Roanoke College is set to introduce a groundbreaking opportunity for its students – a Disability Studies degree program.
For years, both faculty members and students at Roanoke College have dedicated their efforts to implementing various courses and initiatives aimed at promoting disability programs. Through a gradual and persistent process, they have achieved their goal, and the college is now poised to offer a comprehensive Disability Studies major.
The students at Roanoke College are not content with merely pursuing their studies; they are driven by a passion for advocating for the rights of individuals with disabilities and striving to enhance their quality of life within a more inclusive society. The journey towards this noble objective begins with education. Notably, Roanoke College’s disability initiatives, including MAPLE’S Kids and Toy Like Me, have played a pivotal role in laying the foundation for the establishment of a concentration in Disability Studies, which was successfully launched last year.
Impact on Students
This initiative has made a profound impact on students who have experienced a transformative shift in their perspectives on life. In addition to the concentration, Roanoke College is taking a significant step forward by offering a brand-new Disability Studies Major and Minor, commencing in August. This move reflects the college’s unwavering commitment to fostering the growth and development of Disability Studies within its academic framework.
Roanoke College’s dedication to supporting Disability Studies is evident through these new offerings, which will provide students with a comprehensive understanding of this vital field. To explore the full range of Disability Studies programs and offerings at Roanoke College, please visit their official website at roanoke.edu/academics/majors/disability_studies.
Pursuing a degree in Disability Studies offers an array of benefits that extend far beyond the classroom. It equips individuals with a deep understanding of the challenges faced by those with disabilities and empowers them to advocate for positive change. Graduates with a Disability Studies degree are well-prepared to contribute to creating a more inclusive and accessible world, whether through policy development, community engagement, or support services.
Additionally, this field opens doors to diverse career opportunities in fields such as healthcare, education, social work, and advocacy organizations. Ultimately, a Disability Studies degree not only enriches one’s knowledge but also provides the tools and perspective to make a meaningful impact on the lives of individuals with disabilities, fostering a more equitable and inclusive society for all.
In a groundbreaking move, Johns Hopkins University has appointed Nathan R. Stenberg as its first Director of Disability, Culture, and Inclusion. With a personal journey that embodies resilience and a professional background deeply rooted in disability advocacy, Stenberg is poised to lead the charge in developing a comprehensive vision for disability inclusion throughout the university.
A Journey of Resilience and Advocacy
Hailing from a humble background as a first-generation, developmentally disabled college graduate from rural Minnesota, Stenberg brings a unique perspective to his new role. Over the years, he has tirelessly championed the rights of the disability community through a multifaceted approach that includes public speaking, policy work, research, consulting, and even the performing arts. In addition to his responsibilities at Johns Hopkins, Stenberg actively participates in disability rights advocacy organizations, such as the National Museum of Disability History & Culture steering committee and the Pennhurst Memorial and Preservation Alliance board of directors.
A Facilitator and Collaborator
Stenberg’s philosophy as he embarks on his mission within the Office of Diversity and Inclusion at Johns Hopkins is clear: he sees himself as a facilitator and collaborator, emphasizing the importance of genuine human connections in fostering disability inclusion. In an age of faceless email communication, he believes that listening is paramount to the success of his work. Operating within a decentralized institution like Johns Hopkins, Stenberg’s goal is to unite individuals, encourage collaboration, and assess existing processes to drive forward disability inclusion initiatives. His vision is to build upon the groundwork already laid, ensuring it serves as a sturdy foundation for broader, more encompassing endeavors.
A Diverse Path to Leadership
The diversity of Stenberg’s life experiences is evident in the many hats he has worn throughout his journey. From his early days as a farmhand and landscaper to his time working in various restaurants, his career path has been diverse and rich. Beyond this, he has trained as a musician, sound engineer, and personal trainer. His transition into public speaking and, more recently, film making has allowed him to make his research more accessible to the general public. Prior to his tenure at Johns Hopkins, he immersed himself in the field of disability policy in Washington, D.C., exploring issues that extend beyond well-known disability legislation.
In discussing what Johns Hopkins is already doing to promote inclusivity, Stenberg highlights the creation of his role as a significant step forward. He commends the institution for its introspection and acknowledgment that it had not fully lived up to its stated values regarding the inclusion of under served groups, including the disability community. He praises Johns Hopkins for putting resources behind its commitment to diversity, equity, and inclusion. Stenberg believes that this commitment offers an opportunity to dream big and work together to make Johns Hopkins a global leader in disability equity, innovation, and culture.
From all of us at AmeriDisability, we congratulate Nathan on his new position. We look forward to witnessing the positive changes he will bring to Johns Hopkins University and the broader disability community. Cheers to his new role and the transformative impact it will have!
Tax Day was introduced in 1913 when the Sixteenth Amendment was ratified. And while the deadline to submit tax returns hasn’t changed much since 1955 — when April 15 became known as Tax Day — opportunities for tax benefits have changed. People with disabilities in the United States may be eligible for various tax deductions and credits to help offset the costs associated with their condition. First, the following tax tips and resources may be helpful for some people within the disability community. Next, additional tips focused on maximizing tax benefits for inclusive businesses are also suggested.
Maximizing Tax Benefits for Individuals with Disabilities
Medical Expense Deduction: Individuals with disabilities may be able to deduct certain medical expenses that exceed 7.5% of their adjusted gross income. This includes
expenses for equipment, therapy and transportation to and from medical appointments.
Disability Income Exclusion: If you receive income from a disability policy that you paid for yourself, you may be able to exclude that income from your taxes.
Tax Credit for Caregivers:Caregivers of dependents with disabilities may be eligible for a tax credit of up to $500.
Specially Adapted Housing Deduction: Certain expenses for the construction or renovation of a home to accommodate a disability may be tax-deductible.
Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) benefits are not taxed, so people with disabilities who receive these benefits will not have to pay taxes on them. You can find information on these tax benefits and more on the Internal Revenue Service (IRS) website. Additionally, the National Disability Rights Network (NDRN) is a good resource for information and support for people with disabilities.
Publication 907 Tax Highlights for Persons With Disabilities
Publication 907 Tax Highlights for Persons with Disabilities is a publication created by the Department of the Treasury Internal Revenue Service that provides information and guidance on various tax benefits, credits and deductions that may be available to individuals with disabilities and their families.
Note: It is recommended to consult a tax professional for personalized and detailed advice.
Maximizing Tax Benefits for Inclusive Employers
As a business owner, it is important to not only provide equal opportunities for all employees but also to understand the various tax benefits available for accommodating people with disabilities. Accommodating individuals with disabilities not only promotes diversity and inclusion in the workplace but can also provide significant tax savings for a company. Consider:
The Americans with Disabilities Act (ADA) Tax Credit: This credit is available to
businesses that make their facilities accessible to people with disabilities. The credit is
equal to 50% of eligible expenses, up to $10,250 per year.
Disabled Access Credit: Small businesses with 30 or fewer employees and $1,000,000 or less in gross receipts can claim a credit of up to $5,000 for expenses related to providing accessibility for people with disabilities.
Disabled Access Credit: This tax benefit allows eligible small businesses to claim a credit of up to $5,000 for expenses related to making their facilities accessible to individuals with disabilities. This credit can be claimed annually and can be used to cover costs, such as installing ramps, elevators or other accessibility equipment. The IRS provides additional details surrounding this credit on its website.
Architectural and Transportation Barrier Removal Deduction: This deduction allows eligible businesses to claim a deduction of up to $15,000 per year for expenses related to removing architectural and transportation barriers for individuals with disabilities. This deduction can be used to cover expenses such as widening doorways or installing wheelchair ramps. Again, additional information is outlined by the IRS.
Dreamstime
More Tax Tips for Inclusive Businesses
In addition to these tax benefits, it’s also important to note that under the Americans with Disabilities Act (ADA), businesses with 15 or more employees are required to make reasonable accommodations for individuals with disabilities. This includes providing assistive technology, adjusting work schedules and making physical changes to the workplace. The U.S. Department of Justice’s Civil Rights Division provides more information about the ADA and the requirements for businesses on its website.
To learn more about these tax benefits and how to apply them to your business, visit the Small Business Administration’s (SBA) website which has an overview of the
tax benefits for small businesses that comply with the Americans with Disabilities Act (ADA); and also review guidance housed on the IRS’s website for details on the Disabled Access Credit and the Architectural and Transportation Barrier Removal Deduction.
By understanding the various tax benefits available, business owners can make informed decisions about how to better accommodate people with disabilities while potentially saving in taxes. Simply put, maximizing tax benefits for accommodating people with disabilities is smart business!
SB 784, also known as ‘Protect Our Loved Ones Act’, maintains the “Special Persons Registry’ database in Florida, which took effect on January 1, 2024. It is a specialized registry for people with disabilities to improve their interactions with law enforcement. This registry, detailed in House Bills 1275 and 1277, includes guidelines for listing individuals and controlling access to the information.
The purpose of the registry is to inform law enforcement about a person’s disability, preventing misinterpretations of behaviors that could be wrongly perceived as hostility or criminal intent. Other Florida programs like Smart911 in Sumter County, and CARES (County Autism Response & Enhanced Services) in Seminole County, exemplify efforts to alert first responders about someone’s disability by use of an identification bracelet program.
Enrollment in the Registry
Enrollment in the registry requires a confirmed diagnosis from a healthcare professional. The registry contains personal and disability-related information, and individuals can request removal from the registry. Access to this information is limited to first responders and is exempt from public records requests.
The registry, which is voluntary, requires proof of disability and, if applicable, proof of guardianship for registrations made on behalf of someone else. It is hoped that this registry will assist especially in situations involving missing persons with special needs, providing vital information to narrow down search efforts.
Registry Concerns
Despite its potential benefits, the effectiveness of the law in broader scenarios involving distressed individuals remains to be seen. Concerns have been raised about the high incidence of fatal police encounters involving people with disabilities. Advocacy groups like Disability Rights Florida emphasize the need for better training for law enforcement and equitable rights access within the justice system for those with disabilities.
While the registry is a progressive step towards accommodating the needs of individuals with disabilities, its impact on changing law enforcement practices and ensuring safer interactions is yet to be fully evaluated.
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Emergency services play a crucial role in the well-being and support of individuals with disabilities, particularly those with intellectual and developmental disabilities (I/DD). These services are vital because individuals with disabilities may face unique challenges during emergencies, requiring specialized care and assistance. In moments of crisis, individuals with I/DD may experience heightened anxiety, communication difficulties, or specific behavioral needs that necessitate immediate and tailored intervention. Columnist Jeff Edelstein of The Trentonian reported on expanded emergency services happening in New Jersey.
“Commissioner Sarah Adelman of the New Jersey Human Services department has announced significant enhancements to the statewide emergency services programs aiding adults with intellectual and developmental disabilities (I/DD).
Contracts have been awarded to three organizations—Community Options, Inc., Community Access Unlimited, and Oaks Integrated Care—to manage emergency capacity services (ECS) programs across the state. These ECS programs specifically cater to individuals with I/DD, including those with acute behavioral needs requiring immediate residential and day program support. The funding secured will ensure round-the-clock availability for admissions, seven days a week, 365 days a year, with continuous 24-hour coverage.
Referrals to the ECS programs are made by the Human Services’ Division of Developmental Disabilities. While the Division has previously managed ECS programs, these new contracts aim to bolster behavioral support and improve service delivery in various aspects.The services offered are intended to be short-term, spanning no more than 60 days, prioritizing the health and safety of the individual while devising a plan for permanent supports.
In addition to primary services, ancillary support such as recreational activities and transportation to and from community services—including day services or transitional activities—will be included. If alternate day services are unavailable upon admission, daytime activities will be provided. Moreover, transportation to day services, routine and specialized medical care, mental health support, and other necessary services will also be offered.
All new programs are mandated to be licensed, open, and operational by June 30, 2024.”
By providing timely and specialized care, these services help prevent further escalation of issues, promoting the individual’s physical and mental well-being. Furthermore, such services facilitate a coordinated and collaborative approach among various stakeholders, including government agencies, healthcare providers, and community organizations, to ensure that individuals with disabilities receive the support they need during challenging circumstances.
The commitment to enhancing emergency services reflects a broader societal recognition of the importance of inclusivity and equitable access to critical care for all members of the community.
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In the journey of motherhood, some mothers navigate challenges that redefine the conventional norms of nurturing. Jennifer McLelland, mom to James, shares her heart-wrenching yet inspiring story, whose unwavering love and determination have become the guiding lights in her son’s life. Born with disabilities that necessitated the use of a feeding tube, this resilient child faced a unique set of obstacles in learning to eat.
Through this mother’s story, you will understand the profound struggles and triumphs entwined in the quest to instill a fundamental aspect of people — the act of eating — into a life touched by extraordinary circumstances. It is a must-read for parents transitioning their child to a feeding tube.
“James’ relationship with food is complicated. He was tube fed for most of his early life, first with formula, and later with food processed in a blender. Now, at age 12, he gets about half of his calories from food and relies on Pediasure—vitamin-fortified formula—to get enough calories. For years, I felt guilty about the Pediasure. Every can made me feel like I was failing to give him “real” food. It took me years to accept that food doesn’t have a moral value. Feeding your child easily digestible food so they get adequate nutrition isn’t a weakness. Food doesn’t have to be a source of joy. It can simply be a source of nourishment.
This isn’t so much a story about how my son learned to eat as it is a story about how I came to terms with how he eats. The fact that my son hated food from a young age because his disabilities made the act of eating painful and scary made every mealtime hard. And for the longest time, I blamed myself.“
Jennifer’s journey of a mother’s dedication to teaching her child to eat, is evident that love and resilience can triumph over even the most challenging circumstances. This family’s story serves as an inspiration to many facing similar battles. For those seeking support and resources to assist children reliant on feeding tubes, the organizations and businesses listed below stand ready to lend a helping hand.
Advocacy Services
Nestle Health Science provides tube feeding resources and information for individuals, parents and caregivers.
The Oley Foundation is a non-profit home nutrition therapy community and advocacy group for those living with tube feeding or IV nutrition.
Dysphagia Outreach Project is a non-profit whose mission is to collect and distribute dysphagia supplies to those in need, as well as provide advocacy and education services.
Meal Services
Real Food Blends provides nutritious packaged meals to supplement a feeding tube formula-only diet.
Feeding Tube Supplies
Amazon offers a wide array of feeding tube supplies. Disclaimer: AmeriDisability may get a small commission for products purchased using this link, at no cost to you. This helps support our site.
By connecting with these resources, parents and caregivers can find a community that understands their unique journey and access the knowledge needed to provide the best possible care for their children. Together, we can foster a supportive environment where every child, regardless of their challenges, can thrive and flourish.
An article by Hansi Lo Wang with NPR is a must read for everyone with a disability. The recent Census Bureau proposal aims to modify the methodology for estimating the number of people with disabilities in the United States. The proposal has sparked debates among disability advocates who express concerns about potential changes to the disability questions on the annual American Community Survey, fearing it could impact the accuracy of government statistics and allocation of federal funding.
“A proposal to change how the Census Bureau produces a key set of estimates about the number of people with disabilities in the United States has sparked controversy among many disability advocates.
Some are concerned that the potential revisions to the disability questions on the bureau’s annual American Community Survey, as well as how the bureau reports out people’s responses, could skew the government’s official statistics. That in turn, advocates worry, would make it harder to ensure that disabled people have access to housing and health care, enforce legal protections against discrimination in schools and at work, and prepare communities for disasters and emergencies.”
The proposed changes by the Census Bureau to redefine how disability is assessed and reported hold significant implications for individuals with disabilities. This topic is of paramount importance as it directly influences the accuracy of data that underpins policy decisions, resource allocation, and legal protections for disabled individuals. The potential alterations in the disability questions on the American Community Survey could impact the visibility of the disabled population, potentially affecting access to crucial services such as housing, healthcare, and education.
For people with disabilities, the outcome of this proposal could shape the extent of societal inclusion, the enforcement of anti-discrimination laws, and the overall responsiveness of communities to their unique needs. Thus, the controversy surrounding this Census Bureau initiative highlights the broader significance of accurate and comprehensive data in ensuring equitable representation and safeguarding the rights of individuals with disabilities.
The holiday season is a time of joy, celebration, and togetherness. However, for individuals with disabilities and their families, it can also present unique challenges. Navigating accessibility during the holidays requires thoughtful planning and consideration to ensure that everyone can fully participate in the festivities. In this guide, we’ll explore various aspects of accessibility and provide practical tips to make the holiday season more inclusive for all.
Accessible Decorations and Lighting:
Decorating the home is a cherished tradition during the holidays, but it’s essential to consider the needs of individuals with sensory sensitivities. Opt for decorations that are visually appealing without being overwhelming. If using lights, choose options that are not too bright or that can be dimmed. Consider using tactile elements like textured ornaments for individuals who are visually impaired.
Accessible Gatherings:
Hosting or attending holiday gatherings requires careful planning to accommodate everyone. Ensure that the venue is wheelchair accessible, and there are ramps or alternative entrances if needed. Arrange seating to allow for easy maneuverability, and consider providing a quiet space for individuals who may need a break from the festivities.
Accessible Menus and Dietary Restrictions:
Food is a central part of holiday celebrations, and it’s crucial to consider dietary restrictions and preferences. Clearly label dishes and provide information about common allergens. If hosting a gathering, inquire about dietary restrictions in advance to accommodate everyone’s needs.
Traveling with Accessibility in Mind:
For those traveling during the holidays, whether by car, plane, or public transportation, accessibility is a key consideration. Research and choose accessible accommodations, and inform transportation providers of any specific needs. Ensure that the chosen mode of transportation can accommodate mobility aids and assistive devices.
Image credit: Dreamstime
Inclusive Gift Giving:
When selecting gifts, consider the recipient’s needs and preferences. Opt for gifts that are accessible and usable by individuals of all abilities. If you are unsure, don’t hesitate to ask the person or their caregiver for guidance. Additionally, consider wrapping gifts in a way that makes them easy to open for everyone.
Accessible Holiday Events in Your Community:
Many communities offer festive events during the holiday season. Check local listings for accessible events and activities that cater to a diverse audience. Ensure that event organizers prioritize accessibility and inclusion in their planning.
Communication and Social Inclusion:
Communication is key to creating an inclusive holiday experience. Be mindful of diverse communication needs, such as sign language interpretation or providing written information for individuals who are deaf or hard of hearing. Foster an inclusive atmosphere by actively engaging everyone in conversations and activities.
Online Celebrations for Remote Participants:
In an increasingly digital world, some individuals may participate in holiday celebrations remotely. Ensure that virtual gatherings are accessible by using platforms that support closed captioning, screen readers, and other assistive technologies. Share resources and tips for making virtual celebrations inclusive for all.
Image credit: Dreamstime
Managing Sensory Overload:
Holiday festivities can sometimes lead to sensory overload for individuals with sensory sensitivities. Provide a quiet space where individuals can retreat if they need a break. Consider using noise-canceling headphones or providing sensory-friendly activities to help manage sensory stimulation.
Advocating for Inclusion:
If you encounter barriers to accessibility during the holidays, don’t hesitate to advocate for change. Engage with event organizers, businesses, and local authorities to raise awareness about the importance of inclusivity. Your advocacy can contribute to creating a more accessible community for everyone.
The holiday season is a time for celebration, gratitude, and connection. By embracing the principles of accessibility and inclusivity, we can ensure that individuals with disabilities, their families, and caregivers can fully participate in and enjoy the festivities. Let’s work together to create a holiday season that is truly joyous for everyone, regardless of ability.
Dog lovers around the world are ready to fill your social media feeds with the cutest puppy pictures. That’s because National Dog Day is celebrated each year on August 26th. This happy hound holiday honors all dogs (mixed breed and pure), promotes the importance of animal rescues and the many important roles that dogs have to impact the human race – i.e., personal protection, law enforcement assistance, disability service and health companions, to name a few. AmeriDisability is pleased to spotlight the following businesses, each of which make dog treats; and just so happen to be owned and/or operated by persons with varying disabilities.
The kitchen wasn’t always Allison Fogerty’s favorite place to be; nor was food consumption an enjoyable pastime. Allison was born with Down syndrome and Tracheoesophogeal Fistula, a rare condition resulting in an abnormal connection between the esophagus and trachea (windpipe), which required her to have a trach tube to breathe. As a tween, Allison was also diagnosed with a laryngeal cleft, an abnormal opening between the larynx and the esophagus through which food and liquid can pass through the larynx into the lungs; thus Allison relied on a gastrostomy tube (G-tube), a surgically placed device that grants direct access to one’s stomach for feeding. Several surgeries later, Allison’s health has improved; and the health of animals has become her top priority.
Image credit: Doggie Delights by Allison
Inspired by her complicated food journey, Allison uniquely understands the importance of healthy nutrition for both people and their pets. Now her kitchen, aka the home-base of Doggie Delights by Allison, is her happy place where she whips up treats using all-natural ingredients. And the company motto says it all: “Your Best Friend Deserves the Best Treats!” Doggie Delights’ products are sold frozen or freeze dried to eliminate the need for preservatives. Allison sells these homemade bites at farmers markets in her hometown of Clermont (just west of Orlando, Florida), and also ships to any location via website orders.
Plus, this young female entrepreneur isn’t shy about making connections with fellow Fido owners in high places. Just recently, Allison received a letter from President Joe Biden thanking her for sending treats to his dogs, Major and Champ!
In 2007, Leigh Corrigan and Mary Ann Nolan of Wilmington, Delaware recognized that employment opportunities for young adults with intellectual disabilities, including their daughters Elizabeth and Maggie, weren’t plentiful in their area. So they cooked up a doggone solution by launching Waggies by Maggie & Friends, a nonprofit dog treat company with a mission to employ persons with disabilities. With direction of an advisory board, Waggies operates with about a dozen bakers who tackle equipment prep, ingredient measuring, additional baking steps, product labeling, kitchen restocking and miscellaneous business-oriented tasks.
Image credit: Waggies by Maggie & Friends
The result: Waggies produces vet-approved treats without preservatives. Flavor varieties like peanut butter, chicken and sweet potato are available in both bone-shaped biscuits and “WaggieBits” kibble. These pup-approved goodies are available for purchase at about 45 retail locations throughout Connecticut, Delaware, New Jersey, North Carolina and Pennsylvania; plus treats, clothing and gift items are sold through Waggies online shop.
Gracie Jagler of Watertown, Wisconsin launched her company, Gracie’s Doggie Delights, in 2016. Gracie, who has Down syndrome, was just 19 years old when her career took off. The key to her almost immediate success was tapping into her passion: her love of dogs. Serving as treat testers, Gracie’s three rescue schnauzers playfully participate in operations at Gracie’s Doggie Delights, which has become a collaborative business venture for the whole family — with Gracie at the helm, of course.
Because Gracie’s Doggie Delights are simply made – using just one ingredient (freeze dried USDA inspected meat) – the company’s products have been praised by veterinarians. For example, Dr. Amy Hudson of Johnson Creek Veterinary Care proclaims, “I choose Gracie’s treats because of the natural, limited and high-quality ingredients. I particularly love the benefits of organ meat, such as liver and hearts, for the health of my patients. Gracie’s Doggie Delights makes it fun and easy to give your pet a power-packed, high nutrition treat that your dog will thank you for.” Similarly, Dr. Debbie Reynolds of Veterinary Home Health Care shares, “Our patients love Gracie’s treats and we love providing them with a high-quality product with no fillers or artificial ingredients. With so many pets suffering from food allergies and sensitivities, knowing there is only one ingredient in each treat reassures our clients that their pet can enjoy Gracie’s treats with no ill-effects.”
Image credit: Gracie’s Doggie Delights
Mutt owners on the hunt for healthy treats can explore Gracie’s diverse online selection of pet snacks, such as Beef Liver Delights, Chicken Heart Delight, Turkey Gizzard Delights, Cheese Curd Delights and many others. And Gracie’s offers pet shampoo, collapsible water bowls, paw balm and more.
The Arc of Greensboro is a nonprofit committed to identifying and securing life-long opportunities for children and adults with intellectual and developmental disabilities. One of Arc’s most successful endeavors launched in 2011, when parent Pat Clapp, whose son David has Down syndrome, established arcBARKS Dog Treat Company with the help of Ruth Edwards, who then served as Executive Director of The Arc of Greensboro. arcBARKS specifically aims to provide vocational training for individuals with disabilities.
arcBARKS claims their treats are infused with an extra “special” ingredient that really makes a dog’s tail wag: love! Peanut butter and pumpkin are the stand-out ingredients in arcBARKS’ products, which are sold via an online store, in addition to tons of retail locations nationwide. For hefty, hungry hounds, opt for the Big Bone, a large 8×3.5 treat handmade with flour, oats, freshly ground peanut butter, oil and water (oh, and a heaping of that love we noted). Also, arcBARKS now offers convenient monthly subscription boxes, which includes two to four packages of treats, a dog bandana and early access to new products. If you’re not a pet owner but still want to support the work of arcBARKS, monetary donations are accepted.
Born prematurely, Patrick Lewis has cerebral palsy and is blind. Yet, he has a clear vision for his company, Purely Patrick. Patrick specializes in homemade gourmet goods, which he prepares using assistive technology. “I use a pouring device that is activated by a switch that I control,” he says; adding, “I have the help of my mother and two job coaches to ensure the measurements of my products are correct.”
Purely Patrick sells at craft fairs and farmers markets in Vermont, in addition to online. His dog treat creation lets home bakers sink their paws (whoops, we mean hands) into the baking process. The dry dog treat ingredients (either wheat or rice-based) come stacked in a bottle, along with a cookie cutter. Purely Patrick also prepares specialty bird seed, as well as people food including an array of soups, cookies and breads.
Kudos to these pooch-perfect businesses! AmeriDisability wishes all dog lovers a special tail-wagging National Dog Day.
When a child undergoes treatment for a life-threatening illness, the parents often feel debilitated themselves — physically, emotionally and spiritually. On top of the strenuous demands of families’ personal and professional lives, navigating essential treatments can be taxing; and that includes worrying about healthcare expenses. While a child’s life is, of course, priceless, care is costly. Medical debt can quickly add up. Thankfully, for nearly two decades, one nonprofit has worked to ease financial hardships so parents can pay attention to their child’s health, rather than worry about medical debt and basic needs.
“There is an economic burden that comes when children are diagnosed with a life-threatening illness,” explains Autumn Strier, chief executive officer and co-founder of Miracles for Kids. “Our mission is to try and help offset that, relieving some of the financial burdens with our programs so parents can focus on their family during these difficult times.”
(Autumn Strier, chief executive officer and co-founder of Miracles for Kids, hosts program and events to help families with financial aid, housing, food, basic necessities, counseling and more. | Miracle for Kids)
Based in Orange County, California, Strier co-founded Miracles for Kids to aid families in her own community and beyond. Under her dedicated leadership, Miracles for Kids has raised a whopping $43 million since its inception in 2004. The nonprofit’s monetary assistance efforts have increased greatly since its founding, and it now provides financial aid, housing, food, basic necessities, counseling and other long-term stability services for 2,000+ families with children battling over 150 life-threatening illnesses and/or debilitating conditions.
Nearly a quarter of Americans have medical debt.
Birth defects affect one in every 33 babies born in the U.S. each year, according to the CDC. That translates to about 120,000 babies. Each year, total hospital costs for U.S. children and adults with birth defects exceed $23 billion, not including outpatient care or many provider charges. Plus, many more children are diagnosed with life-threatening illnesses or disabilities at a later time during childhood.
A LendingTree survey found that 23% of Americans currently have medical debt, with another 22% reporting they’ve previously had medical debt. The same survey also found that parents with younger children have a higher rate of medical debt compared to those with older children or those without children. 30% of parents with children younger than 18 years of have have medical debt, versus 20% of those without children and 19% of those with only adult children.
Many nonprofits have a mission related to childhood illnesses and/or disabilities but direct funding to research and programs. Surprisingly, there aren’t a lot of nonprofits that offer financial assistance directly to patients and families. And even with health insurance, out-of-pocket costs for premiums, co-pays and deductibles can cost families thousands of dollars per year. Not to mention the many families that are uninsured and/or underinsured.
(Shutterstock)
“The last thing families should have to do when faced with their child having a life-threatening illness is to worry about how to pay bills or purchase necessities,” added Strier. “We have worked hard over the years to build four core programs that really help our families survive; such as paying bills, offering counseling, providing housing and basic necessities.”
Adding to its support services, Miracles for Kids recently launched its fifth initiative. The Pillars Stability Program is designed to help families with a critically ill child achieve long-term stability. The program helps members of the family with aspects of education, financial literacy and employment.
The mission of Miracles for Kids is made possible through the generosity of financial donors, corporate partnerships, community programs and volunteers. To learn more, visit MiraclesForKids.org.
