It’s common knowledge that therapies such as chemotherapy and radiation have saved the lives of millions over the years. In fact, it’s likely you even know someone who’s benefited from these treatments. If you’ve supported a friend or loved one through a cancer journey, you know the side effects most often associated with cancer. These are the side effects you see during treatment, read about, and hear about — things like burns, hair loss, nausea, and weight loss.
But what you may not know — and what isn’t talked about much — are the residual side effects a cancer survivor may face after treatment. Unfortunately, the same therapies that can save your life may also put you at risk for other serious health problems, like heart disease. It’s important to know these risks so you can help protect yourself or a loved one.
Minimizing Treatment Effects
Since your care team will be at your side for every step of your cancer journey — from diagnosis through treatment and beyond — make them your most trusted resource. With their help, there are many steps you can take to help minimize the effects of your chemotherapy and radiation treatments. This may include things like delivering chemotherapy slowly instead of in one dose or using beta-blockers (a type of blood pressure medication) to reduce the toxic effects.
What You Can Do to Protect Your Heart
To minimize the effects of chemo and radiation on your heart during and after breast cancer treatment, maintain a heart-healthy lifestyle as much as possible. This includes:
Eating a healthy diet with plenty of fruits and vegetables
Managing your blood pressure and cholesterol levels
Because women have some different symptoms of heart attack than men, it’s important to know them. Symptoms can include chest pain, shortness of breath or tightness in the chest, and also:
Cold sweat
Nausea or indigestion
Pressure between the shoulder blades
Rapid heartbeat
Weakness or extreme fatigue
Ask if your care team has a doctor who specializes in early detection and management of heart disease in cancer patients throughout all stages of cancer therapy and survivorship. And consider scheduling an appointment with a cardio-oncologist.
If you’re facing a breast cancer diagnosis, it’s likely your treatment will include chemotherapy, radiation therapy, or both. Cardio-oncologists are ready to provide specialized evaluation and treatment throughout your breast cancer diagnosis and treatment to help protect your whole health.
Originally published by AdventHealth; reprinted with permission.
Many people expect their eyesight to decline with age — perhaps requiring a stronger eyeglass prescription or “readers.” Some vision changes are linked to age, but there are steps to consider to help our eyes stay as healthy as possible.
Dr. Linda Chous, OD, chief eye care officer, UnitedHealthcare, answered the following questions:
1. Are my eyes going to keep getting worse as I age?
While your eyesight is not guaranteed to deteriorate with age, it is normal to notice changes to your vision as the years pass, including:
Minor adjustments to your eyeglasses prescription or needing to use “readers” for the first time;
Although these changes are often normal, they can also be signs of conditions like cataracts or even diabetes. It is important to maintain regular appointments with your eye doctor to help identify pressing concerns. If you experience sudden vision loss or any rapid change to your eyesight, contact your eye care provider immediately.
2. What are the tiny spots or specks that float across my vision?
These tiny threads of protein float across the gel-like substance between your eye’s lens and retina.
Usually there is no need to worry if you notice these spots occasionally and they disappear after a few minutes, but only a dilated eye examination can determine the cause of the “floaters.”
If your vision is overcome by these specks or you notice vision loss, contact your eye doctor, as it could be a symptom of a sight-threatening condition.
photo credit: American Optometric Association
3. What are some common vision-related diseases that come with age?
Age-related macular degeneration (AMD)
AMD is the leading cause of vision loss in people over 65. AMD causes damage to the macula, the small spot on the retina that enables people to see clearly and view things straight ahead of them.
Common symptoms are distortion and blurring of the center of your field of vision. If caught early, there are potential benefits from certain prescription medications and nutritional supplements. Late-stage AMD is much more difficult to treat.
Certain factors like heredity, ultraviolet light exposure and smoking may increase the risk of AMD. Consult with your eye doctor to determine if a preventive treatment plan is right for you.
Cataracts
A cataract is the clouding of the lens in your eye, blocking the flow of light to the back of your eye (retina), which ultimately causes loss of sight. Most form slowly and do not cause pain. Significant clouding can form in some people and, ultimately, negatively impact vision.
Cataracts are treatable via surgery that replaces the clouded lens with a clear plastic lens. Cataract surgery is generally safe and one of the most common surgeries in the U.S. Once a cataract is removed, it cannot grow back.
Glaucoma
Glaucoma is caused by increased pressure inside the eye, which can cause permanent vision loss and blindness if untreated. The most common form usually has no noticeable symptoms in the early stages — the only way to detect it is routine testing.
Treatment may include prescription eye drops, oral medications, laser treatment surgery or a combination of any of these. It is important to find glaucoma early because once vision is lost, it cannot be regained.
photo credit: CDC
4. What are the best ways to keep my eyes healthy as I age?
Some of the best ways to protect your eyes include:
Stop smoking. Smokers are up to four times more likely to develop AMD and may contribute to development of cataracts.
Maintain a healthy weight. Conditions associated with being overweight, like diabetes and heart disease, increase your risk of vision loss from cataracts, glaucoma and retinopathy.
Wear sunglasses. Help protect your eyes from harmful ultraviolet rays.
Be physically active. People who are physically active experienced less vision loss over 20 years compared to those who are less active.
Eat a healthy diet. Colorful fruits and vegetables contain nutrients that can keep your eyes healthy and reduce AMD risk.
5. Do sunglasses really protect my eyes?
Sunglasses act as a buffer between your eyes and the sun’s ultraviolet (UV) rays. Exposure to these rays can put you at greater risk of cataracts and AMD. Look for a pair that blocks 99% to 100% of UV rays.
Note that polarization is different from UV protection; however, most polarized sunglasses also provide UV protection. Check the product tag or ask for assistance in choosing the right pair.
6. How often should I see my eye care doctor?
Eye exams are crucial to maintaining eye health as you age. Many eye diseases, like glaucoma, have no symptoms in early stages. And many systemic conditions, such as diabetes and high blood pressure, can be first found during a routine eye exam. Aim to see your eye doctor annually even if your vision hasn’t changed, so your doctor has a record of your eye health. See your doctor immediately for sudden changes.
[BPT]
Feature image credit: American Optometric Association
With ooey-gooey candy and awesome costumes, it’s no wonder Halloween is among the most beloved holidays, especially among little ones. Treats aside though, All Hallow’s Eve can be trickier for children with special needs. Here are ways to celebrate an inclusive Halloween inclusive:
Inclusive Halloween… Food for Thought
Food allergies can be seriously frightening and potentially life-threatening, especially on Halloween because of an increased risk of allergen exposures and reactions. 1-in-13 children in the U.S. – that’s roughly two kiddos in every classroom – has a food allergy (including my son). According to Food Allergy Research and Education (FARE), many popular Halloween candies contain nuts, milk, egg, soy or wheat, which are some of the most common allergens in both children and adults. Additionally, some miniature or fun-size versions of candy contain different ingredients than their full-size counterparts. Furthermore, some miniature candies may not have ingredient labels, so it is hard to determine whether these goodies are, well, good or bad for allergy sufferers.
To ensure that trick-or-treaters with food allergies can fully participate in an inclusive Halloween experience, join in the Teal Pumpkin Project. This food allergy awareness campaign, led by FARE and partnering organizations, promotes safety and inclusion for kids with food allergies, as well as others for whom candy is not an option. This may include those with food intolerances, eosinophilic esophagitis (EoE), celiac disease, food protein-induced enterocolitis syndrome (FPIES), feeding tubes, diabetes, anyone with a special diet or even trick-or-treaters just too young to consume hard-to-chew snacks.
(Teal Pumpkin Project / FARE)
[FYI, the Epilepsy Foundation also promotes the Purple Pumpkin Project. To learn about this awareness and fundraising effort, visit the organization’s website.]
How to participate in the Teal Pumpkin Project for an inclusive Halloween:
Purchase non-food treats (in addition to or instead of candy).
Paint or buy a teal pumpkin at a craft store or pharmacy; and/or simply print a free sign (in English, Spanish or French). Place your teal pumpkin and/or sign in front of your home.
Then, offer trick-or-treaters a choice of non-food items!
“This campaign provides a great opportunity for communities to show their support of kids with food allergies who typically cannot enjoy trick-or-treating in the same way that their friends do,” said Lois A. Witkop, Chief Advancement Officer at FARE. “As a result of the Teal Pumpkin Project, more Americans are recognizing that food allergies are very serious and have a major impact on a child’s quality of life.”
Non-food treats can be just as affordable and enjoyable as candy. Available at dollar stores, party supply retailers and online suppliers (like Amazon and Oriental Trading), some options include:
To help your child with food allergies have an inclusive Halloween night, consider dropping off safe treats to your neighbors before the holiday, if feasible. That way they are ready to outfit your child with non-allergen treats! FARE cautions that some non-food items can still contain food allergens, such as some brands of moldable clay which contain wheat. Additionally, try to choose latex-free items, as there are children who have latex allergies.
To find help families locate non-food options, add your home to the Teal Pumpkin Project participation map. You can also help spread the word on social media using the hashtag #TealPumpkinProject (and tag AmeriDisability too).
Switch Witch Helps Create an Inclusive Halloween
Krista Edgren, a Florida mom, said she learned of a Halloween hack through an allergy support group on Facebook. Her son, Jase, is allergic to eggs and peanuts. “Last year we implemented the Switch Witch,” she told AmeriDisability, adding, “Basically a witch comes to take the majority of the candy and switches it out with a toy.”
The concept of a whimsical character is already embraced for other holidays — like Elf on The Shelf for Christmas and Peep on the Perch for Easter — so the Switch Witch could be a fun and purposeful concept too!
Claiming to be the original, The Switch Witch book and doll was created by a mom who wanted a solution for her diabetic daughter. It centers on a Halloween tradition of children getting rid of sugary treats in exchange for something healthier. This approach could be a parenting hack to address many concerns — food allergies, limiting junk food, promotion of sharing/exchanging, etc. Other storybooks with similar storylines are also available on Amazon.
Inclusive Halloween Language?
“Trick-or-Treat!” Everyone knows that’s what costumed children are supposed to say at each doorstep. Some people may assume that children who don’t shout the famed phrase are simply rude… when, in fact, they are nonverbal or have a disability. Several online shops sell personalized bags (and t-shirts) etched with communication such as, “Hello. I have special needs. I cannot say trick-or-treat but I am trying!” Find options on Amazon and Etsy. Of course, you can always make your own too.
Also, check out this informative video from ‘ASL Meredith’ featuring common Halloween words translated into American Sign Language.
(Etsy)
Not So Sensational for the Senses
An overload of sugar is understood but, for some families, a sensory overload is top of mind. In the weeks before Halloween, you can help your child prepare for the scare with Halloween-themed books and movies. Talk to your child about what may occur at Halloween happenings and while trick-or-treating.
If your child has autism spectrum disorder or a sensory condition, you can write your own social story with directives or download a free trick-or-treat sequence card from TeachersPayTeachers.com. You can even give specific instructions to help curb meltdowns, such as “We’re going to trick-or-treat at ten houses and return home before dark” or “You can eat four pieces of candy once I check the wrappers.” Consider doing a practice run by visiting supportive neighbors.
Halloween festivities and decorations often include various sounds and noises which can be tricky for children who are sensory-sensitive. Some parents have opted to use earplugs and, to lessen fear of the dark, carry a flashlight. Try to schedule breaks, especially after a block of stimulating houses. Take a few minutes to settle down and hydrate.
A bit tamer than rowdy house-to-house tactics, trunk-or-treat events have become a popular alternative in recent years. Often held at churches, community sites and schools, trunk-or-treats showcase Halloween-decorated cars within a parking lot. Think of it as an inclusive Halloween tailgate! Just like going door-to-door, children can go trunk-to-trunk to play games and gather goodies. The paved ground also sets the stage for improved accessibility for wheelchair users and others.
(Target)
Inclusive Halloween Includes Wicked Wardrobe
Costumes can be itchy and bothersome. Perhaps let your kiddo wear his/her costume around the house for several hours as a test run to ensure that tags are removed, fabrics sit comfortably and nothing is too sensitive.
Also, ensure that masks/hats do not impede sight, pant lengths don’t cause tripping, make-up is allergen-free if needed as color additives are permitted in cosmetics (find more info on FDA.gov), and be cautious of decorative contact lens.
If you are distributing candy, consider setting up your treat bowl closer to the sidewalk for better accessibility, especially for wheelchair users and children with limited mobility.
Be cautious of masks that are too scary. And be sure masks don’t block your eyes and mouth so you can properly communicate with children who have speech and hearing disabilities.
Be patient and understanding if a child with gross motor skills needs help grabbing treats out of the bowl.
Some disabilities are ‘invisible’ so refrain from comments like “Aren’t you too old to be trick-or-treating?” or “Why aren’t you wearing a costume?”
Don’t forget to have fun beyond the one night of trick-or-treating. Check out these sensory-friendly activities from WonderBaby.org.
Use extreme caution when carving pumpkins. Sadly, finger/hand injuries are far too common during the Halloween season. As an alternative, use paint, stickers or other non-carving crafting supplies. And, to omit fire hazards, use a non-flammable light source rather than candles to illuminate jack-o-lanterns.
Ask your little monsters not to snack on candy while trick-or-treating, so you can inspect goodies for safety at home. It’s typically best to stick with commercial-wrapped goodies to ensure that items haven’t been tampered with.
Consider carrying glow sticks or reflective bracelets, especially if trick-or-treating in a high-traffic neighborhood.
More than 40 U.S. female veterans with a range of disabilities gathered last week for Paralyzed Veterans of America’s WE Served Retreat in Crested Butte, Colorado. The all-expenses-paid retreat featured workshops focused on holistic well-being and community-building in an inclusive, supportive environment. More than half of the attendees were Paralyzed Veterans of America members.
One of the female veterans in attendance was Tammy Jones, national vice president of Paralyzed Veterans of America. Jones was one year into her service with the U.S. Air Force when a car accident left her with a broken neck. At only 19 years old, she was faced with the knowledge that she would never walk again.
Thirty-three years later, Jones has a unique perspective on what it’s like to navigate the world as a disabled female veteran — and how Paralyzed Veterans of America has supported her along the way. This weekend, she helped lead WE Served, Paralyzed Veterans of America’s first-ever event solely for women veterans with disabilities.
“We want to be a voice for America’s women veterans, who deserve the very best in health care, benefits, employment, accessibility and more,” said Jones. “When disabled women veterans don’t feel comfortable or welcomed within the VA — for example, because the women’s health clinics aren’t wheelchair-accessible or because they have experienced sexual trauma there — that poses a serious barrier to their well-being.”
Paralyzed Veterans of America National Vice President Tammy Jones advocates on Capitol Hill to highlight the unique health care needs of women veterans with spinal cord injuries and diseases.
WE Served is part of Paralyzed Veterans of America’s wider initiative to address the specific needs of women veterans with disabilities. Jones serves on its Anita Bloom Women Veterans Health Committee, named for a paralyzed woman veteran, and has been advocating on Capitol Hill to highlight the unique health care needs of women veterans with spinal cord injuries and diseases. Paralyzed Veterans of America’s employment program, PAVE, also specializes in helping minority female veterans and other constituencies who have historically faced higher rates of unemployment and underemployment.
“Women tend to fight their personal battles alone. When we take care of ourselves, we’re better able to speak up and give back,” Jones added. “WE Served is a step toward empowering women veterans to ask for the benefits and care we deserve.”
Currently, there are 2 million women veterans living in the U.S., and women are the fastest growing demographic in both the military and veteran population. Female veterans using the VA often have complex health care needs such as post-traumatic stress disorder due to war-related trauma and sexual trauma, mental health care and substance use disorders — services that, on average, they use at higher rates and more often than male veterans.
WE Served is funded in part by the Craig H. Neilsen Foundation and sponsored by First Nation Group and the Adaptive Sports Center of Crested Butte. Learn more about WE Served at pva.org/weserved
George Bush Intercontinental Airport (IAH) and William P. Hobby Airport (HOU) — both Skytrax rated 4-star airports and leaders in accessibility — have just rolled out free technology aimed at enhancing the airport experience for children with developmental disabilities and their caregivers. The airports partnered with Infiniteach to introduce the Access Houston Airports mobile app to help families prepare for their trip.
With the app, families will find an array of tools to transition through all phases of the airport experience. From arriving to the airport, to departing the airport and everything in between, the app’s comprehensive approach aids in improving passenger comfort. “Houston Airports continues to embrace technology to go the extra mile to assist passengers of all abilities on their journey through our airports,” said Jesus Saenz, Houston Airports Chief Operating Officer.
According to the Centers for Disease Control and Prevention (CDC), 13% of the U.S. population has a purported “invisible” developmental disability, such as Autism Spectrum Disorder. “This percentage is significant, and equates to 20,000 daily Houston Airport users,” said Tim Joniec, Houston Airports Managing Director of Americans with Disability Act (ADA) Coordination. Many families raising a child with developmental disabilities report struggling to engage in society and feel socially isolated. “Houston Airports is introducing this app to ease anxiety for these families and provide information and resources that will make their visit to the airport an engaging and meaningful experience,” Joniec said.
The app is embedded with research-based strategies proven to help individuals with autism and other developmental disabilities. Specific app features include:
explorer guides, short picture stories that describe each space in the airport;
schedule function, a visual checklist that can be customized;
communication icons, to assist those who are less verbal in talking or asking for help; and
caregiver supports, including terminal maps, tips and more to help in planning a visit to the airport.
The Access Houston Airports app is free to download, and available through the App Store and Google Play.
The initiative is a part of a goal to make Houston Airports more accessible for all. Other recent enhancements include:
providing Aira technology free of charge at the airports for people who are blind/low vision;
providing service dog familiarization training to puppy raisers of prospective service dogs; and
continuing partnerships with Southwest and United Airlines on the annual Wings for All event, a program to familiarize individuals and their caregivers with the airport experience.
Governor Greg Abbott recently recognized the Houston Airport System for its work to ensure Texans and travelers with disabilities have the support they need.
Wouldn’t it be wonderful if all airports adopted this app? Express your interest to your state’s agencies, such as your Governor’s office and the State Aviation office.
The leaves are starting to change, there’s bit of a chill in the air and many people are pulling out their trusty hoodies and apple cider recipes. Fall is a beautiful time of year, but it can take a little prep work to enjoy.
Here are 10 autumn safety tips to keep in mind for your service dog as you both begin to enjoy this wonderful time of year.
1. Intriguing autumn scents.
Ahhh, the scents of autumn – cinnamon, spices, apples, candy corn, smoky fires, pumpkins and earthy leaves. For many people, the scents of fall are their favorite part, but don’t forget that not everything is safe for your canine partner. Always supervise your service dog around candles, bonfires, sweets, hot drinks or anything else that may not be safe.
2. It’s not cool to dress inappropriately.
Like you might tell a middle-schooler who refuses to wear a jacket, it’s not cool to dress inappropriately for the weather. There’s a chill in the air! If it’s too cold for you to be outside without a jacket, it may be too chilly for your canine partner, particularly if he has a thin coat or very short hair. Always dress the both of you for the weather.
3. There could be dangers lurking under the leaves.
The leaves are changing… and with the gorgeous autumn color changes come falling leaves. Leave-strewn lawns, parks and pathways can mask potential dangers, like sharp rocks or broken glass. Always be aware of where your service dog is walking.
4. Light up the night.
Days are shorter. With dark falling at a far earlier hour, it may be prudent to get your partner a light to attach to his collar or reflective gear for safety, especially if your daily routine means you must walk or exercise your canine partner after the sun goes down.
5. Make sure your dog’s tags are up to date.
Double check your service dog’s identification and tag information. With holidays right around the corner, many people’s social schedules pick up, and there’s a lot of coming and going. If your partner gets out or gets lost, his tag is his ticket home.
6. Socialize but don’t overload.
Be selective about attending holiday or autumn functions with your service dog, particularly Halloween events. Events can be highly stressful for you and your service dog; be careful not to overload him.
7. Seasonal Affective Disorder (SAD) is real.
Busy schedules combined with early sunset can lead to mood changes during the fall months. Make sure you continue to give your canine partner physical and mental exercise – it’s good for both of you. Statistics vary on Seasonal Affective Disorder because most people don’t see their physician about it. About 10 million Americans are estimated to have some form of SAD and it is four times more common in women than in men.
8. Just because it’s cold doesn’t mean heartworm isn’t a concern.
Keep up with your service dog’s monthly heartworm treatment. Just because it’s colder outside doesn’t mean your partner isn’t at risk.
9. Boots for working dogs aren’t cute accessories.
Consider boots for your canine partner, especially if you do a lot of walking outdoors and/or if it snows in your area. Not only is snow and ice hard on your service dog’s feet, but the salt cities use to control it is especially brutal.
10. Don’t overdo treats.
Keep an eye on your service dog’s weight and snacking, especially if he is a brace/mobility dog. It’s easy for weight to creep upwards during the fall and winter season.
Receiving a shocking breast cancer diagnosis disrupts a woman’s life in countless ways, but it shouldn’t change her friendships. If anything, going through this life-changing journey should make the bonds between friends even stronger.
Once the diagnosis sinks in, knowing what to do and say can help you relax back into your friendship and feel confident in the support you already provide in countless ways. It can also help your loved one through her diagnosis, treatment, and recovery. If she knows she’s got a loyal corps of friends to rely on, she can let her guard down to rest, heal and reflect.
Here are five ways practical ways you can help:
Listen
While your friend is reeling from her news, her mind will be torn in dozens of directions, figuring out how to tackle her new diagnosis while also managing things at home, with her family, and possibly even work.
Let her freely express her fears and concerns — and simply listen. Resist the urge to fill the silences and to offer unsolicited advice. Your friend needs a shoulder to lean on, which isn’t the same as wanting you to solve her problems.
It’s also best not to share stories about other people’s negative experiences or to tell your friend how she should feel. Saying things like, “It could be worse” minimizes the gravity of what she’s going through. Instead, acknowledge how unnerving and complicated the situation must feel.
Above all, let your friend know you’ll be by her side for the long haul, not just in the early stages and that she can trust you when she’d like to keep information and her thoughts and feelings private.
Offer Specific Help
The classic response to people in a crisis is, “Let me know if you need anything.” But the truth is, in most cases, that open-ended statement isn’t helpful at all since it’s likely your friend will feel awkward calling you out of the blue for a favor. Instead, try offering to help with specific tasks, such as:
Managing a CaringBridge or similar page to share updates
You can also talk to her caregiver for input on more ways to help. Since they often feel like they need to be strong for their loved one and able to handle things all on their own, caregivers are reluctant to ask for support, even when they need it. Don’t forget that cancer treatment is a journey for the whole family.
photo credit: National Breast Cancer Foundaion
Give Her Thoughtful Gifts, Cards
Little gifts or notes go a long way toward brightening someone’s day and are a way for not just local, but out-of-town friends to offer support. You can even reach out to family and friends to mail you a note and present them all at once in a special box, perhaps on a significant day or milestone in her treatment. Gift ideas might include:
Amazon gift cards so she can shop from home
Care packages with lip balm, tissues, lotion, and hard candy for a dry mouth or metallic taste from medication
Gift cards for electronic reading devices (Kindle, Nooks, iPad)
Journal
Magazines, books
Notebook with pockets to keep track of information
Pajamas, robe, silky pillowcase
Pictures of friends
Scarves, hat
Gifts for her caregiver are also a kind gesture. You may also consider insisting you don’t want a thank you note in return for any gifts.
Offer to Go to Appointments
If your friend feels overwhelmed, offer to go to doctor appointments to take notes and ask questions she might not think to ask. You can also be a “chemo” buddy. Driving her to and from as well as sitting with her during chemotherapy or radiation therapy treatments is a bigger help than you may ever realize. Not only will your friend appreciate the company and encouragement, but it can also give her caregiver a break.
Visit and Include Her in Activities
Make plans to visit to cheer your friend up at home to give her something to look forward to. Make sure to check with her first, though. You may also want to coordinate your visit with her caregiver so he or she can take a break or run errands while you’re there.
When you’re with your loved one, don’t focus the conversations only on cancer. Treat your friend like you did before. Ask for their advice and input. Share news about school, church, work, or the neighborhood. Ask about her family, job, and what she’s been doing outside of breast cancer.
If your friend seems tired, graciously end the visit and let her know you’ll be back in touch to set up another visit. On the other hand, if your friend feels up to it, offer to take her for a drive, to a movie, the mall, a restaurant, on an errand, or anything else she may be up to doing with you or with your usual group of friends.
She’ll want to have a “normal” life as much as possible, so keep inviting her to any events or activities you ordinarily go to together.
Your Friendship is Enough
You may begin to discount your ideas on how to help or feel like simply being present isn’t enough. But more than any task you could carry out on your loved one’s behalf, it’s your love they need the most. Helping your loved one feel supported and strong through her breast cancer journey is everything she needs to succeed.
[Originally published by AdventHealth; reprinted with permission.]
Are you a caregiver for someone with Alzheimer’s disease, dementia, or another chronic health condition? Caregivers are often family members or friends of a person who is in need of care. Caregivers may manage everything from medications and getting dressed in the morning to doctor appointments, social events, and meals.
What is a care plan?
A care plan is a form that summarizes a person’s health conditions and current treatments for their care. The plan should include information about:
Health conditions
Medications
Healthcare providers
Emergency contacts
Caregiver resources
You can ask the doctor of the person you care for to help you complete the care plan. At that time, you can also discuss advanced care plan options such as what follow-up care is necessary, end of life care options, and resources that are available to help make things easier for you as a caregiver. Try to update the care plan every year or if the one you care for has a change in health or medications to keep the care plan current, and remember to respect the care recipient’s privacy after reviewing their personal information.
How do you develop a care plan?
Start a conversation about care planning with the person you take care of. You can use the “My Care Plan” form to help start the conversation. If your care recipient isn’t able to provide input, anyone who has significant interaction with the care recipient (a family member or home nurse aide) can help complete the form.
Talk to the doctor of the person you care for or another health care provider. Use the “My Care Plan” form as a starting point for your discussion. A physician can review the form you started and help to complete it, especially if there is a conversation about advanced care planning.
Ask about what care options are relevant to the person you care for. Medicare covers appointments that are scheduled to manage chronic conditions and for discussing advanced care plans. Medicare covers care planning appointments specifically for people with Alzheimer’s, other dementias, memory problems, or suspected cognitive impairment.
Discuss any needs you have as a caregiver. 84% of caregivers report they could use more information and help on caregiving topics especially related to safety at home, dealing with stress, and managing their care recipient’s challenging behaviors. Caregivers of people with dementia or Alzheimer’s are particularly at greater risk for anxiety, depression, and lower quality of life compared to caregivers of people with other chronic conditions.
What are the benefits of a care plan?
Care plans can reduce emergency room visits, hospitalizations, and improve overall medical management for people with a chronic health condition, like Alzheimer’s disease resulting in better quality of life for all care recipients.
Care plans can provide supportive resources for you, the caregiver, to continue leading a healthy life of your own.
Research suggests that listening to music is good for overall health. It can enhance happiness, lower stress and boost learning and memorization, among other benefits. Darci Zook proclaims music grants her a “euphoric peace.” The 29-year-old Springfield, Illinois resident has never actually ‘heard’ music though. She is deaf but her connection with sound is, well, loud and clear. “My ears and body pick up different sound waves, vibrations and low notes,” Darci says, explaining that her other senses are heightened by music. She also loves to study lyrics and analyze the creative metaphors of songs.
Darci insists being deaf doesn’t (and shouldn’t) hinder her ability to enjoy music; and science agrees. Dr. Dean Shibata, a professor in the Department of Radiology at the University of Washington, published his music-related findings. “The brain is incredibly adaptable. In someone who is deaf, the young brain takes advantage of valuable real estate in the brain by processing vibrations in the part of the brain that would otherwise be used to process sound,” Shibata shares.
image source: Shutterstock
However, Darci’s experience is unfortunately obstructed by inadequate access. Approximately 37.5 million Americans – an equivalent to 15 percent of American adults – have trouble hearing, according to the National Institute on Deafness and Other Communication Disorders. Yet accessibility remains a barrier for the deaf and hard of hearing community – even on a daily basis at schools, hospitals, workplaces and, impacting Darci’s passion, entertainment venues. The Americans with Disabilities Act (ADA) made significant improvements; but the law doesn’t exactly solve all challenges, so those in the deaf community have to self-advocate. For example, after buying a concert ticket, Darci must proactively request an American Sign Language (ASL) interpreter (sometimes three to six months in advance), educate uninformed venue personnel about her inclusive rights, wait for approval/denial and hope the hired interpreter’s skill level is satisfactory. “Studies show that music has a powerful impact on everyone, and that includes the deaf and hard of hearing community. Yet, there is not enough exposure and awareness when it comes to providing accessibility. Because of that, I am passionate about spreading awareness and educating people for our future deaf and hard of hearing children and community to be able to enjoy the experience without facing constant barriers,” Darci declares.
Interpreters and Artists Tune In
A uniquely focused group of ASL interpreters specializing in music are also championing accessibility, specifically within the music and entertainment industries. ASL is an official language with precise manual parameters, including hand shape, palm orientation, hand location/placement, hand movement and non-manual markers which, traditionally, include somewhat limited motion of the shoulders, head and face. In recent years, however, online videos have gone viral of ASL interpreters enthusiastically signing music using vibrant, unconventional body language and gestures. These interpreters respect the language and its parameters, and are simply enhancing its communication impact when appropriate (as with music).
The ASL music “movement” aims to harmoniously bridge a hearing-centric experience over to a visually-centric experience. This language evolution is pioneered, in part, by Amber Galloway Gallego and her Texas-based company, Amber G. Productions. Amber’s team, comprised of about a dozen dynamic ASL music interpreters (both deaf and hearing-abled), travel nationwide to interpret for chart-topping artists (like Adele, Drake and Red Hot Chili Peppers, to name a few); plus, they focus on enhancing the musical experience of deaf festival-goers. “I do at least forty to fifty events per year, and that includes festivals which may include four shows a day,” says Kelly Kurdi, a multilingual interpreter with Amber G. Productions who studied at Gallaudet University, an institution for the deaf. Amber suggests that solely signing a song’s words and, then, pausing during instrumentals is an injustice. She’s teaching others how to fully immerse deaf music lovers through expression and emotion ─ and without missing a beat in a drum solo! Kelly demonstrates in the following video:
“Interpreters of music in the past just signed the lyrics using a lot of the same sort of [language] parameters as when we are doing platform interpreting; so sort of staying still and standing in one place. When there would be an instrument playing, they would sign the word ‘music’ and point over to the guitar soloist, for example,” Kelly, who is actually hearing-abled, reiterates. That certainly doesn’t fully communicate to deaf fans a song’s entirety. Now, to the contrary, “We indicate all of the instruments that are being played and the intensity level using our bodies. We see the music as having multiple layers, and we’re responsible for bringing all of that… not only the lyrics, which is what people normally think of, but also the tone, the emotion, the rhythm,” Kelly describes. A skilled ASL music interpreter customizes body language and vocabulary to suit an artist therefore, with the right execution, a deaf listener should be able to see and feel the difference between, for instance, a song by The Weeknd (a masculine R&B vibe) versus a song by Dolly Parton (a feminine country feel).Darci loves the new approach to music interpreting and has even specifically requested interpreters from Amber G. Productions for an event. “When an ASL interpreter is a part of this beautiful journey, the connection is immediate and life-changing,” she tells AmeriDisability. “The deaf person depends on us to be at the same caliber of the artist,” Kelly says. However, she acknowledges that interpreters themselves uniquely impact the experience. “Each song is going to be interpreted differently because interpreting in and of itself is an art… different sign choices, a different flow,” she says.
Joann Benfield music interprets at the Warped Tour. photo credit: Amber G. Productions
There is a lot of prep work, research, memorization and grunt work that happens behind the scenes. “We also have to fight for access and deal with venues for what they provide in terms of interpreter and client placement, sound packs, receiving a set list or material before the show (if we are lucky), etc.,” says Joann Benfield, another professional with Amber G. Productions. “Being a deaf interpreter myself (I am deaf and a music/performance interpreter), there is an additional layer that I have to incorporate in my prep work. I have to memorize my material more than my hearing counterparts because I do not solely depend on my hearing to do the work for me. I also have to be able to work with a feeder (a team interpreter that feeds missed information to me that helps me continue interpreting without stopping) which is another skill level of being an interpreter,” Joann explains.
Joann is accustomed to working alongside music artists but, in 2014, she was in the limelight (with Amber and another ASL interpreter, Holly Maniatty) thanks to an appearance on Jimmy Kimmel Live!. During a “sign language rap battle,” the three interpreters faced off as rapper Whiz Khalifa performed his song “Black and Yellow.” [Watch the video here.] Interpreting the rap genre is, of course, more challenging because it demands rapid and creative wordplay. “You have to truncate your signs to be able to keep up with the beat to make sure it’s looking like rap,” Amber shared in a video interview.
Accessibility Takes Center Stage
“I really enjoy the opportunities to talk to artists about what we do and the fact that they have deaf fans,” Kelly offers. In a perfect world, an interpreter would always be on stage just like any other part of the band. The music industry isn’t quite there yet. But, perhaps, the writing is on the wall.
Matt Maxey, Chance the Rapper and Kelly Kurdi promote inclusion on tour. photo credit: Deafinitely Dope
While a growing number of performers are incorporating interpreters at shows, in 2017, Chance the Rapper became the first mainstream rapper to hire a tour ASL music interpreter and, thus, eliminating the need for his deaf fans to issue a laborious venue request. Along with Matt Maxey, owner of the music interpretation company DEAFinitely Dope, Kelly joined Chance on tour ─ something she regards as an epic career highlight. Dedicated to promoting inclusion, Chance also gifted fifty front row tickets free of charge to deaf and hard of hearing fans. Check out this video of Kelly and Matt teaching Chance how to sign his song “Blessings.”
Striking a Change-Making Chord
Like all languages, ASL is a means of communication but also a means of art expression. With a demand for more inclusive shows and videos, ASL music interpreters are working to make this musical art form more accessible and more enjoyable. Some within the deaf community find the attention surrounding music interpretation (specifically by hearing-abled) to be a bit controversial. In their book Deaf Culture: Exploring Deaf Communities in the United States, authors Irene W. Leigh, Jean F. Andrews and Raychelle Harris even described it as unintentional language and cultural appropriation. For the majority of others, including the celebrated music interpreters and their fans, the true controversy is that this level of advocating is still necessary – three decades after ADA became law.
Amber Galloway Gallego and Whiz Khalifa unit on Jimmy Kimmel Live for an ASL rap battle. photo credit: Amber G. Productions
Encore of Inclusion
“Music is inclusive and it is meant for everyone to enjoy. There is absolutely no reason to deprive deaf people from experiencing a concert,” Darci affirms. Joann agrees, “Fighting for access has become the new norm within our work [as music interpreters]. It is frustrating and upsetting that we have to constantly deal with this almost everywhere we go. For those of us who are passionate about what we do, we have naturally become advocates for the deaf community because we want to ensure that they have equal access to the concert or performance as their hearing counterparts.”
Engineers and technologist are working to improve accessibility too. Not Impossible Labs created an innovative wearable technology called Music: Not Impossible. With a goal to enhance the sensory experience for deaf music listeners, the technology translates sound onto the skin through vibration. According to the company’s website, “the battery-powered wireless wearable includes a harness, two wristbands and two ankle bands, supplying 24 distinct areas of vibration across the user’s body, or what we call a ‘Surround Body Experience.’ Each element receives complex polyphonic musical expressions across the skin. Wearers may adjust the intensity of vibrations, which are visually represented via customizable color LED lights.”
To help further this accessibility conversation, Darci urges fellow music lovers to get involved with their state’s Deaf and Hard of Hearing Commission; and, if support is needed to navigate an accessibility barrier, contact the National Association of the Deaf. If you are interested in studying Amber’s style of ASL music interpretation, reserve a spot at the ASL Music Camp. The immersive week-long session is led by passionate ASL music interpreters, artists and dance instructors.
Darci Zook and a pal enjoying a concert. photo credit: Darci Zook
Nancy DeVault is an award-winning writer/editor contributing to local and national publications.Her storytelling spans a wide range of topics, including charity, disability,food, health, lifestyle, parenting, relationships and travel. Married with two kiddos, Nancy describes herself as a lover of the outdoors, fitness, news,traveling and binge reading magazines while sipping coffee.
Service dogs offer countless benefits to help combat symptoms of post-traumatic stress disorder (PTSD), but they can also be instrumental in rebuilding and uniting families after veterans come home from serving their country.
According to the National Institutes of Health, up to 30% of American military veterans experience PTSD after returning home from combat. Yet only about 40% of those individuals ever seek help.
Service animals are recognized under the Americans with Disabilities Act. The designation is limited to dogs who are trained to do work or perform tasks for a person with a disability. In some cases, these tasks are highly physical in nature, such as guiding a person who is blind or pulling a wheelchair. Other roles service dogs play may be less immediately visible, such as providing a calming presence to a person with PTSD who is experiencing an anxiety attack.
More Than a Companion
Service dogs are highly trained to assist military veterans in achieving better quality of life. Veterans who utilize service dogs report lower levels of depression and anxiety, fewer hospitalizations and a reduction in medical and psychiatric costs, among other benefits. Beyond what these canines help prevent, consider these examples of what they empower:
· Provide security, protection and unconditional love
Up to the Task
Just like the members of the armed forces they help, service dogs are highly trained professionals with an important job to do, including tasks such as these:
· Turn on lights and open doors before a veteran enters his/her home
· Nudging, pawing or licking to interrupt flashbacks or nightmares
· Utilizing body weight as a grounding mechanism to reduce anxiety or alleviate panic
· Retrieve bags with medications or a list of numbers to call during a medical emergency
· Provide security and reduce hypervigilance in public places
· Pick up dropped items and assist with mobility and ambulation
To see video stories of how service dogs have impacted the lives of veterans and their families, visit DogChow.com/service. In addition, for every purchase of specially marked bags of Dog Chow Complete Adult through Nov. 1, 2019, the brand will donate 5 cents, up to $100,000, to the Tony La Russa Animal Rescue Foundation Pets and Vets program, which matches veterans experiencing PTSD and other challenges with service dogs, free of charge.
When You See a Service Dog
Service dogs are often large breeds that stand out in a crowd, and their calm demeanor can make it seem perfectly appropriate to approach and pet them. However, it’s important to remember that service dogs are at work and distractions can prevent them from providing the service their owners need.
The International Association of Canine Professionals offers these etiquette tips for interacting with service dogs and their owners:
· Remember that a service dog is there as support for a person with a physical or health disability, which may or may not be readily apparent.
· Respect that health conditions are private matters most people prefer not to discuss with strangers.
· Just as you would not stare or point at a person in a wheelchair, avoid calling unnecessary attention to a person with a service dog.
· If you must interact, always focus your attention on the handler, not the dog, so the dog can stay focused on its job. Avoid whistling, clapping or otherwise distracting the dog.
· Teach children not to approach service dogs. Although most are trained to avoid aggression, a perceived threat to their handlers could result in warning growls or barks that may scare a child.
