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Disability-Serving Website Features Virtual Tours for Accessibility Awareness

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By Meegan Winters

Losing my best friend was one of the best things that ever happened to me…

Almost five years ago, I lost my dear friend Jessica as a result of her lifelong battle with muscular dystrophy (MD), a genetic condition that results in weakening and deterioration of muscles in the body.

Jessica spent her whole life in a wheelchair, watching others experience things she thought she could never. Fortunately, she was born into the most amazing family ever! They never ever let disability impact her experiences in life (or her brother’s, who also has MD). They took several family vacations, included her in community events, had wild and crazy parties at their house and even had the courage to send her off to Central Michigan University where she nearly completed her master’s degree.

As a result of Jessica’s muscular dystrophy, she required assistance for many of her daily needs: dressing, using the restroom, taking a bath, picking things up off the ground, brushing her hair and other daily activities so many of us take for granted. Her ability to navigate life, advocate for herself and show so much compassion for others (never feeling sorry for herself) was admirable and incredible to say the least.

Jessica and I lived together at Central Michigan University; and although I have many stories of our fun times, I will keep those to myself for now! This was probably the first time I truly understood how challenging accessibility can be. It was our goal to not hold back due to her disability, but the reality is that some bathrooms were impossible to get into, house parties were very challenging (but luckily plenty of strong, drunk fellas were there to help lift her chair) and trying something new was always a risk because it may be an hour before the taxi with a lift would be able to come back to pick us up.

Meegan Winters founded Able Eyes, a disability focused website.
photo courtesy of Meegan Winters

Seeing The Next Impactful Chapter

During the last few months of Jessica’s life is when I learned the most. She was suffering, she was unhappy, she wasn’t even able to eat solid foods anymore (one of her favorite things to do… haha). I selfishly didn’t want to let her go though. How would I survive not talking to her every day? Jessica assured me that she would be with me even after she passed and she would be happier than ever. I believe both of these statements now. She IS with me on the journey creating Able Eyes, a website I launched that is designed to help people with both physical and invisible disabilities access the community with ease and comfort. This is what she would have wanted to do and I believe this journey is in honor of her and also a part of her.

Quite simply, it is because of her passing that this amazing digital service was developed, and Jessica and I are both able to follow our true paths and passion for helping others. In addition to my experience with Jessica, I’ve also worked with children and adults on the autism spectrum for over 15 years as a teacher and administrator, which has enhanced by drive to help others.

What is Able Eyes?

Here’s a Q&A with everything you need to know about Able Eyes.

1. What is Able Eyes?  

Able Eyes (www.AbleEyes.org) is diligently working to create inclusive communities on a national scale through the use of 360 virtual tours of public spaces. Able Eyes does not rank or judge accessibility of locations. You are able to put in your zip code to view the businesses in your area that have virtual tours to allow patients to become more comfortable with the space before physically visiting.

Able Eyes believes in helping ALL members of your community (and communities across the US) access local businesses without stress. We help people “Know Before You Go” by creating or adding virtual tours to our website for people of all abilities but specifically for those with physical and invisible disabilities.

For businesses, Able Eyes virtual tours offer a creative option to help the community while gaining a powerful marketing tool for website and social media use.

Able Eyes helps businesses promote accessibility.
Meegan Winters shows an Able Eyes business. | photo courtesy of Able Eyes

2. Why Able Eyes?

26% of the population now has a disability (1-in-4). Of that 26%, 80% are invisible (autism, anxiety, PTSD, ADHD, etc). Currently, we do not have any accommodations in place to help those with invisible disabilities access the community. Able Eyes helps both, as well as those without disabilities that like to use virtual tours.

As a special educator and administrator working with students on the autism spectrum, I identified a need and the importance of a tool such as Able Eyes several years before I actually took action. So many families are NOT going out into the community if they have a child or family member with special needs. This could be the unknown accessibility for a wheelchair user, the lack of predictability for a child on the spectrum or any number of challenges one might face with different needs. In all scenarios, both the family and the individual are sacrificing their quality of life, their potential and their experiences because of the unknown. Able Eyes is the window to the future that will help change all of this. One story will always stand out to me: when I was a teacher in the classroom, I had a parent call one morning in tears. Of course, I immediately assumed something was wrong or she was upset. But, in fact, they were happy tears! She went on to tell me the very detailed story of her family’s VERY FIRST trip out to a restaurant as a family of four (her son was 10-years-old). Could you imagine 10 years passing and never having an opportunity to experience a meal out as a family?

3. Who is Able Eyes for?

The primary users are parents, teachers, therapists and individuals of various abilities. In addition to to the virtual tours, Able Eyes also has a Video Modeling library; short “how to” or “what to expect videos” to either teach expectations or prepare a person for an upcoming activity. The primary goal is to ensure all people  are comfortable, have access and have the tools to live their best life.

The Able Eyes Mission

  • Do you know someone with autism? If you do, you know that visiting new locations can cause a LOT of anxiety and sometimes results in loud, disrupting and even destructive behaviors.
  • Do you know a person that uses a wheelchair? If you do, you know that going out into the community can be a challenge because of curbs, parking, small restrooms, steps, etc.
  • Do you know someone that has experienced trauma or has anxiety? If you do, you know that something that seems simple to many can feel like drowning, such as large crowds, tight spaces or anything out of the ordinary.
  • Do you know anyone with or without a disability that experiences challenges out in the community?
  • Do YOU often Google places to learn more, read a menu or take a tour before you visit?

The mission of Able Eyes is to provide visual, state of the art experiences/teaching tools to children and adults with disabilities. Able Eyes provides a user friendly platform to teach skills, and explore environments from several different perspectives. Our ultimate goal is to make businesses and public venues more accessible for people of all abilities by offering visual tours, making them “Able Eyes Accessible.”

Able Eyes is a disability website with virtual tours.

Here’s How Equine Therapy Benefits People with Disabilities

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In the past two decades, an overriding concern for educators, public health experts and policymakers has been the steadily rising number of children with special needs. According to estimates by the Centers for Disease Control and Prevention (CDC), one in seven children is affected by some form of disability, which places a severe strain on public resources and takes a heavy toll on families — both from an emotional and financial perspective.

In recent years, some of the attention has shifted to alternative solutions, and equine-assisted therapy (EAT) is proving to be especially effective for children with special needs, explains Alexa Rostovksy, a student at the Harvard-Westlake School in Los Angeles, California. She has witnessed the benefits first-hand through her involvement with Ahead With Horses, a nonprofit organization helping children with disabilities maximize their potential through developmental therapy, education and recreation.

Equine therapy benefits people with disabilities.
photo credit: Ahead With Horses

In EAT, individuals interact with horses and therapeutic riding instructors to acquire communication, socialization, motor control and sensory processing skills. Through a series of exercises, children with severe disabilities apply traditionally practiced methods while engaging with the animals and performing tasks in motion on horseback. This provides a multi-dimensional challenge in an environment outside of their familiar one. “It is incredible to witness a little boy go from barely standing up by himself to being on top of a moving horse with a wide smile on his face. I have met many parents who tell me the therapy has transformed their child’s life,” says Alexa Rostovsky who works with kids who have disabilities or behavioral issues or come from troubled backgrounds. With support from volunteers like her, they meet and bond with their assigned horse, climbing atop it and learning to ride. The activity has been shown to build core strength as well as help children gain self-esteem, discipline and empathy while also experiencing joy.

EAT is often used in treating a wide spectrum of conditions, among them substance abuse, behavioral disorders, learning difficulties, ADD/ADHD, autism, Asperger’s, grief, loss, trauma, bipolar disorders and depression. “Horses have no preconceived expectations or motives, and they are non-judgmental, highly intelligent and exceedingly perceptive, so they connect with people in a completely new way,” Alexa Rostovsky points out, adding, “This is different from anything these children have experienced at school. It is not about discipline or grading but about facing something entirely foreign and reaching their own milestones. Witnessing the confidence and pride that comes with accomplishing something so new to them is exceptionally rewarding.”

Horse therapy is a unique animal-therapy approach.
photo credit: Ahead With Horses

All Dental Schools to Train Students to Manage Treatment of People with Intellectual, Developmental Disabilities

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As recommended by the National Council on Disability (NCD), all U.S. dental schools must now revamp their curricula and training programs to be inclusive of patients with intellectual and developmental disabilities (ID/DD).

The Council on Dental Accreditation (CODA) recently passed votes requiring dental schools to now train their students in managing treatment of patients with ID/DD. Previously, patients with ID/DD were largely unable to obtain dental care treatment because dental students were simply not required to learn to manage their treatment.

“Every dental patient in America deserves the same care, whether or not they have a disability,” said NCD Chairman Neil Romano. “NCD applauds this decision that we view as necessary for people with ID/DD to obtain critical access to dental treatment, which is critical to the total health of all people.”

CODA held and passed four related votes regarding the predoctoral dental, orthodontics, dental hygiene, and dental assistant programs:

For predoctoral programs and orthodontics programs, dental students must be trained to assess and manage the treatment of patients with “special needs.”

For dental hygiene programs, students must be competent in providing care to “special needs” patient populations.

For dental assistant programs, students must be familiarized with patients with “special needs” including patients whose medical, physical, psychological, or social conditions make it necessary to modify normal dental routines.

CODA generally defines people with “special needs” as people with developmental disabilities, cognitive impairment, complex medical problems, significant physical limitations, and the vulnerable elderly.

Changes for the predoctoral dental, dental hygiene, and dental assistant programs are required to take effect by July 1, 2020, with changes to the orthodontics programs required by Jan. 1.

Dental schools are focusing on patients with special needs.
photo credit: American Dental Association

NCD first made recommendations to CODA following its 2017 issue brief “Neglected for Too Long: Dental Care for Patients with Intellectual and Developmental Disabilities,” in which NCD’s findings included:

  • Adults with developmental disabilities are at risk for multiple health problems including poor oral health.
  • People with I/DD regularly face an uphill battle in finding clinicians properly trained to treat them because most dentists lack the proper training and exposure with respect to the health and psychosocial needs of this population.
  • According to one study, more than 50 percent of dental and medical school deans have stated that their graduates are not competent to treat patients with I/DD; as a result, people with I/DD are more likely to have poor oral hygiene, periodontal disease, and untreated dental caries than are members of the general population.
  • People with I/DD have been more likely to not have had their teeth cleaned in the past five years, or never to have had their teeth cleaned, than those who are not disabled.
  • Due to the lack of proper skills among dentists, dental care is often more difficult to find than any other type of service for people with I/DD.

Last year, NCD successfully worked with the American Dental Association to revise its Code of Professional Conduct to state that “dentists shall not refuse to accept patients into their practice or deny dental service to patients because of the patient’s disability.” This code revision was adopted by many states as state law of professional conduct.

Feature image credit: Wikipedia

5 Tips for Caregivers to Take Care of Themselves Too

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The following is written by Elluz Peraza, the community specialist and radio show host and producer for CV Global. She provides care for her 100-year-old mother, who lives with her. Peraza is a former actress and was Miss Venezuela 1976.

According to AARP, more than 40 million people in the United States are providing care for an older or aging loved one – and 7 million of us are Latinos. That doesn’t come as any surprise to members of our community. It’s simply what we do for family. For many, caregiving starts with simple errands and to-do items, like scheduling a doctor’s appointment or helping out with grocery shopping and, then, expands to more responsibilities over time.

It’s a beautiful thing to do what we can for the people we love, but there are also moments when we can feel worn out or stretched too thin.

When you look at the numbers, it’s clear how hard we’re working. Nearly 7-in-10 Latino caregivers work outside the home. 1-in-3 provide more than 40 hours of care to loved ones each week. You do the math. It doesn’t add up to much time for the “life” side of a caregiver’s work-life balance.

That’s why AARP and the Ad Council started a Caregiver Assistance campaign to offer information and free online resources for caregivers. On AARP’s Family Caregiving site, there are wellness tips, planning resources, financial guidance and Care Guides tailored to specific topics and challenges, such as caring for a loved one with dementia. It also includes self-care tips and advice for caregivers.

Throughout my own caregiving experience, here are some helpful tips I’ve learned along the way:

1. Care for yourself.

You cannot care for your loved ones unless you care for yourself. It’s important, not only to your mental well-being, but your physical well-being, too. Caregivers have a higher-than-normal rate of getting sick, and are oftentimes so depleted that they can’t care for either their loved one or themselves. Look after your own health by eating well-balanced meals, exercising, getting enough sleep and taking time off.

2. Stay organized with handy tools.

You’re probably already an expert at organizing documents and medical cards, insurance papers and everything else. Make your life a little easier by leaning on free resources that can help you keep everything together! There are a ton available for your needs on AARP’s Family Caregiving site.

As a caregiver, remember your own self-care.

3. Remember to laugh.

Caring for someone with significant impairments or illness can be difficult emotionally, but laughter and lightness can exist there, too. Joke with your loved one – he/she is still the same person inside – and try to be amused by the little things.

4. Make future plans.

When a loved one you’ve been caring for passes away, it can come as a shock. You might feel like your purpose is gone and this can exacerbate the grieving process. Planning for the future will help relieve that shock for you, even if the plans aren’t concrete. Dream about the exciting roads ahead, and keep in mind all the incredible ways you’ve learned and grown through caregiving.

5. Accept help.

Whether it’s from other family members or outside sources, help is critical to caregivers. Start with the free resources that AARP can offer you at aarp.org/cuidar (Spanish) and aarp.org/caregiving (English) or feel free to call the hotline: 1-888-971-2013 (Spanish) or 1-877-333-5885 (English).

[BPT]

Depression Is Far More Sinister Than Sadness – And Women Are Particularly at High Risk

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I was about 31 when I was first diagnosed with major depression. I was married, had two beautiful kids ages 7 and 3, and owned a thriving business. Despite having plenty to live for, my usual happy mood had plummeted into despair. I’d lie awake at night ruminating about every minor thing I had ever said or done wrong – or imperfectly. During the day, I had no motivation to do anything. The most simple everyday tasks suddenly required extraordinary effort. My life felt utterly worthless, despite all evidence to the contrary, and I was engulfed in sorrow and hopelessness.

As days turned into weeks, I continued to spiral on a downward path. I became increasingly focused on death. I wasn’t suicidal, per se – though thoughts of the least painful methods of ending my suffering certainly swirled around in my mind. But I wanted nothing more than to fall asleep and never wake again.

Finally, unable to endure the emptiness any longer and terrified by my thoughts, I sought help. I was immediately started on an antidepressant and, within a few short weeks, the darkness lifted. I was my usual happy, energetic self once again.

But this was only the beginning of what would become a lifelong battle with depression. Over the past couple of decades, I’ve gone through far too many bouts of depression to count. Some have been mild and short-lived having little impact on my functioning despite the bleak and gloomy outlook looming over me. Other episodes have been major and affected all aspects of my life.

Most recently, I experienced my first dysthymic episode – a depression that lasted two years, cycling between mild and severe. I had become resistant to my long-trusted friend, Wellbutrin, and none of the many other medications I tried gave me any relief. It was when I finally found apsychopharmacologist who knew just the right cocktail (combination of medications) for me that my depression finally went back into remission.

People with depression often suffer from various forms. In addition to being diagnosed with major depressive disorder and dysthymia, I’ve also been diagnosed with seasonal affective disorder (SAD) and bipolar II (hypomania, rather than mania) with the depression component being the more severe problem for me.

It's best to consult with a psychiatrist.
photo credit: CDC

Women are particularly at risk for depression

Depression does affect both women and men. But, women are twice as likely to experience major depression according to Harvard Medical School. Women also experience higher rates of dysthymia, seasonal affective disorder (SAD), and the depressive side of bipolar disorder.

Depression, unlike the normal sadness everyone experiences from time to time, is a soul-sucking darkness that for many is debilitating. It causes feelings of hopelessness, helplessness, and worthlessness, and can affect every aspect of life from work and school to parenting, friendships, and the very basics of living.

For most women who’ve been diagnosed with depression in the past, when it begins to set in, the feeling is unmistakable. But for those who suffer from milder forms of depression and sometimes even those suffering from a first major depressive episode, they don’t immediately connect all the dots. So, some people can experience depression not realizing they’re suffering from a treatable illness.

Signs of depression

The symptoms of depression can range from mild to severe. Not everyone experiences every symptom. But several symptoms must be present for at least two weeks to receive a diagnosis of depression. The exact criteria for specific types of depression vary slightly. But the following are all indicators.

·     Feeling depressed (sad, empty, or hopeless) nearly every day for at least a couple weeks

·     Unusual irritability or difficulty controlling anger

·     Ongoing trouble sleeping or sleeping more than usual

·     An increase or decrease in appetite or significant unexplained weight loss or gain

·     Loss of interest or pleasure in all or most activities

·     Difficulty concentrating or making decisions

·     Feelings of fatigue or loss of energy

·     Excessive or inappropriate feelings of guilt or worthlessness

·     Visible psychomotor slowing down or agitation

·     Recurrent thoughts of death or suicide, with or without a plan, or attempted suicide

There are many types of depression.
photo credit: CDC

Types of depression

There are quite a few classifications, or types, of depression. The following are a few of the more common.

In a given year, major depressive disorder affects nearly 7% of U.S. population, according to the National Institutes of Mental Health (NIMH). During a major depression, almost all aspects of a person’s life are affected. It can be difficult for someone with major depression to find the motivation to do anything including such necessities as taking a shower. As a result of the impairment, both work and personal life suffer. In addition to the symptoms in the section above, 20% of people with major depression will also experience psychosis. This means they’ll experience hallucinations and delusions.

Dysthymia is diagnosed when a person has experienced depression for most of each day and on most days for at least two years. For many, it’s a lower level but enduring depression. But people with major depression who are treatment resistant can meet the diagnosis of dysthymia as well. So those with dysthymia can range from mild to severe impairment. Women, according to HealthFundingResearch.org, are three times more likely than men to suffer from dysthymia.

Those with seasonal affective disorder (SAD) become depressed only or primarily during a particular season. For most with SAD, it’s the fall and winter months with their shorter days and reduced sunshine. But some people experience SAD during the summer months instead. The onset of SAD is typically around the age of 20 and affects 10 million Americans each year.

Bipolar disorder affects 2.6% of American adults according to the NIMH. This treatable, but lifelong disease typically develops in women in their mid to upper 20s. For men, onset is usually in the teens to the early 20s. Bipolar is signified by its bouts of both mania (or hypomania) and its opposite extreme, depression. Though an individual with bipolar will experience both sides of the spectrum, in women, depression is often the most problematic while for men it’s the mania. Those with bipolar often experience psychosis during bouts of mania and sometimes with depression.

Postpartum depression is one of the forms of depression exclusive to women. According to the NIMH, 10-15% of women will develop it. Postpartum depression shouldn’t be confused with the “baby blues,” which is milder, short-lived, and related to the worry and fatigue of parenting a new baby. Instead, postpartum depression results from hormonal changes. During pregnancy, a woman’s hormone levels increase. But then immediately following childbirth, the hormone levels rapidly drop to normal levels. This ultimately results in depression in some women. Like other forms of depression, it can be mildly to severely debilitating.

Postpartum depression affects 10-15% of mothers.
photo credit: CDC

Causes

The exact cause of depression is unknown. But several factors likely contribute to the condition. According to the Mayo Clinic, those with depression have physical changes in their brains. These changes in the brain may eventually help researchers determine the exact cause of depression.

Depression is also known to be genetic because of the higher incidence of depression in those with blood relatives who suffer from the condition.

Brain chemicals called neurotransmitters play a role in depression. The Mayo Clinic explains that the way the neurotransmitters function and how they affect the neurocircuits involved in mood stability plays a significant role both in depression and its treatment.

Hormonal changes can also play a role in depression, particularly for women. During pregnancy and for several months following pregnancy women are especially vulnerable. Menstruation cycles and menopause can also trigger depression.

Treatment

In some cases, depression results from an underlying medical condition such as thyroid problems or low vitamin B levels. For this reason, it’s essential to visit your primary care physician for blood work to rule out other causes. If the cause of depression is the result of an underlying medical condition, treatment for that condition is likely all that’s needed to cure the depression.

If medical causes have been ruled out, then it’s best to consult with a psychiatrist. Although primary care physicians can treat depression, psychiatrists have specialized training in diagnosing the various forms of depression and experience in treating them. Psychiatrists often know which medications will work best for a particular patient based on a variety of factors. In fact, depending on the type of depression and the specific set of symptoms, some people with depression require a combination of anti-depressants, anti-anxiety medications, and mood stabilizers. Psychiatrists know how to tailor treatment to each individual for best results.

For those who are treatment resistant, look for a psychiatrist with the special ‘psychopharmacologist’ designation. Psychopharmacologists have gone through additional specialized training in how drugs affect the mind and behavior.

In addition to medication, many psychiatrists recommend cognitive therapy with a psychologist or behavioral therapist in conjunction.This can be helpful both in coping with the effects of depression as well as dealing with any underlying trauma or events fueling the depression.

Finally, for those with SAD, sitting under a light therapy box is often recommended and has been found to be helpful. You can order one online and, depending on your doctor’s recommendations, you can sit under it for 20-40 minutes each day.

Looking for similar content from AmeriDisability, read “How to Recognize Unusual & Distressing Anxiety Symptoms.”

Feature photo credit: NIMH

How Breast Cancer Can Increase Heart Disease Risk

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It’s common knowledge that therapies such as chemotherapy and radiation have saved the lives of millions over the years. In fact, it’s likely you even know someone who’s benefited from these treatments. If you’ve supported a friend or loved one through a cancer journey, you know the side effects most often associated with cancer. These are the side effects you see during treatment, read about, and hear about — things like burns, hair loss, nausea, and weight loss.

But what you may not know — and what isn’t talked about much — are the residual side effects a cancer survivor may face after treatment. Unfortunately, the same therapies that can save your life may also put you at risk for other serious health problems, like heart disease. It’s important to know these risks so you can help protect yourself or a loved one.

Minimizing Treatment Effects

Since your care team will be at your side for every step of your cancer journey — from diagnosis through treatment and beyond — make them your most trusted resource. With their help, there are many steps you can take to help minimize the effects of your chemotherapy and radiation treatments. This may include things like delivering chemotherapy slowly instead of in one dose or using beta-blockers (a type of blood pressure medication) to reduce the toxic effects.

What You Can Do to Protect Your Heart

To minimize the effects of chemo and radiation on your heart during and after breast cancer treatment, maintain a heart-healthy lifestyle as much as possible. This includes:

  • Eating a healthy diet with plenty of fruits and vegetables
  • Getting 30 minutes of aerobic exercise daily
  • Managing your blood pressure and cholesterol levels

Because women have some different symptoms of heart attack than men, it’s important to know them. Symptoms can include chest pain, shortness of breath or tightness in the chest, and also:

  • Cold sweat
  • Nausea or indigestion
  • Pressure between the shoulder blades
  • Rapid heartbeat
  • Weakness or extreme fatigue

Ask if your care team has a doctor who specializes in early detection and management of heart disease in cancer patients throughout all stages of cancer therapy and survivorship. And consider scheduling an appointment with a cardio-oncologist.

If you’re facing a breast cancer diagnosis, it’s likely your treatment will include chemotherapy, radiation therapy, or both. Cardio-oncologists are ready to provide specialized evaluation and treatment throughout your breast cancer diagnosis and treatment to help protect your whole health.

Originally published by AdventHealth; reprinted with permission.

Ask the Expert: Vision Health as You Age

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Many people expect their eyesight to decline with age — perhaps requiring a stronger eyeglass prescription or “readers.” Some vision changes are linked to age, but there are steps to consider to help our eyes stay as healthy as possible.

Dr. Linda Chous, OD, chief eye care officer, UnitedHealthcare, answered the following questions:

1. Are my eyes going to keep getting worse as I age?

While your eyesight is not guaranteed to deteriorate with age, it is normal to notice changes to your vision as the years pass, including:

  • Minor adjustments to your eyeglasses prescription or needing to use “readers” for the first time;
  • Trouble distinguishing colors, such as blue from black; and
  • The need for more light to see well.

Although these changes are often normal, they can also be signs of conditions like cataracts or even diabetes. It is important to maintain regular appointments with your eye doctor to help identify pressing concerns. If you experience sudden vision loss or any rapid change to your eyesight, contact your eye care provider immediately.

2. What are the tiny spots or specks that float across my vision?

These tiny threads of protein float across the gel-like substance between your eye’s lens and retina.

Usually there is no need to worry if you notice these spots occasionally and they disappear after a few minutes, but only a dilated eye examination can determine the cause of the “floaters.”

If your vision is overcome by these specks or you notice vision loss, contact your eye doctor, as it could be a symptom of a sight-threatening condition.

Eye screenings are necessary for prevention and treatment.
photo credit: American Optometric Association

3. What are some common vision-related diseases that come with age?

Age-related macular degeneration (AMD)

AMD is the leading cause of vision loss in people over 65. AMD causes damage to the macula, the small spot on the retina that enables people to see clearly and view things straight ahead of them.

Common symptoms are distortion and blurring of the center of your field of vision. If caught early, there are potential benefits from certain prescription medications and nutritional supplements. Late-stage AMD is much more difficult to treat.

Certain factors like heredity, ultraviolet light exposure and smoking may increase the risk of AMD. Consult with your eye doctor to determine if a preventive treatment plan is right for you.

Cataracts

A cataract is the clouding of the lens in your eye, blocking the flow of light to the back of your eye (retina), which ultimately causes loss of sight. Most form slowly and do not cause pain. Significant clouding can form in some people and, ultimately, negatively impact vision.

Cataracts are treatable via surgery that replaces the clouded lens with a clear plastic lens. Cataract surgery is generally safe and one of the most common surgeries in the U.S. Once a cataract is removed, it cannot grow back.

Glaucoma

Glaucoma is caused by increased pressure inside the eye, which can cause permanent vision loss and blindness if untreated. The most common form usually has no noticeable symptoms in the early stages — the only way to detect it is routine testing.

Treatment may include prescription eye drops, oral medications, laser treatment surgery or a combination of any of these. It is important to find glaucoma early because once vision is lost, it cannot be regained.

Take measures to prevention vision-threatening conditions.
photo credit: CDC

4. What are the best ways to keep my eyes healthy as I age?

Some of the best ways to protect your eyes include:

  • Stop smoking. Smokers are up to four times more likely to develop AMD and may contribute to development of cataracts.
  • Maintain a healthy weight. Conditions associated with being overweight, like diabetes and heart disease, increase your risk of vision loss from cataracts, glaucoma and retinopathy.
  • Wear sunglasses. Help protect your eyes from harmful ultraviolet rays.
  • Be physically active. People who are physically active experienced less vision loss over 20 years compared to those who are less active.
  • Eat a healthy diet. Colorful fruits and vegetables contain nutrients that can keep your eyes healthy and reduce AMD risk.

5. Do sunglasses really protect my eyes?

Sunglasses act as a buffer between your eyes and the sun’s ultraviolet (UV) rays. Exposure to these rays can put you at greater risk of cataracts and AMD. Look for a pair that blocks 99% to 100% of UV rays.

Note that polarization is different from UV protection; however, most polarized sunglasses also provide UV protection. Check the product tag or ask for assistance in choosing the right pair.

6. How often should I see my eye care doctor?

Eye exams are crucial to maintaining eye health as you age. Many eye diseases, like glaucoma, have no symptoms in early stages. And many systemic conditions, such as diabetes and high blood pressure, can be first found during a routine eye exam. Aim to see your eye doctor annually even if your vision hasn’t changed, so your doctor has a record of your eye health. See your doctor immediately for sudden changes.

[BPT]

Feature image credit: American Optometric Association

Tips to Create an Inclusive Halloween Season

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With ooey-gooey candy and awesome costumes, it’s no wonder Halloween is among the most beloved holidays, especially among little ones. Treats aside though, All Hallow’s Eve can be trickier for children with special needs. Here are ways to celebrate an inclusive Halloween inclusive:

Inclusive Halloween… Food for Thought

Food allergies can be seriously frightening and potentially life-threatening, especially on Halloween because of an increased risk of allergen exposures and reactions. 1-in-13 children in the U.S. – that’s roughly two kiddos in every classroom – has a food allergy (including my son). According to Food Allergy Research and Education (FARE), many popular Halloween candies contain nuts, milk, egg, soy or wheat, which are some of the most common allergens in both children and adults. Additionally, some miniature or fun-size versions of candy contain different ingredients than their full-size counterparts. Furthermore, some miniature candies may not have ingredient labels, so it is hard to determine whether these goodies are, well, good or bad for allergy sufferers.

To ensure that trick-or-treaters with food allergies can fully participate in an inclusive Halloween experience, join in the Teal Pumpkin Project. This food allergy awareness campaign, led by FARE and partnering organizations, promotes safety and inclusion for kids with food allergies, as well as others for whom candy is not an option. This may include those with food intolerances, eosinophilic esophagitis (EoE), celiac disease, food protein-induced enterocolitis syndrome (FPIES), feeding tubes, diabetes, anyone with a special diet or even trick-or-treaters just too young to consume hard-to-chew snacks.

The Teal Pumpkin Project promotes food allergy awareness and an inclusive Halloween experience. Images shows framed FARE poster.
(Teal Pumpkin Project / FARE)

[FYI, the Epilepsy Foundation also promotes the Purple Pumpkin Project. To learn about this awareness and fundraising effort, visit the organization’s website.]

How to participate in the Teal Pumpkin Project for an inclusive Halloween:

  1. Purchase non-food treats (in addition to or instead of candy).
  2. Paint or buy a teal pumpkin at a craft store or pharmacy; and/or simply print a free sign (in English, Spanish or French). Place your teal pumpkin and/or sign in front of your home.
  3. Then, offer trick-or-treaters a choice of non-food items!

“This campaign provides a great opportunity for communities to show their support of kids with food allergies who typically cannot enjoy trick-or-treating in the same way that their friends do,” said Lois A. Witkop, Chief Advancement Officer at FARE. “As a result of the Teal Pumpkin Project, more Americans are recognizing that food allergies are very serious and have a major impact on a child’s quality of life.”

Non-food treats can be just as affordable and enjoyable as candy. Available at dollar stores, party supply retailers and online suppliers (like Amazon and Oriental Trading), some options include:

  • Glow bracelets
  • Pencils, pens, crayons or markers
  • Bubbles
  • Halloween erasers or pencil toppers
  • Mini slinkies
  • Kazoos or noisemakers
  • Bouncy balls
  • Spider rings and vampire fangs
  • Playing cards
  • Bookmarks
  • Stickers

To help your child with food allergies have an inclusive Halloween night, consider dropping off safe treats to your neighbors before the holiday, if feasible. That way they are ready to outfit your child with non-allergen treats! FARE cautions that some non-food items can still contain food allergens, such as some brands of moldable clay which contain wheat. Additionally, try to choose latex-free items, as there are children who have latex allergies.

To find help families locate non-food options, add your home to the Teal Pumpkin Project participation map. You can also help spread the word on social media using the hashtag #TealPumpkinProject (and tag AmeriDisability too).

Switch Witch Helps Create an Inclusive Halloween

Krista Edgren, a Florida mom, said she learned of a Halloween hack through an allergy support group on Facebook. Her son, Jase, is allergic to eggs and peanuts. “Last year we implemented the Switch Witch,” she told AmeriDisability, adding, “Basically a witch comes to take the majority of the candy and switches it out with a toy.”

The concept of a whimsical character is already embraced for other holidays — like Elf on The Shelf for Christmas and Peep on the Perch for Easter — so the Switch Witch could be a fun and purposeful concept too!

Switch Witch can help make Halloween more accessible.

Claiming to be the original, The Switch Witch book and doll was created by a mom who wanted a solution for her diabetic daughter. It centers on a Halloween tradition of children getting rid of sugary treats in exchange for something healthier. This approach could be a parenting hack to address many concerns — food allergies, limiting junk food, promotion of sharing/exchanging, etc. Other storybooks with similar storylines are also available on Amazon.

Inclusive Halloween Language?

“Trick-or-Treat!” Everyone knows that’s what costumed children are supposed to say at each doorstep. Some people may assume that children who don’t shout the famed phrase are simply rude… when, in fact, they are nonverbal or have a disability. Several online shops sell personalized bags (and t-shirts) etched with communication such as, “Hello. I have special needs. I cannot say trick-or-treat but I am trying!” Find options on Amazon and Etsy. Of course, you can always make your own too.

Also, check out this informative video from ‘ASL Meredith’ featuring common Halloween words translated into American Sign Language.

Customized trick-or-treat bags help nonverbal children have an inclusive Halloween experience.
(Etsy)

Not So Sensational for the Senses

An overload of sugar is understood but, for some families, a sensory overload is top of mind. In the weeks before Halloween, you can help your child prepare for the scare with Halloween-themed books and movies. Talk to your child about what may occur at Halloween happenings and while trick-or-treating.

If your child has autism spectrum disorder or a sensory condition, you can write your own social story with directives or download a free trick-or-treat sequence card from TeachersPayTeachers.com. You can even give specific instructions to help curb meltdowns, such as “We’re going to trick-or-treat at ten houses and return home before dark” or “You can eat four pieces of candy once I check the wrappers.” Consider doing a practice run by visiting supportive neighbors.

Halloween festivities and decorations often include various sounds and noises which can be tricky for children who are sensory-sensitive. Some parents have opted to use earplugs and, to lessen fear of the dark, carry a flashlight. Try to schedule breaks, especially after a block of stimulating houses. Take a few minutes to settle down and hydrate.

A bit tamer than rowdy house-to-house tactics, trunk-or-treat events have become a popular alternative in recent years. Often held at churches, community sites and schools, trunk-or-treats showcase Halloween-decorated cars within a parking lot. Think of it as an inclusive Halloween tailgate! Just like going door-to-door, children can go trunk-to-trunk to play games and gather goodies. The paved ground also sets the stage for improved accessibility for wheelchair users and others.

Target.com launched an adaptive costume line to promote inclusive Halloween options.
(Target)

Inclusive Halloween Includes Wicked Wardrobe

Costumes can be itchy and bothersome. Perhaps let your kiddo wear his/her costume around the house for several hours as a test run to ensure that tags are removed, fabrics sit comfortably and nothing is too sensitive.

Also, ensure that masks/hats do not impede sight, pant lengths don’t cause tripping, make-up is allergen-free if needed as color additives are permitted in cosmetics (find more info on FDA.gov), and be cautious of decorative contact lens.

Shopping for adaptive Halloween costumes can be a little daunting. Please read AmeriDisability’s article titled “13 Adaptive Halloween Costumes Still Available on Amazon” for ideas!

Other Inclusive Halloween Reminders & Ideas

  • If you are distributing candy, consider setting up your treat bowl closer to the sidewalk for better accessibility, especially for wheelchair users and children with limited mobility.
  • Be cautious of masks that are too scary. And be sure masks don’t block your eyes and mouth so you can properly communicate with children who have speech and hearing disabilities.
  • Be patient and understanding if a child with gross motor skills needs help grabbing treats out of the bowl.
  • Some disabilities are ‘invisible’ so refrain from comments like “Aren’t you too old to be trick-or-treating?” or “Why aren’t you wearing a costume?”
  • Don’t forget to have fun beyond the one night of trick-or-treating. Check out these sensory-friendly activities from WonderBaby.org.
  • Use extreme caution when carving pumpkins. Sadly, finger/hand injuries are far too common during the Halloween season. As an alternative, use paint, stickers or other non-carving crafting supplies. And, to omit fire hazards, use a non-flammable light source rather than candles to illuminate jack-o-lanterns.
  • Ask your little monsters not to snack on candy while trick-or-treating, so you can inspect goodies for safety at home. It’s typically best to stick with commercial-wrapped goodies to ensure that items haven’t been tampered with.
  • Consider carrying glow sticks or reflective bracelets, especially if trick-or-treating in a high-traffic neighborhood.
  • Only approach homes that are well-lit.
Paint or buy a teal pumpkin to support an inclusive Halloween.
(Teal Pumpkin Project / FARE)

Looking for more content like this? Read these: 

New Multi-Faceted Initiative to Address Needs of Female Veterans with Disabilities

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More than 40 U.S. female veterans with a range of disabilities gathered last week for Paralyzed Veterans of America’s WE Served Retreat in Crested Butte, Colorado. The all-expenses-paid retreat featured workshops focused on holistic well-being and community-building in an inclusive, supportive environment. More than half of the attendees were Paralyzed Veterans of America members.

One of the female veterans in attendance was Tammy Jones, national vice president of Paralyzed Veterans of America. Jones was one year into her service with the U.S. Air Force when a car accident left her with a broken neck. At only 19 years old, she was faced with the knowledge that she would never walk again.

Thirty-three years later, Jones has a unique perspective on what it’s like to navigate the world as a disabled female veteran — and how Paralyzed Veterans of America has supported her along the way. This weekend, she helped lead WE Served, Paralyzed Veterans of America’s first-ever event solely for women veterans with disabilities.

“We want to be a voice for America’s women veterans, who deserve the very best in health care, benefits, employment, accessibility and more,” said Jones. “When disabled women veterans don’t feel comfortable or welcomed within the VA — for example, because the women’s health clinics aren’t wheelchair-accessible or because they have experienced sexual trauma there — that poses a serious barrier to their well-being.”

Paralyzed Veterans of America National Vice President Tammy Jones advocates on Capitol Hill to highlight the unique health care needs of women veterans with spinal cord injuries and diseases.
Paralyzed Veterans of America National Vice President Tammy Jones advocates on Capitol Hill to highlight the unique health care needs of women veterans with spinal cord injuries and diseases.

WE Served is part of Paralyzed Veterans of America’s wider initiative to address the specific needs of women veterans with disabilities. Jones serves on its Anita Bloom Women Veterans Health Committee, named for a paralyzed woman veteran, and has been advocating on Capitol Hill to highlight the unique health care needs of women veterans with spinal cord injuries and diseases. Paralyzed Veterans of America’s employment program, PAVE, also specializes in helping minority female veterans and other constituencies who have historically faced higher rates of unemployment and underemployment.

“Women tend to fight their personal battles alone. When we take care of ourselves, we’re better able to speak up and give back,” Jones added. “WE Served is a step toward empowering women veterans to ask for the benefits and care we deserve.”

Currently, there are 2 million women veterans living in the U.S., and women are the fastest growing demographic in both the military and veteran population. Female veterans using the VA often have complex health care needs such as post-traumatic stress disorder due to war-related trauma and sexual trauma, mental health care and substance use disorders — services that, on average, they use at higher rates and more often than male veterans.

WE Served is funded in part by the Craig H. Neilsen Foundation and sponsored by First Nation Group and the Adaptive Sports Center of Crested Butte. Learn more about WE Served at pva.org/weserved

Two Airports Launch New Navigation App for Families with Developmental Disabilities

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George Bush Intercontinental Airport (IAH) and William P. Hobby Airport (HOU) — both Skytrax rated 4-star airports and leaders in accessibility — have just rolled out free technology aimed at enhancing the airport experience for children with developmental disabilities and their caregivers. The airports partnered with Infiniteach to introduce the Access Houston Airports mobile app to help families prepare for their trip.

With the app, families will find an array of tools to transition through all phases of the airport experience. From arriving to the airport, to departing the airport and everything in between, the app’s comprehensive approach aids in improving passenger comfort. “Houston Airports continues to embrace technology to go the extra mile to assist passengers of all abilities on their journey through our airports,” said Jesus Saenz, Houston Airports Chief Operating Officer.

According to the Centers for Disease Control and Prevention (CDC), 13% of the U.S. population has a purported “invisible” developmental disability, such as Autism Spectrum Disorder. “This percentage is significant, and equates to 20,000 daily Houston Airport users,” said Tim Joniec, Houston Airports Managing Director of Americans with Disability Act (ADA) Coordination. Many families raising a child with developmental disabilities report struggling to engage in society and feel socially isolated. “Houston Airports is introducing this app to ease anxiety for these families and provide information and resources that will make their visit to the airport an engaging and meaningful experience,” Joniec said.

The app is embedded with research-based strategies proven to help individuals with autism and other developmental disabilities. Specific app features include:

  • explorer guides, short picture stories that describe each space in the airport;
  • schedule function, a visual checklist that can be customized;
  • communication icons, to assist those who are less verbal in talking or asking for help; and
  • caregiver supports, including terminal maps, tips and more to help in planning a visit to the airport.

The Access Houston Airports app is free to download, and available through the App Store and Google Play.

The initiative is a part of a goal to make Houston Airports more accessible for all. Other recent enhancements include:

  • conducting employee disability awareness training;
  • providing Aira technology free of charge at the airports for people who are blind/low vision;
  • providing service dog familiarization training to puppy raisers of prospective service dogs; and
  • continuing partnerships with Southwest and United Airlines on the annual Wings for All event, a program to familiarize individuals and their caregivers with the airport experience.

Governor Greg Abbott recently recognized the Houston Airport System for its work to ensure Texans and travelers with disabilities have the support they need.

Wouldn’t it be wonderful if all airports adopted this app? Express your interest to your state’s agencies, such as your Governor’s office and the State Aviation office.