Where to Find an Accessible Beach in Florida

Travel

Nancy DeVault

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May 22, 2023

Where to Find an Accessible Beach in Florida

With 825 miles of sandy coastline overlooking the Atlantic Ocean, the Gulf of Mexico and the Straits of Florida, the Sunshine State is home to some of the best beaches. Many are great for families, dog owners, surfers and seashell collectors; but where can one find an accessible beach in Florida?

Well, four beach destinations peppered throughout the Florida Panhandle just got more inclusive thanks to a $27,630 grant presented to the Florida State Parks Foundation by the St. Joe Community Foundation. The funding, awarded in May 2023, allows for the purchase and installation of new mobility mats and rollers for Deer Lake State Park, Grayton Beach State Park and Topsail Hill Preserve State Park, all in Santa Rosa, as well as St. Andrews State Park in Panama City.

Reps from St. Joe Community Foundation award a grant check to reps from the Florida State Parks Foundation to make the an accessible beach in Florida more update to date. — Reps from St. Joe Community Foundation award a grant check to reps from the Florida State Parks Foundation to make the an accessible beach in Florida more functional for people with disabilities. (Florida State Parks Foundation)

These four accessible beach locations will be outfitted with Mobi-mats, which are made from recycled materials and are designed to make uneven terrain easier to navigate for people with disabilities, people who use mobility devices and/or anyone who has difficulty walking on sand (even strollers). According to the Florida State Parks Foundation, the mats’ accompanying rollers will allow park staff to position and, when necessary, temporarily remove the new pathways.

“Providing access for all is one of the most important aspects of our mission,” said Julia Woodward, CEO of Florida State Parks Foundation. “Some of the world’s best beaches are found within Florida’s state parks, and we want everyone to be able to experience and enjoy them.”

The Florida State Parks Foundation has prioritized accessibility since launching its Access for All campaign in 2012. The effort has bolstered beach and trail-accessible wheelchairs, floating wheelchairs and trams at several parks, as well as an accessible fishing pier at Oscar Scherer State Park in Osprey and the first-ever accessible glass-bottom boat at Silver Springs State Park in Silver Springs. In 2021, the St. Joe Community Foundation awarded a grant of $30,000 for an 11-person, accessible electric tram at Topsail Hill Preserve State Park, which is another Santa Rosa site.

“Everyone should have an opportunity to experience Florida’s white sand beaches,” said Chuck Hatcher, director of Florida State Parks. “We appreciate the efforts of the St. Joe Community Foundation and Florida State Parks Foundation to expand accessibility at these four parks.”

And, of course, some parks offer inclusive amenities beyond beach access. For example, aside from a mile and a half of beach at St. Andrews State Park in Panama City, it has wheelchair access to the visitor’s center, elevated boardwalks to the beach and the jetty overlook, and access to fishing piers and scenic overlooks. Beach wheelchairs are available at the ranger station and service animals are welcome. Some local vendors, such as Beach Powered Mobility, conveniently help beachgoers with differing abilities by offering powered beach cruisers and/or regular beach wheelchairs with delivery service right to one’s vacation rental or resort.

Other Accessible Beaches in Florida

St. Pete & Clearwater

Visit St. Pete/Clearwater partnered with Beth Stombaugh, a beach lovin’ disability advocate, to compile a comprehensive guide to epic beach destinations on the West Coast of Florida. Aside from exploring Pier 60, Stombaugh says that tons of St. Pete/Clearwater beaches are well equipped for people with disabilities. Chair check-outs are available at Caladesi Island State Park, Clearwater Beach, Fort De Soto Park, Honeymoon Island State Park, Pass-a-Grille, Sand Key Park, Treasure Island Beach and Upham Beach.

Miami

On the beaches of Miami, including the world-famous South Beach, the Atlantic Ocean beautifully merges with the Caribbean Sea to create a water wonderland like none other. The city of Miami Beach outlines inclusive beach information, including where to locate access points. Manual and motorized wheelchairs are free of charge. The manual beach wheelchairs are permitted to enter the water so people of all abilities can enjoy a refreshing splash.

Miami Beach residents and visitors may want to schedule beach days around monthly events hosted by the Sabrina Cohen Foundation. This organization, founded by a spinal cord injury survivor, facilitates Adaptive Beach Days, an inclusive program that provides beach access to participate in adaptive activities, like aqua therapy, water sports and more fun.

Visit Florida also recommends two barrier island beaches within the area: Crandon Park Beach on Key Biscayne and Haulover Beach in Miami. Head to these spots when you’re ready to embrace island time!

A blue accessible mat provides the public beach access, along the Gulf Coast of the Florida Panhandle. — An accessible mat provides the public beach access, along the Gulf Coast of the Florida Panhandle. (Shutterstock)

New Smyrna

Beachgoers of all abilities can cautiously drive on the wide, hard-packed sand of New Smyrna Beach and nearby Daytona Beach. Ellen Becker, a spinal cord injury survivor, explained her preference for New Smyrna in a Visit Florida testimonial video, stating, “It’s great to be able to drive down to the ocean, be able to get on hard solid sand where you can push around easier and just breathe it in and enjoy the view!”

Available on a first-come, first-serve basis, beach wheelchairs can be checked out at the lifeguard station on Flagler Avenue in New Smyrna Beach.

Smyrna Dunes Park features a two–mile long scenic, wheelchair-accessible boardwalk – perfect for watching the sunrise. Plus, there’s a 300-foot, accessible fishing pier for “reel” good fun.

Pensacola

According to Visit Pensacola, the area’s sugar-white sand and picturesque water are accessible to all thanks to the installment of Mobi-mats. The beaches of this Westernmost city in the Panhandle have five Mobi-mats to provide better access for wheelchair users and pedestrians with differing abilities. Plus, beach wheelchairs, both electric and traditional, are available for rent along Pensacola Beach, such as from Access Mobility of Pensacola.

Also Try:

Amelia Island
Fort Lauderdale
Key Largo

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Children with Disabilities at Greater Risk of Drowning

Sports

Nancy DeVault

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May 18, 2023

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Children with Disabilities at Greater Risk of Drowning

Warmer weather has arrived. Many families, including those within the disability community, are looking forward to plunging into aquatic pastimes. Whether you want to leisurely float around the pool or make a big splash at an accessible waterpark, it’s important be mindful of water safety. That’s because, according to the Children’s Safety Network, drowning is the leading cause of unintentional injury deaths for children ages 1-4 and the third leading cause of unintentional injury deaths for children ages 5-19. Furthermore, some children with disabilities have a greater risk of drowning, such as those with autism spectrum disorder (ASD), Down syndrome, heart disease and seizure disorders (like epilepsy).

“Among parents who have lost a child to drowning, the most common response I hear is ‘we didn’t know’ – didn’t know how prevalent it is, didn’t know how easily it can happen and didn’t know that one strategy for prevention just isn’t enough,” says Adam Katchmarchi, Ph.D., Executive Director of the National Drowning Prevention Alliance (NDPA).

The Autism Society reports that children with ASD are 160 times more likely to experience nonfatal or fatal drowning compared to their neurotypical peers. As alarming as that is, children with disabilities (and their typical peers) can absolutely enjoy water activities when safety precautions are taken.

Five Layers of Protection to Curb Risk of Drowning

“There are so many misperceptions about drowning, particularly as it relates to children,” says Katchmarchi. “Perhaps the most important to dispel is the myth that one strategy for prevention is enough. This summer, we want to change that by putting information and resources on the need for five layers of protection directly into the hands of parents and communities.”

Girl, who has autism, wears a swim vest while entering a pool. — When it comes to the risk of drowning, swim vests are not a substitute for supervision. (Shutterstock)

NDPA is encouraging parents and caregivers to employ “Five Layers of Protection” whenever a child, with or without disabilities, is near open water to prevent drowning. The following are basics outlined by NDPA, paired with additional insight provided by other agencies.

(1) Barriers and Alarms – to help children and unauthorized adults from accessing water unsupervised.

Pools should have complete four-sided isolation fencing with a self-locking gate. Fencing could prevent 50–90% of child-related drowning events, according to the U.S. Swim School Association. Never leave toys in the pool area as it can attract the attention of a curious kiddo, and especially children with ASD who are prone to wandering.

(2) Supervision – close, constant and capable adult supervision by a designated water watcher or lifeguard anytime children are in or around water.

Unlike the loud splashing and screaming scenes depicted in movies, drowning is surprisingly silent. In fact, 9-out-of-10 drowning deaths happen when a caregiver is present but becomes distracted or is not attentive. Drowning can happen quickly – statistics show that 77 percent of home drowning accidents happened after the victim had been missing for no more than five minutes before being found in the swimming pool.

(3) Water Competency – equipping every child with basic water safety skills to reduce the risk of drowning and aquatic-related injuries.

Formal swim lessons (between the ages of one and four) have been shown to reduce the risk of drowning by 88%. Private or small group lessons may be preferrable for those with ASD to limit over-stimulation. The Autism Society suggests that children familiarize themselves with equipment that could potentially irritate senses, like goggles, flippers, caps, lifeguard whistles, etc.

“We strongly encourage swim lessons as early as possible for children with autism and disabilities. Caregivers should discuss when to start swim lessons with their pediatrician,” Katchmarchi tells AmerDisability. He adds, “If financial challenges are a concern, reach out to local nonprofits, swim providers and similar organizations as they can often provide financial assistance to families in need.”

(4) Life Jackets (tested and approved by the U.S. Coast Guard) – to provide protection when you are not expecting to be in the water.

The U.S. Swim School Association notes that blow rafts, rings, water wings and floats are NOT safety devices. They have no safety requirements and can fail. In fact, they can lead parents to have a false sense of security which can increase risk of drowning.

And while the color blue is typically associated with autism awareness and acceptance, a viral TikTok video posted by Nikki Scarnati, a certified Infant Swimming Resource (ISR) instructor, asserts that children, and perhaps especially those with a greater risk of drowning, never wear blue-colored swimsuits. Blending into the water, it can be difficult to see children swimming under the water’s surface when wearing blue. She urges parents to opt for brighter hues and/or neon.

(5) Emergency Response Preparedness – including CPR training, basic water rescue skills and having a phone available and ready to call 911.

Additionally, beachgoers should explain to children the risk of waves, rip tides and other ocean dangers. Plus, aside from drowning, parents and caregivers should communicate swim rules pertaining to jumping, diving or other risky horseplay to eliminate the danger of broken bones, traumatic head injury, paralysis and unintentional accidents.

A pink pool tube with a rainbow-colored pop-it fidget. — Drowning is silent and happens quickly. (Shutterstock)

Watering Down the Risk of Drowning

Dr. Julie Gilchrist, a pediatrician and researcher who also serves as Chief Medical Advisor to the NDPA, shares, “In case after case, we hear stories from families who were diligent in supervising their child while in the pool but didn’t know the many ways drowning can happen – for example, during non-swim times.”

A study published in Injury Epidemiology concluded that “fatal drowning in children with ASD typically occur in water bodies near the victims’ homes in the afternoon hours precipitated by wandering.” Wandering is common and oftentimes hazardous among kids with autism who may not sense danger as easily. They may get fixated on exploring something interesting and/or seek sensory engagement, such as from a body of water.

That’s why the U.S. Swim School Association advises parents with children to regularly conduct a home water safety audit to determine where risks are and what steps to take to enhance protection. Here are some tips:

Create a list of rooms/spaces (including garages, sheds, front/backyards and other property structures) to survey.
Identify common risk factors including buckets, toilets, ice chests/coolers, pools/hot tubs, ditches, post holes, wells, etc.
Locate unique risks, for example: kitchen – a sink filled with soaking dishes; laundry room – utility basin containing residual cleaning water; backyard – displaced buckets that may collect rainwater; bathroom – standing water resulting from faulty drains or leaks; or yard – decorative fountains.
Fill your bathtub with the amount normally used for bathing and use a stopwatch to time how long it takes to drain. Never leave the bathroom unsupervised after a bath until that time has elapsed.
Proactively combat prospective risks with toilet lid locks, pool fences and other safety features. Remind yourself to change habits; for example, post a note beside the sink to curb overnight dish soaking. Aside from a pool fence, consider similar landscape barriers surrounding fountains, fishponds or ditches.
Correct existing safety threats by repairing drains, properly storing buckets/containers (upside down to limit water collection) and play pools, etc.
Learn emergency lifesaving skills, including first aid and CPR.

Boy, with special needs, using a pool floatation device. — Drowning is largely preventable. (Shutterstock)

Katchmarchi optimistically tells AmeriDisability, “I always like to reinforce that drowning is completely preventable if all layers of protection are followed.”

There’s a lot of information to unpack here and precautions to be made. But, again, water activities can be amazing and accessible. There are many great benefits too. Swimming and/or aquatic activities can build muscle and flexibility, improve motor skills and coordination, support heart and lung health, aid mental wellbeing and reduce pain, among other benefits. So suit up and take the plunge – but please do so safely.

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Emergency App Makes 911 Accessible for Deaf and Hard of Hearing

Tech

Nancy DeVault

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May 15, 2023

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Emergency App Makes 911 Accessible for Deaf and Hard of Hearing

If and when an emergency arises, most people know to call 911. Then, trained dispatchers typically gather information about the urgent situation, including location, and send appropriate help (fire, medical or police). For some people, however, communication barriers can impede standard lifesaving protocols and, thus, delay responsive action. That’s why a tech nonprofit organization, called accesSOS, is on a mission to make 911 accessible for all, including people within the Deaf community.

Hearing the Call to Make 911 Accessible

Millions of Americans, such as those who are deaf or hard of hearing, are not always able to access emergency assistance because of shortcomings in current response systems. Gabriella Wong, the CEO and founder of accesSOS, learned this the hard way. You see, both of her parents are deaf; and when her father, William Wong, got into a car accident, he didn’t call 911 for help…

“He texted me to call 911 for him! What if he wasn’t able to reach me,” Gabriella pondered with concern. And that’s exactly what happened the next time William needed emergency aid.

William Wong (right), who is deaf, inspired his daughter Gabriella (left) to make 911 accessible for deaf and hard of hearing. (accesSOS) — William Wong (right), who is deaf, inspired his daughter Gabriella (left) to make 911 accessible for the deaf and hard of hearing. (accesSOS)

“This nightmare [of inaccessibility] became a reality when my father had a gallbladder rupture. He was all alone and I didn’t see his texts for help in time. During one of the most vulnerable, desperate moments of his life, he couldn’t contact 911 to get help. He almost died because of this inequity. These personal experiences motivate me to keep doing the hard work of fixing this problem,” Gabriella shared on the website accessos.io.

History of Inequality

The 911 call system was established in the 1960s using a landline. At the time, 911 simplified access to emergency care by allowing callers to dial the new three-digit number versus differing seven-digit numbers of either fire, medical or police services. With the technological shift to cellphones, public safety systems have worked to convert equipment. This includes a text-to-911 service. However, according to accesSOS, most call centers aren’t yet providing this service.

“Unfortunately, text-to-911 is currently only available in 30 percent of 911 call centers in the United States, leaving 37 million deaf or hard-of-hearing Americans and 28 million more with limited English proficiency vulnerable to potentially life-threatening delays in receiving the help they need,” Gabriella told AmeriDisability.

Because text to 911 services are not widely available, accesSOS is filling the gap on emergency response options. (accesSOS)

Nationwide access to text-to-911 may take years, even a decade, to achieve. So, accessSOS is currently striving to fill the gap. accessSOS is essentially a free mobile web app that instantly translates texts to a 911 phone call with all pertinent information.

“We launched our mobile web app (contact911.org) in 2022, which is now being piloted in Santa Fe, New Mexico. This innovative app uses cutting-edge technology to help individuals with communication barriers connect to emergency services. With a simple icon-based system, users can quickly request assistance with just a few clicks and provide their precise location to 911. The app also eliminates the need for typing long sentences, which saves valuable time during an emergency,” Gabriella explained.

The organization also developed a tool that maps out text-to-911 availability (www.text911.info), which helps underserved populations identify where text-to-911 is available and provides instructions on how to text 911 for assistance. [Click here to view an availability map.]

accesSOS is accessible with diverse features. — accesSOS is committed to making 911 accessible through user-friendly features. (accesSOS)

How accesSOS Makes 911 Accessible

The web app’s picture-based navigation features user-friendly steps.

Essentials: You location is determined by your phone’s GPS data. The app prompts you to choose medical, police or fire assistance.
Safety: The app will prompt questions to help determine what type of emergency is happening.
Additional Details: You can choose from common scenarios, like accident, assault, etc.
Help Generated: accesSOS then contacts 911 on your behalf, communicating information in real-time.

Compatible with iPhone and Android, accesSOS automatically communicates in the preferred language of your phone settings and is free to use.

“With around 700 home screen additions and two emergency calls made to 911, the app has already proven to be an effective solution for those in need,” Gabriella told AmeriDisability.

accesSOS is working with local 911 call centers to adopt, deploy, test and raise awareness of text-to-911 in their local communities. For more information, visit accessos.io.

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Trailblazing Accessibility: Central Oregon Trail Alliance Enhances Mountain Bike Trails for Adaptive Riders

Sports

Staff Writer

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May 11, 2023

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Trailblazing Accessibility: Central Oregon Trail Alliance Enhances Mountain Bike Trails for Adaptive Riders

The Central Oregon Trail Alliance (COTA) announced a project to increase mountain bike trail accessibility for adaptive riders in Bend, Oregon. In collaboration with key leaders in accessible recreation, COTA aims to promote accessible riding opportunities in Central Oregon.

During May (2023), a team of adaptive mountain bikers will assess 100 miles of trails near Bend, including the trail experience, trailhead facilities and accessibility barriers. The project is managed by Empowering Access, a disability equity and inclusion consulting organization founded by Ashley Schahfer. The on-the-ground team will be led by Quinn Brett and Joe Stone of Dovetail Trails. Their expertise will ensure that the project provides tangible data, recommendations and education to facilitate an inclusive trail environment. Additional project partners include Oregon Adaptive Sports (OAS), a nonprofit that guides adaptive athletes on outdoor adventures in Central Oregon, and the International Mountain Bicycling Association (IMBA), which facilitated a private grant to support the work.

An example of a sign with information useful for mountain bikers using adaptive bikes. (Central Oregon Trail Alliance)

During the assessment, the team will ride trails and document key components such as trailhead accessibility, tread width, grade and cross slope. This information will then be publicized so that adaptive riders can make informed decisions about what trails they would like to ride. Often, the biggest barrier preventing an adaptive mountain biker from accessing a trail is simply lack of information.

“I’m excited to put Central Oregon on the map for the adaptive cycling community,” said Abbie Wilkiemeyer, COTA’s volunteer project manager. “Other communities are using universal design to open trails of all difficulty levels to adaptive mountain bikers. If they can do it, we can do it. All of the COTA volunteers participating in the assessments are looking forward to the opportunity to learn what works and what doesn’t for riders on different equipment on trails.”

COTA is a nonprofit dedicated to the development, protection and enhancement of the Central Oregon mountain biking experience. COTA maintains over 600 miles of singletrack trails across six chapters. Kudos to COTA on their commitment to support adaptive riders and enhance accessibility! Are trails accessible in your area?

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Disability Nonprofit Names Actress Holly Robinson Peete ‘Mother of the Year’

Entertainment

Nancy DeVault

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May 10, 2023

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Disability Nonprofit Names Actress Holly Robinson Peete ‘Mother of the Year’

Holly Robinson Peete is famously known for her TV acting roles on 21 Jump Street and Hangin’ with Mr. Cooper, as well as being an original co-host on The Talk. But, especially within the disability community, she’s also recognized as a dedicated disability advocate. Just in time for Mother’s Day, Best Buddies International, a friendship-based nonprofit serving persons with disabilities, is honoring Robinson Peete with their annual ‘Mother of the Year’ award.

Robinson Peete, and her husband Rodney Peete, a former NFL quarterback, are parents to four (now grown) children: twins, daughter Ryan and son Rodney, Jr., both of whom have neurodiverse conditions, and sons Robinson and Roman. At age three, Rodney Jr. was diagnosed with autism spectrum disorder (ASD), which is a broad range of conditions characterized by challenges with social skills, repetitive behaviors, and speech and nonverbal communication. And during her teenage years, Ryan was diagnosed with attention deficit hyperactivity disorder (ADHD), a condition of brain development and/or brain activity differences that can affect attention, self-control and emotional regulation.

Honoring Robinson Peete & all Mothers

Founded in 1989, Best Buddies International works to create opportunities for one-to-one friendships, integrated employment, leadership development and inclusive living for people with intellectual and developmental disabilities (IDD). This year, at its 6th Annual Best Buddies’ Celebration of Mothers, presented by Cadillac, the organization will acknowledge the disability advocacy efforts of Robinson Peete. The event will take place on Saturday, May 13, 2023 in Pacific Palisades, California.

Robinson Peete personifies the genuine love and resiliency that parents of children with IDD exhibit to ensure their children live meaningful, purpose-driven lives, says Best Buddies International.

“I am incredibly honored to be Best Buddies International’s ‘Mother of the Year.’ Being a mom of four has truly been a blessing and to receive this acknowledgement in celebration of Mother’s Day is a welcome surprise,” said Holly Robinson Peete. “Over the years, I have had the pleasure of working closely with Best Buddies and the work their organization offers supporting people with intellectual and developmental disabilities is so needed. I am looking forward to their upcoming celebration of mothers, and to continue working alongside this outstanding organization.”

For more than two decades, Robinson Peete has supported various causes and charities in hopes of furthering disability acceptance, aligning with Autism Speaks, the More to ADHD campaign and Best Buddies, to name a few. Robinson Peete and her husband also founded their own organization, the HollyRod Foundation, which strives to raise awareness and provide resources to families that have a loved one who has received either an autism or Parkinson’s disease diagnosis. [Robinson Peete’s father was diagnosed with Parkinson’s disease.]

Holly Robinson Peete, photographed with her family including her husband and four children. — The Peete Family (Best Buddies)

Like Robinson Peete, Mothers Advocate for Their Children

It’s important to note, however, that the annual event isn’t just about honoring one celebrity mom. Rather, the Annual Best Buddies’ Celebration of Mothers centers on saluting all mothers and, more specifically, the amazing mothers of Best Buddies’ participants.

“Across the globe, mothers act as pillars of love, friendship and strength for their families. Mothers are an invaluable source of encouragement and, above all, they understand us like no one else can,” said Anthony Kennedy Shriver, Founder, Chairman & CEO of Best Buddies International. “My mother, Eunice Kennedy Shriver, will always be my hero. I would be nowhere without her unending love and guidance. My mother guided me in everything I did and, without her, Best Buddies would not exist.”

In the late 1960s, Eunice Kennedy Shriver founded the Special Olympics, an international sports organization for persons with physical and intellectual disabilities. And, apparently, she passed along her kind, philanthropic mindset of supporting and championing those with differing abilities.

“I thank her for her love, passion, leadership and faith in our cause. I am thankful for her enduring spirit which guides me in the work that I do today on behalf of individuals with intellectual and developmental disabilities,” Anthony Kennedy Shriver shared. And isn’t that what Mother’s Day is all about?

AmeriDisability wishes a Happy Mother’s Day to all mother’s and mother figures, especially those connected to our disability community.

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‘Inclusively’ Works to Diversify Job Recruitment

Professional

Nancy DeVault

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May 9, 2023

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‘Inclusively’ Works to Diversify Job Recruitment

There are 9.6 million open jobs in the current labor market, according to the May 2023 report by the U.S. Bureau of Labor Statistics. Inclusively, a St. Louis-based startup still in its infancy stage, is working to fill the employment gap by introducing employers to a highly valuable, yet underused, talent pool: people with disabilities. Co-founder and CEO Charlotte Dales, a former finance executive who launched the company in 2020 with Sarah Bernard, admits that the concept for Inclusively came to mind during a spa session.

“My cousin, Cameron Northup Delgado, became the first licensed aesthetician in the state of Florida with Down syndrome; and I came up with the idea for Inclusively while getting my first facial from her,” Dales shares on Inclusively.com.

Statistics Show Need for Inclusively

Dales simply planned to indulge in a little self-care but found herself wholeheartedly caring about the well-being of her cousin as well as the many other talented people with disabilities who, despite being capable and qualified, often struggle to find gainful employment. Data shows that the employment-to-population ratio for people with disabilities is around 36%, compared to the much higher employment-to-population ratio of 75% for those without disabilities. The inequality is staggering, especially as it’s been more than three decades since the Americans with Disabilities Act (ADA) became law, prohibiting employers from discriminating against people with disabilities in the full range of employment-related activities, from recruitment to advancement, to pay and benefits.

In the U.S. alone, at least 61 million (or roughly 1-in-4) adults live with a disability, according to the Centers for Disease Control and Prevention (CDC). Yet, many job seekers with disabilities intentionally do not disclose their disability and, in some cases, attempt to mask their condition. Inclusively strategically does business in the opposite manner.

“One of the norms we’re trying to change is that you should disclose up front,” versus disclosing after you’re hired or not at all, Dales expressed during a podcast interview. “Our candidates do that on our platform because they know that we’re using that data and giving it to the employer with the ability to respond. We’ve built a trust bond with our candidates that if you’re disclosing this to us and you’re going to apply for a job, employers aren’t just receiving your resume, but they’re receiving these accommodation requests with information on how to provide them and how to shift potential processes in order to accommodate them.”

Cameron Northup Delgado, who became the first licensed aesthetician in the state of Florida with Down syndrome, provides a facial treatment for a client. — Cameron Northup Delgado, who became the first licensed aesthetician in the state of Florida with Down syndrome;, inspired Charlotte Dales to co-found Inclusively. (Inclusively)

That’s important because, unfortunately, many hiring professionals still do not know that workplace accommodations are usually nominal when it comes to added expense (less than $500) and aren’t that complex to implement. Inclusively helps combat such accessibility misconceptions by empowering employers with insights, access, training and support so they can attract and retain qualified workers of all abilities. Through the platform, employers obtain aggregated access to the fragmented network of nonprofits and training programs that support diverse talent. Inclusively says that job seekers are recommended to jobs accounting for their accommodations’ requests, enabling companies to set up an inclusive experience at the front door.

Advancing & Diversifying Job Recruitment

“We have over 50K job seekers on our platform and have developed and consolidated partnerships with over 50 enterprises including Lyft, Delta, Salesforce, Charles Schwab, as well as access to over 900 nonprofits, government agencies, training programs, universities and more. This has enabled employers to access a robust source of over one million candidates and growing,” Tiffany Meehan, Inclusively’s VP of Marketing, tells AmeriDisability.

Recently, in April 2023, Gayle M. Benson announced her increased investment in the Inclusively company. Benson is the owner of New Orleans Saints (NFL) and the New Orleans Pelicans (NBA). She first became an investor of the workplace platform in October 2022. “Our goal is for Inclusively to become an integral part of the NFL and NBA daily hiring processes,” Benson said in a press statement.

“The platform that Inclusively provides is unmatched in today’s world of seeking talent; and it’s time to recognize that, just because a person has a challenge in one area of life, they can succeed in others.” Linley Fenlason, Senior Talent Acquisition and Retention Manager for the Saints and Pelicans, added, “Our teams, led by Gayle Benson, recently became Inclusively customers, and we are prepared to hire our first employee through the Inclusively process this month.”

Engaging with sports franchises is a big win for Inclusively, as well as for potential employees. “We make it easy for hiring teams to accommodate candidates, rapidly increasing a company’s ability to benefit from diverse talent,” Dales explained following the announcement. “Gayle Benson and Benson Capital Partners’ investment in our company allow us to grow and reach candidates whose talent otherwise may be overlooked.”

Meehan tells AmeriDisability that there is no cost for job seekers using Inclusively, adding, “For employers, we offer an enterprise solution that is tiered based on access to our candidate database, robust training, community and other services.”

Inclusively is Tapping into Talent

As the inspiration of Inclusively, Delgado says she’s thrilled to be building a career in an industry that she is passionate about and even more excited to help show other job seekers and employers how important it is to prioritize inclusive opportunities.

“Inclusively made the job search so easy! There were a variety of professional positions on the website and it was so easy to add my resume and look for positions,” proclaims Lucia R., a job seeker who found success using Inclusively. “I benefited so much from using the service because I had interviews and received a job offer for a company I wouldn’t have known was hiring otherwise. During the interview process, a representative from Inclusively reached out and was such a great supporter along the way.” Lucia now works as a Workforce Navigators Program Associate at Salesforce.

Blending a Personal & Professional Purpose

Just after sharing the professional achievement of Benson’s investment in Inclusively, Dales shared a personal loss on her LinkedIn new feed. She penned, “In December, we lost our little girl Sadie at 27 weeks. She had very severe ventricularmelagy and didn’t make it.” The devastating announcement was accompanied by a picture of Dales’ other daughter caressing her pregnant belly, adding “I knew when I took it, it was probably the only one [photo] we would get to have of the two sissies.”

Dales personal post went on to say that, “Many babies with this same condition as Sadie are able to survive. Depending on the severity, they might live with varying degrees of physical and mental disabilities.” She offered a call-to-action of donating to St. Michael Special School in honor of Sadie. Dales, whose husband is also a financial guru, also has a son (in addition to her toddler-aged daughter). AmeriDisability extends our heartfelt condolences to the Dales family for their recent loss.

It’s clear that Dales and Bernard, who serves as Inclusively’s COO, are passionate about creating an equitable, productive workplace for all. They are inspiring leaders to create much-needed inclusive workplaces. So, are you ready to tap into a diverse job hunt? Get started with Inclusively.

Interested in reading more about workplace inclusive? Read:

Mom Starts Self-Defense Nonprofit to Combat Violence Among Disabled

Spotlight

Nancy DeVault

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May 4, 2023

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Mom Starts Self-Defense Nonprofit to Combat Violence Among Disabled

People with disabilities face disproportionately high rates of violent victimization in the United States, according to data released by the Bureau of Justice Statistics. The rate of violent victimization against persons with disabilities (46.2 per 1,000) is about four times higher than people without disabilities (12.3 per 1,000). In an effort to combat these alarming statistics, a Michigan mom founded Down to Defend, a self-defense nonprofit working to arm those living with intellectual and developmental disabilities with empowering safety education and resources to live more protected, fulfilling lives.

Self-Defense Nonprofit Takes a (Mama Bear) Tribe

A mama bear is “a mom who can be cuddly and lovable but also has a ferocious side when it’s necessary to protect her cubs,” as defined by Urban Dictionary. The term is oftentimes humorously applied, but we all know that moms are serious when it comes to protecting their kiddos. Moms fiercely want to protect their children from bruises, broken hearts, illness, bullies and much more. So, when Alicia Mathieu, a mom of three, learned that her middle child would be statistically more likely to be violently victimized (compared to his siblings) because of his disability, she let her inner mama bear roar.

Mathieu learned that her son, Levi, had Down syndrome during the second trimester of her pregnancy. About 5,100 babies with Down syndrome are born in the U.S. each year, making it the most common chromosomal condition. People with Down syndrome have an extra chromosome which, according to the National Down Syndrome Society, can cause intellectual developmental disabilities, as well as low muscle tone, small stature, an upward slant to the eyes and other differing characteristics.

(Alicia Mathieu, founder and president of Down to Defend, with her son, Levi, who has Down syndrome. | downtodefend.org)

Once Mathieu knew her parenting journey would include Levi’s special needs, she committed to learning as much as possible about living with a disability with the goal to help her son lead a safe, happy life.

“As I started researching, I found all the negativity out there and all the hard truths,” she revealed in an interview with FOX 17. “People with intellectual disabilities are sexually assaulted at a rate seven times higher than those without disabilities. And so, that was the one thing that kind of stuck out and had my stomach in knots. I knew that something had to be done,” she professed.

Well, it didn’t take long for this motivated mom to get something done! Levi was just six months old when Mathieu kickstarted the mission of Down to Defend. Aside from providing safety-focused educational tools and resources, the Grand Rapids based organization focuses on hosting in-person self-defense classes for people with intellectual and developmental disabilities. Participants are empowered to practice safety techniques by learning the basics of karate and other self-defense methods. Presently, events are only offered in Michigan but, of course, Mathieu would love to see Down to Defend expand it’s reach.

Participants with intellectual disabilities learn how to perform CPR. — (Down to Defend helps people with intellectual disabilities learn how to perform CPR. | downtodefend.org)

Self-Defense, Inclusion and Beyond

Participants have said that Down to Defend classes boost their self-confidence and feelings of self-worth. Additional course options are centered on healthy relationships, swim safety and CPR training.

“We started offering scholarships for ISR [Infant Swimming Resource],” Mathieu told AmeriDisability. ISR is nationally recognized as the safest provider of survival swimming lessons for infants and young children. Drowning is a leading cause of death for children, according to the CDC, and risk is heightened for some within the disability community, such as persons with autism, Down syndrome, heart disease and seizure disorders (like epilepsy).

Levi will turn five this summer, and his mama bear has no intention of quieting her protective roar. But, she admits, Down to Defend needs a lot more support to survive and thrive. Driven by her passion, Mathieu often uses her personal funds to cover costs, with additional backing coming from individual donors.

“Currently, we’re struggling with fundraising which we need to keep our classes going. We are looking to partner with other agencies — locally and, hopefully one day, nationwide. But the financial piece has to be there for that to happen,” she explained to AmeriDisability.

Mathieu says working to improve inclusion, including safety for all people, is worth every penny. “That’s really all we want to do is educate and advocate,” she summarized in the FOX news segment. “Those are our two main focuses and just to keep everyone safe.”

Two people with intellectual disabilities learn self-defense skills. — (Down to Defend helps people with intellectual disabilities learn self-defense skills. | downtodefend.org)

It’s safe to assume that fellow mama bears (and papa bears and allies) echo that heartfelt intention. Down to Defend most recently launched a ‘celebration basket’ program to gift to parents who welcome a baby with Down syndrome (in the Grand Rapids area). To learn more about this generous bundle of joy, or to financially contribute to the cause, visit DownToDefend.org.

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Are Military Special Education Students Being Left Behind?

Education

Staff Writer

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May 3, 2023

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Are Military Special Education Students Being Left Behind?

The average military child changes schools three times more than their civilian counterparts, causing disruption to their academic development as well as their emotional health. These challenges are exponentially more difficult for military families with children with special needs, who must navigate the ever-changing military lifestyle and complicated special education system. Since the nonprofit Partners in PROMISE began surveying military special education families a few years back, they have confirmed these families are in crisis. And although there are federal and state laws protecting special education students, military families report that some schools are violating these laws.

Who is Partners in PROMISE?

Founded in 2020, Partners in PROMISE is a nonprofit dedicated to Protecting the Rights Of Military children In Special Education (P.R.O.M.I.S.E.). The organization aims to support disability communities to ensure they receive equal access to an education. Partners in PROMISE works to develop data-informed solutions that equip parents, inform leaders and enable military students to thrive.

“There is no continuity for my children. Every time we move, we start all over. Start all over fighting for services or accommodations with the school, start all over with doctors and therapists, start all over with tutors. It takes an enormous amount of time and effort to set all those things up.” – 2022 Partners in PROMISE Survey Participant

girl with down syndrome walking hand-in-hand between two adults — (Shutterstock)

What Are Military Parents Saying?

In 2021, military parents indicated that their child waited 5.75 months before receiving special education services after their most recent military move. This type of delay represents a procedural violation of the Individuals with Disabilities Education Act (IDEA). In the 2022 survey, 63% of military children (aged eight and older) participated in state-wide standardized testing — this figure is lower than state and federal best practices. It did not matter what state the family lived in, what branch of service they represented or their income level. All types of military families reported issues accessing an education for their child.

The Department of Defense, White House and Congress are taking notice. President Biden requested $20 million to help ease transitions for military special education students in his 2024 Budget, and the Department of Education is putting out guidance to improve military special education experiences after receiving PIP’s data. Recently PIP presented its latest survey findings (on March 15, 2023), alongside panelists from the White House’s Joining Forces, the Department of Defense’s Office of Special Needs, the Department of Education, The Ohio State University and leaders from the disability community, such as the Learning Disability Association of America.

“Over the past two years, Joining Forces has been focused on driving change across the federal government, including through better collection and sharing of data to inform policy and program development,” said Sheila Casey, Executive Director of the White House’s Joining Forces initiative during Partners in PROMISE’s Data Release Webinar. “We know how important data is to making good decisions to support our military-connected community and the survey results you are releasing today play an important role in informing decision-makers across all sectors to begin to address these challenges.”

classroom desks facing chalkboard — (Shutterstock)

Keeping Their Professional Promise

Military special education families are struggling, but still want to serve. Over 78% of survey respondents cited that their family (civilian spouse, military servicemember and special education student) experienced stress as a result of navigating the special education system. But this did not have a significant impact on the family’s desire to continue serving on active duty. “It is quite bittersweet,” said Michelle Norman, founder and Executive of Partners in PROMISE. “But it is good to know that our families still want to serve despite those obstacles and that’s why we’re here… to make sure that we can improve this process for them so that they can continue to do what they’re called to do for this great country.”

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Is the Paralympic TikTok Account Offensive?

Sports

Nancy DeVault

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May 2, 2023

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Is the Paralympic TikTok Account Offensive?

The 2024 Paralympics are still well over a year away. Yet, thanks to trending TikTok clips, the upcoming competition is already dominating news headlines and social media feeds. That is because the Paralympic TikTok account, run by the official International Paralympic Committee (IPC), is posting content that some describe as insensitive and even outright offensive.

Many of the social media posts shared on the Paralympic TikTok account feature snippets of athletic performances by adaptive competitors that are synchronized to songs and soundbites. But we are not talking about motivational music montages dubbed to iconic tunes like the Rocky soundtrack. Rather, clips present para-athletes falling, flubbing up and synched to silly noises. So, the question is: Are these viral snippets just fun or are they actually poking fun?

Content of Paralympic TikTok Account

One video, titled “He said right foot leap,” features Zhong Zhiqiang, a long jumper with limb difference. The audio echoes “I said right foot, I said right foot…” repeatedly as the track-and-fielder runs and leaps with one limb – his right foot. Similarly, another video shows cyclist Darren Hicks, whose right leg was amputated following an auto crash, pedaling to a repetitive “Left. Left. Left.” audio track.

TikTok users react to Paralympic TikTok account. — (TikTok users react to the controversial Paralympic TikTok account. | TikTok)

Garnering a whopping 9.8 million views, a clip synchronized to TV’s Family Guy version of The Bangles hit “Walk Like An Egyptian,” shows a wheelchair basketball player falling backward onto the court. As she crashes down to the floor, the tweaked lyrics say, “My back is hurting from the chair I’m sitting on… if I lay down flat on the floor it usually kinda fixes it.” One offended commenter asked, “Do you receive any guidance on what to post or go through any approval process or do you just get to post anything?” This inquisitive comment received more than 6,000 likes by others that, likewise, seemed taken aback by the provocative social post. Yet, numerous other followers of the Paralympic TikTok account commented with laughing emojis and jokes.

The Paralympic TikTok account, which has 3.4 million followers, has been active since 2020 but only recently garnered more attention — both backlash and applause — on TikTok as well as its other social platforms, like Twitter. But some say the controversial posts are intentional, basically an “all press is good press” public relations strategy.

Funny or Poking Fun?

When questioned about its unconventional social media posts (including growing criticism), an IPC spokesperson told NPR that the Paralympic TikTok account is, in fact, operated by a “Paralympian who fully understands disability.” This response implied that much of the disapproval could be chalked up as over-reaction by those who aren’t even part of the disability community.

“We have created a strong following through edgy and unique content that allows us to educate an audience who might be less aware of Paralympic sport and the achievements of our athletes,” the spokesperson told NPR. “We appreciate that not everyone will like the content and sometimes we don’t get it right, but we do closely monitor posts, always converse in reactions to them, and learn from all feedback.”

Social media users react to Paralympic TikTok account — (Social media users react to the Paralympic TikTok account. | TikTok)

Para-triathlete Brad Snyder alluded that he understood this marketing tactic. Snyder, who was blinded by an IED during war combat, was shown in a clip titled “Para Triathlon is swimming, cycling and air piano,” which has been viewed 2.4 million times. As his guide leads him from the water to his bicycle, the Paralympic TikTok account describes his reaching motion as “air piano.” Snyder told CNN that he considers the clip to be funny and reposted it at the time. Though, he admits that there is a fine line between being cheeky and disrespectful but sees how the posts could stir up much needed conversations surrounding disability and inclusion – perhaps, in this case, after an initial giggle.

“And now let’s have a conversation about what my experience might be like and what my challenges might be and how you, as an able-bodied person, might be able to understand and accommodate me in various ways or help me cross the street or help me without pitying me and those sorts of things,” Snyder offered.

But it seems like the Paralympic TikTok account might not be maximizing its chances to educate followers. When commenters pushed back on the “air piano” comparison, the IPC merely replied, “He’s a great pianist, and that guide is a great conductor.” But maybe they could have also offered genuine accolades about Snyder’s athletic skills! And when asked who oversees the Paralympic TikTok account, the administrator jokingly answered, “The ghost of Beethoven,” which definitely missed the opportunity to declare the Paralympics legitimacy and its importance.

In a more recent edited snippet titled “Blind swimmers getting bopped,” para-swimmers are thumped on the head to audio associated with Hasbro’s Bop-It toy. At first glance, one might assume the video is taunting the athletes by bopping them on the noggin with foam-tipped poles – sort of mimicking the Whack-a-Mole game technique. However, as the Paralympic TikTok account explains in the comments section of the post, “This is how blind and vision impaired swimmers are notified they are close to the wall. A bop on the head.” Is that short explanation enough to bolster the kind of awareness and attention that the IPC hopes to achieve?

The IPC kind of appears to be reaching to fill a significant gap among viewers. Statistics from the 2020 Olympics, for instance, averaged 15.5 million per night, whereas a total of 14 million tuned into the entire course of the 2020 Paralympics. Will provocative TikTok posts move the needle enough to increase viewership of the next Paralympics?

aris 2024 Opening Ceremony Athletes Parade — (The next Paralympics will be held in Paris.)

Not everyone thinks the “edgy” style of social engagement is effective or appropriate. Soccer player Sean Jackson, an amputee who uses crutches on the field, told the BBC that he’s disappointed that the Paralympics TikTok account seems to be strangely highlighting athletes’ missteps and mistakes instead of their incredible talents and achievements. “They just choose to sort of mock them and turn them into memes and try and use their sport to entertain people from a comedic point of view,” he said.

In contrast, André Ramos, a medalist in boccia who also was featured in a post on the Paralympic TikTok account, doesn’t deem the content as offensive. He explained to NBC that “making fun with our handicaps is a sign that we accept ourselves as we are and that others do not see the disability as a difference.” In the same report, Hicks, the “Left. Left. Left.” cyclist, has expressed more of a neutral feeling, stating that he basically thought the audio dubbed to his left-footed pedaling was matter-of-factly used.

The upcoming Paralympic Games, which will feature twenty-two different sports, is set for Paris with competition running August 28 to September 8, 2024. Do you think the Paralympic TikTok account is producing acceptable humor to garner attention for and raise awareness of competitive adaptive sports (as they proclaim to be doing)? As members (or allies) of the disability community, share your thoughts with AmeriDisability on Facebook, Twitter and Instagram. [We’re not on TikTok just yet! Are you?]

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Down Syndrome Nonprofit Gifts Bundles of Joy to Parents

Spotlight

Nancy DeVault

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April 28, 2023

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Down Syndrome Nonprofit Gifts Bundles of Joy to Parents

Parents who are expecting or have recently welcomed a child are typically showered with congratulatory sentiments. That’s not always the case for those who have a child with disabilities, such as Down syndrome. Sometimes, people unintentionally say hurtful things; and other times, people don’t say anything at all. But all babies, with and without disabilities, deserve to be celebrated, says Brittany Schiavone, founder of Brittany’s Baskets of Hope. This nonprofit is committed to providing information, support, guidance and, as the name states, hope to families that are either expecting or have newly welcomed a baby with Down syndrome.

A Down Syndrome Nonprofit is Beautifully Born

When Sue and Rocco Schiavone welcomed their daughter, Brittany, back in 1989, physicians and loved ones alike muttered, “I’m sorry,” rather than gleefully shouting “congratulations.” That’s because Brittany was diagnosed at birth with Down syndrome; and, so, some believed that she wouldn’t (or couldn’t) lead a full life. But the Schiavones didn’t want or need sympathy or doubt. They wanted joy, and they needed supportive love — as did their new daughter and her older brother, Justin. So, as parents do for any baby, Sue and Rocco nurtured their little girl; and encouraged her to embrace the beauty of differences, be confident to pursuit of endless possibilities and, most of all, embody and exude happiness and kindness.

And that she did… throughout her childhood and still to this day! When Brittany entered adulthood, she realized her calling to promote these same powerful positive messages of inclusivity to other families like hers.

Brittany visits a family to deliver one of Brittany's Baskets of Hope — (Brittany visits a family to deliver one of Brittany’s Baskets of Hope. | Brittany’s Baskets of Hope)

“In 2014, when I was 25, I saw a video on a break at work about people helping babies with Down syndrome. I told my parents I wanted to do that too,” Brittany tells AmeriDisability. Sue admits that they didn’t take her too seriously at first. After all, establishing and operating a nonprofit organization is a tall task. But Brittany remained persistent, eventually kickstarting operations from the basement of the Schiavone home.

In October 2016, Brittany’s Baskets of Hope sent out its first basket to parents of a newborn diagnosed with Down syndrome. To date, this Long Island based nonprofit has sent more than 2,100 baskets to families in all 50 states (and Puerto Rico)! With nationwide demand, most baskets are shipped throughout the country but, when possible, Brittany and Sue hand-deliver the special care packages to local families in the New York area.

“That’s my favorite part — when I get to talk to the moms and hold the babies. I think the babies know that I have Down syndrome and look up to me,” Brittany shares.

About 5,100 babies with Down syndrome are born in the U.S. each year, making it the most common chromosomal condition. People with Down syndrome have an extra chromosome which, according to the National Down Syndrome Society, can cause intellectual developmental disabilities, as well as low muscle tone, small stature, an upward slant to the eyes and other differing characteristics.

Brittany's Baskets of Hope is a Down syndrome nonprofit supporting expectant and newbie parents with resources. — (Donations help to create baskets full of assorted gifts and resources. | Brittany’s Baskets of Hope)

Presenting Bundles of Joy

Brittany’s Baskets of Hope contain assorted gifts for the baby, as well as the siblings, and resources for the parents. “We have knitters and crocheters from all over the U.S. who donate their handmade blankets, booties and hats for our babies,” Brittany describes. “We have a signature onesie that says ‘Down Right Perfect,’ and handmade bibs, burp cloths and other items for the babies.” Plus, parents receive a book, meaningful poem and heartfelt message from Brittney and Sue.

Brittany’s Baskets of Hope aligns with other Down syndrome related organizations across the nation to connect with families. Parents and/or loved ones may fill out a basket request form online at BrittanysBasketsOfHope.org.

“When we began in 2016, most of the requests were from a birth diagnosis but, lately, most [requests] have been from a prenatal diagnosis due to the blood tests that are standard now and can tell the sex of the baby as well as any chromosomal differences,” Sue says.

Brittany’s Baskets of Hope is almost entirely funded by generous donations. However, a couple of years ago, the nonprofit identified a unique fundraising opportunity. “We started printing our annual Brittany’s Baskets of Hope calendar in 2021 because we thought the babies were so cute. We wanted to share them even more. Parents love the calendars, and it has become a hit every year,” says Brittany, now 34. In addition to the financial revenue generated by the successful calendar campaign, Brittany’s Baskets of Hope also dabbles in the sale of inspirational t-shirts and sweatshirts, especially during National Down Syndrome Acceptance Month (October).

Brittany Schiavone sits at her desk — Decorated with blue and yellow, colors that represent Down syndrome awareness, Brittany works in her office which was renovated by NBC’s “George to the Rescue.”

Down Syndrome Nonprofit Founder is Hopeful

Because of the importance of the mission, Brittany’s work has been praised by many. In 2019, she was chosen as the L’Oréal Paris Women of Worth National Honoree and, in 2021, Brittany’s Baskets of Hope was honored with a headquarters renovation. As featured on NBC’s “George to the Rescue,” the Schiavone’s humble basement office was transformed into an official, organized nonprofit administration and fulfillment facility. Additionally, beyond their own nonprofit, Brittany and her family members are dedicated disability advocates, contributing to the efforts of other Down syndrome agencies.

“I have a great life and I want everyone to know it! I always say, ‘people with Down syndrome can do anything. Really, really everything,” Brittany attests. And she’s living proof of that!

To learn more about Brittany’s Baskets of Hope, including their wish list of baby items, visit BrittanysBasketsOfHope.org