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10 Sensory-Friendly Activities to do Outdoors this Spring

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Springtime is the perfect time to enjoy fresh air, sunshine and Mother Nature through a variety of sensory-friendly activities, including tons of fun for children with disabilities and/or special needs.

Studies have concluded that nature is good for one’s overall health. According to the American Society of Landscape Architects, time spent outdoors enhances self-esteem and mood, improves cognitive function and memory-related abilities, and increases attention spans among children with autism spectrum disorder, to name a few of the many known benefits. It’s exciting to know that countless research studies continue to show that nature-based activities for children with special needs positively impact physical, emotional, social and cognitive development.

So, here are ten simple, yet effective sensory-friendly activities for kiddos with special needs to enjoy this spring.

  1. Bubbles

There are a ton of high-tech toys now available for purchase to entertain little cuties that have special needs or developmental delays. And, of course, AmeriDisability doesn’t want to burst the bubble on these awesome disability-tech advancements! But sometimes inexpensive, basic toys create just the priceless engagement that families desire. We’re talking about the precious pastime of blowing bubbles.

Children can work on dexterity and hand-eye coordination as they dip the stick into the jug. Then, watch their oral motor skills magically create bubbles in all shapes, sizes and colors. For those who need a little assistance, either a handheld bubbler or automatic bubble machine might do the trick. And if the smell of fresh-cut grass and flowers blooming in your yard doesn’t stimulate enough, consider adding drops of scented soap or essential oils into the bubbles to achieve an enhanced aromatic experience.

girl with down syndrome walking hand-in-hand between two adults
credit: Shutterstock
  1. Fruit Picking

Wouldn’t a visit to a u-pick farm to gather fresh fruit with the apple of your eye be an added cherry to top off a lovely spring day? The wide-open spaces of local farms are typically pretty comfortable for youngsters that tend to get overwhelmed by more crowded environments. Click over to PickYourOwn.org to find a list of u-pick farms with site details, seasonal produce calendars, recipes and events.

Families, and especially those with special needs, know to plan ahead. So while farms may provide containers for fruit collection, other onsite amenities may vary greatly at differing locations. Consider bringing snacks (allergy-free if needed), water, sunscreen, hats and/or sensory-friendly clothing, handi-wipes, cash (as some farms don’t take credit cards) and perhaps a cooler to transport your freshly-picked produce. It’s also important to note that restrooms may not be available or limited to port-o-lets, so consider taking a bathroom break before arrival or planning accordingly.

Children are more inclined to try new foods, including fruits and vegetables, if and when they are involved in the process. So your picky eater might just be willing to try a blackberry (or other new food) if he/she personally picked it off the bush. U-pick farms are a great way to influence the consumption of healthy foods, especially since people with disabilities can find it more difficult to eat healithy, control their weight and be physically active.

  1. Gardening

According to Obsessed Lawn, an online gardening resource and buying guide, gardening can be an effective form of therapy for individuals with special needs. Not only does it get budding gardeners involved in an activity where they will accomplish something amazing in nature, but gardening also helps develop cognitive reasoning and motor skills. Little diggers can work their hands into the dirt and feel the many textures of the Earth.

Research suggests that gardening reduces stress and depression symptoms, while boosting muscle strength, mental clarity and a sense of accomplishment. Plus, similarly to the fruit picking activity suggestion, food gardeners who increase consumption of fresh fruits and vegetables can reap the added benefits of a decreased waistline and a lowered risk of cardiovascular disease and cancer.

Senior woman with granddaughter surrounded by flowers
credit: CDC

Accessible Gardens is a specialty outdoor company that produces versatile raised garden beds for customers with physical limitations, to make gardening engaging for most including wheelchair users. The Rhode Island-based business was founded in 2008 by Raymond LaRocque, who was eager to work his green thumb despite having an autoimmune-related spinal cord injury. Plus, there are plenty of options when it comes to accessible garden tools for all abilities.

Those interested in insects may enjoy growing milkweed plants and other pollinating plants that attract butterflies, bees and beautiful bugs. Or, build, decorate and hang a birdhouse with your little chickadees to attract the sweet, soothing chirps of colorful creatures.

  1. Jogging or Biking

Sensory-seekers usually like fast, constant movement activities. Riding bicycles or scooters together is a fast-paced way to partake in fun exercise while outdoors. Families with special needs have plenty of options when it comes to adaptive bikes, tricycles, hand-bikes, ride-along seats, comfy bike trailers and so on. With gorgeous temperatures, many sensory-seeking kiddos may also love riding in a jogging stroller while mom or dad breaks a sweat.

  1. Kindness Rocks

Ever noticed a somewhat hidden painted rock with a positive message on it? A grassroots movement, called the Kindness Rocks Project, has gained momentum in recent years with its goal to cultivate connections within communities and lift others up through simple acts of kindness. Give it try by creating some of your own meaningful designs, get messy with the paint and focus on lifting spirits through the power of positive words. This is a beautiful way to promote inclusion and empathy. To take this idea a step further, hide the rocks throughout your neighborhood and send out an invitation for friendly neighbors to participate in a Kindness Rocks scavenger hunt!

  1. Hiking

The National Parks Service (NPS) has several pass programs that grant access to more than 2,000 federal recreation sites across the nation, including National Parks, National Wildlife Refuges and many National Forest and other federal recreation lands. A pass may cover entrance, standard amenity fees and day-use fees for a driver and all passengers in a personal vehicle and may also offer other discounts. Those with disabilities should obtain an Access Pass. This free, lifetime pass is available to U.S. citizens or permanent residents that have a disability. NPS also offers a Military Pass, Senior Pass and other options.

  1. Park Play

Play helps children grow and learn — how they move, how their muscles work, their tactile senses, vision and hearing… all develop as they play. And physical learning contributes to cognitive development, as children hone their motor skills and spatial perception. A trip to the playground can stimulate social engagement and, of course, present many sensory exploration opportunities. Kids may love digging in the sandbox, climbing a rock wall, swinging on the monkey bars, bouncing on the seesaw and soaring high and fast on the swings, among other play opportunities. More and more communities are opening inclusive playgrounds that better foster a welcoming environment for children of all abilities. This includes wheelchair-friendly ramps, braille play stations and more.

boy signing love in ASL
credit: Shutterstock
  1. Sidewalk Chalk

Art therapy, which includes exposure to color (i.e. chromotherapy), is considered an effective rehabilitative method to aid physical and emotional health. As with physical therapy, repetitive exercise (i.e. painting strokes) of weakened muscles can help people with mobility issues gain elasticity, strength and balance. For mental wellbeing, art therapy boosts creative expression, ignites a calming effect and can relieve stress. In fact, a study from University College London found that the same parts of the brain are stimulated when one looks at art as when one is in love; both release the chemical dopamine promoting feelings of affection and desire. Now that’s powerful, right?

You don’t need to be a certified art therapist to tap into the creativity of your budding artist. Informal art exposure at home ─ or, better yet outdoors in your yard ─ can help children with special needs boost energy and happiness, and decrease depression and anxiety.

Nature has a special way of inspiring artistic creation. Grab some watercolors and head outdoors to create masterpieces together. But, for easy breezy art in the sunshine, sidewalk chalk is the best bet! You don’t need any special canvases, just the sidewalk or driveway and whatever chalk color your little hearts desire. With sidewalk chalk, you can practice letters, numbers, shapes, sight words, writing affirmations and, of course, finally fine-tune your attempts at drawing rocket ships, sailboats, rainbows and tons of other pictures. And clean-up is totally simple… just shake chalk dust off of clothes, wash up in the bathroom sink and let the rainclouds organically clear your cement canvas for a clean slate for your next sidewalk chalk play date.

  1. Spring Cleaning 

While maybe not the most fun activity on this list, believe it or not some sensory-seeking kids can really get into spring cleaning. The vacuum does scare some sensory-sensitive children, but those who like loud noises enjoy the labor of pushing the loud, heavy machine. And the motion of using a duster is not all that different than stroking a paintbrush. Can cleaning dishes in a super sudsy sink double as water playtime? Sure… especially if you toss a few toys in for cleaning too. And cleaning the car in the driveway is guaranteed springtime fun! You just know that hose is going to ignite a family water squirt competition.

  1. Spring-Themed Sensory Bins

Sensory bins filled with textured items like beans, corn, rice, rocks, sand and water beads can make for stimulating bases to fill with scoopers and toys. To make a bin seasonally fun, opt for: (1) pebbles, plants and flower petals tossed with plastic bugs and butterflies; (2) pastel-colored sprinkles mixed with toy bunnies, chicks and farm animals; or (3) firm, blue gelatin filled with seashells and toy sea animals.

Also try:

  • Camping (at an accessible site for experienced campers, or the backyard for novice campers)
  • Catch fireflies
  • Glow stick dance party in the yard
  • Hopscotch
  • Picnics
  • Stargazing
  • Water play, such as sprinklers, slip n’ slid, kiddie pool, etc.

As a reminder, some people with special needs may be heat or sun intolerant due to a specific disability, condition or because of prescribed medication. Do enjoy the outdoors safely with ample shade, sunscreen and hydration.

Happy Spring! Wishing you a sensational season.

New App Helps Achieve Better Dental Visits for Children with Autism

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For people with autism spectrum disorder (ASD), brushing teeth or visiting the dentist doesn’t have to be so overwhelming. That’s according to InfiniTeach, developers of the All Smiles Shine app. About 1-in-54 children are diagnosed with ASD and some research shows that those with ASD have a higher risk of dental disease.

“Oral health habits can be hard for many people with ASD, largely due to sensory sensitivities,” said Barbie Vartanian, Executive Director of Project Accessible Oral Health (PAOH). “In addition, self-soothing habits, such as teeth grinding or eating sugary foods, can also affect dental health. This is often compounded by communication challenges that make it difficult to relay concerns about teeth, resulting in delays in care. The All Smiles Shine app offers evidence-based solutions to help.”

The All Smiles Shine app was created in partnership with PAOH and Delta Dental to help the autism and intellectual and developmental disabilities communities learn about oral health care, practice preventive care at home, and prepare for an upcoming visit to the dentist.

small blackboard with 'autism' written in chalk; sign is next to a teddy bear
credit: Shutterstock

App features include:

  • At-home videos that support preventive care practices, a flossing and brushing tracker with rewards, and how to prepare for a dental visit.
  • Personalized sensory preferences, interests and calming tools to share with the dentist.
  • Picture schedules, breathing exercises, emotion identifiers and more.
  • Caregiver tips and tricks for daily brushing, flossing and healthy eating.

“Utilizing technology to encourage a better self-care oral health program holds the hope of improving the health of those with autism spectrum disorder,” says Dr. Mark S. Wolff, Dean of the Penn Dental Medicine, the administrative home of PAOH.

All Smiles Shine is uniquely designed to help alleviate anxiety and encourage better habits through evidence-based autism interventions and best practices in technology development, as identified by the National Professional Development Center on Autism Spectrum Disorder. By embedding these evidence-based practices into the app, people with ASD and their families can customize the experience to their needs.

“This is just the beginning. The All Smiles Shine app will evolve to meet the ongoing needs of the autism community and children with dental anxiety,” said Holli Seabury, EdD, executive director of the Delta Dental Foundation. “We hope you’ll choose to grow with us.”

Download All Smiles Shine from the Apple App Store or Google Play.

Aircraft Lavatories May Finally Become More Accessible for People with Disabilities

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The U.S. Department of Transportation just announced in March 2022 that it is publishing a Notice of Proposed Rulemaking (NPRM) that would improve the accessibility of lavatories for people with disabilities traveling on new single-aisle aircraft.

“Far too often, travelers with disabilities don’t have the opportunity to fly to their destinations because they can’t access the lavatories on most airplanes,” said U.S. Transportation Secretary Pete Buttigieg. “This rule would make airplane lavatories more accessible for passengers with disabilities, and bring us one step closer to the day when air travel is possible for everyone.”

Currently, there is no federal requirement that lavatories on single-aisle aircraft be accessible to individuals with disabilities. The inability to use the lavatory on long flights can present significant challenges to passengers who use wheelchairs. Some passengers, knowing that they will not be able to use the toilet during a flight, dehydrate themselves so that they do not need to urinate. These actions can cause many adverse health effects. Other passengers use adult diapers or catheters, which they may find degrading and uncomfortable. Still, other wheelchair users avoid flying altogether.

Single-aisle aircraft now operate the vast majority of domestic flights, including a large share of long, cross-country flights. The proposed rule would require airlines to make at least one lavatory on new single-aisle aircraft with 125 or more passenger seats large enough to permit a passenger with a disability (with the help of an assistant, if necessary) to approach, enter and maneuver within the aircraft lavatory, to use all facilities in that lavatory, and to leave using the aircraft’s onboard wheelchair.

This rulemaking is one of the Department’s highest priority regulatory initiatives because it advances equity and reduces discrimination by increasing access to transportation for individuals with disabilities.

lavatory sign with handicapped accessible inclusion
credit: Shutterstock

The proposed rule would apply to new aircraft ordered 18 years after the effective date of the final rule or delivered 20 years after the effective date of the final rule. It is the result of a 2016 negotiated rulemaking that was produced through a consensus among a cross-section of stakeholders, including disability organizations such as Paralyzed Veterans of America and the National Disability Rights Network; the Association of Flight Attendants; Airbus; and airlines. However, given this long timeframe and in recognition of the affirmative responsibility of the Federal government to advance equity, civil rights and equal opportunity for all individuals, the Department is seeking comment on whether these accessibility improvements could be implemented more quickly than proposed. Based on the comments it receives, the Department may adjust the implementation timeline as part of the final rule.

“Paralyzed Veterans of America has been waiting for access to lavatories on single-aisle aircraft for people with mobility disabilities since the passage of the Air Carrier Access Act nearly 36 years ago,” said Charles Brown, National President of Paralyzed Veterans of America. “That’s 36 years of fasting, dehydrating and developing medical issues as a result of a lack of access to inflight lavatories. We are pleased that the Department of Transportation is now moving this long-overdue rule forward and see it as one step closer to equitable treatment. We cannot underscore the importance of having dignified access to lavatories for our physical health and well-being, and we must have lavatory access as soon as possible.”

Take Action & Share Your Comments

The Department encourages members of the public and interested parties to submit comments on the NRPM. Comments must be received within 60 days of the date the notice being published in the Federal Register. The NPRM can be found at https://www.transportation.gov/individuals/aviation-consumer-protection/accessible-lavatories-single-aisle-aircraft-part-2 and at regulations.gov, docket number DOT-OST-2021-0137.

person assisting wheelchair user through airport
credit: Shutterstock

The Department is also examining other ways to improve the air travel environment for persons with disabilities. The Department’s Office of Aviation Consumer Protection (OACP) assists, educates and protects aviation consumers by reviewing and responding to thousands of consumer complaints about air travel; investigating and enforcing, as appropriate, violations of aviation consumer protection, civil rights, and licensing requirements against airlines and ticket agents; and assessing the need for and drafting aviation consumer protection and civil rights regulations. Additional information and resources, including information on how to file a complaint with OACP, can be found here.

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Source: Department of Transportation

Rabbits Make Remarkable Therapy Animals and Emotional Support Pets

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According to the American Veterinary Medical Association, animals can provide essential aid to people with disabilities and varying health conditions. There are three types of assistance animals: service animals, emotional support animals and therapy animals. And dogs, cats and horses no longer rule the roost when it comes to assistance animals! Bunnies are hopping into the mix to provide physical and emotional support to people in need too.

Rabbits as Emotional Support Animals

The dog is commonly called “man’s best friend” but, as it turns out, rabbits can also make people pretty hoppy (well, that’s happy). Amy Pratt is a lifelong rabbit owner who has been specializing in rabbits at the Humane Rescue Alliance. Through her website, BunnyLady.com, Pratt outlines why many animal lovers find rabbits to be ideal emotional support animals. Rabbits are gentle, quiet, clean, don’t require much space and are receptive to training, among other positive attributes. Pratt reminds her website visitors that in order for rabbits (or any animal) to be certified as an emotional support pet, documentation must be signed by a licensed psychologist or therapist.

Many people impacted by emotional stress find rabbits to be calming. This includes those impacted by depression, PTSD, schizophrenia and other conditions, according to advocates like Sandra Lee Amidon and Rebecca Clawson who serve as educators for the House Rabbit Society. Headquartered in Richmond, California, this nonprofit animal welfare organization has a mission of rabbit rescue and education, which includes the promotion of rabbits as emotional support pets and/or therapy animals.

“A person with PTSD could benefit from petting a relaxed rabbit,” Clawson suggests. For example, she says, “Interacting with an adorable nose-wriggling, tooth-purring, relaxed rabbit who responds positively to gentle pets while the individual temporarily contains their own anxiety can be soothing and healing.”

fluffy white and brown bunny beside colorful toy
credit: House Rabbit Society; photographer Paige K Parsons for House Rabbit Society (@paigekparsons)

Rabbits As Therapy Animals

Therapy animals are becoming increasingly popular in hospitals, nursing homes, schools and post-trauma or disaster settings. Animal-assisted therapy is a therapeutic intervention that incorporates animals into a treatment plan, and is typically used to enhance or complement the benefits of more traditional therapy tactics.

Because patients’ needs are uniquely different, goals associated with animal-assisted therapy vary. For someone concentrating on mental health, for instance, benefits may include social development, increased self-esteem, better social skills and increased empathy and nurturing skills. For someone focused on physical gains, animal-assisted therapy may address flexibility, mobility, strength or other skills.

As a survivor of traumatic brain injury (TBI), Clawson personally attests to the impact that rabbits have had on her own therapeutic journey. “Caring for bunnies has helped me with my physical, cognitive, emotional and social needs. I’m able to work on balance and coordination when I get down on floor level to pet my bunnies and play with them or groom them. Picking up their supplies and toys, cleaning out litter boxes and shaking out their beds and blankets all help strengthen me too,” she declares.

And that’s not all. “I’m able to work on cognitive processing when I need to organize their veterinarian appointments and medication schedules and any changes in their diets or put together a supply order. I’m able to shut out any worry or anxiety and just focus on my rabbits being silly or napping peacefully,” Clawson, who resides in Utah, adds.

Clawson says she also enjoys interacting with and learning from other rabbit caregivers, rescuers and veterinary professionals because this motivates her to further tackle social anxiety. In addition to TBI survivors like Clawson, people with addiction, autism, dementia, multiple sclerosis, stroke, spinal cord injury and many other diverse disabilities and conditions also find success using animal-assisted therapy, which may include interaction with or observation of rabbits.

Amidon explains, “They [rabbits] have a variety of different personalities, so finding one that suits each individual, their specific needs and their lifestyle is generally doable when done through a rescue organization that knows each rabbit’s personality, behaviors and medical needs well.” She continues, “Some rabbits do well sitting on your lap and being pet for periods of time which can be great for those who experience loneliness or lack of trust in relationships with others (though these rabbits aren’t as common as normally portrayed), while some have more playful personalities which allows a trusting relationship to be developed through things like clicker training and types of interaction that is more suited to those with sensory disorders/illnesses who are looking for companionship that doesn’t require exposure to sensory triggers.”

black bunny sitting on floor
credit: House Rabbit Society; photographer Paige K Parsons for House Rabbit Society (@paigekparsons)

Clawson believes anyone who can safely interact with a pet may respond well to rabbits. “A person with occupational therapy needs could benefit by gently stroking a snuggly rabbit’s forehead or ears, or by brushing the rabbit’s fur. They could also work on dexterity by picking up a toy or treat and offering it to a rabbit,” she says. And Clawson further offers, “A person with weakness issues could benefit from playing apple stick tug-of-war with a rabbit. They just hold the apple stick while the rabbit tugs, wins and scampers off with their prize.”

Additionally, a person receiving speech therapy might benefit from reading out loud to an inquisitive rabbit or by practicing saying the rabbit’s name.

Before You Hop to It

Before adopting a rabbit to serve as an emotional support pet or a therapy animal, animal lovers should do detailed research to find the best fit.

During the Easter season, rabbit sales significantly increase; but, sadly, far too many rabbits (plus chicks and ducks) are then abandoned at shelters within weeks of the holiday. In fact, rabbits are the third most frequently surrendered animal at shelters and the third most euthanized. That’s why the House Rabbit Society works to combat the common misunderstanding that rabbits are just easy starter pets or simply holiday gifts for children observing Easter.

Rabbits can be wonderful pets and, as highlighted in this article, serve as excellent emotional support pets or therapy animals. However, as the House Rabbit Society notes, it’s important to consider the following before making a holiday-inspired impulse purchase:

  • Rabbits have an average lifespan of 8-14 years. Ownership is a commitment.
  • Rabbits need to be spayed/neutered to prevent cancer and unwanted litters. Up to 80% of female rabbits will develop uterine cancer by age 4-6 if not spayed.
  • Rabbits require a diet of hay, pellets and fresh vegetables.
  • Rabbits should live indoors, inside a family’s home for their safety and health, with 2-4 hours of exercise time in a bunny-proofed environment each day.
  • Rabbits need regular veterinary care by a vet with additional training in exotics, which can be expensive.
  • Rabbits need an annual RHDV2 vaccine.
  • Rabbits are not “low-maintenance” pets — they need as much care and attention as dogs and cats. It can also take longer to bond with them since they are prey animals and can be more fearful.
Brother, who has Down syndrome, hugging sister. Both are wearing accessories.
credit: Shutterstock

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New Clinical Trials Kickoff for Innovative Autism Intervention based on Brain-Computer Interface Technology

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According to estimates from The Centers for Disease Control and Prevention’s (CDC) Autism and Developmental Disabilities Monitoring (ADDM) Network, approximately 1-in-44 children in the U.S. have been identified with autism spectrum disorder (ASD).

“Autism is a complex, lifelong brain difference that affects millions of children and families,” says Bicheng Han, founder and CEO of BrainCo Inc., a brain-computer interface (BCI) company that develops products and services for the U.S. and global markets in personal health and wellbeing, robotic prosthetics and STEM education. “BCI technology is beginning to show real potential in helping people manage and even overcome the impacts of this condition,” Han adds.

Autism Inventions Vary

A large body of research and study on current methodologies such as Applied Behavior Analysis (ABA), Verbal Behavior Therapy (VBT), Cognitive Behavioral Therapy (CBT), Developmental and Individual Differences Relationship (DIR) Therapy, Relationship Development Intervention (RDI) and others has shown that each of these approaches can help develop social and occupational skills in children with autism. Despite broad agreement that these interventions benefit children, it remains difficult to say which type of intervention is best for the individual and how much intervention is needed.

Through clinical trials with China Autism Rehabilitation Center, Shanghai Children’s Hospital and Beijing Children’s Hospital, BrainCo hopes to provide some answers to these questions.

woman seated with child who is wearing a BrainCo headband for autism intervention
credit: BrainCo Autism Training Center

New Autism Intervention Clinical Trial

BrainCo’s new initiative called, Cambridge StarKids Autism Rehabilitation Center, is deploying a new kind of autism intervention that combines a non-invasive EEG headband with computer-based games, activities and exercises. Used in conjunction with other behavioral therapies, the system allows therapists to gain new insights and understanding of the individual’s real-time brain activity and track their progress as they build skills such as learning how to interact with others, reading facial expressions and maintaining eye contact.

“We are excited to offer therapists an effective BCI-based tool in their efforts to help children around the world,” says Mr. Han. “As we get better and better at identifying this challenging neurological condition, it’s more important than ever to uncover new and more effective ways to improve the quality of life for those who are affected by it.” For more information, visit www.brainco.tech.

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Diabetic-Friendly Tips for a Sweet Easter and Passover

By Ayana Young

The smell of spring is in the air. Blooming trees, fresh-cut grass and the crisp, clean scent of, wait, what is that? Marshmallow peeps, sugary fruit slices and matzah?!

Yes, they are here, too. And just like the daffodils, those delightfully decadent treats that come with Easter and Passover can simply not be denied.

Diabetic-Friendly Holidays

But, if you have Type 1 Diabetes (T1D) or a tiny T1D in the house, this time of year brings both squeals of excitement and gasps of deep concern. How much is too much?

As with anything, it’s all about moderation – and monitoring the carbohydrates. So as you enter these holiday days, keep the following carb counters within reach to make sure you – or those you love – are not consuming too much.

This time of year also brings a certain amount of adult toasting and glass clinking. Moderation is needed here, too, as alcohol also is loaded with hidden carbs — and other potential unwanted effects. So, keep this Drinking Safely with T1D tip sheet handy, too.

PRINT THIS Easter candy carb counter in English or Spanish.

Easter card counter

credit: JDRF as a part of the JDRF-Beyond Type 1 Alliance

PRINT THIS Seder plate carb counter in English or Spanish.

Seder plat carb counter
credit: JDRF as a part of the JDRF-Beyond Type 1 Alliance

CLICK OVER to this Passover candy, food and wine carb counter.

Here’s to anything dipped in chocolate! Happy Holidays.

Editor’s note: This content was originally published by JDRF as a part of the JDRF-Beyond Type 1 Alliance.

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Organ Donors Don’t Wear Capes… Yet They’re Lifesaving Heroes

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Since its founding in 1992, Donate Life America’s (DLA) mission has been to raise essential awareness surrounding organ donation with a vision focused on saving lives.

Celebrated annually in April, National Donate Life Month was established to educate and encourage individuals to register as organ, eye,  tissue, marrow and blood donors ─ also referred to as living donors. This observance period is also a time to honor heroic donors, donors’ families, recipients, caregivers and the clinical teams within this lifesaving community.

Understanding the Critical Need

In 2021, thanks to the generosity of dedicated supporters, transplant experts performed more than 41,000 organ transplants in the U.S. — a record amount. Plus, DLA saw organ donations from deceased donors set an annual record for the 11th consecutive year. Living donor transplants, which decreased significantly in 2020 due to the COVID-19 pandemic, also increased with over 6,500 living donor transplants performed.

Yet, over 100,000 people are now waiting for an organ transplant, while thousands more await cornea and tissue transplants. Another person in dire need is added to these lists every nine minutes. Sadly, transplant waitlists include more than 1,900 children under the age of 18. Additionally, alarming data shows that people of color make up nearly 60 percent of individuals awaiting an organ transplant. That’s why DLA is prioritizing the promotion of greater diversity in organ donation. Collectively, we all can make a difference!

Remarkably, a single organ donor can save up to eight lives; and tissue donors can reach up to 75 individuals. With an average of 17 people dying every day while waiting for their transplant gift, there has never been a greater need to become a donor.

graphic of organ donation impact
credit: Donate Life America

Consider Organ Donation

Becoming a living donor is an option for those who wish to give the gift of life while they are still living a healthy life. Not only do living donations save lives but it also expedites an otherwise uncertain waiting period for those in need of a transplant from a deceased donor.

Choosing to become a donor or to make the decision on a loved one’s behalf can, understandably, generate an array of questions and emotions. DLA has a full support team with branches that extend countrywide to guide those considering organ donation through each step within the donation and receiving process.

Around the U.S., families and organizations are being united through these vital donations. Recipients have a renewed sense of living and are given a second chance at life. For donor families who are coping with grief and the hardships of loss, knowing they are able to honor the legacy of their loved ones as they live on in others offers them a special sense of peace.

“Without the organ donor, there is no story, no hope, no transplant. But when there is an organ donor, life springs from death, sorrow turns to hope and a terrible loss becomes a gift” – United Network for Organ Sharing

Donate Life America will be launching its regional registration process for living donors sometime in 2022 to reach more prospective living donors. To become an organ donor, register at RegisterMe.org.

Here's how to impact organ donation
credit: Donate Life America

Snapchat Launches Disability-Friendly feature to Teach ASL

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Users of the popular photo messaging app Snapchat can now access a brand new feature. Snap Inc. just launched (on April 5, 2022) the ASL Alphabet Lens which, as the social media company describes, is a first-of-its-kind Lens experience intended to inspire Snapchat’s 319 million users to start learning American Sign Language (ASL).

To build the originative product using augmented reality, Snap Inc. collaborated with SignAll, which develops cutting-edge tech for learning and translating sign language. This inclusive addition seems to be a natural expansion of the company’s effort to continually evolve opportunities for self-expression and connective communication.

Exclusively led by Deaf and Hard-of-Hearing designers at Snap Inc., called the Deafengers, the ASL Alphabet Lens teaches users to fingerspell their name, practice the ASL Alphabet and play games that put newly learned ASL skills to the test. The feature was built using groundbreaking hand-tracking technology that powered last year’s fingerspelling Lenses in honor of International Week of the Deaf.

There are approximately 48 million Deaf and Hard-of-Hearing people in the United States, according to the National Association of the Deaf. And now, thanks to the Deafengers, the social media app is working to bridge communication gaps through inclusion, accessibility and collaboration. A statement on Snap Inc.’s website read: “For native signers, in a world where linguistic inequity is prevalent, we believe AR can help evolve the way we communicate. We look forward to learning more from our community as we strive to continuously improve experiences for everyone on Snapchat.”

Woman and man speaking with ASL
credit: Shutterstock

The launch of the app’s ASL Lens was spotlighted on NBC’s TODAY Show. Hopefully, viewers will soon see more disability-friendly advancements within the tech sector.

“This is a huge step forward,” Howard Rosenblum, CEO of the National Association of the Deaf, declared during TODAY’s segment. “It makes technology more accessible. And I hope that this sends a message to other tech companies. There is such a rich opportunity right in front of them to incorporate American Sign Language in a variety of ways.”

Accolades like that make it all worth it for the change-making designers at Snap Inc., such as Austin Vaday, who is one of the innovative Deafengers. “We want the world to understand that sign language is important, and that everyone signing is important,” Vaday shared with TODAY reporters. And shouldn’t we all want that?!

This isn’t the first time that Vaday has made significant strides to promote the use of ASL and disability inclusion as a whole. In 2018, he led a TEDx lecture titled “Sign Language is my Superpower.” Well, let’s hope Snapchatters are now more motivated than ever to also embody that superpower to help bridge the gap between our Deaf and hearing communities.

How has disability-friendly tech impacted your life? Share with us on Facebook, Twitter, Instagram and/or LinkedIn.

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Here’s Where People with Disabilities Can Find Tax Return Assistance

According to the IRS, special assistance is available for persons with disabilities.

If you are unable to complete your tax return because of a disability, you may be able to obtain assistance from an IRS office or the Volunteer Income Tax Assistance or Tax Counseling for the Elderly Programs sponsored by IRS.

Disability Tax Benefits

As a person with a disability, you may qualify for certain tax deductions, income exclusions, and credits. More detailed information may be found in the IRS publications referred to below.

If you…

dollar in puzzle pieces
photo credit: National Disability Institute

For more information about the tax benefits available to persons with disabilities and the parents of children with disabilities, please refer to Publication 3966, Living and Working with Disabilities PDF (Spanish PDF)

Other References/Related Topics

Source: IRS

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Here’s How Medical Technology is Helping People Living With Parkinson’s Disease

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When Ann Hanley was 49 years old, she noticed that she had persistent stiffness in her shoulders and her arms weren’t swinging normally when she walked. This became particularly pronounced when it affected her ability to travel to horse races with her husband, who manages a farm breeding champion racehorses. After visiting several specialists, a neurologist recognized she had Parkinson’s disease (PD).

The diagnosis was a shock, as Hanley had previously viewed PD as a disease that mainly affected older men. Initially, the idea of living with a progressive disease was overwhelming for Hanley — a self-described social butterfly — and so was maintaining her desire to be active.

PD is the second most common progressive neurodegenerative condition, affecting more than 1 million people nationwide, according to the Centers for Disease Control and Prevention. While it can’t be cured, medications are often prescribed to help manage symptoms. Unfortunately, some of these drugs are associated with side effects like involuntary movements and motor fluctuations. And over time, these medications can become less effective.

Now 63, Hanley is a veritable expert on her condition and an advocate for other patients. Seven years ago, she began volunteering at the University of Kentucky Hospital, shadowing a leading neurosurgeon who specialized in a PD treatment called Deep Brain Stimulation (DBS), which helps patients manage the motor symptoms of the disease when medication alone is no longer effective. DBS uses a small medical device implanted in the body and connected to leads that stimulate a portion of the brain to control the motor functions affected by movement disorders, including tremors, slowness and rigidity.

Ann Hanley
Ann Hanley, patient

Until recently, physicians have had to rely on older DBS technology. However, the Boston Scientific Vercise Genus DBS System, approved for use in 2021, is designed to customize therapy to match each patient’s specific needs and allow for flexible stimulation therapy delivery as the disease progresses. This is important, because PD advances over time, and no two people experience progressions the same way.

“Ultimately, with early enough intervention, DBS is a tool that can help people with PD reduce tremors, increase mobility, and even reduce the amount of medication needed — offering a reprieve from unpleasant side effects,” says Dr. Michele Tagliati, MD, director, Movement Disorders Program, Cedars Sinai (Los Angeles). “In particular, this therapy is designed with patient comfort and convenience in mind and gives physicians the ability to manage the ever-evolving needs of a patient as their Parkinson’s advances.”

Hanley knew it was time to try DBS herself when her walking had slowed, she was stooped over, her back hurt relentlessly and she was experiencing significant tremor in her right hand and leg. After undergoing the procedure, she was amazed at how DBS had helped her.

“When they turned on the device, I experienced an indescribable moment. My symptoms were suddenly reduced, and I felt more in control of my motion,” says Hanley.

With DBS, Hanley was able to completely come off her PD medications and experienced increased mobility. While results vary for different patients, she’s now able to walk, cycle and swim regularly, and attend every horse race with ease.

Today, Hanley is an advocate for DBS therapy and volunteers support to other patients, assisting during their appointments and even holding their hands during the DBS procedure. She’s also raised $3.5 million dollars through her fundraising efforts to support PD research at the University of Kentucky Hospital.

If you or a loved one have PD, consider talking to your doctor about the most appropriate treatment, and if DBS could be an option for you.

Source: StatePoint | Feature photo: Boston Scientific Corporation