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Why Discussing Disability in Psychology College Classes Reduces Ableism

By Kathleen R. Bogart Ph.D., Associate Professor of Psychology at Oregon State University

Psychology is valuable as a college major or even as a one-off elective because it teaches us about ourselves and our social world, developing psychologically literate citizens. Psychology prepares us to interact with diverse people in our daily lives, communities, and careers. Chances are, even in the most basic psychology class, you learned about development across the lifespan and stereotyping and prejudice toward ethnic and racial minorities.

But did you learn about people with disabilities, the largest minority group in America, an identity that will surely affect you or a close loved one at some point in your life? Probably not, because it is barely mentioned in most psychology courses.

A Forgotten Minority

Our analysis of the top undergraduate universities in the country shows that fewer than 35 percent offer even one psychology course that focuses on topics outside of psychiatric and cognitive disability, such as physical (the most common in America), sensory, chronic health, or intellectual disability.

Furthermore, most psychology courses take a medical model perspective to disability and include little social model content. The medical model treats disability as a pathology within the individual while the social model points to society as a major cause of disability. Large subfields of psychology focus on the social construction of minority groups and prejudice, so it is especially surprising that psychology is teaching these outdated assumptions about disability. This lack of representation continues at the graduate level and beyond. Only about 2 percent of psychology faculty at all APA-accredited programs documented a disability.

group with think bubble in center of table
credit: NAMI

Representation Fights Ableism

Last month, we published research comparing disability attitude change across three undergraduate elective psychology classes. One class included education about disability from a social model perspective and had an instructor with a disability. The second class had an instructor with a disability but did not cover disability. The third class, a control group, did not cover disability or have a disabled instructor. As expected, we found that the first class had the most positive change in disability attitudes, followed by the second class, while the third class showed no change.

These findings are a promising indication that disability representation from a social model may reduce ableism, or prejudice toward people with disabilities, yet more work needs to be done. Future work should include a class with disability content and a nondisabled instructor to disentangle the potentially powerful effect of having a disabled instructor. Furthermore, disability should not be relegated to electives; rather, it should be represented in all psychology coursework, especially Introductory Psychology, which serves a broader student population and more than 1 million undergraduates each year.

A Vicious Cycle

The lack of disability representation in psychology courses contributes to the invisibility of disability. When I first began teaching psychology, I spent some time discussing disability in the stereotyping and prejudice unit, but not nearly as much time as I spent covering racial and sexual minorities, because there is more research in that area. Still, I got several comments in course evaluations that I focused too much on disability, such as “[Dr. Bogart] spent too much time on disability. Teach about something that college students can relate to.” That’s how I learned that messages like this article are needed. Disability is much broader and more common than people think. I’ve gotten better at helping students understand the scope of disability, but without reinforcement from other classes, media, and the culture at large… it is easy to forget.

Even more important are the implications for students with disabilities, who make up about 11 percent of the undergrad population. Sadly, students with disabilities are 16 percent less likely to graduate compared to students without disabilities. It is disenfranchising for disabled students to not see people like them as professors or represented in courses. Representation can make the difference between persisting in college or deciding that they don’t belong.

Hands coming together
credit: Shutterstock

Empowering Disabled Students

Covering disability in my classes normalizes and destigmatizes talking about it. After almost every term, a student tells me that, because of my class, they felt comfortable disclosing their disability for the first time. Some discover that someone in their friend group shares a similar disability but never spoke out—instant solidarity and social support. Students with learning disabilities are empowered for the first time to request accommodations through university disability services. A legal right—an accommodation like notetaking, captioning, or extra time on a test—transforms a struggling student into an empowered, confident, successful student.

Improving Disability Representation in Higher Education

How can instructors increase disability representation in their classes? The lack of disability representation in psychology is a vicious cycle. Since most psychology instructors received little education on disability, they won’t feel prepared to teach it. And, unfortunately, turning to textbooks won’t help either, because they rarely include disability. To help instructors infuse disability representation into their courses, my colleagues and I developed a free teaching resource with recommended readings, videos, and activities to supplement psychology textbooks. I also co-founded the Disability Advocacy Resource Network (DARN), where disabled scholars, teachers, and allies can learn from each other. Ultimately, teaching about disability in psychology will reduce disability disparities in classrooms and communities.

Key Take-Aways

  • Most psychology courses do not teach about the largest minority group in America, people with disabilities.
  • A new study finds that psychology courses teaching about the social model of disability may reduce ableism.
  • Disability representation in courses shows students with disabilities that they belong in college.

This article originally appeared in Psychology Today and is reprinted with permission. 

“This Is Us” Cast Advances Disability Awareness and Representation

With the series finale of NBC’s “This Is Us” approaching at the end of May 2022, the award-winning show continues to spotlight diverse themes, such as addiction, adoption, career endeavors, caregiving, disabilities (i.e. Alzheimer’s, anxiety, heart disease, high blood pressure, PTSD, vision impairment), educational pursuits, family dynamics, obesity, racial disparities, relationship struggles, sexual identity and other important topics.

The entertainment industry doesn’t always get it right when it comes to portrayals of characters with disabilities. But perhaps the cast and crew of “This Is Us” are in fact representing “us” – including our disability community – fairly well.

Disability Representation

Kate and Toby’s son, Jack Damon (also referred to as Jack Jr.), is played by three different actors, all of whom — like the fictional character — have visual impairments. Yup, three actors because, as dedicated fans know and love, “This Is Us” features flash-back, flash-forward and present-day scenes. On the show, Jack was diagnosed with retinopathy of prematurity.

Newbie actor Johnny Kincaid made his television debut during this sixth and final season portraying an adorable, toddler-aged Jack. His mother, Marisol Kincaid, took to Instagram to talk about Johnny’s disability representation.

TV screenshot of Johnny Kincaid on This is Us
via @holdingsunshine on Instagram

“Johnny has albinism which comes with low vision and an eye condition called nystagmus,” her post read. “Although his character has a different visual impairment, we are SO thrilled for the representation and inclusion of the blind and low vision community in a television show that does so well at showing all the nuances of life with SUCH a huge reach!”

Albinism is an inherited genetic condition that reduces the amount of melanin pigment formed in the skin, hair and/or eyes, according to the National Organization for Albinism and Hypopigmentation. About one in 18,000 to 20,000 people in the U.S. have some type of albinism; though occurrence can be as high as one in 3,000 in other parts of the world.

This season, viewers also got a glimpse of 7-year-old Jack, played by Karl Seitz. Seitz was born with bilateral Peters Anomaly, an eye disorder that involves thinning and clouding of the cornea and attachment of the iris to the cornea, which causes blurred vision. While his run on “This Is Us” has been short, we expect great things to come for this budding talent. Seitz was just accepted to the Academy of Music for the Blind!

Adult-aged Jack, who fans first meet a few seasons back, is portrayed by Blake Stadnik, a Pittsburgh native with a musical theater background. Stadnik lost the majority of his eyesight due to Stargardt Disease, the degeneration of the macula, a small area in the center of the retina, as defined by the National Eye Institute.

And similarly to Kincaid’s comments about disability representation, Stadnick has also taken to social media to share his feelings. “It is a dream come true to be on screen with the incredible cast of “This Is Us,” and it’s an enormous honor to represent a low-vision character that is so powerful and nuanced,” he said.

More from Moore

Emmy Award nominees won’t be announced until summertime, but buzz is growing around the Emmy-worthy performance of Mandy Moore. The actress/singer’s role as Rebecca Pearson stretched her acting chops as she was charged with transforming into various aged versions of the character, essentially spanning Pearson’s entire adult life. As “This Is Us” comes to an end, Rebecca and the entire family are grappling with her cognitive decline following an Alzheimer’s diagnosis. Prior to this role, Moore didn’t have a connection to this neurodegenerative disease but has since developed a passion for brain health advocacy. In fact, Moore became a national ambassador for the Be Brain Powerful campaign, an effort to empower women to take control of their brain health.

“I’ve learned the importance of early detection and diagnosis for Alzheimer’s as I’ve researched for my role as Rebecca, and I’m honored to be an ambassador for Be Brain Powerful,” Moore shared when she joined the effort. “Early detection doesn’t happen often enough, and I’m looking forward to spreading awareness about brain health. This is the first step to break down these barriers and get these conversations started sooner with our loved ones and our healthcare provider.”

Mandy Moore on Be Brain Powerful poster
Be Brain Powerful campaign

People with disabilities constitute the nation’s largest minority group. And the disability community is the only group any of us can become a member of at any time… which was true for the fictional character of Rebecca and, of course, true for many of us in real life.

Acting Mindfully

Throughout the series, Susan Kelechi Watson has seamlessly portrayed Beth Pearson, a character in her pursuit to find her own identity while excelling as a wife, mother, dancer, professional and all-around rock of a human. Additionally, Beth supports her husband, Randall (played by Sterling K. Brown), as he navigates a different kind of brain battle: anxiety disorder, depression and stress. Watson and Brown collectively voice the importance of mental health awareness – on and off camera – especially among the African American community as health disparities linger on.

Brown addressed the unfortunate stigma that remains. “The idea that needing help is the admittance of weakness – there is a part of that on a culture level that I hope that people are beginning to let go of,” he shared on The Hot Zone. Adding, “Seeking help is actually an admittance of strength. You see that there are some holes or blind spots that you cannot reach on your own… that I need someone to help me be the best version of myself as possible.”

Watson agrees. “There is an amount of balance that we have to remind ourselves to have,” she said, especially as people continue to encounter and, perhaps, normalize significant stressors as of late (i.e. pandemic, racial uprising, etc.). Watson appreciates the movement of self-awareness, self-care and spirituality. She also emphasizes the importance of being a whole person and not pigeonholed into one box, such as ‘mother’ or ‘career person.’

Actress Susan Kelechi Watson
source: Mental Health Association of Central Florida

Watson, a two-time Screen Actors Guild Award winner for her strong performance on “This Is Us,” will continue the conversation about mental health when she serves as the keynote speaker at the Legacy Of Champions Luncheon on May 25, 2022 in Orlando to benefit The Mental Health Association of Central Florida.

Big Impact on the Small Screen

Representation of people with disabilities remains, unfortunately, lacking in entertainment. Even though 26% of American adults have some type of disability, according to the Centers for Disease Control, only 2.4% of all speaking or named characters in films are shown with a disability, according to a study by the USC Annenberg School for Communication and Journalism.

The staggering gap between 2.4% and 26% is unacceptable and perplexing. So while it makes perfect sense that Jack Damon be played by actors with visual impairments, not all casting directors and producers regularly employ disability representation. “This Is Us” has shined a light on Alzheimer’s, blindness and mental health, in addition to an array of other important real-life issues. While we’re sad to see this meaningful show come to an end, let’s all hope its influence is a much overdue start toward proper disability inclusion and representation. Because, after all, shouldn’t entertainment include all of “Us?!”

Virtual Reality Job Interview Training May Help Autistic Adolescents

A team of researchers led by the Kessler Foundation has demonstrated the feasibility of a novel approach to improving interview skills among autistic adolescents. Their article, “A pilot RCT of virtual reality job interview training in transition-age youth on the autism spectrum,” was published in the November 2021 issue of Research in Autism Spectrum Disorders.

The authors are Helen M. Genova, PhD, Katie Lancaster, PhD, Mikayla Haas, Michael DiBenedetto, Denise Krch, PhD, and John DeLuca, PhD, of Kessler Foundation, James Morecraft and Alexandra Edwards, formerly of Kessler Foundation, and Matthew J. Smith, PhD, of the University of Michigan School of Social Work.

Interviewing skills, which are essential to successful jobhunting, are challenging for adolescents on the autism spectrum, who often have difficulty with social interactions. Researchers focused on improving these skills in this randomized, controlled trial conducted in a high school setting.

Dr. Helen Genova is Associate Director of the Center for Autism Research at Kessler Foundation.
Dr. Helen Genova is Associate Director of the Center for Autism Research at Kessler
Foundation.

The 14 participants were divided into either an experimental group or a control group. The experimental group received 10 hours of Virtual Reality Job Interview Training (VR-JIT), which included interviewing with a virtual human and receiving feedback. The control group continued to receive their normal services as usual. To track performance, all participants were video recorded while performing mock job interviews at baseline and follow-up. Students filled out pre- and post-intervention questionnaires related to job interviewing anxiety and self-efficacy.

The study showed that certain job interview skills improved in the group that received the job interview training, while the control group’s performance did not change over time. Students were positive about their experiences with the VR-JIT, reporting that the VR-JIT program was easy to use and enjoyable.

The results provide preliminary evidence for the effectiveness of this tool for improving interviewing skills in students on the autism spectrum. “By conducting this pilot study in the school setting, we showed that it is feasible to incorporate this training in the educational curriculum for autistic students,” said Dr. Helen Genova, associate director of the Center for Autism Research at Kessler Foundation, and a faculty fellow with the Level Up: Employment Skills Simulation Lab at the University of Michigan School of Social Work.

“This pilot study may prove to be a promising initial step toward job readiness for transition-age youth on the autism spectrum. To increase their employment prospects, we need to continue to explore new and effective ways to prepare these students for the workplace.”

New Hallmark Film to Feature Romantic Couple with Down Syndrome

Lily D. Moore (“Never Have I Ever”), Erica Durance (“North to Home,” “Open by Christmas”), Benjamin Ayres (“You, Me & the Christmas Trees,” “Detention
Adventure”) and David DeSanctis (“Where Hope Grows”) star in “Color My World with Love,” a new original for Hallmark Movies & Mysteries. The movie recently wrapped production for airing later in 2022.

“Everyone has a dream to fall in love and get married one day, even people with disabilities,” said Moore. “I hope viewers take away that ‘Color My World with Love’ is about painting your own story through your emotions and that we all have endless possibilities.”

Hallmark movie logo
credit: Crown Media

In the film, Kendall (played by Moore) is a talented artist with Down Syndrome who creates beautiful paintings in the Impressionist style that reflect the reality of her subjects as she sees them. Thanks to the support of her mother, Emma (played by Durance), and grandmother, Bev (played by Karen Kruper, “The Wedding Veil”), Kendall is
happy and thriving. Her life takes an exciting turn when she meets Brad (played by DeSanctis) in a cooking class at the local center for diverse learners… and romance blooms.

But Emma has spent the last 22 years trying to protect her daughter and has reservations about Kendall and Brad’s new relationship, especially when it quickly moves in a serious direction. Not wanting Kendall to experience heartbreak, Emma tries to slow things down. With the help of Nic (played by Ayres), a longtime family friend of Brad’s, Emma slowly
accepts that Kendall is ready to – and should – live her own life. In the process, Emma learns a lesson from Kendall about how to look beyond what’s in front of you and see the beauty that exists. And, just maybe, she finds herself ready to find love once again.

“Color My World with Love” is from Spell Love Productions LTD. Orly Adelson, Jonathan Eskenas and Kimberley Bradley are executive producers. Charles Cooper is producer and Peter Benson directed.

Will you watch this inclusive film?

The article header image features movie stars Lily D. Moore and David DeSanctis.

Long COVID Advocates Call Attention to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

As the prevalence and significant impact of Long Covid continues to increase, the
number of people suffering from the debilitating and chronic illness known as Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) parallels this growth. Solve M.E. and its partners, including AmeriDisability, will spend the month of May 2022 advocating for people with ME/CFS, Long Covid and other chronic diseases, to ensure that ME/CFS and other post-infection diseases are widely understood, diagnosable and treatable.

“The most prevalent Long Covid symptoms — crippling fatigue, post-exertional malaise and cognitive dysfunction — mirror those of ME/CFS and both are post-viral illnesses,” said Oved Amitay, president and CEO, Solve M.E. “We know that learning more about Long Covid deepens our understanding of ME/CFS, and that what we know about ME/CFS can shed light on Long Covid — and ultimately point to treatments and cures for both, as well as other long-haul diseases that share their characteristics.”

Solve M.E. Advocacy Month

Participate in Advocacy Month

Advocacy Month events are open to the public and include opportunities for every energy level and ability to join.

A kickoff event, held on May 2, featured Jessica Kellgren-Fozard, a leading advocate for LGBTQ+ and disability rights who has worked with MTV, BBCThree, BBC Radio 1 and ITV. A host of other high-profile speakers at the forefront of the scientific and medical community also presented, including Dr. Peter Hotez and Dr. Maria Elena Bottazzi — nominees for the 2022 Nobel Peace Prize for their work to develop and distribute a low-cost COVID-19 vaccine to people of the world without patent limitation.

Below are key dates and registration/viewing links:

Registration is required for some events. Click here for a full calendar of events and registration information.

A recently released whitepaper by the Solve Long Covid Initiative spotlights the staggering economic impact of Long Covid, as AmeriDisability previously reported:
• 22 million U.S. adults are living with Long Covid (LC) – close to 7% of the population.
• 7 million are experiencing Disabling Long Covid (DLC) – 2.3% of the population.
• As of January 2022, the cumulative cost of LC is estimated at more than $386 billion. (This estimate includes lost wages, lost savings and medical expenses incurred by individuals. It does not include costs incurred by businesses or government agencies.)
• Complete state statistics may be found here.

Before the pandemic, experts estimated up to 1 to 2.5 million cases of ME/CFS. Now, after two years of COVID-19, those same experts estimate between 5 and 9 million cases of ME/CFS. A similar explosion of cases is happening with other post-viral conditions.

“Long COVID and debilitating, chronic diseases directly impact our communities,” said Emily Taylor, Vice President of Advocacy and Engagement, Solve M.E. “It’s never been more important that we all come together to amplify our voices on Capitol Hill. We are uniting these diverse groups of patient advocates, their loved ones, scientists, clinicians and caregivers from across the country. We are all in this together.”

To learn more about the Solve ME/CFS Initiative, visit www.solveme.org.

The Goldie Hawn Foundation Shines Bright Light on Mental Health

During her decades-long television and film career, beloved actress Goldie Hawn has mastered the behaviors of many characters. And, as it turns out, the Academy Award winner’s interest in human behaviors crosses over into her personal life and philanthropic endeavors.

Hawn, now 76, shared that, had she not ventured into acting and producing, she may have explored a psychology profession. Well, nearly two decades ago, she parlayed her curiosity and commitment to understanding behaviors by establishing The Goldie Hawn Foundation. The mission centers on prioritizing mental well-being for one to achieve a happier, healthier, more balanced life at home, school and work. The initial timing of the organization, Hawn revealed, was a call-to-action response to the 9/11 tragedies, in addition to the alarming rise of anxiety, depression and suicide rates among tweens and teens.

“When I began The Goldie Hawn Foundation in 2003, I knew that I had to do something to remedy the stress and anxiety children were experiencing. Every child deserves an equal chance to thrive, and so — together with researchers, scientists and educators — I created the MindUP program,” Hawn outlines on MindUP.org.

mental health word collage
source: Shutterstock

What is MindUP?

The not-for-profit says it’s focused on helping children develop the knowledge and tools they need to manage stress, regulate emotions and face the challenges of the 21st century with optimism, resilience and compassion.

There are currently two programs. MindUP for School and Educators rolled out first; then, to further empower youth-serving adults, came MindUP for Parents and Families. Both embody four pillars — neuroscience, social-emotional learning (SEL), positive psychology and mindful awareness — to foster the development of mental fitness and well-being of children, educators and families within educational and home-based settings.

It’s certainly a tall task but the Foundation is generating significant success in the U.S. and abroad. They report that students who experienced the MindUP program, compared to peers who did not, had significant improvements across multiple areas, such as improved attention, stress physiology (as measured by the hormone cortisol), peer ratings of kindness, pro-socialness and peer acceptance, and academics.

students in a classroom; girl raising hand to answer teacher
source: Shutterstock

Detailed studies are drilling down further on such statistics. For example, a large school district using MindUP in kindergarten classes in Southwestern Ontario, Canada found that students showed:

  • a reduction in behavioral problems (measured using ratings of hyperactivity, aggression, depression, attention, atypicality and withdrawal),
  • a reduction in externalizing problems (measured using ratings of hyperactivity, aggression and conduct problems),
  • a reduction in internalizing problems (measured using ratings of anxiety, depression and somatization),
  • an increase in adaptive skills (including measures of adaptability, functional communication, social skills and study skills), and
  • a reduction in executive functioning deficits (including measures of ability to initiate, plan/organize, monitor, shift attention and control emotions).

Another evaluation, following program engagement of fifth graders in the Southwestern U.S., found that students showed improvements in:

  • inactive (passive) on-task behaviors (for example, listening to the teacher talk, looking at the whiteboard), and
  • non-disruptive off-task behaviors (for example, daydreaming, not paying attention).

The children aren’t the only ones benefitting from these preventative programs. According to the Foundation, assessments found that educators who took trauma-informed training and taught MindUP in their classes experienced less burnout and embraced trauma-sensitive attitudes. Plus, compared to their peers without similar training and experience, educators who taught MindUP reported increased levels of personal accomplishment, self-efficacy and self-care.

cut-out of family
source: Shutterstock

Preparing for Future Stressors

Many years following the Foundation’s formation, the organization found itself motivated yet again by a real-world event crisis; this time being the COVID-19 pandemic which, of course, uniquely impacted an already concerning global epidemic of childhood aggression, anxiety, depression and suicide. With students, educators and parents facing unprecedented challenges and, therefore, diverse stressors, MindUP continued to serve up solution-based tools.

For instance, MindUP partnered with Insight Timer, the world’s largest free meditation app, to deliver no-cost services for families, including short exercise routines, daily gratitude features and other “brain breaks” demonstrated to improve focus, resiliency, optimism and empathy. The services are available in several different languages.

Thus far, seven million children (and counting) have been taught MindUP in schools around the world with growing interest. Hawn has expressed the belief that the preventative MindUP programs should be in schools right now, rather than utilized as a post-crisis response strategy. That way children, educators, families and the community at large will be better equipped to mindfully navigate stressful circumstances that may come along. To learn more, or to donate to the not-for-profit, visit MindUP.org.

Supermodel Hailey Bieber Undergoes Heart Surgery Following Mini-Stroke

Hailey Bieber updated fans about her recent health scare through a candid video, titled “telling my story,” posted to her popular YouTube channel and on Instagram. During the twelve-minute clip, the 25-year-old model recounted the “scariest moment” of her life in which she suffered a Transient Ischemic Attack (TIA), often called a mini-stroke.

According to the American Stroke Association, a TIA is a temporary blockage of blood flow to the brain. While symptoms typically improve quickly, TIAs can be a precursor to a full-blown, debilitating or deadly stroke. In fact, approximately 15% of all strokes are foretold by a TIA; and about one-third of people who have a TIA then go on to have a more severe stroke within one year.

Hailey Bieber Recounts Mini-Stroke Occurrence

On March 10, 2022, Beiber says she was enjoying breakfast with her husband, singer Justin Bieber, when she experienced a “weird sensation” of tingling down her arm and numbness in her fingertips. More symptoms followed, including facial drooping and the inability to speak.

“The right side of my face started drooping, I couldn’t get a sentence out,” she calmly describes in the viral testimonial. “Immediately I thought I was having a stroke.”

At the hospital, doctors discovered that a blood clot had traveled to Beiber’s brain. The next day, additional testing revealed that she had a type of hole in her heart called a patent foramen ovale (PFO). This undiagnosed congenital defect contributed to Bieber’s TIA, as did three other factors.

Justin Bieber and Hailey Bieber pose on red carpet
Justin Bieber and Hailey Bieber | source: Shutterstock

What Stroke Risk Factors Did Hailey Bieber Have?

Bieber says three factors caused the blood clot, which traveled through the PFO up to her brain.

“One was that I just recently started birth control pills, which I should have never been on because I am somebody who suffered from migraines anyway,” she attests. “And I just did not talk to my doctor about this.” The second factor, according to her medical team, was that she recently had COVID-19 and the third was that she had also recently taken a lengthy international flight. All three of these factors happened within “a very short amount of time,” thus creating what Bieber describes as “the perfect storm.”

“The conclusion was that I had a blood clot that traveled into my heart and instead of what typically happens — when you have a small blood clot is that the heart will filter the blood clot to your lungs and your lungs will absorb it because the lungs are so big and they can handle it,” she says. “What happened with me is that my blood clot actually escaped through the flap or the hole in my heart and it traveled to my brain. And that is why I suffered a TIA.”

Bieber’s PFO was classified as a grade 5, which is the most severe level; so it needed to be addressed to help limit future complications. She underwent a procedure to close the hole between her heart chambers. Bieber has since remained on a daily regimen of blood thinners and aspirin. She says she “feels so much relief” and is grateful to all the doctors who helped treat her.

clot in the brain, which occurs from a TIA or stroke
source: American Heart Association

TIA and Stroke Risk Factors and Warning Signs

The daughter of actor Stephen Baldwin, Bieber rose to fame modeling for companies like Guess, Ralph Lauren and Tommy Hilfiger. Her Instagram account has a whopping 43.6 million followers and, at press time for this article, her “telling my story” video had garnered more than 4.5 million views. Stroke is the No. 5 cause of death and a leading cause of disability in the U.S. Therefore, while we are pleased to know that Bieber is recovering well, AmeriDisability also applauds her effort to use her vast platform to educate others about PFOs, TIAs and strokes. Perhaps her experience will help save the lives of others.

Anyone can have a TIA, according to the American Stroke Association, but the risk does increase with age. If you’ve previously had a stroke, do pay careful attention to the signs of TIA, because they could signal a second stroke in your future. Some common warning signals of TIA include the sudden onset of the following:

  • Weakness, numbness or paralysis on one side of your body
  • Slurred speech or difficulty understanding others
  • Blindness in one or both eyes
  • Dizziness
  • Severe headache with no apparent cause

The risk factors are smoking, cardiovascular disease, diabetes and, as with Bieber’s occurrence, blood clots called embolisms. Get help immediately if you think you (or someone you are with) could be having a TIA or stroke.

Act Fast by Remembering this Lifesaving Acronym

Here’s a simple takeaway… To spot a stroke, use the letters “F.A.S.T.”

  • F = Face Drooping – Does one side of the face droop or is it numb? Ask the person to smile. Is the person’s smile uneven?
  • A = Arm Weakness – Is one arm weak or numb? Ask the person to raise both arms. Does one arm drift downward?
  • S = Speech Difficulty – Is speech slurred?
  • T = Time to call 911 immediately! And, if possible, also note the time that symptoms began.

For more content like this, read these articles by AmeriDisability: 

Upcoming Disability-Serving Cinco De Mayo Events

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Cinco de Mayo, translating to the fifth of May, is a holiday that celebrates the Mexican army’s May 5, 1862 victory over France at the Battle of Puebla during the Franco-Mexican War, according to History.com. Surprising to some, Cinco de Mayo is actually a relatively minor holiday in Mexico; yet, within the U.S., it’s become a cherished occasion to honor Mexican culture and heritage.

Cinco De Mayo festivities can be enjoyed by people of all abilities. Here’s a round-up of upcoming disability-serving Cinco De Mayo events and celebrations:

1. Cinco De Mayo Bike Ride and Walk

When: Sunday, May 1, 2022 | 7:30 am (with staggering start times)

Where: Chester Valley Trail Parking Area, 132 Church Farm Ln., Exton, PA 19341

Website: CincoDeMayoRide.org

Event Details: This annual fundraiser benefits the Pennsylvania Center for Adapted Sports (PCAS), a registered nonprofit focused on improving the health and well-being of people with disabilities. Funds raised will help build more inclusive communities without interruption, with opportunities to invest in more state-of-the-art adapted sports equipment, launch new programs like Freedom Rows (a disabled Veterans rowing program) and keep essential disability-serving programs of PCAS operating.

The Cinco De Mayo Bike Ride and Walk is expected to bring together hundreds of cyclists, walkers and supporters to ride or walk on a beautiful course with varying distance options. Those interested can donate, fundraise and/or attend the event. Not local? That’s not a problem as virtual participation is also encouraged!

Cinco De Mayo Bike Ride & Walk
source: The Pennsylvania Center for Adapted Sports

2. Cinco De Mayo – Paraiso Tropical

When: Thursday, May 5, 2022 | 6 pm

Where: Giorgio’s Baiting Hollow, 100 Fox Hill Dr., Baiting Hollow, NY 11933

Website: riselifeservices.org

Event Details: Proceeds raised through this themed fundraiser will support RISE Life Services, a multi-service organization providing residential programs, supported apartments, clinical supports and case management services for the developmentally disabled, mentally ill and dual diagnosed adults. This ticketed evening ($100 per person) will feature a buffet dinner, cocktails, live music and much more fun.

3. Pars for Potential

When: Thursday, May 5, 2022 | 11 am – 3 pm

Where: TopGolf Alpharetta, 10900 Westside Pkway, Alpharetta, GA 30009

Website: Easterseals.com/northgeorgia

Event Details: Funds raised at this event will benefit Easterseals North Georgia and, more specifically, their efforts to provide services, resources and support to children with disabilities and other special needs, their families and the community in 44 counties across Georgia. All Pars for Potential participants will enjoy an invitation to the luncheon, a commemorative shirt, welcome bag and unlimited (non-alcoholic) refreshments.

4. Cinco De Mayo Fiesta with Partners In Play

When: Thursday, May 5, 2022 | 5 – 7 pm

Where: Palmetto Library, 923 6th St. W., Palmetto, FL 34221

Website: FortyCarrots.com

Event Details: The family-friendly event combines play and learning using a Cinco De Mayo theme with sensory-friendly elements. In partnership with the Forty Carrots Family Center, which implements childhood development programs, themed early literacy materials will be showcased, in addition to sensory activities aimed at building fine motor skills, creativity and more. Additionally, a family yoga session will be led by Soar in 4.

Placenta May Hold Clues for Early Autism Diagnosis and Intervention

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New UC Davis MIND Institute research has identified a novel human gene linked to fetal brain development and autism spectrum disorder (ASD). The discovery also links the gene to the mother’s early prenatal vitamin use and placental oxygen levels.

In a study published February 16, 2022, in Genome Biology, the researchers used genomic sequencing to find a DNA methylation signature in the placenta of newborns eventually diagnosed with autism. This signature mark was linked to early fetal neurodevelopment.

“By taking an unbiased approach to investigating placental DNA methylation differences, we discovered a novel gene in a poorly mapped region of the genome associated with autism, ” said Janine LaSalle, lead author on the study and professor of microbiology and immunology at UC Davis Health.

ASD is a complex neurological condition linked to genetic and environmental factors. The U.S. Centers for Disease Control and Prevention (CDC) estimates that one in 44 children are diagnosed with ASD. It is much more prevalent in males than females.

Janine LaSalle
Janine LaSalle, lead author on the study and professor of microbiology and immunology at UC Davis Health

Why studying the placenta is important

The placenta supports fetal development in the uterus. It regulates oxygen supply and metabolism and provides hormones and neurotransmitters critical for the fetus’ developing brain.

“The placenta is an often misunderstood and overlooked tissue, despite its importance in regulating and thereby reflecting events critical to brain development in utero. It is like a time capsule for finding things that happened in utero. For decades, hospital births have thrown away placentae despite this tissue being a gold mine for finding molecular clues to child outcomes,” LaSalle said.

During pregnancy, the fetus might experience oxidative stress, an imbalance of free radicals and antioxidants in the body. This is common in normal brain development. However, in some cases, exposure to environmental factors such as air pollution and pesticides can lead to excessive oxidative stress. This state can lead to cell and tissue damage or delayed neurodevelopment.

“Oxidative stress is normal.  But excessive oxidative stress may come from environmental exposures linked to ASD such as air pollution, pesticides, maternal obesity and inflammation,” LaSalle said.

The epigenome is a set of chemical compounds and proteins that tell the DNA what to do. These compounds attach to DNA and modify its function. One such compound is CH3 (known as the methyl group) which leads to DNA methylation. The neonatal epigenome can reflect past interactions between genetic and environmental factors during early development. It may also influence future health outcomes.

The placenta is a promising tissue for identifying DNA methylation changes at genes that also function in the fetal brain. This study examined the association of ASD with placental DNA methylation.

Finding factors in mother’s placenta that might predict autism

The researchers studied the development of 204 children born to mothers enrolled in the MARBLES and EARLI studies. These mothers had at least one older child with autism and were considered with higher probability of having another child with ASD. When these children were born, the mothers’ placentae were preserved for future analysis.

At 36 months, the children got diagnostic and developmental assessments. Based on these tests, the researchers grouped the children under “typically developing” (TD), “with ASD” and “non-typical development” (Non-TD).

The researchers also extracted and quantified the DNA from the placenta tissues. They divided the placenta samples into discovery, replication and specificity replication groups.

For the discovery group, they split and sequenced 92 samples (46 ASD, 46 TD) from the MARBLES study using whole-genome bisulfite sequencing (WGBS) and whole-genome sequencing (WGS). To determine if differential methylation was reproducible in a different population, the replication group included WGBS data from 16 ASD and 31 TD samples from the EARLI study.

The specificity replication group had 21 ASD, 13 Non-TD and 31 TD placenta samples from the MARBLES study. The researchers used these samples to determine if methylation changes were specific to ASD.

Finally, they performed whole-genome sequencing on 41 ASD and 37 TD MARBLES children.

young boy playing with blocks next to his mom
Early autism diagnosis may get kids the support they need

Placenta to reveal insights into genes related to ASD

The researchers identified a block of differential methylation in ASD at 22q13.33, a region in chromosome 22 not previously linked to ASD. They located and characterized a novel gene known as LOC105373085 within that region and renamed it NHIP (neuronal hypoxia inducible, placenta associated).

To understand the function of this gene, they detected the levels of NHIP expression in human cell lines and brain tissue. They tested the responsiveness of NHIP to hypoxia, a state of low oxygen levels in the tissues. The researchers found that NHIP is a gene that gets turned on in neurons following hypoxia and regulates other gene pathways with functions in neuronal development and response to oxidative stress.  Higher NHIP levels increased the cell division in an embryonic cell line.

This is important because in the placenta, hypoxia triggers placental cell division to make further contact with maternal blood vessels to supply enough oxygen for the developing brain.

The researchers also discovered that NHIP was less activated in ASD placenta and brain compared to TD samples, supporting a protective role for NHIP in preventing ASD.

“We found that the NHIP gene is active in the brain, responsive to oxidative stress, and influences expression of other known genes associated with autism,” LaSalle said. “In most pregnancies, the placenta experiences some inevitable levels of stress. We think that NHIP is there to buffer the effects of excessive oxidative stress.”

Prenatal vitamins and autism

Another remarkable finding from the study was the role prenatal vitamins play in regulating the work of NHIP. Prenatal vitamins are high in folic acid and can reduce oxidative stress.

Prenatal vitamins use during the first month of pregnancy showed a significant protective effect among individuals with genetic differences at 22q13.33 NHIP region. Taking prenatal vitamins in the first month of pregnancy seems to provide essential metabolic elements to counteract the genetic inheritance of reduced NHIP responsiveness to oxidative stress.

“In line with previous studies, we found that taking a prenatal vitamin is essential when planning a pregnancy,” said LaSalle. “Findings from our study provide key insights that may help in identifying newborns more likely to develop autism and getting them into an earlier intervention or just knowing to watch them sooner.”

The researchers pointed out that these results will require further replication before being used diagnostically.

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Nonprofit Distributes 1.3 Million Wheelchairs to Developing Countries

More than 75 million people around the world living with disabilities need wheelchairs but, sadly, do not have them, according to the World Health Organization. For more than 20 years, a faith-based nonprofit called Free Wheelchair Mission has worked to close the gap by providing inexpensive, unique wheelchairs. Since its founding in 2001, the organization has remarkably distributed over 1.3 million wheelchairs to people with varying disabilities in 94 developing countries.

A Mission to Move

Free Wheelchair Mission was established by Don Schoendorfer, a biomedical engineer who has dedicated his design skills to combating immobility. Schoendorfer humbly constructed the first prototype, called the GEN_1 model, using a just standard white plastic lawn chair and two mountain bike tires mounted to a steel frame. He then began to disperse his innovative creations throughout the world on various mission trips.

Free Wheelchair Mission has since grown to produce three cost-effective and highly functional wheelchair types, with the addition of two more advanced designs called the GEN_2 and GEN_3. The models feature different designs that are intended for various terrains and other considerations of developing countries.

Free Wheelchair Mission
Free Wheelchair Mission

What’s Coming Up

This May 2022, supporters from around the country will join together for Move for Mobility, a month-long virtual fundraising event. This fully-accessible opportunity is slated to provide approximately 1,000 wheelchairs to people with disabilities on a global scale. Unlike traditional “run” or “walk” fundraisers, Move for Mobility enables participants of all abilities, from anywhere in the nation, to run, walk, hike, roll, swim, jump, bike or move in any preferred way.

Jessica Harris is a wheelchair user who will be passionately participating in Move for Mobility this May, along with her friends and family. Coincidently, May 1st also marks the anniversary of the accident which resulted in Jessica becoming a wheelchair user.

Jessica shared, “It’s an honor to move for mobility in my wheelchair with my friends and family for such an important cause. We plan to do a 5K in celebration of my 5-year life day!”

To support Move for Mobility, visit MoveForMobility.org.

For more upcoming event opportunities, click over to AmeriDisability’s event page