acupuncture on other conditions, there does not seem to be a conclusive answer. However, acupuncture is proven to be effective in pain management, as well as in managing symptoms of cancer such as nausea, vomiting, diarrhea, constipation, hot flashes, fatigue and mood.

According to the UC San Diego Center for Integrative Medicine, clinical studies have shown acupuncture to be effective for ailments including allergies, depression, hypertension, tennis elbow, morning sickness, malposition of the fetus and stroke. The NIH agrees that scientific research increasingly supports the use of acupuncture for treatment of conditions in addition to pain management, noting that the practice is often covered by insurance policies.

Man recieves acupuncture treatment to eyebrow

What Is Acupuncture Best For?

Acupuncture is best known to help ease pain, but the American Academy of Medical Acupuncture lists conditions the World Health Organization recommends for acupuncture, including:

  • Respiratory diseases, i.e. allergies, colds, tonsillitis
  • Bronchitis and asthma
  • Eye disorders, such as myopia, acute conjunctivitis
  • Orthopedic disorders, i.e. sciatica, rheumatoid arthritis and tennis elbow
  • Gastrointestinal disorders, such as hiccups, constipation, diarrhea, gastritis and colitis
  • Neurologic disorders, including migraine, facial paralysis and neurogenic bladder infection

What Risks Are Associated with Acupuncture?

When acupuncture is done correctly by a licensed practitioner, the risks are low. Acupuncture should be done in a clean environment, using clean, disposable and unbreakable needles.

According to the NIH, few complications from acupuncture have been reported but, when they are, they usually come from non-licensed acupuncturists using non-sterile needles and delivering treatments improperly. The NIH says these rare but serious adverse effects include infections, punctured organs, collapsed lungs and damage to the central nervous system.

Can I Use Acupuncture in Addition to Other Methods for Reducing Pain?

It’s important to get a clear diagnosis from your physician before considering acupuncture to make sure this is the right step for you. Ask your physician if he/she supports using acupuncture as part of an integrative treatment plan.

(Originally published by Orlando Health; reprinted with permission.)

Looking for similar content? You may also be interested in reading “How Color Therapy Benefits People with Disabilities.”

How Physical Therapy Can Help with Multiple Sclerosis

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By Patricia A. Bobryk, MHS, PT, MSCS, ATP, Physical Therapist at Orlando Health

Multiple sclerosis (MS) is a neurological disease that affects more than 2.3 million people worldwide. It’s usually diagnosed between the ages of 20 and 40, and is more common in women. Because MS affects the central nervous system, it can cause a variety of symptoms such as visual, sensory, balance and cognitive issues, as well as weakness and fatigue.

Symptoms of MS can vary from person to person, as can the severity and frequency of those symptoms. Some people experience few symptoms for years, while for others the symptoms are more aggressive. While much about MS is uncertain, what is certain is that physical therapy can help those with MS treat the symptoms and improve the functional outcome of the disease.

How Physical Therapy (PT) Helps

Physical therapy, as part of a rehabilitation team that includes PT, occupational therapy and speech therapy, can help at every stage of MS.

Someone newly diagnosed and with few symptoms might assume they don’t need PT, but this is one of the most important times to get started. A qualified physical therapist can provide information on what to expect from MS and what symptoms to look for that might signal a flare up. Equally important, a physical therapist can help you get started on a good path of health and wellness that will make managing MS easier. You can still be healthy, even with the diagnosis of a chronic illness. The physical therapist can give you information about nutrition, hydration, smoking cessation and the right type of exercise program, tailored specifically for you.

Man receives physical therapy

As the disease advances or after a flare up, a physical therapist can address symptoms as needed. If you develop stiffness, they can recommend effective stretches. If you’re feeling fatigued, they can devise an appropriate strengthening program that builds, not saps, your energy. They will provide a home exercise program that you can use, and they can follow and tailor your treatment throughout the course of the disease.

If at some point, you need to develop functioning skills, such as learning new ways to compensate for weaknesses, your physical therapist can help. That may include strengthening your upper body or learning to use assistive devices to maintain your mobility.

What to Look for in a Physical Therapist

If you have MS, you and your physical therapist can count on having a long relationship, so it is important to find the right person.

Make sure your physical therapist has an expertise in MS, or at least in neurology. A physical therapist at an MS center is ideal because they are trained in the specific needs of someone with the disease. For example, exercise is extremely important for those with MS, however, it should be done so that you do not become overly fatigued. In addition, the exercise shouldn’t cause you to overheat because, for someone with MS, that can cause additional symptoms to develop.

The exercises should be enjoyable—otherwise you, like most of us, won’t do them. And the exercises should change and evolve to meet your ongoing needs.

Your physical therapist should use a team approach, involving occupational therapists and a speech therapist as needed to provide you with holistic support.

MS is a lifelong condition and physical therapy should be considered a lifelong approach that starts at diagnosis and helps you minimize and address your symptoms as they occur and as they change.

Originally published by Orlando Health; reprinted with permission.

Teaching Grandkids About Kindness: Small Gestures to Put Smiles on Peoples’ Faces

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Amid our busy lives, it’s easy to lose sight of the little things we can do to make the world a gentler, kinder place for others. As a result, our grandkids miss out on golden opportunities to emulate such kindness and its rewards. So why not set a goal with your grandchildren the next time they visit and see how many acts of kindness they can rack up in a single day?

Here are some kindness ideas to get your grandkids started:

1. Visit an elderly neighbor. Many older people are shut in because they can no longer drive. Even those who do drive, often don’t get the social interaction they need. There’s likely someone in your neighborhood who could use some company.

2. Offer a compliment. It couldn’t get any easier than this! But don’t offer praise you don’t mean because it’ll come off as disingenuous. Think about what you like about what the person is wearing, their personality, or something they’ve done.

3. Make a donation. This could be a small monetary donation to a good cause, or you could donate items you no longer need to a homeless shelter, animal rescue, or toys for tots collection.

4. Help someone with their homework. Do you know a classmate who struggles with a particular subject? Offer to help them study for a test or to understand a concept for a homework assignment.

5. Take an extra lunch to school for someone who forgets his/hers. Then when you get to school, ask your teacher to help you find a student who needs it.

6. Stand up for someone. Do you know a student who’s bullied or always left out? Look for an opportunity to tell those who are being judgmental they should be a little nicer or that they’re being unfair.

7. Offer someone your support. Do you know someone who’s going through a hard time such as a serious illness or a newly diagnosed disability, or whose parents are going through a divorce? Lend them your shoulder, and offer to listen.

8. Make friends with someone who seems left out. Is there a classmate who’s always standing alone on the playground or who sits alone at lunch? Offer to join that person.

9. Offer to help out a mom. Do you know someone with young children? Offer to spend a couple of hours watching and entertaining them while the mom catches up on chores or well-deserved solo time.

Seniors can teach their grandchildren kindness lessons.

10. Bake cookies for your teacher or boss. Show your appreciation by baking their favorite cookies or some brownies.

11. Buy a homeless person a meal. If you see someone wandering who clearly looks homeless or is standing on a street corner with a sign, pick up a meal and deliver it to them.

12. Hold the door for someone. This is another super easy gesture that’s sure to be appreciated by the elderly and disabled or really anyone.

13. Write an apology to someone you’ve hurt. We’ve all said and done things on occasion that hurts someone’s feelings. So take ownership of it, and write a heartfelt apology.

14. Help someone carry something. When you see someone trying to juggle multiple things or carry a heavy object, offer your assistance.

15. Post something nice on the social media page of someone who needs a friend. Do you have a social media friend who no one ever pays attention to? Make that person’s day with a positive comment on their page.

16. Take a neighbors dog for a walk. Is there a dog in your neighborhood that never gets to go for walks? Just make sure you find out the dog’s energy level to make sure you’re able to handle it or to ensure you don’t overexercise the dog.

17. Do a chore for your brother or sister. What a great way to get back in your brother or sister’s good graces. And who knows, maybe sometime they’ll return the favor.

18. Buy a friend a candy bar. This is a simple way to sweetly show your friend you’re thinking of them.

19. Volunteer for a good cause. There are many opportunities right in your community. You could volunteer at a soup kitchen, pick up trash at a park, help with a canned food drive, etc.  

20. Help someone with their yard work. Do you know someone who’s elderly or has a disability? Offer to mow, rake, pull weeds, or shovel snow.

Photo credits: CDC

Struggling with Serendipity: The Aftermath of a Disability-Resulting Car Crash

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Cindy Kolbe is passionate about sharing the power of hope and loves to connect with others in the disability community. She authored a book which addresses her battle with depression and also her role as a caregiver to her daughter, Beth. Beth became paralyzed from a car accident injury (where Cindy was behind the wheel). In her own words, Cindy offers AmeriDisability the following insight into her personal story, including an excerpt from her book.

By Cindy Kolbe

In one second, I went from having a daughter who could walk to one who couldn’t. And it was all my fault.

Near midnight, I drove the last stretch toward home after my son’s college concert on May 20, 2000. When I fell asleep at the wheel, my youngest daughter Beth was in the passenger seat. As the car flipped across a dark Ohio field, my daughter’s spinal cord ripped, along with my identity as a mom. When told of her paralysis from the chest down, fourteen-year-old Beth paused only a moment before simply responding, “Let’s talk about what I can do.”

My new memoir, Struggling with Serendipity, shares a mom’s crisis, a daughter’s paralysis, and a road of hope—from a small town in Ohio to Seattle, Harvard, Capitol Hill, and around the world. My struggles with guilt and depression are in direct contrast to my daughter’s, who challenges the physical limits of quadriplegia with tenacity and optimism. We become a team. I find support and inspiration from Beth, a stubborn teenager who refuses to let her new disability prevent her from enjoying all life has to offer.

Beth helps me find a new normal, with serendipity in the most unlikely of moments.

Not a swimmer before her injury, Beth learns all the strokes and swims on the U.S. Paralympic National Team for 5 years. She becomes the first with a visible disability on the Harvard Women’s Swimming and Diving Team. She set 14 American records, including one at the Beijing Paralympics.

Beth lends her voice to Struggling with Serendipity through her media quotes and writings. She is a health policy lawyer in Washington, DC. Her clients and pro bono work include companies and nonprofits in the disability community. She shares my passion for volunteering and her wedding last spring was featured in The New York Times.

“Becoming independent,” Beth said. “That is my greatest achievement.”

A lifelong disability advocate—even before Beth’s injury—I directed a nonprofit, managed group homes, and worked at an institution. I’m a writer with a blog and more than 52 articles since 2016 in various media outlets. I also am a peer mentor for the Reeve Foundation and a volunteer for other disability groups and mental health nonprofits. I live with my husband of 42 years in the Shenandoah Valley.

Struggling with Serendipity was published by a small press (not self-publishing) in April of 2019. It is available everywhere books are sold. Plus, I’ve embarked on a coast-to-coast book tour.

Here is an excerpt from Struggling with Serendipity:

College applications covered our kitchen table before Beth’s senior year of high school. She questioned the need for help during her freshman year and wondered if I could live off-campus instead of in the dorm with her. Separate housing for me for any amount of time would add significant costs on top of her out-of-state tuition, room, and board. High college expenses seemed certain, but John and I decided not to hold her back because of finances. We owned the Tiffin house and planned to borrow off it.

One mom authors a book about disability and caregiving.

I watched Beth hold a pen awkwardly in her right fist, not hesitating as she wrote her motto on a Challenged Athletes application. ANYTHING IS POSSIBLE. I filed away a note I wrote to myself that said, “Anything is possible, except when it’s not.” It amazed me how she dismissed all she couldn’t do as irrelevant and wholeheartedly believed in the truth of the motto. And it really was true, but only for her and a small percentage of others with her priceless perspective. Those with and without a disability.

“I think walking is over-rated,” Beth said, with a smile.

5 Ways to Start an Accessible Lifestyle

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Mobility can be a major factor in a person’s independence. When illness or injury hinders free movement, even simple tasks can feel overwhelming. BraunAbility, a mobility vehicle company, compiled five ways to start an accessible lifestyle as shown in this video:

What are other ways that you have improved accessibility in your life? Share with us on Facebook, Twitter and Instagram.

[courtesy of family features]

How To Prepare an Emergency Disaster Plan for Your Unique Disability Needs

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Disasters such as hurricanes, floods, fires and other emergency situations are all too common these days. In fact, about 4-out-of-5 Americans live in counties hit by weather events since 2007, according to disaster declaration data from the Federal Emergency Management Agency (FEMA). That illustrates how these events can impact nearly everyone and the importance of having a plan.

This is particularly true for older people and people with disabilities. Health issues, mobility concerns and use of assistive devices can create additional challenges during emergencies. However, there are steps everyone can take to prepare now for what may come later.

Discuss your emergency disaster plan.

Talk about preparedness with friends, neighbors and family members. Contact your city or county emergency management office as well as service providers, such as meals programs. Discussing the topic can help you create a support network, find local resources for preparation and identify contents for a custom emergency kit.

Create a contact list.

Make a list of people and places you can turn to for support in an emergency, including people you may need to help or notify of your safety. Include phone numbers, email addresses and physical addresses. Also include insurance providers, health care professionals and medical supply companies. Keep one copy on hand and put another copy in a watertight container in your emergency kit.

Prep for power outages.

Ask your healthcare providers about how to prepare for power outages, especially if you depend on medical devices that use electricity, such as oxygen, dialysis or a power wheelchair. Write down your plan, along with information about your devices, and keep a copy in your emergency kit.

how to prepare a disability related emergency plan
photo credit: National Mobility Equipment Dealers Association

Make a list of all medications and medical supplies.

Keep a list of your medicines, including dosages and allergies, along with other essential supplies like extra eyeglasses, hearing-aid batteries and at least a week’s supply of all prescription medicines in your emergency kit.

Plan for transportation.

Have a plan in place in case you need to evacuate or get to health care services during an emergency. Know what equipment you need and how you will transport it. Perhaps a neighbor or family member can include you in their evacuation plans. Set this up beforehand and plan how to coordinate in the event of a disaster.

Plan for pets and service animals.

Include food, medications and other supplies your pets and/or service animals may need in your emergency kit, too.

Pack the essentials.

In addition to your medical information and needs, don’t forget essentials such as non-perishable food, water, a weather radio, a flashlight, extra batteries, blankets, cash, extra clothing and personal hygiene items. Keep your emergency kit in an easy-to-access location.

Learn more about preparedness at acl.gov/programs/emergency-preparedness.

Family Features | Photo courtesy of Getty Images

Here’s Why a Popular Health & Beauty Company Prioritizes Inclusive Product Design

It’s been almost a year since P&G-owned Herbal Essences launched inclusive-designed shampoo and conditioner bottles (in October 2018). The first-ever mass hair care brand in North America to do so, the revamped packaging features raised symbols intended to help consumers with low to no vision distinguish products by touch.

So how have customers responded? Sam Latif, P&G’s Special Consultant for Inclusive Design, says inclusivity has been good for business. “We have gained new users based on the positive response we have got from the visually-impaired community and advocates,” she tells AmeriDisability. That’s not a small base of consumers ─ according to the World Health Organization, 253 million people worldwide are blind or visually impaired, including 23 million in the U.S. alone.

P&G is working to take accessibility beyond your shower with their own products and by generating awareness about prioritizing inclusion. “We [at P&G] are on a journey. We recognize that designing inclusive products and inclusive services means more people can use them, so we consider inclusive design a force for good and a force for growth,” Latif declares.

Herbal Essences inclusive design bottles.
Bottles feature raised stripes (shampoo) and circles (conditioner).

A Clean Sweep Career Change

Latif is the brainchild behind Herbal Essences’ redesign but she hasn’t always tapped into her marketing mindset. She actually started her P&G career nearly two decades ago in the IT department. A blind mother of three, Latif explains that the motivation to shift jobs came about as she realized accessibility gaps at home and at the office. “The move to accessibility was something I felt I needed to do. I recognized that our company had the potential to better serve people with disabilities, and we needed to intentionally focus on this demographic. Being disabled myself and having a personal passion for accessibility, I felt this was my purpose,” she recalls.

Why start with shampoo and conditioner? Bathing is part one’s daily routine; making everyday tasks less challenging and more enjoyable can boost one’s independence and confidence. Latif used to create bottle distinction with rubber bands and tape. Now Herbal Essences has four raised stripes on the back of shampoos and eight raised circles on the back of conditioners. The decision to incorporate shapes versus braille was intentional. “I saw when conducting research that not everyone can read braille. I wanted the solution to be as inclusive as possible reaching as many people as possible,” she explains.

The hope is that customers connect ‘s’ to stripes=shampoo and ‘c’ to circles=conditioner.

Washing Away Barriers

Only 4% of businesses are actively creating products for people with disabilities, according a P&G statistic. Some companies are prioritizing inclusive design. For instance: Kellogg’s Rice Krispies Treats launched braille stickers and re-recordable audio boxes so parents “can share messages of love and encouragement with children who are blind or low-vision;” Microsoft developed the Xbox Adaptive Controller intended for gamers with limited limb mobility; and Target created a sensory-friendly clothing line. Obviously, just a few examples aren’t enough. However, Latif says additional corporations are soliciting insight from P&G which indicates more will follow suit. “We advocate that all companies think about inclusive product design and produce accessible services. We continue to be invited by many companies to share the work we are doing, and we’re constantly learning and collaborating with others,” she says.

Companies first should change perspective, advises Latif. “Business leaders, designers and marketers need to experience their products and services as people with disabilities experience them. Next, it is important to include accessibility into the criteria from the outset of any project,” she urges. Also, because “people with disabilities are great problem-solvers and have diverse thinking styles,” Latif suggests, “Recruiting people with disabilities to develop insights and test new solutions can be critical to ensure the right product or service is developed.” Latif believes consumers’ demands for inclusion will continue to increase. “I think my kids’ generation will expect products and services to meet their needs and not just ‘put up’ with less than satisfactory. I think this goes for disabled and non-disabled consumers from this generation,” she says. She hopes company culture as a whole will come to respect disability diversity with the same understanding as gender, race and sexual orientation diversity.

“There was a calling for me to help make the world more accessible and help design better workplaces, products and services for people like me (who have a disability). This sense of purpose encourages me to do what is right and bring insights of consumers like me into the design for everything we do for our workplace, products, packaging and advertising,” Latif says.

The Beauty of What’s To Come

The impact of accessible health and beauty products can be life-altering. For example, women with vision impairment find it impossible to read pregnancy and fertility test results. So P&G’s Clearblue partnered with Be My Eyes, a vision mobile app, so women can immediately know what is happening with their bodies. Herbal Essences and Be My Eyes offer similar support for customers seeking hair care advice.

Of the dozens of P&G brands, Latif admits, “I also love the Tide Pods. Being a mum of three, I have lots of laundry to do and have noticed such a significant improvement since I switched to using the pods – no dosing or spills to clean up.”

TREO is a new inclusive design example.
Gillette TREO simplifies caregiver-led shaving.

P&G most recently designed the Gillette TREO, the first assisted-shaving razor for caregivers grooming someone else (versus self-use razors). Think about how many people this benefits: mothers taking care of their sons, fathers taking care of their daughters, sons taking care of their elderly fathers and wives taking care of their husbands. “We’ve learned that caregivers like using TREO on both men and women, young and old, for those living with conditions ranging from Down syndrome to Alzheimer’s and much more,” Latif shares. [Check out the powerful product launch video here. Note: P&G includes audio description on all television/video advertising.]

Additionally, P&G has been a sponsor of the Paralympics since 2010 and has recommitted for Tokyo 2020; in addition to sponsoring the Special Olympics for more than 25 years.

Do you use another brand and/or product to meet your specific disability needs? Share with us on Facebook, Twitter and Instagram.

Nancy DeVault is an award-winning writer/editor contributing to local and national publications. Her storytelling spans a wide range of topics, including charity, disability, food, health, lifestyle, parenting, relationships and travel. Married with two kiddos, Nancy describes herself as a lover of the outdoors, fitness, news, traveling and binge reading magazines while sipping coffee.

Mind Game: Obsessive Compulsive Disorder

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An estimated 2.3% of adults are afflicted with Obsessive Compulsive Disorder (OCD), according to the National Institute of Mental Health. For many, the symptoms begin in childhood or adolescence. This anxiety disorder is a neurological malfunction that creates unrelenting, intrusive thoughts and extreme anguish for those affected. Obsessions range from unbearable worries about contamination to believing they have run over someone while driving. These fears can be alleviated only one way—by acting out compulsions, which become repetitive acts of checking and rechecking to ensure the fear is unfounded.

Although OCD was added to the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders (DSM-III) in 1987, many people still live with its destruction unaware there’s help or even a name for their bizarre fears and behaviors. Add to that, “Families often don’t know that they have a sick child,” says Judith L. Rapoport, M.D., in The Boy Who Couldn’t Stop Washing. Children may keep their obsessions and compulsions a secret in order to avoid appearing crazy.

The devastation of OCD isn’t seen in just the adult or child with the disorder. OCD has a negative impact on the whole family. Families often destruct from the stress caused by the disorder. It’s not unusual for the OCD sufferer to rely on family members to help alleviate their fears. The sufferer may insist that a child, parent or spouse check electrical outlets or may badger loved ones with constant questions for reassurance.

Talk with your doctor about OCD symptoms

In some homes where fear of contamination is the obsession, family members are banned from certain rooms or areas. This is an effort by the sick person to keep the home in order to prevent contaminating the areas. Family members may also be required to live up to unreasonable standards of cleanliness to satisfy the OCD person. In other homes, compulsions such as hoarding are so out of hand that the home literally becomes a maze. Family members must maneuver through narrow trails, dodge tall stacks of boxes, newspapers or whatever is hoarded.

What’s the cause?

To understand the OCD mind, many researchers explain the brain is stuck, in a sense. It replays a particular thought over and over again, like a broken record. In other words, it tricks the sufferer. They cannot trust their own judgment. Those who don’t understand OCD often ask the afflicted, ‘Why don’t you just stop?’

But it isn’t that simple. Researchers believe the disorder is neurobiological. Therefore, the obsessions are not a matter of choice. Differences have been found in the brain of OCD sufferers through brain imaging techniques. Some studies have found abnormalities in the neurotransmitters, such as serotonin. The occurrence of OCD is also higher in families with depressive and anxiety disorders. For most, there’s no known event that relates to their particular obsession(s). Still, researchers feel environmental stressors may play at least some role in the development of OCD for those who are biologically predisposed.

Is there help?

Although there’s no known cure for OCD, there’s a number of treatments available. Caution should be used in weighing out treatment options though. Some purported treatments are not supported by a preponderance of evidence. Questionable treatments for OCD include psychotherapy, hypnotherapy, psychosurgery and electro convulsive therapy (ECT).

The two most common, effective and proven forms of treatment available for OCD are psychotropic drugs and behavioral therapy. Many doctors suggest medication in combination with behavioral therapy. This way suffers can learn techniques to relieve or stop the intrusive thoughts and to control compulsive behaviors.

Obsessive handwashing can be a symptom of OCD.

The severity of untreated OCD generally tends to worsen over time. It can become completely debilitating. If someone in your family has symptoms of OCD, contact your mental health provider for a confidential evaluation. With proper treatment, many OCD sufferers are able to lead normal and productive lives.

Common obsessions

●       Fear of running over someone while driving

●       Fear of contamination

●       Fear of harming others

●       Fear of blurting obscenities or insults

●       Preoccupation with a part of the body

●       Violent, horrific or disgusting images

●       Superstitions or persistent thoughts of lucky/unlucky colors, etc.

●       Extreme concern with religious issues, values or morals

Common compulsions

●       Repeated checking of doors, ovens, locks, plugs, etc.

●       Repeated rituals such as counting, going in and out doors a number of times, etc.

●       Excessive arranging and rearranging

●       Hoarding or collecting mail, newspapers, food, etc.

●       Repeated confessions or asking repeated questions for reassurance

●       Prolonged or repeated bathing or hand washing

●       Repeatedly checking for mistakes

●       Repeatedly drawing up lists

You may also be interested in reading “Resources for Addressing Mental Health Challenges at Work.”

The contents of this article are not intended as medical advice. Talk to your medical professional.

Photos courtesy of CDC.