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COVID Long-Haulers Struggle to Navigate Disability Insurance Benefits and Much More

Nancy DeVault
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COVID Long-Haulers Struggle to Navigate Disability Insurance Benefits and Much More

1-in-4 U.S. adults have a disability that impacts major life activities, according to the Centers for Disease Control (CDC). People with disabilities constitute the nation’s largest minority group. And thanks to COVID-19 – and more specifically “long COVID” – many people are now unexpectedly entering the disability community.

Long COVID is more common than some realize. Study after study (i.e. research by the University of California, University of Washington, Stanford Healthcare, Icahn School of Medicine at Mount Sinai, among others) have found that approximately 30% of patients who had COVID but did not need to be hospitalized later developed some form of long-haul COVID.

What is Long COVID?

The U.S. Department of Health & Human Services (HHS) cites that: “Although many people with COVID-19 get better within weeks, some people continue to experience symptoms that can last months after first being infected, or may have new or recurring symptoms at a later time. This can happen to anyone who has had COVID-19, even if the initial illness was mild. People with this condition are sometimes called long-haulers.  This condition is known as long COVID.”

Long COVID symptoms often include persistent pain, fatigue, brain fog and a worsening of symptoms after even minimal activity, according to Solve Long Covid Initiative, an effort of Solve M.E., a nonprofit that serves as a catalyst for critical research into diagnostics, treatments and cures for post-infection diseases. This is in addition to those who experienced other COVID complications, like stroke, organ failure and various ventilator-related issues.

As of July 2021, long COVID, also known as post-COVID conditions, can be considered a disability under the Americans with Disabilities Act (ADA). A person with long COVID, according to HHS, has a disability if the person’s condition or any of its symptoms is a “physical or mental” impairment that “substantially limits” one or more major life activities.

patient and doctor, both wearing masks
credit: CDC

New Research Explores Economic, Social and Workplace Impact of Long COVID

A new whitepaper titled Long COVID’s Impact on Adult Americans: Early Indicators Estimating Prevalence and Cost was published in April 2022 by Solve Long Covid Initiative. The whitepaper uses mathematical models to estimate the magnitude of this public health crisis on national and state levels.

“Long COVID’s impact is profound on all facets of life, work and community, and will only intensify in the months and years ahead,” says Oved Amitay, president and CEO, Solve M.E. “We have multiple problems to solve — employees who are unable to work full-time are facing the loss of health insurance coverage and other vital benefits. Organizations with outdated disability policies must revise them to accommodate the unpredictable nature and lack of timelines for chronic illness recovery. Local, state and federal leaders need to establish effective programs to support people facing these life-changing conditions.”

Among the key paper findings, it is estimated that:

  • 22 million U.S. adults are living with long COVID – close to 7% of the population.
  • 7 million are experiencing disabling long COVID – 2.3% of the population.
  • As of January 2022, the cumulative cost of long COVID is estimated at more than $386 billion. [This estimate includes lost wages, lost savings and medical expenses incurred by individuals. It does not include costs incurred by businesses or government agencies.]
  • California has the highest number of cases of all 50 states, with more than 2.4 million long COVID cases and 817,000 disabling long COVID cases. Cumulative personal financial burden is estimated at $43.2 billion.
  • When looking at the proportion of a state’s population that is afflicted, Rhode Island tops the list, with an estimated 9.5% and 3.1% of residents suffering from long COVID and disabling long COVID, respectively.
  • Complete state statistics may be found here.

“We defined disabled by long COVID as 10% of those infected by SARS-CoV-2 consistent with current research and reports from patients,” whitepaper co-author Emily Taylor tells AmeriDisability. Taylor, who serves as Solve M.E.’s VP of Advocacy and Engagement, further explains, “Disabling long COVID (DLC) in this paper is defined as a patient’s experience of disabling or disruptive symptoms following a suspected or confirmed case of COVID-19. Those experiencing DLC are unable to fully function at their pre-infection level and the experience of lingering or new symptoms results in disability or reduced ability to work.”

Doctor talking to patient
photo: CDC

The Battle for Disability Benefits

Even though long COVID can now be considered a disability under ADA, those impacted are struggling to obtain disability insurance (DI), among other hurdles. The U.S. Social Security Administration (SSA) says that it received 23,000 applications since the beginning of the pandemic that mention long COVID in some way, which is less than 1% of its annual applications. However, long COVID-related numbers may be significantly undercounted for a variety of reasons, such as lack of clear medical guidance, uncertainty surrounding latent illness cause and effect, difficulties with criteria/documentation, lengthy application processes and high rejection rates.

The Washington Post recently reported that many long COVID patients are indeed too ill to work yet are having “difficulty meeting the evidence threshold insurers’ demand: objective medical test results showing an inability to perform work.” So, some applicants are seeking much-needed assistance from companies like Allsup, a nationwide provider of Social Security Disability Insurance (SSDI) representation and veterans’ disability appeals services. That’s because, according to Allsup, about 64% of new SSDI applicants will have their initial application denied and many will then encounter a lengthy appeals process.

“A 2021 study by National Bureau of Economic Research suggested that having an SSDI representative assist you with your application improves the likelihood of an approval by 23%,” says T.J. Geist, Allsup Principal Advocate. “As the study indicates, this is often because an experienced representative understands the SSA’s medical listings and how to thoroughly document that someone meets these listings.” And oftentimes, individuals who are experiencing severe medical issues find it a tall task to advocate for themselves, notes Geist. “Sometimes claimants are not honest enough with themselves about the struggles they’re experiencing.”

It’s quite possible that long COVID has likely increased disability insurance applications well beyond the low percentage cited, but identifying accurate statistics is tricky. “I believe this, currently, is one of the many long COVID voids,” says Philippa Dunne, Co-Editor at TLRAnalytics and another co-author of the new whitepaper.

“Those disabled by long COVID are facing many of the same hurdles people with other post-infection illnesses have faced over the years. That includes the challenges of having an invisible illness with multiple definitions and high levels of misinformation. Specifically, the symptom “post-exertional malaise” tends to befuddle disability approval processes,” Taylor says. “This symptom occurs when patients experience a “crash” or worsening of symptoms between 24-48 hours after physical or mental exertion. It’s hard to measure, hard to quantify and often ignored, despite having a devastating impact on a patient’s quality of life,” she adds.

Geist shares similar concerns. “Allsup is seeing dozens of claims monthly specifically citing COVID-19 as a factor. Keep in mind that someone may be applying for SSDI benefits with an existing disability and then experience severe debilitating effects after exposure to the coronavirus. This means the virus has complicated pre-existing issues and worsened them, which could have occurred in connection to lung or other organ damage, neurological or brain-related disease, and other medical issues. So the primary disability may not be listed as long COVID,” he explains.

man in mask talking to doctor
source: Shutterstock

What Long Haulers Need to Know

Geist believes that individuals who experience long-haul symptoms need detailed documentation of what they are experiencing and how it is a direct result of COVID. He suggests that patients maintain constant communication with their medical professionals to track symptoms and health conditions with proper health filings, including tests, screenings and verbal reports.

“To qualify for SSDI benefits, it is important to document the medical condition’s effects including preventing someone’s ability to work and conduct daily activities,” Geist says. And time is a major factor. “The SSDI program requires that they have a severe medically determinable impairment, documented in medical records, that has prevented them from working or will prevent them from working for at least 12 months.”

Continuing the Conversation

Unfortunately, it seems that SSA may have major hiccups to address. According to Geist, Social Security does not currently have a medical listing for COVID-19-related disabilities and, instead, provides general guidance for disability examiners to follow. “We are monitoring how the medical community is addressing long COVID symptoms and determining whether or not a health condition reaches disability status. All things considered, components in this process continue to be fluid and evolving, which can contribute to inconsistency and delays,” he says.

The coronavirus pandemic is, of course, far from over and seemingly everchanging. Yet people with certain disabilities, chronic conditions and weakened immune systems remain at higher risk for severe illness or death. That’s why disability advocates, such as the American Association of People with Disabilities, continue to proactively encourage the CDC and other leading health authorities to keep high-risk populations a priority for both prevention and treatment of COVID. Some disability organizations caution that the CDC’s recent relaxation of restrictions may be premature and, consequently, result in yet another spike in COVID cases.

Expert panel discussions were held in early April 2022 to explore the whitepaper’s findings, as well as the financial, social and emotional impact of long COVID and disabling long COVID. [Here are recording links to session 1 and session 2.] Panelists covered how workplaces and communities are facing challenges, and what support may be needed to provide adequate support. The Solve Long Covid Initiative will host its next program, in partnership with the Global Interdependence Center, on May 19, 2022. Click here for event details.

Editor’s Note: Information pertaining to COVID-19 continues to develop. AmeriDisability strives to provide up-to-date information; however, information may change after our publish date.  

Stem Cell Infusions May Help Young People with Muscular Dystrophy

Staff Writer
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Stem Cell Infusions May Help Young People with Muscular Dystrophy

Duchenne muscular dystrophy is a progressive genetic disorder causing severe disability and early death. Promising animal studies and earlier investigations led to a trial of intravenous stem cell therapy in an 11-year-old boy, described in the winter issue of the Journal of American Physicians and Surgeons by Darah Mohammed Pourakbar, M.S., Kipp Van Camp, D.O., and Cameron D. Knackstedt, D.O.

The patient underwent a 90-day treatment protocol involving three intravenous infusions of mesenchymal stem cells and exosomes derived from placenta and umbilical cord, mixed with platelet-rich plasma. The patient showed improvement in several measures on a musculoskeletal assessment test and stability on cognitive testing. Both the patient and his parents reported positive improvement in his overall balance and dexterity from their daily observations, and they elected to continue treatments after the protocol was completed.

The treatment appeared to be effective and safe. Future studies should involve blinded evaluations of treatment in a large number of patients over a prolonged period, with special attention to comparing the available delivery methods for the stem cells.

Want to read about more scientific studies? Here are similar articles by AmeriDisability.com: 

NEW INCLUSIVE PRODUCT ALERT! A Comfy Line of Accessible Loungewear Just Launched

Staff Writer
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NEW INCLUSIVE PRODUCT ALERT! A Comfy Line of Accessible Loungewear Just Launched

Loungewear just got a bit comfier thanks to Slick Chicks, a female-founded and run social impact company whose core mission is to empower people with the products and community they create. The new line by Slick Chicks features fashionable and functional loungewear and is made for those with physical disabilities, chronic illnesses, or limited dexterity.

“Our mission is to empower people to tackle any of life’s daily challenges because we all deserve a sense of self, dignity, and independence.” –Helya Mohammadian, FOUNDER & CEO of SlicK CHICKS

Slick Chicks’ loungewear is designed with accessible closures, such as self-fastening patches and two-way zippers to best simplify the dressing process — because everyone deserves to feel supported by the products they wear. These accessible closures make Slick Chicks’ loungewear collection easy to take on or off no matter if you’re standing, sitting, or lying down.

Model wear accessible loungewear
Slick Chicks Accessible “V” Neck Crop top with snap buttons and Accessible Side Zip Joggers to simplify dressing. (courtesy of Slick Chicks)

Founder and CEO of Slick Chicks, Helya Mohammadian weighs in,  “It’s not as simple as putting your pants on one leg at a time for everyone. For many, this ritual is difficult and requires extra care and support. That’s where Slick Chicks comes in.”

Every Slick Chicks product is designed with accessibility in mind and Slick Chicks’ newest collection is no exception. Its features focus on comfortability, mobility, and accessibility. Within the past years, the thriving company has developed partnerships with major retailers such as Target, Aerie, and JCPenney. Slick Chicks’ products are now available to purchase online through these major retailers and many more.

A New Brain Implant May Safely Help Those with Paralysis from ALS

Staff Writer
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A New Brain Implant May Safely Help Those with Paralysis from ALS

An investigational device called a brain-computer interface has been found safe in a small study of people with paralysis from ALS, and has allowed participants to use a computer to communicate by text and do daily tasks such as online shopping and banking, according to a preliminary study released at the end of March 2022. The findings were presented at the American Academy of Neurology’s 74th Annual Meeting in Seattle in early April. Another virtual presentation is slated for April 24 to 26, 2022.

ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. People with ALS lose the ability to initiate and control muscle movement, which often leads to total paralysis.

“People with ALS eventually lose their ability to move their limbs, making them unable to operate devices like a phone or computer,” said study author Bruce Campbell, MD, MS, of the University of Melbourne in Australia and a member of the American Academy of Neurology. “Our research is exciting because while other devices require surgery that involves opening the skull, this brain-computer interface device is much less invasive. It receives electrical signals from the brain, allowing people to control a computer by thought.”

ALS letters surrounding by disease-specific words
credit: Shutterstock

For the study, four people with ALS underwent a procedure to have the device implanted within the brain. The brain-computer interface is fed through one of two jugular veins in the neck into a large blood vessel in the brain. The device, comprised of a net-like material with 16 sensors attached, expands to line the vessel wall. That device is connected to an electronic device in the chest that then relays the brain signals from the motor cortex, the part of the brain that generates signals for movement, into commands for a laptop computer.

Researchers monitored participants for one year and found the device was safe. There were no serious adverse events that led to disability or death. The device also stayed in place for all four people and the blood vessel in which the device was implanted remained open.

Researchers also examined whether participants could use the brain-computer interface to perform routine digital tasks. All participants learned how to use the device with eye tracking to use a computer. Eye-tracking technology helps a computer determine what a person is looking at.

Researchers also report that a decoder developed during the study allowed one study participant to control a computer independently without an eye tracker. The machine-learning decoder was programmed as follows: when a trainer asked participants to attempt certain movements, like tapping their foot or extending their knee, the decoder analyzed nerve cell signals from those movement attempts. The decoder was able to translate movement signals into computer navigation.

“Our research is still new, but it holds great promise for people with paralysis who want to maintain a level of independence,” said Campbell. “We are continuing this research in Australia as well as in the United States in larger groups of people.”

10 Sensory-Friendly Activities to do Outdoors this Spring

Nancy DeVault
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0
10 Sensory-Friendly Activities to do Outdoors this Spring

Springtime is the perfect time to enjoy fresh air, sunshine and Mother Nature through a variety of sensory-friendly activities, including tons of fun for children with disabilities and/or special needs.

Studies have concluded that nature is good for one’s overall health. According to the American Society of Landscape Architects, time spent outdoors enhances self-esteem and mood, improves cognitive function and memory-related abilities, and increases attention spans among children with autism spectrum disorder, to name a few of the many known benefits. It’s exciting to know that countless research studies continue to show that nature-based activities for children with special needs positively impact physical, emotional, social and cognitive development.

So, here are ten simple, yet effective sensory-friendly activities for kiddos with special needs to enjoy this spring.

  1. Bubbles

There are a ton of high-tech toys now available for purchase to entertain little cuties that have special needs or developmental delays. And, of course, AmeriDisability doesn’t want to burst the bubble on these awesome disability-tech advancements! But sometimes inexpensive, basic toys create just the priceless engagement that families desire. We’re talking about the precious pastime of blowing bubbles.

Children can work on dexterity and hand-eye coordination as they dip the stick into the jug. Then, watch their oral motor skills magically create bubbles in all shapes, sizes and colors. For those who need a little assistance, either a handheld bubbler or automatic bubble machine might do the trick. And if the smell of fresh-cut grass and flowers blooming in your yard doesn’t stimulate enough, consider adding drops of scented soap or essential oils into the bubbles to achieve an enhanced aromatic experience.

girl with down syndrome walking hand-in-hand between two adults
credit: Shutterstock

  1. Fruit Picking

Wouldn’t a visit to a u-pick farm to gather fresh fruit with the apple of your eye be an added cherry to top off a lovely spring day? The wide-open spaces of local farms are typically pretty comfortable for youngsters that tend to get overwhelmed by more crowded environments. Click over to PickYourOwn.org to find a list of u-pick farms with site details, seasonal produce calendars, recipes and events.

Families, and especially those with special needs, know to plan ahead. So while farms may provide containers for fruit collection, other onsite amenities may vary greatly at differing locations. Consider bringing snacks (allergy-free if needed), water, sunscreen, hats and/or sensory-friendly clothing, handi-wipes, cash (as some farms don’t take credit cards) and perhaps a cooler to transport your freshly-picked produce. It’s also important to note that restrooms may not be available or limited to port-o-lets, so consider taking a bathroom break before arrival or planning accordingly.

Children are more inclined to try new foods, including fruits and vegetables, if and when they are involved in the process. So your picky eater might just be willing to try a blackberry (or other new food) if he/she personally picked it off the bush. U-pick farms are a great way to influence the consumption of healthy foods, especially since people with disabilities can find it more difficult to eat healithy, control their weight and be physically active.

  1. Gardening

According to Obsessed Lawn, an online gardening resource and buying guide, gardening can be an effective form of therapy for individuals with special needs. Not only does it get budding gardeners involved in an activity where they will accomplish something amazing in nature, but gardening also helps develop cognitive reasoning and motor skills. Little diggers can work their hands into the dirt and feel the many textures of the Earth.

Research suggests that gardening reduces stress and depression symptoms, while boosting muscle strength, mental clarity and a sense of accomplishment. Plus, similarly to the fruit picking activity suggestion, food gardeners who increase consumption of fresh fruits and vegetables can reap the added benefits of a decreased waistline and a lowered risk of cardiovascular disease and cancer.

Senior woman with granddaughter surrounded by flowers
credit: CDC

Accessible Gardens is a specialty outdoor company that produces versatile raised garden beds for customers with physical limitations, to make gardening engaging for most including wheelchair users. The Rhode Island-based business was founded in 2008 by Raymond LaRocque, who was eager to work his green thumb despite having an autoimmune-related spinal cord injury. Plus, there are plenty of options when it comes to accessible garden tools for all abilities.

Those interested in insects may enjoy growing milkweed plants and other pollinating plants that attract butterflies, bees and beautiful bugs. Or, build, decorate and hang a birdhouse with your little chickadees to attract the sweet, soothing chirps of colorful creatures.

  1. Jogging or Biking

Sensory-seekers usually like fast, constant movement activities. Riding bicycles or scooters together is a fast-paced way to partake in fun exercise while outdoors. Families with special needs have plenty of options when it comes to adaptive bikes, tricycles, hand-bikes, ride-along seats, comfy bike trailers and so on. With gorgeous temperatures, many sensory-seeking kiddos may also love riding in a jogging stroller while mom or dad breaks a sweat.

  1. Kindness Rocks

Ever noticed a somewhat hidden painted rock with a positive message on it? A grassroots movement, called the Kindness Rocks Project, has gained momentum in recent years with its goal to cultivate connections within communities and lift others up through simple acts of kindness. Give it try by creating some of your own meaningful designs, get messy with the paint and focus on lifting spirits through the power of positive words. This is a beautiful way to promote inclusion and empathy. To take this idea a step further, hide the rocks throughout your neighborhood and send out an invitation for friendly neighbors to participate in a Kindness Rocks scavenger hunt!

  1. Hiking

The National Parks Service (NPS) has several pass programs that grant access to more than 2,000 federal recreation sites across the nation, including National Parks, National Wildlife Refuges and many National Forest and other federal recreation lands. A pass may cover entrance, standard amenity fees and day-use fees for a driver and all passengers in a personal vehicle and may also offer other discounts. Those with disabilities should obtain an Access Pass. This free, lifetime pass is available to U.S. citizens or permanent residents that have a disability. NPS also offers a Military Pass, Senior Pass and other options.

  1. Park Play

Play helps children grow and learn — how they move, how their muscles work, their tactile senses, vision and hearing… all develop as they play. And physical learning contributes to cognitive development, as children hone their motor skills and spatial perception. A trip to the playground can stimulate social engagement and, of course, present many sensory exploration opportunities. Kids may love digging in the sandbox, climbing a rock wall, swinging on the monkey bars, bouncing on the seesaw and soaring high and fast on the swings, among other play opportunities. More and more communities are opening inclusive playgrounds that better foster a welcoming environment for children of all abilities. This includes wheelchair-friendly ramps, braille play stations and more.

boy signing love in ASL
credit: Shutterstock

  1. Sidewalk Chalk

Art therapy, which includes exposure to color (i.e. chromotherapy), is considered an effective rehabilitative method to aid physical and emotional health. As with physical therapy, repetitive exercise (i.e. painting strokes) of weakened muscles can help people with mobility issues gain elasticity, strength and balance. For mental wellbeing, art therapy boosts creative expression, ignites a calming effect and can relieve stress. In fact, a study from University College London found that the same parts of the brain are stimulated when one looks at art as when one is in love; both release the chemical dopamine promoting feelings of affection and desire. Now that’s powerful, right?

You don’t need to be a certified art therapist to tap into the creativity of your budding artist. Informal art exposure at home ─ or, better yet outdoors in your yard ─ can help children with special needs boost energy and happiness, and decrease depression and anxiety.

Nature has a special way of inspiring artistic creation. Grab some watercolors and head outdoors to create masterpieces together. But, for easy breezy art in the sunshine, sidewalk chalk is the best bet! You don’t need any special canvases, just the sidewalk or driveway and whatever chalk color your little hearts desire. With sidewalk chalk, you can practice letters, numbers, shapes, sight words, writing affirmations and, of course, finally fine-tune your attempts at drawing rocket ships, sailboats, rainbows and tons of other pictures. And clean-up is totally simple… just shake chalk dust off of clothes, wash up in the bathroom sink and let the rainclouds organically clear your cement canvas for a clean slate for your next sidewalk chalk play date.

  1. Spring Cleaning 

While maybe not the most fun activity on this list, believe it or not some sensory-seeking kids can really get into spring cleaning. The vacuum does scare some sensory-sensitive children, but those who like loud noises enjoy the labor of pushing the loud, heavy machine. And the motion of using a duster is not all that different than stroking a paintbrush. Can cleaning dishes in a super sudsy sink double as water playtime? Sure… especially if you toss a few toys in for cleaning too. And cleaning the car in the driveway is guaranteed springtime fun! You just know that hose is going to ignite a family water squirt competition.

  1. Spring-Themed Sensory Bins

Sensory bins filled with textured items like beans, corn, rice, rocks, sand and water beads can make for stimulating bases to fill with scoopers and toys. To make a bin seasonally fun, opt for: (1) pebbles, plants and flower petals tossed with plastic bugs and butterflies; (2) pastel-colored sprinkles mixed with toy bunnies, chicks and farm animals; or (3) firm, blue gelatin filled with seashells and toy sea animals.

Also try:

  • Camping (at an accessible site for experienced campers, or the backyard for novice campers)
  • Catch fireflies
  • Glow stick dance party in the yard
  • Hopscotch
  • Picnics
  • Stargazing
  • Water play, such as sprinklers, slip n’ slid, kiddie pool, etc.

As a reminder, some people with special needs may be heat or sun intolerant due to a specific disability, condition or because of prescribed medication. Do enjoy the outdoors safely with ample shade, sunscreen and hydration.

Happy Spring! Wishing you a sensational season.

New App Helps Achieve Better Dental Visits for Children with Autism

Staff Writer
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New App Helps Achieve Better Dental Visits for Children with Autism

For people with autism spectrum disorder (ASD), brushing teeth or visiting the dentist doesn’t have to be so overwhelming. That’s according to InfiniTeach, developers of the All Smiles Shine app. About 1-in-54 children are diagnosed with ASD and some research shows that those with ASD have a higher risk of dental disease.

“Oral health habits can be hard for many people with ASD, largely due to sensory sensitivities,” said Barbie Vartanian, Executive Director of Project Accessible Oral Health (PAOH). “In addition, self-soothing habits, such as teeth grinding or eating sugary foods, can also affect dental health. This is often compounded by communication challenges that make it difficult to relay concerns about teeth, resulting in delays in care. The All Smiles Shine app offers evidence-based solutions to help.”

The All Smiles Shine app was created in partnership with PAOH and Delta Dental to help the autism and intellectual and developmental disabilities communities learn about oral health care, practice preventive care at home, and prepare for an upcoming visit to the dentist.

small blackboard with 'autism' written in chalk; sign is next to a teddy bear
credit: Shutterstock

App features include:

  • At-home videos that support preventive care practices, a flossing and brushing tracker with rewards, and how to prepare for a dental visit.
  • Personalized sensory preferences, interests and calming tools to share with the dentist.
  • Picture schedules, breathing exercises, emotion identifiers and more.
  • Caregiver tips and tricks for daily brushing, flossing and healthy eating.

“Utilizing technology to encourage a better self-care oral health program holds the hope of improving the health of those with autism spectrum disorder,” says Dr. Mark S. Wolff, Dean of the Penn Dental Medicine, the administrative home of PAOH.

All Smiles Shine is uniquely designed to help alleviate anxiety and encourage better habits through evidence-based autism interventions and best practices in technology development, as identified by the National Professional Development Center on Autism Spectrum Disorder. By embedding these evidence-based practices into the app, people with ASD and their families can customize the experience to their needs.

“This is just the beginning. The All Smiles Shine app will evolve to meet the ongoing needs of the autism community and children with dental anxiety,” said Holli Seabury, EdD, executive director of the Delta Dental Foundation. “We hope you’ll choose to grow with us.”

Download All Smiles Shine from the Apple App Store or Google Play.

Aircraft Lavatories May Finally Become More Accessible for People with Disabilities

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Aircraft Lavatories May Finally Become More Accessible for People with Disabilities

The U.S. Department of Transportation just announced in March 2022 that it is publishing a Notice of Proposed Rulemaking (NPRM) that would improve the accessibility of lavatories for people with disabilities traveling on new single-aisle aircraft.

“Far too often, travelers with disabilities don’t have the opportunity to fly to their destinations because they can’t access the lavatories on most airplanes,” said U.S. Transportation Secretary Pete Buttigieg. “This rule would make airplane lavatories more accessible for passengers with disabilities, and bring us one step closer to the day when air travel is possible for everyone.”

Currently, there is no federal requirement that lavatories on single-aisle aircraft be accessible to individuals with disabilities. The inability to use the lavatory on long flights can present significant challenges to passengers who use wheelchairs. Some passengers, knowing that they will not be able to use the toilet during a flight, dehydrate themselves so that they do not need to urinate. These actions can cause many adverse health effects. Other passengers use adult diapers or catheters, which they may find degrading and uncomfortable. Still, other wheelchair users avoid flying altogether.

Single-aisle aircraft now operate the vast majority of domestic flights, including a large share of long, cross-country flights. The proposed rule would require airlines to make at least one lavatory on new single-aisle aircraft with 125 or more passenger seats large enough to permit a passenger with a disability (with the help of an assistant, if necessary) to approach, enter and maneuver within the aircraft lavatory, to use all facilities in that lavatory, and to leave using the aircraft’s onboard wheelchair.

This rulemaking is one of the Department’s highest priority regulatory initiatives because it advances equity and reduces discrimination by increasing access to transportation for individuals with disabilities.

lavatory sign with handicapped accessible inclusion
credit: Shutterstock

The proposed rule would apply to new aircraft ordered 18 years after the effective date of the final rule or delivered 20 years after the effective date of the final rule. It is the result of a 2016 negotiated rulemaking that was produced through a consensus among a cross-section of stakeholders, including disability organizations such as Paralyzed Veterans of America and the National Disability Rights Network; the Association of Flight Attendants; Airbus; and airlines. However, given this long timeframe and in recognition of the affirmative responsibility of the Federal government to advance equity, civil rights and equal opportunity for all individuals, the Department is seeking comment on whether these accessibility improvements could be implemented more quickly than proposed. Based on the comments it receives, the Department may adjust the implementation timeline as part of the final rule.

“Paralyzed Veterans of America has been waiting for access to lavatories on single-aisle aircraft for people with mobility disabilities since the passage of the Air Carrier Access Act nearly 36 years ago,” said Charles Brown, National President of Paralyzed Veterans of America. “That’s 36 years of fasting, dehydrating and developing medical issues as a result of a lack of access to inflight lavatories. We are pleased that the Department of Transportation is now moving this long-overdue rule forward and see it as one step closer to equitable treatment. We cannot underscore the importance of having dignified access to lavatories for our physical health and well-being, and we must have lavatory access as soon as possible.”

Take Action & Share Your Comments

The Department encourages members of the public and interested parties to submit comments on the NRPM. Comments must be received within 60 days of the date the notice being published in the Federal Register. The NPRM can be found at https://www.transportation.gov/individuals/aviation-consumer-protection/accessible-lavatories-single-aisle-aircraft-part-2 and at regulations.gov, docket number DOT-OST-2021-0137.

person assisting wheelchair user through airport
credit: Shutterstock

The Department is also examining other ways to improve the air travel environment for persons with disabilities. The Department’s Office of Aviation Consumer Protection (OACP) assists, educates and protects aviation consumers by reviewing and responding to thousands of consumer complaints about air travel; investigating and enforcing, as appropriate, violations of aviation consumer protection, civil rights, and licensing requirements against airlines and ticket agents; and assessing the need for and drafting aviation consumer protection and civil rights regulations. Additional information and resources, including information on how to file a complaint with OACP, can be found here.

Want to read similar content? Check these articles out: 

Source: Department of Transportation

Rabbits Make Remarkable Therapy Animals and Emotional Support Pets

Nancy DeVault
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0
Rabbits Make Remarkable Therapy Animals and Emotional Support Pets

According to the American Veterinary Medical Association, animals can provide essential aid to people with disabilities and varying health conditions. There are three types of assistance animals: service animals, emotional support animals and therapy animals. And dogs, cats and horses no longer rule the roost when it comes to assistance animals! Bunnies are hopping into the mix to provide physical and emotional support to people in need too.

Rabbits as Emotional Support Animals

The dog is commonly called “man’s best friend” but, as it turns out, rabbits can also make people pretty hoppy (well, that’s happy). Amy Pratt is a lifelong rabbit owner who has been specializing in rabbits at the Humane Rescue Alliance. Through her website, BunnyLady.com, Pratt outlines why many animal lovers find rabbits to be ideal emotional support animals. Rabbits are gentle, quiet, clean, don’t require much space and are receptive to training, among other positive attributes. Pratt reminds her website visitors that in order for rabbits (or any animal) to be certified as an emotional support pet, documentation must be signed by a licensed psychologist or therapist.

Many people impacted by emotional stress find rabbits to be calming. This includes those impacted by depression, PTSD, schizophrenia and other conditions, according to advocates like Sandra Lee Amidon and Rebecca Clawson who serve as educators for the House Rabbit Society. Headquartered in Richmond, California, this nonprofit animal welfare organization has a mission of rabbit rescue and education, which includes the promotion of rabbits as emotional support pets and/or therapy animals.

“A person with PTSD could benefit from petting a relaxed rabbit,” Clawson suggests. For example, she says, “Interacting with an adorable nose-wriggling, tooth-purring, relaxed rabbit who responds positively to gentle pets while the individual temporarily contains their own anxiety can be soothing and healing.”

fluffy white and brown bunny beside colorful toy
credit: House Rabbit Society; photographer Paige K Parsons for House Rabbit Society (@paigekparsons)

Rabbits As Therapy Animals

Therapy animals are becoming increasingly popular in hospitals, nursing homes, schools and post-trauma or disaster settings. Animal-assisted therapy is a therapeutic intervention that incorporates animals into a treatment plan, and is typically used to enhance or complement the benefits of more traditional therapy tactics.

Because patients’ needs are uniquely different, goals associated with animal-assisted therapy vary. For someone concentrating on mental health, for instance, benefits may include social development, increased self-esteem, better social skills and increased empathy and nurturing skills. For someone focused on physical gains, animal-assisted therapy may address flexibility, mobility, strength or other skills.

As a survivor of traumatic brain injury (TBI), Clawson personally attests to the impact that rabbits have had on her own therapeutic journey. “Caring for bunnies has helped me with my physical, cognitive, emotional and social needs. I’m able to work on balance and coordination when I get down on floor level to pet my bunnies and play with them or groom them. Picking up their supplies and toys, cleaning out litter boxes and shaking out their beds and blankets all help strengthen me too,” she declares.

And that’s not all. “I’m able to work on cognitive processing when I need to organize their veterinarian appointments and medication schedules and any changes in their diets or put together a supply order. I’m able to shut out any worry or anxiety and just focus on my rabbits being silly or napping peacefully,” Clawson, who resides in Utah, adds.

Clawson says she also enjoys interacting with and learning from other rabbit caregivers, rescuers and veterinary professionals because this motivates her to further tackle social anxiety. In addition to TBI survivors like Clawson, people with addiction, autism, dementia, multiple sclerosis, stroke, spinal cord injury and many other diverse disabilities and conditions also find success using animal-assisted therapy, which may include interaction with or observation of rabbits.

Amidon explains, “They [rabbits] have a variety of different personalities, so finding one that suits each individual, their specific needs and their lifestyle is generally doable when done through a rescue organization that knows each rabbit’s personality, behaviors and medical needs well.” She continues, “Some rabbits do well sitting on your lap and being pet for periods of time which can be great for those who experience loneliness or lack of trust in relationships with others (though these rabbits aren’t as common as normally portrayed), while some have more playful personalities which allows a trusting relationship to be developed through things like clicker training and types of interaction that is more suited to those with sensory disorders/illnesses who are looking for companionship that doesn’t require exposure to sensory triggers.”

black bunny sitting on floor
credit: House Rabbit Society; photographer Paige K Parsons for House Rabbit Society (@paigekparsons)

Clawson believes anyone who can safely interact with a pet may respond well to rabbits. “A person with occupational therapy needs could benefit by gently stroking a snuggly rabbit’s forehead or ears, or by brushing the rabbit’s fur. They could also work on dexterity by picking up a toy or treat and offering it to a rabbit,” she says. And Clawson further offers, “A person with weakness issues could benefit from playing apple stick tug-of-war with a rabbit. They just hold the apple stick while the rabbit tugs, wins and scampers off with their prize.”

Additionally, a person receiving speech therapy might benefit from reading out loud to an inquisitive rabbit or by practicing saying the rabbit’s name.

Before You Hop to It

Before adopting a rabbit to serve as an emotional support pet or a therapy animal, animal lovers should do detailed research to find the best fit.

During the Easter season, rabbit sales significantly increase; but, sadly, far too many rabbits (plus chicks and ducks) are then abandoned at shelters within weeks of the holiday. In fact, rabbits are the third most frequently surrendered animal at shelters and the third most euthanized. That’s why the House Rabbit Society works to combat the common misunderstanding that rabbits are just easy starter pets or simply holiday gifts for children observing Easter.

Rabbits can be wonderful pets and, as highlighted in this article, serve as excellent emotional support pets or therapy animals. However, as the House Rabbit Society notes, it’s important to consider the following before making a holiday-inspired impulse purchase:

  • Rabbits have an average lifespan of 8-14 years. Ownership is a commitment.
  • Rabbits need to be spayed/neutered to prevent cancer and unwanted litters. Up to 80% of female rabbits will develop uterine cancer by age 4-6 if not spayed.
  • Rabbits require a diet of hay, pellets and fresh vegetables.
  • Rabbits should live indoors, inside a family’s home for their safety and health, with 2-4 hours of exercise time in a bunny-proofed environment each day.
  • Rabbits need regular veterinary care by a vet with additional training in exotics, which can be expensive.
  • Rabbits need an annual RHDV2 vaccine.
  • Rabbits are not “low-maintenance” pets — they need as much care and attention as dogs and cats. It can also take longer to bond with them since they are prey animals and can be more fearful.
Brother, who has Down syndrome, hugging sister. Both are wearing accessories.
credit: Shutterstock

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New Clinical Trials Kickoff for Innovative Autism Intervention based on Brain-Computer Interface Technology

Staff Writer
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New Clinical Trials Kickoff for Innovative Autism Intervention based on Brain-Computer Interface Technology

According to estimates from The Centers for Disease Control and Prevention’s (CDC) Autism and Developmental Disabilities Monitoring (ADDM) Network, approximately 1-in-44 children in the U.S. have been identified with autism spectrum disorder (ASD).

“Autism is a complex, lifelong brain difference that affects millions of children and families,” says Bicheng Han, founder and CEO of BrainCo Inc., a brain-computer interface (BCI) company that develops products and services for the U.S. and global markets in personal health and wellbeing, robotic prosthetics and STEM education. “BCI technology is beginning to show real potential in helping people manage and even overcome the impacts of this condition,” Han adds.

Autism Inventions Vary

A large body of research and study on current methodologies such as Applied Behavior Analysis (ABA), Verbal Behavior Therapy (VBT), Cognitive Behavioral Therapy (CBT), Developmental and Individual Differences Relationship (DIR) Therapy, Relationship Development Intervention (RDI) and others has shown that each of these approaches can help develop social and occupational skills in children with autism. Despite broad agreement that these interventions benefit children, it remains difficult to say which type of intervention is best for the individual and how much intervention is needed.

Through clinical trials with China Autism Rehabilitation Center, Shanghai Children’s Hospital and Beijing Children’s Hospital, BrainCo hopes to provide some answers to these questions.

woman seated with child who is wearing a BrainCo headband for autism intervention
credit: BrainCo Autism Training Center

New Autism Intervention Clinical Trial

BrainCo’s new initiative called, Cambridge StarKids Autism Rehabilitation Center, is deploying a new kind of autism intervention that combines a non-invasive EEG headband with computer-based games, activities and exercises. Used in conjunction with other behavioral therapies, the system allows therapists to gain new insights and understanding of the individual’s real-time brain activity and track their progress as they build skills such as learning how to interact with others, reading facial expressions and maintaining eye contact.

“We are excited to offer therapists an effective BCI-based tool in their efforts to help children around the world,” says Mr. Han. “As we get better and better at identifying this challenging neurological condition, it’s more important than ever to uncover new and more effective ways to improve the quality of life for those who are affected by it.” For more information, visit www.brainco.tech.

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Diabetic-Friendly Tips for a Sweet Easter and Passover

Guest Contributor
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Diabetic-Friendly Tips for a Sweet Easter and Passover

By Ayana Young

The smell of spring is in the air. Blooming trees, fresh-cut grass and the crisp, clean scent of, wait, what is that? Marshmallow peeps, sugary fruit slices and matzah?!

Yes, they are here, too. And just like the daffodils, those delightfully decadent treats that come with Easter and Passover can simply not be denied.

Diabetic-Friendly Holidays

But, if you have Type 1 Diabetes (T1D) or a tiny T1D in the house, this time of year brings both squeals of excitement and gasps of deep concern. How much is too much?

As with anything, it’s all about moderation – and monitoring the carbohydrates. So as you enter these holiday days, keep the following carb counters within reach to make sure you – or those you love – are not consuming too much.

This time of year also brings a certain amount of adult toasting and glass clinking. Moderation is needed here, too, as alcohol also is loaded with hidden carbs — and other potential unwanted effects. So, keep this Drinking Safely with T1D tip sheet handy, too.

PRINT THIS Easter candy carb counter in English or Spanish.

Easter card counter

credit: JDRF as a part of the JDRF-Beyond Type 1 Alliance

PRINT THIS Seder plate carb counter in English or Spanish.

Seder plat carb counter
credit: JDRF as a part of the JDRF-Beyond Type 1 Alliance

CLICK OVER to this Passover candy, food and wine carb counter.

Here’s to anything dipped in chocolate! Happy Holidays.

Editor’s note: This content was originally published by JDRF as a part of the JDRF-Beyond Type 1 Alliance.

For more Easter content, read the following articles: 

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