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Amputee Runner Remarkably Runs 104 Marathons in 104 Days

Goals surrounding fitness are pretty common. In fact, every year, the most common New Year’s resolution is to increase exercise. For many well-intentioned goal-setters, that usually means getting to the gym more regularly or training for a community 5K race. But Phoenix, Arizona-resident Jacky Hunt-Broersma isn’t a typical goal-setter. You see, she decided to set a new world record by running the most consecutive marathons.

And she did it! 46-year-old Hunt-Broersma ran a record-breaking 104 marathons in 104 days in early 2022, including the iconic Boston Marathon. A marathon is 26.2 miles… and she did it 104 times in a row. As if that wasn’t already incredible, this ultra-runner just so happens to be a member of the disability community as an amputee.

Hunt-Broersma says her extreme fitness goal was inspired by Alyssa Amos Clark, a non-disabled athlete who started a personal endurance challenge on her treadmill to pass time during the COVID-19 lockdown phase. Clark, of Vermont, ended up completing 95 marathons in 95 days, achieving a then-new Guinness World Record. Hunt-Broersma wondered if she could also push her body that far — and beyond. So, she set out to conquer a lofty 100 marathons in 100 days; only to be edged out by another ultra-runner, Kate Jayden, a British athlete who achieved that record-setting milestone feat merely days prior to Hunt-Broersma’s scheduled completion. That nudged Hunt-Broersma to up her goal to 104 consecutive marathons.

Amputee ultra-runner, Jacky Hunt-Broersma, based in Arizona, sets new record by running 104 marathons in 104 days. | source: @ncrunnerjacky via Instagram
Jacky Hunt-Broersma ran trails, roads and on a treadmill. | source: @ncrunnerjacky via Instagram

Ability Over Disability

A South African native, Hunt-Broersma battled Ewing sarcoma, a rare form of cancer that affects the tissue around the bones. In 2001, just three weeks after her cancer diagnosis, doctors decided to amputate her lower left leg to prevent the cancer from spreading. She was 26 years old at the time.

Surprising to many, Hunt-Broersma wasn’t much of a runner before the amputation. “Running is something, even though I wasn’t doing it [before surgery], you kind of take for granted because you could just put a pair of shoes on and go,” she explained in an interview.

Following surgery, however, she was driven to prove something to herself and to others who pigeon-holed her as a person with limitations. Fueled by her stubbornness and determination, Hunt-Broersma jumped full speed ahead into the sport of running by investing in a carbon-fiber prosthetic running blade, which cost a whopping $10,000.

Because standard prosthetics aren’t sufficient for strenuous running, the decision of an amputee to pursue endurance running is much different than someone who buys a pair of sneakers to easily satisfy a New Year’s resolution. Obviously, the costly commitment turned out to be worth every penny and more for Hunt-Broersma. She learned to accept and appreciate her limb-different body, and gained confidence.

Amputee ultra-runner, Jacky Hunt-Broersma, based in Arizona, sets new record by running 104 marathons in 104 days. | source: @ncrunnerjacky via Instagram
Jacky Hunt-Broersma ran the Boston Marathon, which counted as her 92nd marathon in her pursuit of 104. | source: @ncrunnerjacky via Instagram

The Heart of Hard Things

The journey was, of course, very hard. Hunt-Broersma had to quickly figure out what her body needed for performance fuel and recovery, which trails and road routes were ideal, and which running partners were truly helpful and motivating. The pain went beyond basic blisters; the friction on her leg stump was significant. And the challenge wasn’t just physical. Her mental strength was also put to the test. Sometimes she just took one step at a time – literally and figuratively. Naturally, there were both good days and bad days. But Hunt-Broersma set a goal; and, she says, “I hate quitting on anything!” So she kept at it… day after day after day.

There really wasn’t time to slack off either. Every day, Hunt-Broersma had to squeeze in a marathon-length run between dropping off and picking up her two children from school. And she couldn’t just kick her legs up afterward; dinner had to be made and homework had to be checked. Hunt-Broersma attests that the experience undoubtedly served as a meaningful life lesson for her children – that they can achieve anything they set their mind to.

Hunt-Broersma works as a coach and, one could certainly imagine, that her first-hand experience is priceless motivation to others. If you’re doing the math: 26.2 x 104 = 2,724.8 miles in 104 days! She is one of the most accomplished amputee athletes of all time. Actually, scratch that… she’s one of the most accomplished athletes (disabled or non-disabled) – period!

It takes a bit of time for Guinness to certify new world records, and AmeriDisability can’t wait to see this accomplishment officially hit the books. Hunt-Broersma attests that “we are so much more capable than what we think,” and she hopes other members of the disability community follow in her footsteps to challenge themselves without limits.

Amputee ultra-runner, Jacky Hunt-Broersma, based in Arizona, sets new record by running 104 marathons in 104 days. | source: @ncrunnerjacky via Instagram
This image shows Jacky Hunt-Broersma celebrating the completion of her 102nd marathon. | source: @ncrunnerjacky via Instagram

More Than a Personal Goal

As part of her marathon quest, Hunt-Broersma raised nearly $200,000 for Amputee Blade Runners, an organization that helps people with limb differences access quality prosthetics. Thanks to the large fundraising contribution, at least 50 other para-athletes will be outfitted with high-end running blades.

“Here in the [United] States, running blades are really expensive and health insurance doesn’t cover it; they see it as a luxury. So I thought it would be a great way to raise money for charity and it would be a good way to give back,” Hunt-Broersma shared with ESPN.

Oh, and that’s not all this amputee runner has accomplished. In 2020, before her 104 marathon quest, Hunt-Broersma became the first amputee to run 100 miles nonstop on a treadmill. Through the Aravaipa Strong Virtual Race, she ran for 23 hours and 38 minutes straight! She credits her husband, Edwin, with making sure she didn’t fall asleep during the wee hours.

To keep up with Hunt-Broersma’s remarkable running adventures, follow her on Facebook.

Amputee ultra-runner, Jacky Hunt-Broersma, based in Arizona, sets new record by running 104 marathons in 104 days. | source: @ncrunnerjacky via Instagram
source: @ncrunnerjacky via Instagram

Have you also accomplished a remarkable goal? Share with AmeriDisability on Facebook, Twitter and Instagram

Apple’s New Accessibility Features to Better Serve Users with Disabilities

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This spring 2022, Apple previewed software features that will soon introduce new ways for users with disabilities to navigate, connect and get the most out of Apple products. These important updates will allow the latest technologies to deliver unique and customizable tools for users and also build on Apple’s long-standing commitment to making products that work for people of all abilities.
Here’s what Apple has shared thus far about these upcoming features: Using advancements across hardware, software and machine learning, people who are blind or have low vision can use their iPhone and iPad to navigate the last few feet to their destination with Door Detection; users with physical and motor disabilities who may rely on assistive features, like Voice Control and Switch Control, can fully control Apple Watch from their iPhone with Apple Watch Mirroring; and the Deaf and hard of hearing community can follow Live Captions on iPhone, iPad and Mac.
Apple is also expanding support for its industry-leading screen reader VoiceOver with over 20 new languages and locales. These features will be available later in 2022 with software updates across Apple platforms.
“Apple embeds accessibility into every aspect of our work, and we are committed to designing the best products and services for everyone,” said Sarah Herrlinger, Apple’s senior director of Accessibility Policy and Initiatives. “We’re excited to introduce these new features, which combine innovation and creativity from teams across Apple to give users more options to use our products in ways that best suit their needs and lives.”
Apple's new techology
source: Apple

Door Detection for Users Who Are Blind/Low Vision

Apple is introducing Door Detection, a navigation feature for users who are blind or have low vision. Door Detection can help users locate a door upon arriving at a new destination, understand how far they are from it and describe door attributes — including if it is open or closed and, when it’s closed, whether it can be opened by pushing, turning a knob or pulling a handle. Door Detection can also read signs and symbols around the door, like the room number at an office or the presence of an accessible entrance symbol. This feature combines the power of LiDAR, camera and on-device machine learning, and will be available on iPhone and iPad models with the LiDAR Scanner.
Door Detection will be available in a new Detection Mode within Magnifier, Apple’s built-in app supporting users who are blind or have low vision. Door Detection, along with People Detection and Image Descriptions, can each be used alone or simultaneously in Detection Mode, offering users with vision disabilities a go-to place with customizable tools to help navigate and access rich descriptions of their surroundings. In addition to navigation tools within Magnifier, Apple Maps will offer sound and haptics feedback for VoiceOver users to identify the starting point for walking directions.
Advancing Physical and Motor Accessibility for Apple Watch
Apple Watch becomes more accessible than ever for people with physical and motor disabilities with Apple Watch Mirroring, which helps users control Apple Watch remotely from their paired iPhone. With Apple Watch Mirroring, users can control Apple Watch using iPhone’s assistive features like Voice Control and Switch Control, and use inputs including voice commands, sound actions, head tracking or external Made for iPhone switches as alternatives to tapping the Apple Watch display. Apple Watch Mirroring uses hardware and software integration, including advances built on AirPlay, to help ensure users who rely on these mobility features can benefit from unique Apple Watch apps like Blood Oxygen, Heart Rate, Mindfulness and more.
Plus, users can do even more with simple hand gestures to control Apple Watch. With new Quick Actions on Apple Watch, a double-pinch gesture can answer or end a phone call, dismiss a notification, take a photo, play or pause media in the Now Playing app, and start, pause or resume a workout. This builds on the innovative technology used in AssistiveTouch on Apple Watch, which gives users with upper body limb differences the option to control Apple Watch with gestures like a pinch or a clench without having to tap the display.
Apple's new technology
source: Apple

Live Captions Come to iPhone, iPad, and Mac for Deaf and Hard of Hearing Users

For the Deaf and hard of hearing community, Apple is introducing Live Captions on iPhone, iPad and Mac. Users can follow along more easily with any audio content — whether they are on a phone or FaceTime call, using a video conferencing or social media app, streaming media content or having a conversation with someone next to them. Users can also adjust the font size for ease of reading. Live Captions in FaceTime attribute auto-transcribed dialogue to call participants, so group video calls become even more convenient for users with hearing disabilities. When Live Captions are used for calls on Mac, users have the option to type a response and have it spoken aloud in real-time to others who are part of the conversation. And because Live Captions are generated on the device, user information stays private and secure.
VoiceOver Adds New Languages & More
VoiceOver, Apple’s industry-leading screen reader for users who are blind or have low vision, is adding support for more than 20 additional locales and languages. Users can also select from dozens of new voices that are optimized for assistive features across languages. These new languages, locales and voices will also be available for Speak Selection and Speak Screen accessibility features. Additionally, VoiceOver users on Mac can use the new Text Checker tool to discover common formatting issues such as duplicative spaces or misplaced capital letters, which makes proofreading documents or emails even easier.

Additional Features

  • With Buddy Controller, users can ask a care provider or friend to help them play a game; Buddy Controller combines any two-game controllers into one, so multiple controllers can drive the input for a single player.
  • With Siri Pause Time, users with speech disabilities can adjust how long Siri waits before responding to a request.
  • Voice Control Spelling Mode gives users the option to dictate custom spellings using letter-by-letter input.
  • Sound Recognition can be customized to recognize sounds that are specific to a person’s environment, like their home’s unique alarm, doorbell or appliances.
  • The Apple Books app will offer new themes, and introduce customization options such as bolding text and adjusting line, character and word spacing for an even more accessible reading experience.

Which of these upcoming features are you most excited about? Share with AmeriDisability on Facebook, Twitter, LinkedIn and Instagram

“Willow” Reboot to Star Original Cast Member with Dwarfism

Attention children of the 1980s… an iconic movie is getting a reboot!

In 1988, movie-goers flocked to theaters to see “Willow,” a dark fantasy adventure directed by Ron Howard, executive produced by George Lucas, and starring Val Kilmer and Warwick Davis. The film, which earned two Academy Award nominations, didn’t exactly break box office records. But, thanks to home viewing options (i.e. remember VHS tapes?!?), the film grew to become a beloved cult classic.

The original flick centers on the heroism of Willow Ufgood, a farmer and aspiring sorcerer of the Nelwyn village. But after discovering an abandoned baby, named Elora Danan, he’s unexpectedly tasked with protecting the youngster, who is destined to bring about the downfall of the evil sorceress.

With just a few prior acting credits to his name (Star Wars, Ewoks and Labyrinth), then 18-year-old Davis landed the lead in “Willow.” Other actors who identify as little people or members of the disability community were also cast, including Tony Cox, Phil Fondacaro, Mark Northover, David Steinberg and Billy Barty, who founded the Little People of America in 1957. In addition to Kilmer, Joanne Whalley and Jean Marsh each filled non-disabled parts.

Unnamed costumed cast member, with Ron Howard, Val Kilmer and Warwick Davis
Unnamed costumed cast member, with Ron Howard, Val Kilmer and Warwick Davis on the set of “Willow” in 1988. | source: imdb

Diversity Became the Reality of Fantasy

Davis, a native of England, was born with spondyloepiphyseal dysplasia congenita, the condition that caused his dwarfism. According to John Hopkins Medicine, spondyloepiphyseal dysplasia congenita is a rare genetic disorder that involves spinal and epiphyseal enlargement (enlargement of the area at the end of the long bones). Classified as a type 2 collagen defect, it affects a structure of connective tissue (collagen) that supports many parts of the body.

There are over 200 different types of dwarfism. Unlike Davis, most people with dwarfism have a condition called achondroplasia, which occurs in about one in every 40,000 births, according to John Hopkins Medicine. In fact, Davis’ wife, Samantha, has achondroplasia; and their two children, Annabelle and Harrison, have spondyloepiphyseal dysplasia congenita. The whole family has been involved in film projects!

Fast-Forward to More Fantasy

Beyond the original production of “Willow,” Davis has enjoyed a lengthy career in the entertainment industry, including gigs in film series such as “Leprechaun” and “Harry Potter,” among many other supporting roles in both television and film.

Now in post-production, “Willow” is rebooting as a television series with Davis reprising his signature character. Eager fans recently got a glimpse at what’s to come in the fantasy sequel thanks to a trailer teaser released by Lucas Films.

The rebooted cast will also star newcomers Ellie Bamber, Erin Kellyman and Tony Revolori, among others. The plot resumes twenty years after the original adventure. Can fans expect to learn what’s become of Elora Danan? We’ll have to watch to see when the premiere drops on November 20, 2022, on Disney+.

Jonathan Kasdan, a writer and executive producer of the “Willow” sequel, did confirm that Kilmer did not travel from the U.S. to Wales to reprise his role of Madmartigan. Perhaps just unfortunate timing, Kasdan eluded that Kilmer’s absence was due to travel limitations associated with the COVID-19 pandemic. This is disappointing as Kilmer recently reprised his role as Tom ‘Iceman’ Kazansky in “Top Gun: Maverick,” a 2022 sequel to the 1986’s “Top Gun.”

Kilmer also became a member of the disability community when, in 2017, he lost his voice after battling throat cancer and various tracheotomies. Still, 36 years later, Kilmer was able to reunite with co-star Tom Cruise for “Top Gun: Maverick” thanks to artificial intelligence voice work. His daughter shared during a New York Post interview that a company called Sonantic developed the specific AI that mimicked Kilmer’s iconic voice.

“They were able to dub him with his own voice, which is amazing,” Mercedes Kilmer explained in the interview. “It’s such a technical feat, being able to engineer his voice that way, that it’s an extension of the technical feat of the film.”

Kilmer’s condition was written into the “Top Gun” sequel, however. The character of Iceman has a communication disability, yet Kilmer’s AI-generated voice asserts to Cruise’s character, “The Navy needs you, Maverick!”

Ohhh, and AmeriDisability assumes that “Willow” fans similarly need Madmartigan back too! Perhaps a second season of “Willow” will bring Kilmer back to the fantasy adventure.

Disability Representation

In addition to acting, Davis, now 52, has dabbled in writing, directing, producing and other behind-the-scene roles. He also co-founded Little People UK, a charity “dedicated to improving the quality of life for people with dwarfism while celebrating with great pride little people’s contribution to social diversity.”

Additionally, in partnership with his father-in-law, Peter Burroughs, Davis established Willow Personal Management. This talent agency represents people with height differences. The company initially focused on advancing opportunities for entertainers that primarily identify as little people, but has grown to also represent very tall professionals on the other end of the height spectrum.

Will you watch the reboot of “Willow?” Share with AmeriDisability on Facebook and Twitter!

The Scoop on How Eating Ice Cream This June Supports the Disability Community

During the month of June, Cold Stone Creamery stores will again host their annual nationwide fundraising promotion to benefit Best Buddies International, a global nonprofit dedicated to establishing a volunteer movement that creates opportunities for one-to-one friendships, integrated employment, leadership development and inclusive living for people with intellectual and developmental disabilities (IDD).

Picture this: You and your best friend are asked to create a deliciously unique flavor for a national ice cream chain. How cool would that be?! Now if the two of you could manage to pause the bestie giggles for long enough to let your taste buds get to work, what sort of yumminess would you stir together? Well, this is exactly what Drew and Stan, two Best Buddies program participants, got the chance to do when they were charged with developing the “Better Together Creation” for the Best Buddies promotion at Cold Stone Creamery. For their uniquely sweet concoction, Drew and Stan blended mint ice cream with brownies, M&Ms and whipped topping!

I know what you’re thinking — I’m telling you to eat ice cream and you’re questioning if that’s really a healthy suggestion. Okay, that’s a fair thought but… let me explain why eating ice cream this June is a worthwhile consideration.

Here's a way to support persons with disabilities: eat the Better Together Creation at Cold Stone.

Here’s Why You Should Eat More Ice Cream in June:

You’ll Impact an Important Mission

By eating the Better Together Creation, you’ll help Cold Stone Creamery support the Best Buddies mission of ending the social, physical and economic isolation of the 200 million people living with IDD. And that’s really important work! You see, for more than 30 years, Best Buddies has helped individuals within the IDD community form meaningful friendships with their peers, secure successful jobs, live independently, and improve public speaking, self-advocacy and communications skills.

“To eat is a necessity, but to eat intelligently is an art,” said 17th-century writer François de La Rochefoucauld. I believe intelligence applies when it comes to intentionally eating ice cream with purpose.

You’ll Have a Cool Experience — Literally & Figuratively

I really love ice cream and in any form — cone, cup, sundae, on a popsicle stick, whatever. I swear “I scream, you scream, we all scream for ice cream” could be my personal mantra. And I admit, there is something extra sweet about the ice cream shop experience presented at Cold Stone Creamery. In case you haven’t been to Cold Stone yet, let me tell you that their smooth and creamy ice cream is handcrafted fresh daily in each store. But the best part is that you, yes my fellow ice cream fanatics, get to customize your very own creation by, first, selecting a base flavor (such as Cake Batter, Cheesecake, Sweet Cream or whatever your taste buds crave)’ and, second, adding in a variety of goodies (like toffee health bar, graham crackers, peanut butter cups and so much more). Watch it get folded together right in front of your eyes (and watering mouth) on top of a frozen granite stone.

Here's a way to support persons with disabilities: eat the Better Together Creation at Cold Stone.

You’ll Kind Of Make a Healthy Choice

When we think about the health benefits of eating, we automatically consider what we should – or should not – consume in regards to nutritional value. And, so, perhaps ice cream typically falls into that “too much of a good thing can be bad” category thanks to calories, fat, carbs and sugars. That’s why, for most, ice cream is best enjoyed in moderation, and as part of a healthy, well-balanced diet.

However, experts agree that, aside from enjoying the taste and nutrients of the foods we eat, joyfully dining with others aids physical and mental health. Since this ice cream promotion is all about buddies, I’m sure we can all agree that an ice cream rendezvous with a beloved buddy can and will be good for the mind, body and soul! This is, of course, in total contrast to binge-eating out of the container while watching Netflix (still, no judgment if you do that on occasion too). Rather, can’t you just picture the endorphins spiking high as buddy bonding is had with every lick and laugh. The act of indulging in this frozen treat can increase serotonin, a neurotransmitter often referred to as the “feel-good hormone.” Yup, this is your chance to do good and feel good!

Plus, ice cream does boast calcium, potassium and magnesium, and these help to maintain strong teeth, bones and blood pressure levels. A serving of ice cream can pack protein to boost energy levels, and offer up nutrients like vitamin A, thiamin, riboflavin, vitamin B6 and phosphorus. And don’t forget that ingredients like vanilla beans and dark chocolate deliver antioxidants.

You’ll Be Rewarded Even More & Reward Others

In addition to the promotional Creation, customers who donate $1 or more will receive double My Cold Stone Club Rewards points on their entire purchase. Customers enter a phone number at checkout in-store or login into their rewards account when ordering online to earn double points.

Cold Stone Creamery has also launched an exclusive Gift Back eGift card campaign. With every limited edition Give Back eGift card purchased online, Cold Stone will donate 10% of the amount to Best Buddies. To purchase your Give Back eGift card and make a difference, click this link to access more info on Cold Stone’s website. The donation percentage is 10 percent, with a maximum annual donation of $100,000.

The Cold Stone Creamery brand operates nearly 1,500 locations globally in approximately 30 countries worldwide. With so many locations, just think about the potential impact that eating ice cream during this limited-time promotion could have! You see… I told you there were good reasons to have a scoop (or two or three) of ice cream this June. Oh, and I agree with Drew and Stan that mint ice cream with brownies, M&Ms and whipped topping tastes awesome. Happy ice cream eating!

Image source: Best Buddies Facebook page

Nancy DeVault is an award-winning writer/editor contributing to local and national publications. Her storytelling spans a wide range of topics, including charity, disability, food, health, lifestyle, parenting, relationships and travel. Married with two kiddos, Nancy describes herself as a lover of the outdoors, fitness, news, traveling and binge-reading magazines while sipping coffee.

Medical Advancement: First-Ever FDA Approved Medication to Treat Alopecia Areata

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On June 13, 2022, medical history was made when the U.S. Food and Drug Administration (FDA) approved Olumiant™, a medication to treat alopecia areata. This exciting medical breakthrough announcement marks the first FDA-approved treatment for alopecia areata.

“This is the dawn of a new era,” Nicole Friedland, President and CEO of the National Alopecia Areata Foundation, said in an organization press release. “For the first time, alopecia areata patients have the option of an approved treatment that has undergone rigorous testing in clinical trials. We anticipate more treatments to come, bringing additional choices to our community.”

What is Alopecia Areata?

According to the National Alopecia Areata Foundation, alopecia areata is a common autoimmune disease that affects roughly seven million Americans (including more than 300,000 people with severe levels of the condition). Alopecia areata may cause either total or partial loss of scalp and body hair.

Understandably frustrating to those who live with the condition, scientists have yet to identify what “triggers” the immune system to attack the body’s healthy hair follicles. Additionally, some people with alopecia may experience psychological consequences, including high levels of anxiety and depression.

Symptoms of alopecia areata:

  • Small, round/oval patches of hair loss on the scalp, beard area of the face or other areas of the body with hair
  • Hair loss and regrowth at the same time in different areas of the body
  • Significant hair loss in a short period of time
  • Hair loss that’s mostly on one side of the scalp, rather than both sides
  • “Exclamation point” hairs that are narrow at the base/next to the scalp
  • “Stippling” or “pitting” (rows of tiny dents) on the fingernails

two boxes of Oluminant medication for Alopecia Areata

What is Olumiant?

Olumiant is a new FDA-approved oral tablet. It belongs to a class of medications known as Janus kinase (JAK) inhibitors which block the activity of one or more of a specific family of enzymes, interfering with the pathway that leads to inflammation. Olumiant is tended for adult patients with severe alopecia areata. Its availability means people with alopecia areata now have a treatment option for the entire body rather than just a specific location.

“Access to safe and effective treatment options is crucial for the significant number of Americans affected by severe alopecia,” said Kendall Marcus, M.D., director of the Division of Dermatology and Dentistry in the FDA’s Center for Drug Evaluation and Research, via a press statement.

The efficacy and safety of Olumiant in alopecia areata was studied in two randomized, double-blind, placebo-controlled trials (Trial AA-1 and Trial AA-2) with patients who had at least 50 percent scalp hair loss (as measured by the Severity of Alopecia Tool) for more than six months. Patients in these trials received either a placebo, two milligrams of Olumiant or four milligrams of Olumiant per day. The primary measurement of efficacy for both trials was the proportion of patients who achieved at least 80 percent scalp hair coverage at week 36.

In Trial AA-1, 22 percent of the 184 patients who received two milligrams of Olumiant and 35 percent of the 281 patients who received four milligrams of Olumiant achieved adequate scalp hair coverage; compared to five percent of the 189 patients who received the placebo. In Trial AA-2, 17 percent of the 156 patients who received two milligrams of Olumiant and 32 percent of the 234 patients who received four milligrams of Olumiant achieved adequate scalp hair coverage; compared to just three percent of the 156 patients who received the placebo.

alopecia stat

Common side effects associated with the use of Olumiant included upper respiratory tract infections, headache, acne, high cholesterol, increase of an enzyme called creatinine phosphokinase, urinary tract infection, liver enzyme elevations, inflammation of hair follicles, fatigue, lower respiratory tract infections, nausea, genital yeast infections, anemia, low number of certain types of white blood cells, abdominal pain, shingles and weight increase.

Olumiant comes with other warnings, so patients should discuss their personalized care with their physician to determine if this new medication is an appropriate treatment option. Olumiant is also approved as a treatment for certain adult patients with active rheumatoid arthritis and, in certain hospitalized adults, the treatment of COVID-19.

Learn More 

The National Alopecia Areata Foundation (NAAF) supports research to find a cure and/or acceptable treatments for alopecia areata, plus supports those with the disease and educates the public about alopecia areata. For more information about alopecia areata, visit the organization’s website: naaf.org.

Here’s Why “Autistic Pride Day” is Something to Celebrate

Autistic Pride Day, a self-advocacy movement, is held annually on June 18th.

Within the disability community and beyond to the community-at-large, April is widely known as Autism Awareness Month. Plus, this timeframe includes World Autism Awareness Day, an internationally-recognized observance held annually on April 2. First held in 1972 by the Autism Society, the monthly-long focus has historically promoted the understanding of autism spectrum disorder.

About 1-in-44 children are identified as having autism spectrum disorder, according to estimates from CDC’s Autism and Developmental Disabilities Monitoring Network. Autism is a complex developmental condition caused by differences in the brain. While abilities vary greatly per person, people with autism may behave, communicate, interact and/or learn in ways that are different than others.

Autistic Pride Day, held annually on June 18, is a lesser-known observance (compared to the April observances). However, its significance is equal to (or perhaps even believed to be greater than) Autism Awareness Month and World Autism Awareness Day. That’s because it is driven by members of the autistic community. Read on to learn why…

image of puzzle pieces of a brain
credit: Brain Injury Association of America

Awareness vs. Acceptance

In 2021, 49 years after Autism Awareness Month originated, the Autism Society, along with leading disability organizations across the country, announced its decision to formally shift reference from “Autism Awareness Month” to “Autism Acceptance Month.” The terminology modification may not seem drastic to some, but there is an important distinction between awareness (i.e. knowledge of autism) and acceptance (i.e. favorably reception of people with autism).

Acceptance better emphasizes the need for inclusion for people of all abilities, with opportunities for education, employment, accessible housing, affordable health care and comprehensive long-term services.

“While we will always work to spread awareness, words matter as we strive for autistic individuals to live fully in all areas of life,” Christopher Banks, President and CEO of the Autism Society of America, said in a press statement announcing the terminology change-up. “As many individuals and families affected by autism know, acceptance is often one of the biggest barriers to finding and developing a strong support system.”

According to the Autism Society, other groups that have also shifted to using the more suitable term of acceptance include the Administration for Community Living, Association of University Centers on Disabilities, Autistic Women and Non-Binary Network, Easter Seals, First Place AZ, National Association of Councils on Developmental Disabilities (NACDD) and The Arc.

boy holding autism heart
credit: Shutterstock

What is Autistic Pride Day?

The terminology shift led by the Autism Society is, of course, overdue progress to celebrate. But, as it turns out, people with autism previously kick-started a similar positive shift within the disability community. In 2005, a group called the Aspies for Freedom established Autistic Pride Day to be held on June 18. This observance aims to heighten awareness about the value of people with autism. The effort is all about reframing the negative perception of needing to cure/treat a medical epidemic and, instead, appreciate the wonderfully unique and purposeful individuals who live with autism spectrum disorder.

When people with autism (or any difference) are confronted with unfortunate myths about their condition, they may naturally tend to feel less valid. But diversity, including neurodiversity, is not a problem; rather, an exceptional distinction to embrace. Yes, autism can create added hurdles; however, discrimination against those with the condition is unnecessary and, frankly, wrong.

Autistic Pride Day is a movement led by people with autism spectrum disorder advocating for themselves, versus organizations that spearhead efforts. According to numerous reports, June 18 was chosen because it was the birthday of the youngest member (at the time) of the Aspies for Freedom group. Somewhat modeled after the grassroots movement of Pride Month, in support of the LGBTQ+ community, the rainbow infinity icon that represents Autistic Pride Day symbolizes “diversity with infinite variations and infinite possibilities.” In fact, some believe that, just like the slow-moving advancement for LGBTQ+ issues, the same level of awareness and acceptance should and will eventually come for people with autism.

People with disabilities are the largest and most diverse minority within the population, representing all abilities, ages, races, ethnicities, religions and socio-economic backgrounds. Disability pride (and autism pride) is an integral part of movement building, and a direct challenge to systemic ableism and stigmatizing definitions of disability. However, a disability is not the only identity one has; of course, one may identify by gender, race, height and many other physical or emotional attributes. All of a person’s identities are important and have value.

Autistic Pride Day is a reminder that people with autism have always been and will continue to be an important, treasured part of our human society. People with autism can and should feel proud of themselves and promote that being different, and/or autistic, is absolutely OK!

Bruce Willis’ Wife Opens Up About Her Role as a Caregiver Following His Aphasia Diagnosis

With a successful television and film career that’s racked up nearly 150 acting credits, legendary entertainer Bruce Willis recently announced his retirement because of a health condition. The surprising news was delivered by his eldest daughter, Rumor Willis, via Instagram in late March 2022. The announcement read:

To Bruce’s amazing supporters, as a family we wanted to share that our beloved Bruce has been experiencing some health issues and has recently been diagnosed with aphasia, which is impacting his cognitive abilities. As a result of this and with much consideration Bruce is stepping away from the career that has meant so much to him.

This is a really challenging time for our family and we are so appreciative of your continued love, compassion and support. We are moving through this as a strong family unit, and wanted to bring his fans in because we know how much he means to you, as you do to him.

As Bruce always says, “Live it up” and together we plan to do just that.

Love,

Emma, Demi, Rumer, Scout, Tallulah, Mabel, & Evelyn

Bruce shares two daughters, Mabel and Evelyn, with his wife, Emma Heming Willis. The 67-year-old was previously married to Demi Moore; and they share three daughters, Rumer, Scout and Tallulah.

Bruce Willis earned fame with his Die Hard film franchise.
Bruce Willis earned fame with his “Die Hard” film franchise.

What is Aphasia?

According to the National Aphasia Association, aphasia is an impairment of language, affecting the production or comprehension of speech and the ability to read or write. Aphasia is almost always due to injury to the brain ─ most commonly from a stroke, particularly in older individuals. But brain injuries resulting in aphasia may also arise from head trauma, from brain tumors or from infections.

Neither Bruce nor his family disclosed the cause of his aphasia. Regardless, one could only assume that this communication-specific diagnosis came as a devastating blow, especially impacting his passion for work that requires reading, memorization and speech. Bruce also released a handful of music albums and contributed to various soundtracks. Three of his catchy singles earned rankings on the Billboard Hot 100 chart, including one that cracked the top 10.

Adjusting to a new normal within the disability community can be, of course, challenging for the individual that receives the diagnosis. Additionally, the transition can be complicated for their loved ones and caregivers, too.

Caring for Someone with Aphasia

The ability to communicate is something many take for granted. So when a loved one loses the ability to verbally express themselves, caring for him/her can be confusing, frustrating and emotionally taxing. Caregiving, in general, can be overwhelming at times; yet, rewarding at times too. That’s why it’s important that caregivers not neglect their own needs (and wants) to solely accommodate their loved one with aphasia or other disability.

Married to Bruce since 2009, Emma is already sharing her honest experience about the strain of caregiving. “I put my family’s needs above my own, which I found does not make me any kind of hero,” she said during an interview with The Bump. “That amount of care for everyone else within my household had taken a toll on my mental health and overall health. And it served no one in my family.”

Caregiver burnout can be a real struggle. And it can ignite a trickle effect of consequences. Thankfully, it appears that Emma has quickly recognized her present struggle and has received much-needed support early on in her caregiving journey. She understands that neglecting herself — to put her husband’s care ahead of her own — isn’t going to work long-term.

image of brain waves
credit: Shutterstock

“Someone told me not long ago that when you over-care for someone, you end up under-caring for yourself,” the 43-year-old mother and model shared via her Instagram page in early June; adding, “When you put everyone’s needs above your own, no one wins. I don’t do this perfectly but I really am trying so I can be the best I can be for the people I love and adore.”

And isn’t that all any of us can be… the best we can be?! And, caregivers don’t need to do it alone. Support groups and services are available. Plus, love is powerful and caregiving can be an enjoyable experience.

Emma emphasizes that exercise, a common outlet among caregivers, is very beneficial to her wellbeing. A study published by the National Library of Medicine states that exercise improves mental health by reducing anxiety, depression and negative mood and by improving self-esteem and cognitive function. Furthermore, mental health professionals attest that patients who engage in regular exercise experience improved sleep, increased interest in sex, better endurance, stress relief, improvement in mood, increased energy and stamina, reduced tiredness that can increase mental alertness, weight reduction, and reduced cholesterol and improved cardiovascular fitness.

A Caregiver’s Right to Self-Care

The National Aphasia Association promotes its “Caregiver’s Bill of Rights.” These statements remind caregivers that caring for one’s self should remain a priority (and guilt-free). The Caregiver’s Bill of Rights reads:

  • I have the right to take care of myself. This is not an act of selfishness. It will give me the ability to take better care of my loved one.
  • I have the right to seek help from others even though my loved one may object. I recognize the limits of my own endurance and strength.
  • I have the right to maintain facets of my own life that do not include the person I care for just as I would if he or she were healthy. I know that I do everything that I reasonably can do for this person and I have the right to do some things just for myself.
  • I have the right to get angry, be depressed, and express difficult feelings occasionally.
  • I have the right to reject any attempt by my loved one (either conscious or unconscious) to manipulate me through guilt or anger.
  • I have the right to receive consideration, affection, forgiveness, and acceptance for what I do for my loved one as I offer these attributes in return.
  • I have the right to take pride in what I am accomplishing and to applaud the courage it has taken to meet the needs of my loved one.
  • I have the right to protect my individuality and my right to make a life for myself that will sustain me in times when my loved one no longer needs my full-time help.
  • I have the right to expect and demand that as new strides are made in finding resources to aid physically and mentally impaired persons in our country, similar strides will be made toward aiding and supporting caregivers.

couple holding hands

Retired, But With More to Come

In a 2001 biography, “Bruce Willis: Overcoming Adversity,” by Sandy Asirvatham, Bruce shared that he stuttered during his childhood years and worked with a speech therapist. Interested in acting, a then young Bruce gravitated toward comedy to distract people from his stutter. However, he went on to be successful in many genres.

Bruce’s latest film, titled White Elephant, was recently released in early June 2022. And he also has several projects now in post-production, including Paradise City, Wire Room, Wrong Place and Die Like Lovers, according to IMDB.

For similar content by AmeriDisability, read the following articles:

New “Breakthrough Device” Providing Effective Relief for Acute Treatment of Migraines

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If you suffer from debilitating headaches and/or migraines, you’re not alone. In fact, migraine is a leading cause of disability. Yet, currently available acute migraine drugs or devices typically only provide complete relief about 1/3 of the time. Clearly, there is much room (and need) for improvement.

Current options can also have side effects or otherwise be unpleasant to use – often resulting in patient dissatisfaction and poor patient compliance in using their prescribed therapies. Furthermore,  studies have also shown that non-chronic migraine patients who do not effectively treat their migraines are more likely to progress to become chronic.

With numerous migraine therapy options on the market, when someone says they have a breakthrough alternative, many weary patients may tend to feel doubtful and question the chances. Except, of course, when the word “breakthrough” is associated with a special designation by the FDA. This offers legitimacy and, most importantly, offers hope.

What is the Breakthrough Device for Migraines?

Nocira is an Arizona-based, pre-market medical device company committed to developing safe and rapidly effective, drug-free treatments for migraine headaches and other neurological disorders. The company recently announced, in April 2022, its latest cutting-edge device. This device uses gentle, controlled puffs of air in the ears (called “Automated Variable Pulse Insufflation™” or “AVPI”); and it was officially designated by the FDA as a “Breakthrough Device” for the acute treatment of migraine by patients 18 years or older.

The Breakthrough Device program aims to provide patients and health care providers with timely access to more effective medical devices by speeding up their development, assessment and review process for FDA clearance or approval.

Only two other prior Breakthrough Device designations have been announced specifically for migraine. However, both were limited to only preventative use, and for only “chronic” migraine patients (at least 15 headache days per month). Nocira now becomes the first company to announce the FDA breakthrough designation for a device that is used: (a) to acutely treat migraine attacks when they occur; and (b) by all (both chronic and non-chronic or “episodic”) adult migraine patients. This breakthrough has the potential to help a significant amount of people who suffer from debilitating migraines!

“In granting this Breakthrough Device designation, the FDA was required to determine that the clinical data supporting the Nocira device provides a reasonable expectation for a more effective treatment versus other available therapies for acutely treating migraine attacks,” says Melissa Walker, MS RAC FRAPS, Nocira’s VP of Regulatory, Quality and Clinical Affairs.

image of brain waves
credit: Shutterstock

The Clinical Data

Nocira’s Breakthrough Device designation was supported by peer-reviewed, published clinical data from a 59 patient, randomized, placebo or “sham”-controlled study. In only 20 minutes from using Nocira’s device, headache relief rates were already very high (Nocira treatment vs. sham treatment):

  • 60% vs. 7% had complete freedom from headache pain; and
  • 90% vs. 31% had “significant” headache pain relief (at least 50% pain reduction).

Headache relief rates at only 2 hours from starting treatment were even higher:

  • 67% vs. 7% had complete freedom from headache pain; and
  • 93% vs. 31% had significant headache pain relief.

These successful patient outcomes were also about 20-47% higher than published relief rates from other trials for other currently available drugs and devices.

Complete freedom from other primary migraine symptoms (i.e., nausea, light sensitivity, and sound sensitivity) was also rapidly achieved for most migraine attacks treated with the Nocira device. High relief rates were also observed in both chronic and episodic migraine patients, and for migraines that were either with or without “aura” (certain visual disturbances). No significant safety issues were reported, and >90% of study participants reported a comfortable experience with the Nocira AVPI migraine treatment.

According to Stewart Tepper MD, Neurology Professor and Headache Center Director at Dartmouth and an advisor to Nocira, “From my perspective as a headache specialist, and based on my understanding of the Nocira device and its published clinical data, it seems appropriate and no surprise that this precedential Breakthrough Device designation was granted by the FDA for using the Nocira device to acutely treat migraine.”

Accelerated Plans for the Migraine Breakthrough Device

According to Melissa Malker, “The breakthrough designation provides for a more interactively efficient and prioritized FDA pre-market review and approval process.”

“Nocira is deeply appreciative of the FDA for its timely review and precedential recognition of our novel AVPI platform as a Breakthrough Device for acute treatment of migraine,” says Jim Peacock, Nocira CEO. “This will clearly help us expedite the next remaining steps ahead for regulatory and commercialization pathways for making this disruptive new Nocira device available to tens of millions of migraine sufferers in the future.”

Nocira is continuing more advanced clinical development and evaluations and plans to submit for FDA pre-market review and authorization within the year.

What provides the most effective migraine relief for you and/or your loved ones? Share with AmeriDisability on Facebook and Twitter!

30 Accessible Beach Essentials for Beach-Goers of All Abilities

Heading to the beach? To ensure that packing for the sand and surf is as stress-free as possible, AmeriDisability has compiled a list of accessible beach gear. We know these summer essentials will help maximize fun in the sun for you and fellow beach-goers of all abilities.

  1. Adaptive Kayak

Water enthusiasts of all abilities can dive right into sporting adventures this spring and summer. Freedom Kayaks was founded with a mission to provide more people with 100% independence on the water. And they just so happen to sell adaptive kayaks that help make it possible. The ticket price of this beach gear is a bit lofty, but the experience is priceless!

$3,000 | Freedom Kayaks

accessible kayak
Accessible kayak by Freedom Kayak
  1. Disability-Friendly Beach Towels

Sammi Haney’s DisabilityShirts.com is an online retailer featuring apparel and many other products that celebrate the disability community. Does the name sound familiar? Well, you may have seen Sammi, who was born with osteogenesis imperfecta type III (also known as brittle bone disease), portray the role of Esperanza Jimenez on Netflix’s original series Raising Dion, which is produced by Michael B. Jordan. Inspired by his sassy little girl, Sammi’s dad, Matt Haney, designs their fun and diverse product line. Check out the many beach towel designs featuring positive disability-themed messaging.

$35 | DisabilityShirts.com

Love towel with L using handicapped symbol
Towels by Sammi Haney’s DisabilityShirts.com
  1. Ear Band Swimming Headband

Standard ear plugs can feel awkward, especially for those with sensory sensitivities. This comfortable headband by Mack’s helps prevent swimmer’s ear; and is especially recommended for those with ear tubes or ear drum perforations. The headband is two-color reversible and adjustable.

$5.99 | Walgreens

ear band
Ear Band | source: Walgreens.com
  1. Fishing Pole Holder

Avid anglers will be hooked by this accessible beach essential. Made by Maddak, this adaptive fishing pole holder is the “reel” deal! The movable attachment can be adjusted to fit various chair bars.

$56.95 | Mobility-Aids.com

Accessible Fishing Pole Holder
Accessible fishing pole holder | source: Mobility Aids
  1. Hand In Mug

Hydration is essential while basking in the warm beach sun. The Rehabilitation Advantage Store designed this adaptive drinking cup with individuals with disabilities in mind, such as those who struggle with arthritis, tremors, spasticity and limited hand control. The 16-ounce, dishwasher-safe container features a center hand slot for easier gripping.

$22.50 | Amazon.com

accessible drinking cup
Accessible cup | source: Amazon
  1. Hydrating Mineral Sunscreen

According to the National Eczema Association (NEA), people living with eczema are even more vulnerable to the sun’s damaging rays and have more challenges finding sunscreen products that work for their skin. A number of sunscreens have earned the NEA’s Seal of Acceptance, such as Hydrating Mineral Sunscreen SPF 50 Body Lotion.

$15 | Target

CeraVe sunscreen
source: Target
  1. Insulated Medication Bag

Ideal for insulin users or anyone who needs to keep medication temperature-controlled, this small insulated bag comes with two ice packs. And it’s durable and water-resistant too.

$17.98 | Amazon.com

insulated medicine bag
source: Amazon
  1. Lotion Applicator

As your lather on the sunscreen, this long-handled applicator will help cover your back, legs, feet and other hard-to-reach areas of the body. It comes with four replacement pads so you can enjoy beach season to the fullest.

$9.99 | Amazon.com

accessible lotion applicator
source: Amazon
  1. Memory Foam Wheelchair Cushion

The Everlasting Comfort Gel Infused Memory Foam Cushion is ventilated with strategically placed holes to allow for airflow. It uses heat-responsive technology to form to the body and provide ideal support.

$46.95 | Amazon.com

ventilated wheelchair seat cushion
Ventilated wheelchair seat cushion | source: Amazon
  1. Mess Bags

If you love shelling, be sure to get this 3-pack set, featuring blue, yellow and orange shell collection bags. Thanks to its mesh material, shaking off or rinsing off sand and salt water is a breeze.

$13.98 | Amazon.com

mesh beach bag for shelling
Mesh beach bag for shelling | source: Amazon
  1. Motorized Beach Wagon

Beach gear – accessible or otherwise – can be tricky to transport. To add a bit of ease, the Sandhopper is a heavy-duty, self-propelled wagon. Battery-operated with the help of a thumb switch, wagon-users can control speed and direction.

$1,995 and up | MySandHopper.com

sandhopper motorized beach wagon
Sandhopper motorized beach wagon
  1. Hands-Free Necklace Fan

Prepare to beat the summer heat with the O2COOL® Deluxe Necklace Fan. This lightweight, hands-free accessory has a vertical air vent to allow for optimal cooling to the face and upper body. It’s battery-powered to last roughly 12 hours.

$9.99 | Bed Bath & Beyond

hands-free fan
Hands-free fan | source: Bed Bath & Beyond
  1. Prescription Goggles

Swimmers with vision issues may benefit from a pair of prescription swim goggles. This accessible beach gear can come either with pre-made step diopter prescription lenses or custom-made lenses with one’s personalized prescription.

Prices vary | SportEyes.com

Prescription goggles
Prescription goggles | source: Sport Eyes
  1. Sand & Water Fine Motor Toy Set

This fun beach toy set will help strengthen fine and gross motor skills through play! Discover four new ways to learn in the sand and surf with your little beach babes. The set includes a squeezy bottle, spinner, wavy dropper and scooper, all designed for fun and functionality.

$15 | SpecialNeedsToys.com

sensory sand toys
Sensory-friendly beach toys | source: Special Needs Toys
  1. Scoppi Beach Shovel

This is far from a standard flimsy beach shovel. The Scoppi Shovel is designed to allow bare feet to comfortably step down on the curved footrest to dig. The shovel’s wide-body design makes it easier for diggers to keep their balance. It also has a pull-out sifting tray to inspire sand and shell play.

$26.95 | FatBrainToys.com

Scoppi Shovel
Scoppi Shovel | source: Fat Brain Toys
  1. Shell Scooper

The accessible Sand Dipper allows for beach-goers of all abilities to hunt for shoreline treasures. Thanks to its adjustable handle, conch shells, shark teeth and all sorts of beach finds are within reach.

$32.99 | Amazon.com

Shell scooper
Shell scooper / sand dipper | source: Amazon
  1. Soft Pouch Bottle Holder

This soft cup holder easily attaches using a Velcro closure on wheelchairs to hold drink containers. But users call it the “everything pocket” because it can also hold keys, sunglasses or any other small beach essential.

$14.99 | Amazon.com

soft pouch
Soft pouch/cup holder | source: Amazon
  1. Snap Sunglasses

Because ADHD can affect one’s ability to focus or remain attentive, people with ADHD often misplace belongings, like car keys, cell phones and sunglasses. With just a quick and easy snap of these SunSnap glasses onto your arm, you won’t have to worry about losing your beach shades!

$17.99 and up | SunSnapKids.com

SunSnap glasses
SunSnap Glasses
  1. Swim Vest or Puddle Jumper

Fun in the sun is the goal but, of course, safety precautions should always be prioritized. Be sure to outfit yourself and/or loved ones in properly-sized child or adult life vests if needed. The Stearns Life Vest, available in several designs, has a cleverly positioned back zipper and buckle closure, paired with a hybrid rash guard.

$39.99 | SwimOutfit.com

Accessible life vest
Accessible Life Vest | source: Swim Outlet
  1. UPF 50+ Sun Protection Hat

A part of the Masumi Headwear, a collection made for people with hair loss, the Rosabella design is a beautiful must-have for any spring/summer wardrobe. Ideal for beachgoers with hair loss due to cancer, chemotherapy, alopecia and other types of medical conditions, this hat’s shape provides sun protection, without seams so skin isn’t irritated. It has beautiful, breathable fabric and a hidden elastic strap.

$45 | Masumiheadwear.com

Rosabella Taupe Chemo Hat with UPF 50+ SUN PROTECTION
Rosabella Taupe Chemo Hat with UPF 50+ SUN PROTECTION
  1. Waterproof Phone Holder

Capture every picture-perfect moment of your beach day by using a waterproof phone holder. Whether you’re snapping a selfie in front of the sunset or clicking away while the kiddos play, you can make a splash with lasting memories.

$9.99 | Amazon.com

waterproof mobile holder
waterproof mobile holder | source: Amazon
  1. Water-Resistant Speaker

While the sound of crashing waves may be music to your ears, a small, water-resistant speaker is a handy beach item. Whether you want to listen to therapeutic tunes, an informative podcast or an entertaining book on tape, the JBL Bluetooth speaker easily clips onto bags or bars.

$39.95 | Amazon.com

waterproof speaker
source: Amazon
  1. WaterWheels® Floating Beach Wheelchair

Beach enthusiasts looking to invest in their favorite pastime will love the accessible WaterWheels. This floating beach wheelchair allows access from dry land directly into the water, whether it’s at the beach, lake, waterpark or pool. It can support up to 250 pounds and has three seat positions (one to transition the user to the chair and two comfy reclining positions).

$2,075 | Marine-Rescue.com

WaterWheels
WaterWheels
  1. Wearable Microfiber Towel

The GoGo is a quick-drying, microfiber towel. It can open fully (like a typical flat towel), be draped over a person with easy Velcro closures or be transformed into a cozy wearable garment. Available in different styles and sizes.

$39.95 | Amazon.com

GoGo Towel
GoGo Towel | source: Amazon
  1. WheelAir System

WheelAir offers temperature control products designed to fit wheelchairs. The line includes an array of choices, like a cushion cover, backrests, lumbar support and more.

Prices vary | WheelAir.co.uk

WheelAir
WheelAir System
  1. Wheelchair Bag

The vibrant hues of this bag design are perfect for a bright beach day. This wheelchair-friendly bag is water-resistant and offers ample storage for larger items like water bottles, books, a small oxygen tank, a towel and other accessible beach gear. Plus it has several smaller pockets and an adjustable strap. And you can also order a matching wheelchair armrest pouch.

wheelchair bag
Wheelchair bag | source: Amazon

$29.97 | Amazon.com

  1. Wheeleez™ All-Terrain

Wheeleez™ is a beach wheelchair conversion kit. That means a wheelchair user can convert a basic wheelchair into a beach-ready wheelchair. Kits are available in three different wheel sizes.

$303 and up | Wheeleez.com

Wheeleez
Wheeleez
  1. Wheelchair Seat Belt

The terrain at the beach can create a bit of a bumpy ride. But this soft, T-shaped restraint belt, by Kavil, can help provide added safety for wheelchair users.

$23.99 | Amazon.com

wheelchair seat belt
wheelchair seat belt | source: Amazon
  1. Wheelchair/Scooter Umbrella

If lugging a cumbersome tent or umbrella is too inconvenient, this outdoor umbrella by Yobee may be a suitable alternative. Ideal for personal use, a beach-goer using a wheelchair or scooter can stay shielded from the direct sunlight. It has an adjustable stem to custom height and positioning.

$13.99 | Amazon.com

wheelchair umbrella
wheelchair umbrella | source: Amazon
  1. Zappos Adaptive Sandals

Zappos adaptive footwear collection features tons of beach-friendly, easy-on, easy-off sandal options. A classic slip-on could work well for some but, for those who prefer added support, the UGG Sport Yeah features a removable heel strap. This adaptive shoe is available in various colors and sizes.

$59.95 | Zappos.com

Zappos adaptive shoes
Zappos adaptive shoes

You may also want to pack:

  • Baby power
  • Book
  • Beach blanket
  • Chairs
  • Cooler
  • Dry clothes
  • Fins & snorkel
  • Flotation devices
  • Food and drinks
  • Handicapped parking permit, if applicable
  • Hand sanitizer or hand-wipes
  • Lip balm
  • Medications, if applicable
  • Money (for parking, refreshments, etc.)
  • Wet bag

Looking for adaptive swimwear? Click over to “20 Adaptive Swimwear Must-Haves to Dive into the Sand & Surf.”

Toyota Sienna Now Available with ADA-Compliant Autonomous Driving Technology

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Advancements in accessible travel and ADA-compliant vehicles are underway…

May Mobility, a leader in autonomous vehicle (AV) technology and ride-share operations, is putting accessibility at the forefront. May Mobility is partnering with BraunAbility, the world’s leading manufacturer of mobility transportation solutions, to modify the May Mobility Toyota Sienna Autono-MaaS (S-AM) fleet to include ADA-compliant vehicles.

This is part of May Mobility’s broader vision of improving accessibility and equity in transit through autonomous driving technology. The company is also integrating assistive technology within the vehicle cabin through speakers and a display to help people with audio and/or visual impairments see and hear when it is safe to enter and exit the vehicle.

“Ensuring that autonomous vehicles are developed in a way that advances transportation equity goals is a key pillar for May Mobility,” said Erin McCurry, product manager and accessibility lead at May Mobility. “In the U.S., 3.6 million people do not leave their homes because of travel-limiting disabilities. As we transition our fleet to the Sienna Autono-MaaS platform, we are working towards a future where everyone has access to safe, reliable transportation.”

The partnership with BraunAbility will produce an ADA-compliant, rear-entry conversion of May Mobility’s S-AM vehicles. The vehicles will be able to carry two ambulatory (non-wheelchair users) riders along with a rider using a wheelchair, or four ambulatory riders.

5c2006cd1141058ba4ff7c67_shutterstock_483532543

“Our founder, Ralph Braun, began engineering the very first automotive mobility solutions over 50 years ago,” stated BraunAbility CEO Staci Kroon. “Just like the evolution of automotive mobility, autonomous travel for wheelchair users is a journey of evolving technology. BraunAbility and May Mobility begin that new evolution together, and our solutions will be accessible to every wheelchair user.”

In addition to providing accessibility features for riders using mobility devices, May Mobility will also enhance the Sienna’s interior with audio and visual cues to inform riders of key journey moments, such as arriving at a stop, doors opening and closing, and departure.

Designing for people with disabilities makes the entire product easier to use for everyone. We’re excited to launch these assistive technology features in every single new vehicle,” said McCurry.

The first modified S-AM vehicles will be phased in at all existing May Mobility sites in 2022. The partnership between May Mobility and BraunAbility lays the groundwork for further development and deployment of ADA-compliant vehicles and technologies in the future.

S-AM is Toyota’s autonomous-mobility as a service (Autono-MaaS) vehicle based on the Sienna that is being utilized for May Mobility’s public road testing. It features Toyota’s highly adaptable Vehicle Control Interface (VCI), that enables seamless technology integration with May Mobility’s autonomous driving kit (ADK) for robust operation of key vehicle control systems, such as steering, brakes and acceleration.

Are you interested in this type of vehicle? Share with AmeriDisability on Facebook, Twitter, Instagram and LinkedIn.